#Autoimmune Recovery

[athomewithmrse]

A Healing Diet for Intolerances and Autoimmune Recovery

Simple foods to calm inflammation, rebuild your gut, and restore your energy If you’ve already hit the wall — food intolerances, fatigue, brain fog, skin flares, or an autoimmune diagnosis — it can feel overwhelming to know where to start. The good news? You don’t need fancy supplements, extreme diets, or endless restrictions. You just need to return to what your body knows: gentle, whole,…

[creepincrawl]

IVIG treatment has been life changing for my autoimmune disease so far, I wanted to give a bit of an update!

Thank you to all who have supported me financially and emotionally through this!

[crimeronan]

i've realized this cleaning/organizing bug is definitely hypomania, but it's doing really lovely things for me & i'm super emotionally stable, so i will be continuing to indulge it for as long as i can.

behold the fruits of my hypomanic morning:

2 days ago the walls were blank, there were no containers, there were over 35 more pill bottles scattered atop the table, and the surface itself was dusty enough for you to pick up long strips of gray fluff with your fingertips.

i spend most of my time in bed so this quality of life improvement Cannot Be Understated. Oh My God. Look At My Beautiful Beautiful Beautiful Space......

[glendasguidance]

🕸️🌱✨🪷🌒🌕🌘🪷✨🌱🕸️

1st month of the Ace of Zines tier rewards: issue #1 of Reflections and Explorations

a zine series of my spiritual journey, and the things I’m learning along the way

Issue #1 is about an autoimmune disease and other Bad Things stealing my life from me, and my decision to fight for it back

get this zine by joining my new Patreon community! ↓ 💞✨💌📬📮

🕸️🌱✨🪷🌒🌕🌘🪷✨🌱🕸️

[slightlybritish]

it’s kind of fucked up that trauma makes your immune system sometimes stop working

like what the fuck man

[yourgamemasterthewhiterabbit]

Ig it was closer to 7 years ago? 8 years ago? if I check the actual timeline.

They were like oh shit it looks like you have graves disease really bad we gotta run all these tests, you could die!... For symptoms I had been having on and off since my 20's and telling them about only to be ignored.

Then they were like, no haha it's just the first stages of your immune system tearing your thyroid to shreds and letting it spill all the hormone at once. At this rate there's no need to remove your thyroid because it will die completely within 5 months and fully atrophy.

Are we going to try to stop my immune system from doing that?

No. haha.

What happens when my thyroid dies?

Oh you'll need to be on hormones for life or you'll slowly get so hyperthyroid you can slip into a coma and not wake up. haha, but it's like having and managing diabetes, people live full lives with it.

I'm having severe cardiac symptoms and etc from the obscene thyroid levels, and am unable to sleep for up to 72 hours at a time, can we check back in before 5 months? Maybe do something about the heart symptoms that isn't just knocking me unconscious for 3 days at a time with this blood pressure medication since my blood pressure is still somehow dropping to 60/45 despite the high adrenaline and cortisol and thyroid levels? [my resting heart rate was 120 at the time]

No haha, not necessary, prommy :)

So I took that for the news it was. Within 5 months my continued survival depended on the whims of whether someone would want to give me my meds or not, someone who probably didn't fully understand the severity of the issue, and like many people who rely on insulin, I could be killed by medical neglect at any time. I only had 5 months to live for sure and those 5 months were going to be hell.

I kept having the grave's disease-like symptoms until I figured out on my own to restrict b vitamins and iodine... Off the back of them telling me to slat load for the low blood pressure WITHOUT telling me to avoid iodized salt...

I tried to tell them this had been happening on and off since my early 20's, they told me that "wasn't possible" and "doesn't happen"...

I had one hope and it was that I was right and this had been happening on and off since my 20's and getting better in between.

5 months went by.

Your thyroid is doing fine actually :)

You said it was being torn to shreds. You said I had 5 months.

Yeah but it's fine and your levels are too.

Because I haven't eaten a food with iodine since 5 months ago other then a splash of cream in the morning and have stopped having b vitamins, but my neurologist says I really should be taking extra b vitamins, so just avoiding them in all foods to avoid going hyperthyroid isn't sustainable, so can we maybe entertain removing part of my thyroid so I can have some b vitamins in my diet and don't have to keep myself on the very edge of developing goiter to function?

