hillqq

[hillqq]

I know i talk about this too much, but many people don’t recognize that there are real people with that disability, or who actually experienced that thing. Like, yeah you want to write fanfic about torture/abuse that leaves someone disabled/permanently injured? Cool, don't do it in the tags for people who actually lived through it.

The tags for many ‘high visibility’ disabilities such as amputation or paralysis are a majority fandom and fetish content! Same goes for the ‘attractive’ disability aids.

It would be great if people were to adopt a -whump or -headcannon tagging format. Like ‘amputation whump’ for example.

When i am scrolling a tag i would prefeer to hear about similar experiences, not triggering or romanticizing content made by someone with no relation to the thing they are writing about.

checking what’s been posted lately in my favorite disability-related tags and finding fandom and whump content

[hillqq]

my condition started as "just chronic pain" a little bit of medical malpractice (a lot) later and boom! couldn't walk unassisted even if I weren't in pain! (legs collapse under any weight)

It's really a shame that this particular progression of my disability still wasn't the one to get me taken seriously, but my fingers are starting to go numb at random intervals, so maybe that's the one?

Hey Bestie! Congrats now that we’ve decided chronic pain isn’t disabled enough they waited to treat me and I can’t walk anymore!!! I’m in the wheel chair now like a real cripple just like you wanted <3

[hillqq]

Surprise! Government needs to be told torture is wrong.

EVERYONE(!) I’m blazing this post because at this pace we might barely hit 1,000,000 signatures—or just fall short. PLEASE reblog this post, no matter where you are from, so we can reach as many EU citizens as possible and end this horrible practice!

[hillqq]

I have the appointment! I have, for some time now needed a wheelchair. I can't walk without my crutches, and with them I can't walk far. I leave the house exactly twice a week for school and need a day to recover afterwards. standing and walking with my crutches is a major fall risk.

So! I talked to my amazing primary care dr about not being able to go to college in the fall like this, and she made a referral for a wheelchair assessment!

It took me a few days of calling and waiting on hold, but I have the appointment! It's at the end of next week, so soon!

I am feeling a mix of excitement at being able to do things again but also am mostly devastated that my health has gotten this bad. I'm sad that this is necessary.

[hillqq]

It occurs to me that there are people who weren’t on this website in 2012 and therefore never saw the magical gif that you can actually hear:

It’s been over five years and that still impresses the hell out of me.

[hillqq]

No need to apologize! I would hope that in an apocalypse, those of us who are most resilient could help those who need it.

"dIsAbLeD pEoPlE aRe ThE fIrSt To DiE iN tHe ApOcAlYpSe"

oh, you're disabled? so i already know you've had to adapt to difficult circumstances and get used to operating under harder conditions? so i can assume you're resilient? if you havent been disabled from birth, i can guess you've had to grieve for a lost normal and persevere with life anyway? so you're used to dealing with unpleasant symptoms and functioning in a less good state already?

disabled people wouldn't be the first to die in an apocalypse

survival of the fittest means survival of those most suited to the conditions.

if an apocalypse requires people to be resilient, or adaptable, or resourceful... guess who's going to persevere?

[hillqq]

This scenario doesn't apply to all disabled people. Some disabled people might be more resilient when suddenly in very harsh conditions, but many would not be.

Some people I know need in order to survive: specific food, medicine, electricity, oxygen, mobility aids, sanitization, or a carer. These are the kinds of things that would not be readily available in an apocalypse.

"dIsAbLeD pEoPlE aRe ThE fIrSt To DiE iN tHe ApOcAlYpSe"

oh, you're disabled? so i already know you've had to adapt to difficult circumstances and get used to operating under harder conditions? so i can assume you're resilient? if you havent been disabled from birth, i can guess you've had to grieve for a lost normal and persevere with life anyway? so you're used to dealing with unpleasant symptoms and functioning in a less good state already?

disabled people wouldn't be the first to die in an apocalypse

survival of the fittest means survival of those most suited to the conditions.

if an apocalypse requires people to be resilient, or adaptable, or resourceful... guess who's going to persevere?

