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Kitties not come from eggs …

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Pixie at First day Specialized Programs summer program .

excited to see hear what maybe a actually nonverbal person to . but only be disappointed discouraged , this person can and do speak mouth words . maybe them are semiverbal or have intermittent speech or something . but is not nonverbal , not like Pixie .

Pixie not upset at person . them absolutely deserve AAC device . not matter what them's mouth words can or not can do , if AAC helps then it should be available to them .

Pixie just . discouraged . and . a very not knowing anyone else like Pixie make sad lonely feels .

Pixie just want . friend ? what also use symbol based AAC device all time because mouth words never happen , actually nonverbal

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I think a lot of the misuse of support needs labels comes from people labeling their support needs based on what they need to thrive, not survive.

When I say "I can't live independently," what a lot of people hear is "It would be hard for me to live independently and my quality of life is improved by having a caregiver." But what I actually mean is "I would literally die if I was left on my own."

I don't get the support I need to thrive either. I'm barely holding on. But I need certain things to be able to just survive.

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After more than six months of struggles and hard work , Pixie have finally officially announced that the big ( ? 24 by 36 ? inches ) Acrylic painting , is ( probably ? ) finished . maybe …

Any way , the trees have flowers now . :)

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Pixie tried One time ( recently ) to explain to friend . that Pixie have guardians , who make some decisions for Pixie , that sometimes not what Pixie really want . but . is still need to accept , because guardianship is not just a suggestion .

Not know why Pixie even try explain anymore . Nobody what have not lived with needing this level of support ever “ gets “ it . them always always always get SUPER upset and angry . and . not listen to Pixie . and tell Pixie to “ disobey “ , or get “ freedom “ back . freedom that Pixie never can have because it would seriously harm or kill Pixie ( and almost have before ) . Is not abusive by default to have guardians .

I get really confused, and even angry sometimes at lower support needs people who don’t understand the true meaning of autonomy and when it comes to caregivers and guardianship.

I mentioned ONCE in a group about wanting to go into assisted living and looking into it. Immediately got dog piled by people saying to absolutely not go into assisted living because itd “take away my autonomy” and “I should just live with others for as long as possible.”

Assisted living, group homes, guardianship, whatever, can very much mean that someone actually GAINS autonomy. And independence. The goal is for quality of life. We should be focusing on quality of life instead of what YOU want. What YOU want as a lower support needs person because you’ve heard bad stories.

Higher support needs people often don’t get the decision. It’s life or death for them. Y’all HAVE to realize that.

Stop forcing your narrative on young higher support needs people who are looking into different options for their care. Yes. It’s SCARY to be put in a bad situation, but often times it’s trial and error for us. Y’all HAVE to realize that. We don’t have the privilege to pick and choose between if we just live independently or go in a group home. It’s group home, or death, or living in a fucked up, maybe even abusive situation already.

Stop it.

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Unfinished Art : misty river through the forest

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Very almost sunrise