No. haha. If your immune system keeps attacking your thyroid, it'll just die. You'll notice the symptoms and we'll put you on hormones. If it doesn't keep attacking your thyroid, you'll be fine :)

7+ years and my thyroid just keeps healing itself and taking beatings from my immune system so I have to live on the very edge of having goiter so I don't develop the symptoms of advanced grave's disease at any given time. ... And I had been living that way untreated for gods know how long because the hyperthyroid phases kept getting "diagnosed" as "maybe some kind of mania?" by doctors who don't seem to know what mania even -is- since my teens.

[hint: people who are manic or manic depressive don't generally -stay- manic for 2-6 months at a time without crashing, and aren't as psychologically stable as I was about it all, I was going hyperthyroid periodically and they were brushing it off as a mental health issue, which they also weren't treating because the treatments didn't help... because I wasn't 'manic' I was being flooded with adrenaline, cortisol and unregulated thyroid hormone, and it was getting slightly worse every time]

They have it diagnosed as "hashimotos thyroiditis" because -by mechanism, if not result- that's what it is. I haven't heard of anyone else that doesn't progress to the hypothyroid stage of that and stays stuck in the initial storm of thyroid hormones... But here we are. Hyperthyroid at all times because of *checks notes* aggressively recovering from the hypothyroid disorder, while it's still happening, in perpetuity. [there are two forces inside me]

They effectively gave my 5 months to live independent from care and that was when I was in my mid-late 20's. I am about to be 37.

Every time they catch a level of something actually acting up they go "holy shit more tests that organ seems to be dying!!!" And then when it doesn't and I get better they grasp for an explanation that doesn't -require- they do anything about it, like "you must just have gilbert's, haha" or blaming my personal habits for causing a 'temporary problem'.

I'm like the guy with the liver and the eagle, but the eagle is my immune system and all my tissues take turns.

Did I steal fire from the gods?

The pattern is that my immune system seems to just take turns attacking every system and tissue I have, and in doing so gives each a break long enough to heal in between. But it also means I have this rotating roster of autoimmune symptoms that's ever changing and an ever changing "hey I might qualify as having a kidney disorder this week and I won't know unless I do something to upset it" cycle of trying to figure out what tissue or organ needs my support the most at any given time.

Mostly it means doctors won't believe me, because the symptoms and tests results that were there even two weeks ago are gone now. And when they do believe me, how do you even treat that? Suppress my immune system when doing so will cause 1 of nine specific viruses to re-activate if it's already in my body and near immediately kill me?

I haven't met a doctor willing to acknowledge the genetic lack of proper immune response I have to specific viruses and offer to put me on an anti-viral -like other people with that condition are- at the same time as the immune suppressant. So I won't take the immune suppressant because I don't want to die suddenly and horribly of meningitis or encephalitis the way my mother almost did the moment covid crashed her immune response.

So I just live with it. Legitimately getting very dangerously sick with one autoimmune condition or organ failure problem after another and then bouncing back.

No fucking -clue- what this is doing to the cell lines in my body. Super curious really.

I know the perpetually high bilirubin plays some role in protecting me from aging, tumors and damage because it's an antioxidant. So there's that?

That's kind of why I'm not worried. This has been my reality since my 20s and beyond, and it hasn't killed me yet. Also no doctor has managed to do something useful about it yet other than run tests and give me the results. When they do find something concerning they always end up coming to the conclusion that their best course of action is to do nothing anyway. Especially since the fast metabolism and an additional mutation that makes me process some meds super fast and some super slow makes it kind of challenging to medicate me for anything at all.

[detentiontrack]

When I was 10/11 I had strep throat basically every single day for 2 years because the bacteria lived in my tonsils so I kept getting reinfected every time the antibiotic course ended (I was also on high dose antibiotics every day for around 3 years but that’s another story) and when my tonsils were removed, the very experienced ENT told me that they were hands down the worst tonsils she had ever seen in her life. She described them as “swiss cheese” with craters and holes. My biggest regret in life is that I was never able to keep my tonsils after removal because they had to be sent to a lab. Imagine if I could have kept them in a jar and used them as room decor????

