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PSA that having disabled friends or relatives DOES NOT automatically make you a good ally. you’re not given a pass. do better. do your work.

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having rare disabilities is so infuriating. all i want is to find someone else like me, even remotely, and i just cant. i get rejected from trials for being too rare. there is barely any information.

i just want things to be a little easier. why is that so much to ask?

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Wish my brain would let me struggle with my disabilities and go through a rough patch where I need to rest without convincing me that I'm just being lazy

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medical professionals: aw why don’t u have any hobbies or do anything with ur free time? :(

me: yeah maybe it’s the 7/10 baseline chronic pain you’re refusing to treat but idk bro could be something else i guess

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I keep seeing people put accommodations for people with epilepsy on the same level as sensory accommodations for autism and like... no??? Obviously both are important but epilepsy can kill people, SUDEP is a thing. If you expose someone with photosensitive epilepsy to strobing lights they could suffer permanent brain damage or die. Epilepsy is a condition with physical, sometimes deadly consequences. I'm not sure how many different ways I need to say this before it sticks, but epileptic seizures are physical neurological phenomena that can cause lasting neurological damage or death. Epilepsy can kill you. You can die from epilepsy.

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Mutuals do this:

(This the "gang of 19" for people interested in learning more. It happened in 1978)

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i think a big thing abled people dont realise is how much thought it requires to be disabled. every single time i want to go out anywhere, every time i want to see someone, every time i get out of bed, i have to run through so many calculations about what i can and cannot do. whether there are steps involved, whether there will be seating, how long i’ll be there, whether i could make it back home afterwards.

i have no direction with this post, i just wish sometimes that it wasnt always left to us to be the educators. being disabled is hard, its exhausting, and being treated like the villain because of needing to cancel is such a slap to the face.

ableds, please try to think about these things. plan with your disabled friends in mind. ask them what they can do. please.

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something that's been haunting me recently about my chronic pain recently is the thought:

"If i were a family pet, i would've been put out of my misery by now"

meaning: if i was a pet, i would've been euthanized because there is nothing that can be done for my pain and it is simply kinder to just let me go

i hate this thought, i hate that i have it, because then i think about everyone else in the world with this kind of pain and worse who just want to live their lives, and who am i to say they should be "put down", that's so evil?

but it's something that keeps coming to my mind and it makes me feel so... pessimistic?

i genuinely don't know what to do for my pain anymore, I'm being referred to a specialist but honestly I'm afraid they're going to tell me there's nothing that can be done and I'll live like this forever

i don't want to live like this forever

sleep is equally the only peace i have and my biggest enemy...

i want to be more optimistic about my life but it's so so hard

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"you can't be in that much pain, you're smiling!"

No you absolute walnut brain that's a grimace. I'm grimacing. You know. Because of the pain.

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"you need to take responsibility for your illness. You need to find something to make it easier for me to deal with your problems. You can't burden others with your issues, be productive."

Hey maybe if people were understanding of disabled people I wouldn't have to find a way for you to navigate around my illness. Maybe if we weren't automatically considered useless this wouldn't be a problem

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The DWP is sending out a survey to disabled people in the UK in receipt of PIP, asking recipients how they spend it. You DO NOT have to answer. The DWP has no legal right to this information. They do not have disabled people's best interests in mind, as you're probably already aware, and this information WILL be used to demonise disabled individuals however they can twist it to do so. Please warn your friends and family who are in receipt of PIP, it will most likely not be made clear that the survey isn't mandatory.

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art i personally made about being disabled and experiencing a lot of sexual assault and abuse, including being of being disabled and by people who were supposed to take care of me. A very personal art piece but thought i would share :)

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Cause of my insomnia number one:

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reblog if you have skilled writer friends and you're damn proud of them

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flirty or threatening? dialogue prompts

@celestialwrites for more!!

“good god, you are a pain.” “then why are you even here?” “maybe i’m a masochist.”

“say that again i dare you.” “what are you going to do about it if i do?”

“your existence unnerves me.” “aw, i’m flattered.”

“hi honey.” “don’t honey me, you just threw a book at me!”

