my-person-suit-is-defective

[my-person-suit-is-defective]

I've decided I don't want symptoms anymore actually. I'm over it. I'm quitting symptoms to prove how easy it is

[my-person-suit-is-defective]

adhd will get you thinking "i should make this doctors appointment" every day for 7 months and counting

[my-person-suit-is-defective]

So if you're in the UK you have probably heard about the proposed changes to disability benefits. If not, here is a BBC News article (link) about it, and the Big Issue (link) have been running basically non-stop articles about it since the announcement.

Crucially, the government is holding a consultation. Will as many of us as possible weighing in change the outcome? Possibly, though it's far from guaranteed. Will not filling it in help the situation in the slightest? No. So let's all have a go.

You can find the full Green Paper here: (link) and the options to respond are at the bottom of it, including the link to respond online, which is also here: (link)

It's also always worth contacting your MP to let them know what you think, if only to get a response on fancy Commons stationery. You can find your MP here: (link)

So, have at it, UK folks! (These proposals don't apply to Northern Ireland as benefits are transferred, but they are still taking NI comments and sharing them with the Department for Communities, so you may be able to influence whether this approach is taken up in NI in future, too)

And if nothing else, please reblog!

[my-person-suit-is-defective]

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

[my-person-suit-is-defective]

Personal rant about shitty doctors

I'm so pissed off - I finally got a cardiologist appointment at the end of last year after waiting over 6 months, ended up needing a load of tests including a CT angiogram, echo, 72hr ecg, and tilt table.

The CT and echo were mostly normal but I finally had the tilt table last week, and it strongly indicated POTS (which I knew it would), I've been told for about 10 years that I probably have POTS but no one would actually diagnose it.

Now I have been discharged without having ever even seeing the cardiologist in person, only spoken to him on the phone once, just had this letter sent to my GP, i haven't even got my copy yet.

He hasn't confirmed the diagnosis, he has given no management, he's done fuck all and I still haven't even had my 72 hours ecg bc they said I didn't attend the appointment even though they never gave me one. And I couldn't even raise the issue with him bc I didn't get to talk to him at all since having the tests.

So now I'm meant to go back to my GP, who probably knows even less about POTS than I do, and what? Take some more meds, hoping that the symptoms I went to him for are actually due to POTS? Be told to stay hydrated?

Honestly, I'm really struggling with this, I thought that I might finally get to actually speak to someone who might actually have the knowledge to help me manage this shit and I don't even get a fuckjng diagnosis out of it.

[my-person-suit-is-defective]

[Caption: Screenshot of two twitter posts by ‘jazdia (bat emoji) deep sea cryptid @swampflora from 17 November 2020. The first post reads: “Don’t identify with your illness/disability” is deeply ableist nonsense. It keeps us from things that vastly improve our lives, like mobility aids & disabled community. It’s based on the idea that being disabled is a bad thing & that limits don’t exist unless we believe they do. The second post reads: So many people, including doctors, think encouraging us to ignore our limits, needs, and the ways disability/chronic illness shapes our lives, will magically make us nondisabled. It doesn’t. It makes us miserable, isolated and often worse off.]

[my-person-suit-is-defective]

Source: iluvmyheatingpad on Insta

[my-person-suit-is-defective]

I’m in hell

[my-person-suit-is-defective]

[my-person-suit-is-defective]

TFW you have at least 30 assignments to do but you have chronic pain

[my-person-suit-is-defective]

[my-person-suit-is-defective]

I swear to god the next middle aged woman to tell me “get better soon” after I tell them I cannot be cured is getting her shit rocked

[my-person-suit-is-defective]

Made a meme for people who relate to having chronic migraines/headaches

Where my peeps at?

[my-person-suit-is-defective]

[my-person-suit-is-defective]

[my-person-suit-is-defective]

I love talking to kids about disability bc

1. they often just Get It, and

2. they have 0 concept of disability as a tragedy or something pitiable.

I've watched kids get into an argument with a teacher bc they thought wheelchairs were cool. I told a kid that I can't stand for too long sometimes and they replied, "That's okay, I can't do cartwheels sometimes, but I just do other stuff then. You can sit down with me if you want". Today a girl asked me what the headphones on a classmate's desk were for and I told her that headphones are important for some kids because noises bother them, and she said she wished she had headphones at home, because her baby brothers make a lot of noise and it makes it hard to think. The idea that different people could use tools at different times is intuitive and simple and when accessibility aids are explained neutrally, kids don't see them as bad or unfortunate, they're just things that are useful.

Even mental disability!! In Kindergarten the other day one of the kids asked me why his table partner got stickers when nobody else did. I started off by saying, "Well, when you do your work well, it feels good, right? That's your brain giving you a reward," and the kid just right away went, "Oh, and the stickers are like his reward?" YES! You are 5 and have a better grasp on ADHD than most adults! Kids blow me away every day.

[my-person-suit-is-defective]

Friendly reminder that 1200 calories is the recommended amount for a 5 year old