chronicallyiconicrat

[chronicallyiconicrat]

@annieelainey

[chronicallyiconicrat]

No but literally

the cycle of life

[chronicallyiconicrat]

[chronicallyiconicrat]

Good things WILL happen, there's no way to avoid it 👁👁✨️

good things will happen 🧿

things that are meant to be will fall into place 🧿

[chronicallyiconicrat]

@spoonie-living

[chronicallyiconicrat]

Specially if you're chronically ill! Don't work urself to 💀 if you're chronically ill or your body will get revenge on you 😭

[chronicallyiconicrat]

[chronicallyiconicrat]

TW: Vent, Bad experiences with doctors

It gets so on my nerves when doctors downplay my symptoms or when they discard too quickly my theories about possible diagnosis... Like... I'm not fucking around when I say I think I could have hEDS. But what do they say?

"Nah, I don't think so."

LIKE????

Bitch, I fucking know what's happening to me... At least symptom-wise. And I find so disgusting that you go and deny it too quickly. I deserve to be heard. I deserve to be taken seriously.

I really doubt it is fibromyalgia like everyone believes it could be, but even my relatives are like "Oh but your pain IS emotional", when all my rheumatologist said is "I want to discard lupus, and if it's not lupus it means it COULD be fibromyalgia." The thing is though, I don't get that much trouble sleeping, my hair doesn't fall off and my pain doesn't get "worse" if I'm stressed. So... Idk. But I'm so tired of this bs. I can't tell this to anyone, since I'm afraid to be annoying...

[chronicallyiconicrat]

[chronicallyiconicrat]

shout out to “gross” disabled people.

people who can’t shower/bathe people who can’t shave people who can’t wash their clothes people who need help going to the bathroom people who have nasty habits (biting nails, picking nose, etc) people who can’t brush their teeth people who can’t go to the doctor people who can’t clean their room people who can’t make their beds people who vomit a lot people who wet the bed people who constantly have diarrhea people who’s physical deformities are seen as repulsive

and every other kind of person I missed that deserves to be here too.

you are people, first and foremost. your thoughts deserve to be heard, discussed, acknowledged, no matter what. you are not lesser. you are just another person. you should never be ignored for what you can/can’t do. you deserve care.

to abled people: check yourself. make sure you listen. and you can reblog, just don’t derail. maybe don’t add on, either.

[chronicallyiconicrat]

sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?

accessibility to wheelchairs is more than just a ramp.

[chronicallyiconicrat]

So true

abled ppl love the aesthetics of disability but they're so scared of actual disability

the angst of a panic attack or meltdown or seizure, the visual of scars and braces and crutches and nasal cannulas and hospital monitors beeping away, the idea of overcoming struggle and the limits of the human body. it's all beautiful whump for their gifs and fics and comics.

but the second they see someone needing an EMG or bronchoscopy, someone using a power chair and needing help getting into a building and advocating for their accessibility, someone using their inhaler, someone with stumps or disproportionate limbs, the mere idea of an ostomy bag or incontinence? you need to tag that, that's disgusting, that's triggering, nobody wants to see all of that.

fucking get with it. accept every aspect of it or don't even think about writing it.

[chronicallyiconicrat]

ayo this pretty cool

[id: active style manual wheelchair with frame made of rectangle wood planks screwed together. end id]

as we know active type wheelchair very expensive, & repair need buy from specific medical manufacturer n take very long time. someone (who wheelchair user themself of near 40 years) made open source active manual wheelchair where most (if not all?) material from commercial easy get materials! wood, plastic, pvc pipe, & those commercial aluminum square pipe things. n they put guide made them yourself in link for anyone want try make

this video from their instagram show their wood frame wheelchair actually pretty durable, include clip from everyday use & even drop wheelchair all over place (basically imagine what airline do to them…) - n wheelchair stay in tact! n even if some part break - it easy change because wood planks all screwed together so you just buy wood plank & unscrew & rescrew.

not great for people w advanced seating positioning needs probably (think if only problem is easy butt pressure sore, maybe can still use this + supportive cushion but think beyond that it get hard). but if like you don’t need those things then maybe fun project?

have not use for self so can’t actually talk about experience but it look pretty cool

edit: reblog this version instead

[chronicallyiconicrat]

You do not have the right to touch someone's disability aid without asking, whether that aid be a wheelchair or an AAC device.

"It's just a tablet, though." No, it is not. It is my voice. Touching or moving my device without my permission is like touching my mouth without permission, it's weird, gross, invasive, and rude. Stop.

Pushing someone's wheelchair without permission is like picking them up and moving them out of the way eithout permission, its weird, invasive, gross, and weird. Stop.

[chronicallyiconicrat]

[chronicallyiconicrat]

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[chronicallyiconicrat]

“So let me get this straight. We’re here to rescue a princess.”

“That’s right.”

“At the request of a princess.”

“Right again.”

“And you, who will be leading the expedition, are also a princess.”

“You’re very perceptive.”

“How big is your royal family, again?“

“We don’t have one.”

“But–“

“We overthrew our monarchy centuries ago, but we kept most of the titles around. The rank of ‘princess’ is held by the directors in charge of various civil service branches.“

“Huh. And the princess we’re rescuing today is in charge of…?”

“Public sanitation.”

“The Lord of Death’s Dominion kidnapped your public sanitation director?”

“We think he’s a little confused.”