chronicals-of-chronic

[chronicals-of-chronic]

Ruprecht von Kaufmann

[chronicals-of-chronic]

In another life,

I'd reach out

And eat the plasma of the stars.

[chronicals-of-chronic]

not very new hyperfixation rediscovered write a poem abt it

edit: made another one :D

[chronicals-of-chronic]

Nobody talks about the constant battle between realization and delusional when It comes to wanting to do something you love, something you have passion for but your too sick to pursue, and then good days hit and for a moment you think your cured, that maybe it isn't impossible only to quickly realize that's all it was, a fleeting moment.

[chronicals-of-chronic]

[chronicals-of-chronic]

does anyone know how to stop the body from keeping score? i have shit to do

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i really wish that ehlers-danlos syndrome wasn't basically just thought of as the "bendy" disorder. firstly, there are more than 13 types of eds, and they all have varying relations to and degrees of hypermobility. secondly, eds are a collection of congenital connective tissue disorders - connective tissue makes up a vast majority of your body and, because of this, eds, hsd, and other congenital connective tissue disorders like loey-dietz, marfans, stickler syndrome, and osteogenesis imperfecta are multi systemic.

having eds or another connective tissue disorder is SO much more than just some flexibility and it's especially frustrated that they're often thought of solely in relation to that one aspect of them because it leads a lot of people down the path of misdiagnosis.

as an advocate and educator regarding ctds and especially eds, i have spoken to SO many people who simply wrote the possibility of them having a ctd like ehlers-danlos off simply because they aren't flexible. it's such a dangerous misconception and really frustrating to see especially given the fact that the muscles of hypermobile people often overcompensate to make up for joint laxity, which can actually lead to a lack of flexibility/high tone/spasticity

so yeah, tl;dr: if you have a bunch of multisystemic symptoms that seem largely unconnected, look into connective tissue disorders. they're much more common than people think, frequently go under the radar, and can really wreck havoc on your body - ESPECIALLY when you aren't aware that you have one

[chronicals-of-chronic]

Living with chronic pain.

[chronicals-of-chronic]

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the wrist. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]

Happy EDS awareness month.

[chronicals-of-chronic]

[chronicals-of-chronic]

no offense but there is almost nothing in the world more shameful to me than letting your child be an ipad baby. I'm not saying parents don't have it hard, but I personally could not live with myself if I purposefully let my child get addicted to the technological equivalent of black tar heroin just because I'm too fucking tired to parent. literacy rates are at a record low right now -- partially because schools removed phonics from their curricula, yes, but also because fewer and fewer parents read to their children or encourage them to pick up a fucking book. you are allowing your child to emotionally and intellectually stunt themselves, and for what? I'm not saying kids shouldn't have any access to television or computers (they should, although particularly for computers I'd encourage one stationary PC in a computer room like we had in the 90's and 2000's), but no, your child should not have unsupervised, unlimited, unadulterated access to everything the web has to offer at the tender age of 6. or give them some age appropriate video games for god's sake. mario or spyro or SOMETHING. something other than tiktok and youtube. call me crazy for thinking that that's shit parenting. not to mention that by only giving them access to ipads and iphones that they don't know how to work actual computers anymore (go on, ask your 12 year old to open and save a file folder on your desktop, I dare you). a generation of shitty parents who have raised emotionally stunted low-attention-span illiterate incurious apathetic children who will very soon become an entire generation of illiterate incurious apathetic voters and consumers. that's another thing, too -- your children are constantly being advertised to and are being groomed to be relentless and uncritical consumers. your children are being preyed upon on multiple levels and you don't fucking care!! easier to call people giving you warnings "prudes" and "boomers" than actually think critically about your child and their future.

look I know parenting is hard. Unfortunately for you, your child didn't ask to be born, and it is nonetheless YOUR responsibility to raise them well and give them every fucking opportunity you can. and I am watching millions and millions of parents who could not give less of a fuck that they are actually materially disadvantaging their own children. im sick to my stomach for real.

[chronicals-of-chronic]

Separation, W. S. Merwin

[chronicals-of-chronic]

"Why do I feel sick" my brother in christ you have a chronic illness

[chronicals-of-chronic]

me and life just keeps on getting uglier

[chronicals-of-chronic]

Anthem, Leonard Cohen

[chronicals-of-chronic]

This universe is too big to cradle yourself into a small insignificant star.

[chronicals-of-chronic]

I go quiet when I'm upset,

I take the pen placed between the pink grooves of my brain and write neatly on the lines of inside my skull.

I dare not to open my mouth when I get asked what's wrong

Because I know that the black ink letters will cramp together up my throat

splashing us both.