diabolivia

[diabolivia]

hey so i heard youve been diagnosed w celiac, and i just wanted to reccomend "udi's" bread: if theres any way you can keep this in your dorm that could be a good breakfast food! also there are some great gf cereals out there i love chex-it tastes great!! and also "kind" brand granola bars are great as well if your in a rush!! i hope this helps and dont worry eating gf is not as bad as it sounds! just takes getting used too :) feel free to message me w any questions!

Hey! Thank you for getting in touch, not sure if you saw but that post is almost a year old! (it's gone crazy fast!) thanks for the suggestions though, I've found a delicious bread that I love and I actually tried kind bars whilst I was visiting America last summer! So yum :) xx

[diabolivia]

Dating My Diabetes

They call the first few months or years with type 1 “The Honeymoon.” That’s because by the time you start getting sick, around 80% of your beta cells have been destroyed. That still leaves 20% straggling, making little bits of insulin. Then autoimmunity kills them, too, and the honeymoon is over. 

If I get a honeymoon, does that mean diabetes is kind of like…my boyfriend? In a way, yes. And we’re certainly long-term.  

We’re together all the time. Even when I’m not thinking about it, it’s there, waiting to talk later. It leaves love-bites on my hips and thighs, little bruises and scabs from infusion sets. It wakes me up in the morning. I can never just think about my needs, what I want; I have to consider what my diabetes wants, what it needs.  

So, diabetes is kind of like a boyfriend, though an annoying one. Still, I think it’s better to view my disease as a relationship instead of something outside me, controlling me. A relationship implies mutual consideration and understanding. It implies interaction. It means that though I don’t have all the say, my voice and actions matter.  

Plus, what can I say, I’m a romantic.  

[diabolivia]

what the fuck. why should i feel embarrassed to do something thats keeping me alive?

me (via insuiln)

[diabolivia]

Feels like I haven’t posted on here in a very long time.. 

Okay so recently I've finally been diagnosed with coeliac disease, after three years, two biopsy's and multiple complaints from me I finally have an answer. However this news also means I have the magic three! Diabetes, hypothyroidism and coeliac disease. As if this shit wasn’t hard enough I got given them all.

So I’m currently at uni which makes everything inconvenient.

But I’m also studying Baking Technology Management, which makes in even more inconvenient to be diagnosed with coeliac disease. 

Today I began my first gluten free day which was a lot harder than I had first thought despite being pretty clued up. Breakfast is a problem, lunch is an even bigger problem and seeing as I love to snack.. I’m having a problem. 

Why me? I don’t get it.

[diabolivia]

Unlike other kids, I have to check my blood sugar 8 to 10 times a day; everything I eat is measured and every carbohydrate counted. My kit goes with me everywhere I go … Too much exercise or not eating all my food can be dangerous. I think I’m too young to have to worry about all this stuff.

 Jonathan Platt, 8, California (via jdrf)

honestly one of the most heartbreaking things ive ever read. everyone is too young to live with a disease like this.

(via hannahpkmn)

[diabolivia]

My blood sugar dropped like the way you fall asleep, slowly, and then so fast that I ran into the wall while I was getting a juice box

[diabolivia]

Hey, I saw your post about your "friend." I think you should call her out on it. She is patronizing you and she needs to know that this is a piss-poor excuse to belittle you. Diabetes is hard enough without others try to make it about them. She's not only dragging you though the mud emotionally but medically if shes preventing you from wanting to correct a high.

yeah i totally agree with what you're saying, i just find it really difficult because i know she will play the 'i was only looking out for you' card. its a tricky situation because i live with her and i can see it getting nasty if i mention it. i appreciate your message though, a lot of people have told me to say something! its just finding the right time/way to say it!

[diabolivia]

does anyone have a friend who makes a big deal out of your diabetes for attention?

i have a friend at university that is starting to drive me up the wall. she constantly asks about my diabetes, but not in a concerned, actually looking out for me kind-of way. its almost as if she wants to get attention for me having diabetes. for example if her friends are round she asks me what my blood sugars are and whether ive taken my insulin, so her friends think shes looking out for me but when it comes down to it, she doesnt actually care. it makes me feel like a child, like shes patronising me.

another example was just yesterday, we went to a comedy thing and we were in our seats and i was really excited and she was just sat there saying really loud 'your blood sugars are high, you need to take your insulin, you have to do your injections, you are crazy high' it was as if she wanted the people in front to turn around and give us attention. it wasnt for my benefit, it was so someone might look at her and talk to her. and its really getting to me. its making me lie to her when she asks what my blood sugar is, i refuse to inject when im high because im pretending im not because she makes me feel so small.

im so sick of everyone wearing me down.

[diabolivia]

i havent posted here for a while, but im trying so hard.

[diabolivia]

I LOVE master chef! I’m voting for Ahran and Willi.b. Who are YOU guys voting for!!!!!

[diabolivia]

You are not your Diabetes. You are not your blood glucose level. You are not your HA1c. You are not the meter you use. You are not your fucking Insulin pump or MDI. You’re the all singing all dancing crap of the world.

[diabolivia]

[diabolivia]

sometimes i have to remind myself

i  have a job

i can drive

i finished college and got into university

i passed my first year of university 

i survived living in london for a year

alongside all of my problems with my diabetes, hypothyroidism and my homesickness.

oh and i am only 18.

[diabolivia]

A list of autoimmune disorders play off the doctor’s tongue: diabetes, thyroid, fibromyalgia, alopecia, endometriosis.. It starts sounding like my family history, Cursed through the genomes that make up every fiber in our being. But it doesn’t stop there; You see, autoimmune disorders have a way of playing with your head— Messing with the chemicals, Making you believe that whatever you’re going through is either a) your fault or b) not real. It’s a destiny bestowed upon children who do not deserve it. So they congregate together, Share their stories, That’s how they cope, And some—some don’t make it to share their story. Some of their stories end with a bang, or with the dropping a bottle of pills, or silent; And up until that point they were bullied—physically, mentally, and emotionally abused by not only those around them, but their own immune system that barely knows how to function. So please, next time you think that someone with endometriosis is lying about their pain—shove it up your pie hole and at least have the decency to keep it to yourself. They are not lying—one day in their shoes would prove it. And next time you decide to “secretly” point and laugh at the girl with bald spots on her head, know that she doesn’t give a rat’s ass in front of you, but at home she will undoubtedly carve smiles into her skin—trying to convince herself she’s happy. And next time, and yes- there will be a next time, you see the teacher yelling at a student for having their ‘cellphone’ out, have the decency to look a little closer. That is not a cellphone. It’s an insulin pump. We did not choose this life, but no one has a choice, and you deal the cards dealt.

Compromised (v.e.)

[diabolivia]

Waking up every morning knowing that you need to inject yourself with every meal, and check your sugar levels several times a day

Feeling that no one really understands what you are going through or cares that much about this illness

Be in charge of insulin that you don’t really fully...

[diabolivia]

[diabolivia]

Sometimes I start wondering why I’m always so tired but then I’m like, oh yea, I have diabetes and shit blood sugar control, sooooo.