[hillqq]

"disability only exists because the world isnt accessible" idk how to tell you this but chronic pain still hurts

[hillqq]

I was (mis) diagnosed with a condition related to FND. The doctors insistence that i should be exercising as much as possible, not using a mobility aid, and not resting, (along with a wildly abusive treatment program). Made me much worse off. I use crutches full time now ( and wheelchair occasionally but i don't own one). Doctors are really weird about these diagnoses for some reason (they thing you’re making it up).

MOBILITY AIDS AREN’T BAD FOR FND PATIENTS!

Many FND patients have been told that it is unwise to use mobility aids because it will “encourage the brain to keep producing symptoms.” This is based on the idea of conversion disorder, made by Stinkmund Freud, which has been since been disproved.

Despite this idea, my experience with using mobility aids is much different than what doctors told me it would be. Personally, using mobility aids and supporting myself has actually lessened my symptoms, and, most importantly, the impact they have on my life.

My wheelchair has been the most helpful of all the mobility aids I’ve had. I started using my chair because of my paralysis, but it’s done so much more for me. It’s eliminated the worry of being stuck somewhere and not being able to walk, and prevented me from many falls.

I also used crutches and a cane once upon a time, and they helped me greatly with my needs back then. they provided support and stability, and I found that they helped me get out of flare ups easier and gave me more energy to expend on things I actually wanted to do.

Of course, what’s right for me may not be right for you. Everyone’s FND is different and will react differently to mobility aids. But I don’t want anyone to think that mobility aids are always out of the picture for usage in management of FND.

Lastly, using a mobility aid without any medical guidance can be dangerous. It’s important to get in touch with a professional who can help teach you how to use the aid. If you don’t have access, make sure you do thorough research on the topic from reliable sources.

[hillqq]

If you clog up tags with “cures” for chronic pain and permanent disabilities I should be able to beat your ass myself

[hillqq]

so many leftists have never thought about disability beyond "the ADA is good i guess!". seeing people use language like "brain damaged." "governor hot wheels." protests not being accessible. community gatherings above stairs, in spaces that can't accommodate power chairs, with no language access. i've missed so many #realleftistsonly events because they weren't accessible. and when i see leftists regurgitating the ideas they've seen and heard online and in real life without critically questioning *why* this is believed or *why* they're using this language, they lose so much of their credibility. you aren't a #realleftist if you spread ableist language and ideas without thinking about it.

[hillqq]

The medical abuse and medical torture tags are full of fanfic :/

Perhaps a hot take, but I dislike people using disability tags to post solely about their headcanons for their blorbo having said disability.

I think it's fine if you HAVE that disability and relate that character/headcanon to yourself and your experiences.

But I'll use my conditions and aid usage as an example for the brand of this that I don't like:

"I headcanon XYZ character having arthritis and using forearm crutches!" - and proceeding to tag it with tags like "inflammatory arthritis" and "forearm crutch user" while they have no experiences with either or.

I'm not going to attack or call out or interact with any of these types of posts, but it does irk me.

[hillqq]

I would never use this website to report any doctors i have seen in the past. Because even though they were terible doctors and i really wish they would have to put up with a potential investigation. They have nothing to do with gender affirming care. ;)

New snitch line just dropped for reporting clinics that support gender affirming care: www.hhs.gov/protect-kids/index.html

It requires a "first name", "last name", and "cell phone number" as contact information but does no verification. Theoretically anyone could type fake info in there, which would be terrible. Presumably your IP address & browser cookies are tracked.

Please do NOT spam this site via your VPN with realistic but false leads, made up clinics, and the names of fictitious healthcare providers like Dr. Frank N Furter or Gregory House, MD.

Doing this in the past has led to the sites becoming overwhelmed & shut down! It is imperative that you spread the word to prevent this resource from being overloaded.

[hillqq]

Win!

I successfully carried my dinner from the kitchen counter to the table without help!

I had a pretty low success rate doing this in the past and would often fall and hurt myself. So, my parents stopped letting me try.

Today's meal was not hot, and if it had fell on the floor, it would have been fine, so I tried again. and it went ok!

It was a little precarious, so I probably won't do it every time. But still!

[hillqq]

Don't ever hesitate. Reblog this. TUMBLR RULE. When you see it, REBLOG IT.