[embracingwild]

How’s ED recovery and/or research life treating you? (No pressure to answer!!!)

recovery is fine with the exception of navigating a lot of restrictions due to two health conditions i was diagnosed with in the last year

research life is also fine! struggling with recruitment for one of my studies, if people have access to a large following and are willing to spread information let me know lol

[pochapal]

went to the hospital again and the doctors said they basically have no clue what's wrong with me. my health is an unsolvable mystery now and forever.

[goodlucksnez]

Very personal/ sensitive post

Cw/TW mentions of surgery, panic attacks and other medical conditions

I am going to be very personal in this post. I am going to talk about what I have coming up and I do not think I should brush it off saying it is not a big deal becuase it is.

In February (the 8th) I am going to have open heart surgery. With this procedure there is a 83% success rate, but with my case the cardiologist is thinking more like 79%. I have both an autoimmune disease and anemia, which are not great when you cut someone open to fix a heart.

I know I’m going to be a more sensitive and emotional during the recovery time, so I apologize if I whine or complain-I think it is natural to be sensitive during that.

My mental state will most likely fluctuate as well so again I am going to apologize in advance!

Does anyone have any recommendations about what to watch in recovery, anime, shows, etc.

[jenniesworldca]

Feeling out of it today

Hope you're doing well 🌻

[crimeronan]

2024 is truly just. my year of paperwork. you guys really have no concept of just how much paperwork accumulates simply through existing until you neglect it for a few years due to being on death's door. good GOD recovery involves filling out so many papers all the time forever.

[shirogane-oushirou]

finished two ren pics yesterday that i'd been sitting on for a while, started TWO craft projects today (making a cheap DIY bobbin lace bolster pillow + making a ren doll (or two???)) AAAAAND i just found a program that lets me use my ipad as a tablet for my laptop and bought CSP 3.0 on sale. >:333333c Beware.

[abhioriginals]

September 27 and 28 2024

In the ambulance as lying down on right side of my body on the stretcher I was having heavy breathlessness saliva was continuously flowing through my mouth and I was breathing heavy.

In the ambulance doctor Jagdish Vyas told me to be on the right side he held my hand and while my wife and child was sitting beside me but doctor Jagdish Vyas was taking care of my saliva with paper napkins he was putting it in my mouth and wiping at of each and every minute after around and 2 hours all the wipes in the ambulance were finished.

I would thank him he took out his personal hankerchief and started wiping of my saliva from my mouth and throat. It was difficult for me to breathe was around 9 or 10 a.m. in the morning we were in route Ahmedabad where we are going to Zydus Hospital in the emergency.

Suddenly ambulance stopped driver wanted chai and snacks Doctor said that patients life is important, take only 5 minutes and start again after 5 minutes Re started again, till this time it was around 11:00 p.m. I was breathing very heavy oxygen mask was on my nose now.

Now i knew that I can only last around 2-3 hours like this. Ahmedabad was around 50 km still in all the process that is hospital called 2-3 times where were you and when are you reaching Ahmedabad we are waiting for you. In addition to this Mr Satyendra Gaur and around 15-20 other people from Ahmedabad office with their waiting for me. After sometime my wife told me that we have reached Ahmedabad to the round 1:00 p.m. and soon we were about to reach zydus Ahmedabad after 15- 20 minutes we reached Zydus .

Just after reaching the hospital I was unconscious then I don't remember anything.

[aubreyjordan01]

Autoimmune conditions arise when the immune system mistakenly targets the body’s own tissues, leading to chronic inflammation and a host of unpredictable symptoms. Recovery from autoimmune flare-ups or long-term immune dysfunction requires a comprehensive, personalized approach—especially when it comes to nutrition. Food is more than fuel; it plays a central role in modulating inflammation, supporting gut health, and aiding immune regulation.

Learn more - https://healthylicius.com/nutritional-strategies-for-effective-autoimmune-recovery/

[devildrinksvodka]

Darkness

April 26, 2025- Day 6 If I’m being completely honest, life is really bleak right now. Last summer, I wrote about a very scary boat ride that we took to the South Manitou island. While on a hike after arriving, I mentioned how perfect the trees and sun and air were and that I thought this must be what my heaven looks like. Shortly before that conversation, we determined that a weird girl we kept…