Hi, My name is Ciel, I'm 20 and I really like aliens and hamsters, my favorite stuffy is Gnarp Gnarp, an Ikea alien. I'm semiverbal and disabled and (UPDATE) full time AAC user. I will be posting about my journey being disabled and using AAC recently.
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Being semi verbal update part 2
The good news is that I got my voice back, but it comes with a cost, I get headaches, and it's really dizzy if I talk, but I can do it however I'm trying not to force myself out of habit. I still have the same issues as before. I haven't spoken for 2 weeks and thought I would lose my voice forever, but it came back. I'm still a full-time AAC user, I am mostly reliant on it.
The bad news is that I went to the doctor, and my doctor was worried I wasn't talking and that my thyroid is really off, so they suspected a tumor. I'm going to do blood work and then a CT scan. Hopefully, I don't really have one.
Even though I could talk, it's really painful. There's moments where my head hurts so bad that I can't speak. I'm so worried about the results if I do have a tumor.
I'm still not trying to use talking as my main form of communication, but AAC instead. I'm still on board on becoming mute as a process because of the pain of talking. Please please dont let it be a tumor.
#aac#aac user#disabled#actually semiverbal#semiverbal#aac device#actually disabled#aac communication#full time aac user
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MINDSCAPE * AAC POWAHH!!!
With me and Lia!! If you dont know who Lia is, she's just a personification of my alternative self.
I'd like to think of her as that part of me that comforts, plays, argues, and talks to me as like a voice in my head personified as an alt version of me. That's why she looks like the opposite of how I look like. She's not an alter or anything like that, not an DA either. She's just me, a part of me. We've been together for about 7 years now.
Anyways I've always loved and hated that part of myself, but I've learned to embrace Lia as someone to be very fond of. A part of me to cherish.
#aac#aac user#disabled#actually semiverbal#semiverbal#aac device#actually disabled#aac communication#full time aac user
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AAC talker 2 now available in roblox! Get your own talker now in roblox for 50 robux!
#aac#aac user#disabled#aac device#actually semiverbal#semiverbal#actually disabled#part time aac user#aac communication#roblox
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Alien finds emerald in space
Music by irlspellcasting on TikTok
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New LCD writing tablet for AAC light tech!!
#aac#aac user#disabled#actually semiverbal#semiverbal#actually disabled#aac communication#light tech aac
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My new ear defenders and communication cards book came!!
#aac#light tech#aac user#disabled#actually semiverbal#semiverbal#actually disabled#aac communication
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Being Semi verbal update
Talking has always been a huge struggle for me. No matter how much I practice or try to talk more, it never gets better. It's very stressful, exhausting, and triggering to force myself to speak. Speaking has now started to become uncomfortable, I could barely speak now without feeling like I'm forcing my vocal cords, which is very uncomfortable and painful. I've become mute for around a week now also while saying limited words, I don't think I'll want to pursue talking as a needed option now, no longer going to comply with verbal demands at my own expense. I'm currently practicing using AAC full-time now, and I've been using it every day, everywhere I go at any moment. I'm planning to make AAC my main type of communication. I think at this point I'll become mute permanently due to how straining it is to use words. I tried to say something, but it came out as a whisper, which also felt very uncomfortable and painful. This is also part of unmasking, I think. Luckily, I'll have other ways to communicate, so speech isn't going to be an option for me anymore
#aac#aac user#disabled#aac device#actually semiverbal#semiverbal#actually disabled#part time aac user#aac communication
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All my pins :D
#aac#aac user#disabled#aac device#actually semiverbal#semiverbal#actually disabled#part time aac user#aac communication#i like aliens
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Aac powah!!!
#aac#aac user#disabled#aac device#actually semiverbal#semiverbal#actually disabled#part time aac user#aac communication#doodle#art
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Doodles of me!!
#aac#aac user#disabled#aac device#actually semiverbal#semiverbal#actually disabled#part time aac user#aac communication#i like aliens#doodle#art
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What a day am I rite pal?
I keep hitting the wrong buttons
Mindscape - AAC struggles
#aac#aac user#disabled#aac device#actually semiverbal#semiverbal#actually disabled#part time aac user#aac communication#aac community#comic art#original comic
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Autism testing update
I'm excited for my next appointment if my insurance approves it. I've been waiting to get the right support my whole life due to negligence. If I'm finally diagnosed with autism, then I can finally get the support I desperately need. I've been meaning to look into getting a support worker to help me with daily tasks and prompting to do them. I can do basic necessities but need assistance with reminders, or else I just won't do them. I've been struggling being independent, I remind myself constantly to eat and use the bathroom, but sometimes that's not enough, and I happen to skip or accidently be incontinence. I've been struggling so much on my own, constantly having meltdowns and anxiety over what to do and feeling helpless whenever I messed up. But i managed on my own throughout my life, but now it seems like I'm losing skills ever since I stopped masking. It's like im not trying harder enough anymore. But if I get the autism diagnosis, it'll finally be okay to get the support I need.
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