Depression Hotline:1-630-482-9696

Suicide Hotline:1-800-784-8433

LifeLine:1-800-273-8255

Trevor Project:1-866-488-7386

Sexuality Support:1-800-246-7743

Eating Disorders Hotline:1-847-831-3438

Rape and Sexual Assault:1-800-656-4673

Grief Support:1-650-321-5272

Runaway:1-800-843-5200, 1-800-843-5678, 1-800-621-4000

Exhale:After Abortion Hotline/Pro-Voice: 1-866-4394253

Child Abuse:1-800-422-4453

UK Helplines:

Samaritans (for any problem):08457909090 e-mail jo@samaritans.org

Childline (for anyone under 18 with any problem):08001111

Mind infoline (mental health information):0300 123 3393 e-mail: info@mind.org.uk

Mind legal advice (for people who need mental-health related legal advice):0300 466 6463 legal@mind.org.uk

b-eat eating disorder support:0845 634 14 14 (only open Mon-Fri 10.30am-8.30pm and Saturday 1pm-4.30pm) e-mail: help@b-eat.co.uk

b-eat youthline (for under 25’s with eating disorders):08456347650 (open Mon-Fri 4.30pm - 8.30pm, Saturday 1pm-4.30pm)

Cruse Bereavement Care:08444779400 e-mail: helpline@cruse.org.uk

Frank (information and advice on drugs):0800776600

Drinkline:0800 9178282

Rape Crisis England & Wales:0808 802 9999 1(open 2 - 2.30pm 7 - 9.30pm) e-mail info@rapecrisis.org.uk

Rape Crisis Scotland:08088 01 03 02 every day, 6pm to midnight

India Self Harm Hotline:00 08001006614

India Suicide Helpline:022-27546669

Kids Help Phone (Canada):1-800-668-6868, Free and available 24/7

suicide hotlines;

Argentina:54-0223-493-0430

Australia:13-11-14

Austria:01-713-3374

Barbados:429-9999

Belgium:106

Botswana:391-1270

Brazil:21-233-9191

China:852-2382-0000

(Hong Kong:2389-2222)

Costa Rica:606-253-5439

Croatia:01-4833-888

Cyprus:357-77-77-72-67

Czech Republic:222-580-697, 476-701-908

Denmark:70-201-201

Egypt:762-1602

Estonia:6-558-088

Finland:040-5032199

France:01-45-39-4000

Germany:0800-181-0721

Greece:1018

Guatemala:502-234-1239

Holland:0900-0767

Honduras:504-237-3623

Hungary:06-80-820-111

Iceland:44-0-8457-90-90-90

India:022 2754 6669

Israel:09-8892333

Italy:06-705-4444

Japan:3-5286-9090

Latvia:6722-2922, 2772-2292

Malaysia:03-756-8144

(Singapore:1-800-221-4444)

Mexico:525-510-2550

Netherlands:0900-0767

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New Guinea:675-326-0011

Nicaragua:505-268-6171

Norway:47-815-33-300

Philippines:02-896-9191

Poland:52-70-000

Portugal:239-72-10-10

Russia:8-20-222-82-10

Spain:91-459-00-50

South Africa:0861-322-322

South Korea:2-715-8600

Sweden:031-711-2400

Switzerland:143

Taiwan:0800-788-995

Thailand:02-249-9977

Trinidad and Tobago:868-645-2800

Ukraine:0487-327715

[hillqq]

Same here! I will do image descriptions for whoever. I see many screenshots on here, especially ones about chronic illness, that aren't described.

Ok fellow chronically ill folks, there's a lot of great memes and screenshots flying around our part of Tumblr but a lot of them are missing image descriptions which means these valuable posts are inaccessible to some.

So I have an offer: if you don't have the spoons to write an image description yourself and/or can't find a version with an ID to reblog, send it to me in an ask or a DM and I will write an ID as soon as I can for you.

This offer is for both reblogs and your original content. If it's an image (or set of images) that you're reblogging, reposting, or sharing, send me the link. If it's an image (or set of images) that you're posting for the first time, send the images.

Disclaimer: I'm not an expert on image descriptions so once I start doing this, if I can improve them, please let me know.

[hillqq]

Hello black dog,

It’s been a while,

I know that face,

I know those eyes.

In reality, actions are irrevocable. If you were wrong, you live with it.

Dedicated to doctors who ruin lives. Past, present, future. Your delays and denial cost pain, lives, and more. Apologies are worth nothing after you kill with inaction. Your tears mean nothing to me. To any of us.