Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patient & (amateur) advocate. Posts on ME/CFS and chronic illness/spoonie*/invisible illness.*A spoonie is somebody with a chronic illness who can relate to this analogy https://bit.ly/3MuHKLR
Today is #WorldIBSDay
I wish when I was diagnosed with #IrritableBowelSyndrome the gastroenterologist had been on the look out for #MyalgicEncephalomyelitis which I had all the symptoms of at that time & is often comorbid. It would likely have helped prevent my health deteriorating
#MEcfs #CFS
Press release for this Canadian study [Metabolomic and immune alterations in long COVID patients with Chronic Fatigue Syndrome]:
“We do not actually believe that long COVID is a separate new disease,” explains rheumatologist and clinical immunologist Jan Willem Cohen Tervaert, professor of medicine, who is an expert in fatigue associated with rheumatic illnesses.
“Some symptoms — such as the loss of taste and chest pain — are very specific for COVID, but we see a common pathway with ME/CFS, which leads to the same fatigue, brain fog, post-exertional malaise, widespread pain and non-refreshing sleep,” he says.
A reminder that if you live within 50 miles of NYC and you have a PRE-2020 ME/CFS diagnosis, then @VirusesImmunity
and I NEED your help! If you have difficulty traveling we will come to you. Please help us to hit our recruitment goals if you can!
---
Prof. Akiko Iwasaki is involved in this research. She just quoted this on Twitter/X saying:
Please help spread the word about our #MECFS study with @PutrinoLab 👇🏼 thank you 🙏🏼
---
Post-Viral Trials News @postviraltrials quote tweeted it saying:
David is underselling the benefits of participating – they give you microclot and platelet imaging and impressions! Here are mine: