amethystkitchenwitch - Tumblr blog

[amethystkitchenwitch]

This all of this. #longcovid #longcovidrecovery #longhaulers #postcovidsyndrome #pots #potsyndrome #potssyndrome #mecfs #postviralfatiguesyndrome #dysautonomia #mcas #mastcellactivationsyndrome #gidysmotility #chronicillnesswarrior #spoonielife #chronicillnesschronicles https://www.instagram.com/p/CptBT1wrkHo/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

Just one foot in front of the other. We got this. #pagan #paganshop #pagenstore #witch #witchshop #witchstore #wiccan #wiccanshop #wiccanstore #metaphysical #metaphysicalshop #metaphysicalstore #witchygoods #newenglandpagans #newhampshirewiccans #newenglandwitches #massachusettspagans #massachusettswitches #massachusettswiccans #newhampshirepagans #newhampshirewiccans #newhampshirewitches #salemnh #newhampshire https://www.instagram.com/p/CpppPierBAo/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

We are on our way to Chestnut Hill to meet with the leading expert in MCAS GI issues Dr. Hamilton. I made it. #longcovid #longcovidrecovery #longhaulers #postcovidsyndrome #pots #potsyndrome #potssyndrome #mecfs #postviralfatiguesyndrome #dysautonomia #mcas #mastcellactivationsyndrome #gidysmotility #chronicillnesswarrior #spoonielife #chronicillnesschronicles https://www.instagram.com/p/Cpfdz6tL4YB/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

Made it to infusion this close to my appointment at Brigham tomorrow. (at Lahey Oncology and Hematology at Parkland Medical Center) https://www.instagram.com/p/CpdRJ4TrOrf/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

Sounds about right https://www.instagram.com/p/Cpcr4v8LmFg/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

February 28th was rare disease day. Please health care professionals understand when you hear hoof beats it is sometimes a zebra. Please stop telling especially women, bipoc, and lgbt it is anxiety or all in our head. I have a rare disease long covid, pots, me/cfs, mcas, gi dysmotility. #longcovid #longcovidrecovery #longhaulers #postcovidsyndrome #pots #potsyndrome #potssyndrome #mecfs #postviralfatiguesyndrome #dysautonomia #mcas #mastcellactivationsyndrome #gidysmotility #chronicillnesswarrior #spoonielife #chronicillnesschronicles https://www.instagram.com/p/CpSX7ucLwLj/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

I am so very grateful for my medical team. They listened and acted so I could stay out of ER and urgent for my birthday. I am so grateful for the providers and nurses at Southern NH Medical Center who made it so made it to my birthday. I am so thankful for the best specialist in Boston at Brigham and Women's Hospital. I am thankful to be able to eat a little for 1st time in 6 months. I am so thankful for my husband who has to put up with my dream food list. Hey honey, I for once know what I want to eat lol. I am so absolutely thankful and feel loved by my family who made sure I had the most amazing family. I am so thankful for my friends and family who made sure I went back to hospital. I am so thankful for my infusion nurses who take such amazing care of me. I am thankful that I am finally learning to listen to my body after all these years. I am thankful for the tools to deal with my ptsd. I am thankful for the love you have showed me. I am thankful to be alive. #longcovid #longcovidrecovery #longhaulers #postcovidsyndrome #pots #potsyndrome #potssyndrome #mecfs #postviralfatiguesyndrome #dysautonomia #mcas #mastcellactivationsyndrome #gidysmotility #chronicillnesswarrior #spoonielife #chronicillnesschronicles https://www.instagram.com/p/CpSWFF8L3Af/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

Yes pots has msde it to cover of nursing magazine. Hopefully this will stop the gaslighting so many with pots and other dysautonomias face. https://www.instagram.com/p/CpSL9lSLSHc/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

[amethystkitchenwitch]

I have been through hell and back this past week and I need people to understand. When those with mental health illness, chronic illnesses or disabilities talk about, display, or just plain exist our existence, our life we are not being "negative". We are telling you our reality. Thinking positively or healing thoughts are not going to change what covid did to my body. Do I believe in the power of prayer, energy healing, even some positive thinking yep. I use these techniques and they do help. But when you tell someone who is disabled just to think positively or to think healing thoughts you are belittling their experiences and life. Nevermind blaming the person with the disabilities or illnesses. I don't often post here about how bad things can get because quite honestly I know people get tired of hearing it. I am fighting to adapt to my new life. I am not going to be "cured" at this point but I can try to treat everything holistically and intergratively, which I am doing. Remember you are only seeing a sliver of someone's life. I am working really hard towards acceptance and acceptance is not defeat. It is learning to live within my limitations. Please stop with the toxic positivity. We need to do better. Also don't freaking judge till you walk a block in someone's shoes. #longcovid #longcovidrecovery #longhaulers #postcovidsyndrome #pots #potsyndrome #potssyndrome #mecfs #postviralfatiguesyndrome #dysautonomia #chronicillnesswarrior #spoonielife #chronicillnesschronicles https://www.instagram.com/p/CpPtwvDrgRd/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

[amethystkitchenwitch]

[amethystkitchenwitch]

[amethystkitchenwitch]

Lol w/ mast cell gastritis and go dysmotility https://www.instagram.com/p/CmgpN6LrMax/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

Every bloody day https://www.instagram.com/p/Chw08hpLvEC/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

If anyone is interested in my long covid journey and occassional nursing content come check out my tiktok. Been vlogging my journey. Also if struggling there is an amazing LC community in TT. They help keep me semi-sane lol. https://www.tiktok.com/@amethystfairy?_t=8V9gdDmM1BD&_r=1 https://www.instagram.com/p/ChuQhrMrDIP/?igshid=NGJjMDIxMWI=

[amethystkitchenwitch]

New Hampshire too lol https://www.instagram.com/p/CgUXjsILgjk/?igshid=NGJjMDIxMWI=