“huh, you know when you’re not scowling at me your eyes look a little more blue than green.”

“what if one day you wandered off a cliff?” “would you join me?”

“sometimes i feel like you want to get hit.” “by you? most certainly.”

“miss me?” “i had wondered where my headache went.”

“you are certainly interesting.” “is that a compliment or are you making fun of me?” “yes.”

“i’m not docile by any means.” “i’ve noticed, i notice everything about you.”

“i need help to bury a body.” “and you thought of me? aw.” “actually, i’m the only one that would miss you if you went to prison.” “you’d miss me?”

“i hate you!” “as long as you feel something towards me.”

“watch it!” “it’s cute how easy i can rile you up.”

“do you truly hate me?” “i wish that was possible.”

REBLOG TO SUPPORT YOUR LOCAL WRITERS!!<3

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How to Write a Sick Character

╰ First of all — being sick is boring as hell

Nobody tells you that. You think it’s gonna be poetic and tragic and emotionally moving, maybe a few tears on the windowpane and a soft piano soundtrack? Wrong. It’s pacing in a waiting room for two hours to be told to come back next week. It’s reruns of trash TV because your brain fog is so bad you can't even process a podcast. It's Googling "why do my bones hate me" at 3 a.m. and finding nothing helpful, only vibes. So if you're writing a sick character and every scene is Deep and Heavy and Symbolic, I love you but no. Let them be bored. Let them be over it. Let them fall asleep halfway through someone’s big speech.

╰ Second — sickness is basically a toxic relationship with your own body

And wow, the drama is unmatched. One day your character wakes up and thinks, “Maybe today will be normal.” Their body: “Plot twist, bitch.” Now they’re sweating through a hoodie, canceling plans, and pretending they're “just tired” because explaining the truth is somehow more exhausting than the illness itself. Let your character hate their body sometimes. Let them feel betrayed by it. Let them mourn the version of themselves that used to just do things without needing a three-day nap after. But also—let them fight for their body, too. Advocate. Adapt. Try again. Because it’s not all despair. Sometimes it’s really freaking brave just to get out of bed and put on pants.

╰ Third — it’s not cute

Hollywood loves to write illness like it’s an aesthetic. Clean blankets, sad smiles, a gentle cough. Yeah… no. Sometimes it’s vomit in your hair. It’s medical tape pulling off skin. It’s being too tired to shower but still scrolling through memes like your life depends on it. Give us the gross stuff. The embarrassing stuff. The human stuff.

╰ Fourth — let them be funny

Sick people are hilarious. Mostly because we have to be. You’ve got two choices when your body is a disaster zone: laugh, or fully unravel. So we joke about our failing organs. We flirt with the nurse while on IV fluids. We name our medical devices. We send memes from the ER. Let your character joke. Let them be sharp, sarcastic, absurd. Not because they're “taking it well,” but because that’s their armor. Humor is one of the most honest forms of pain. Use it.

╰ Fifth — sick ≠ broken

Please hear this: your character is not less than. They are not just here to suffer and die and inspire others with their angelic perseverance. They’re a person. Maybe a chaos goblin. Maybe a genius. Maybe a mess. Maybe a lover, a fighter, a giant emotional raccoon with a heating pad. Let them live and have goals. Let them chase things. Let them screw up. Let them be loved and desired and complicated. Their illness is part of them, not all of them.

╰ Lastly — don’t wrap it up too clean

Recovery isn’t linear. Some illnesses don’t “end.” And that’s okay. You don’t need a miracle cure in the third act. Sometimes strength is just learning to exist in a different way. Sometimes it’s re-learning how to hope. Sometimes it’s finding a new rhythm instead of forcing the old one to work. Let your character find peace, not perfection. So yeah—if you’re writing a sick character, you’re doing something important. You’re making space for people whose stories rarely get told with truth and teeth and tenderness. Just promise me you won’t turn them into a symbol. Let them be a person. A funny, scared, strong, exhausted, hopeful person. Like the rest of us.

@katrein05 I Hope This Helps a little... :)