potsofcoffey

[potsofcoffey]

Tips For Healthy People: I’ve yet to meet a chronically ill person who likes being asked “how’re you feeling?” every day.

Bad. We’re always feeling bad. You can safely assume, at any given time, we’re feeling bad. It’s just a matter of how bad, and what kind of bad.

[potsofcoffey]

Holidays with chronic illness

I can’t even begin to explain how hard the holidays are with a chronic illness. Whether it’s not being able to eat anything anyone else is eating, to having over stimulation, and you know my personal favorite having to prove to family I’m actually ill and not making it up. As the holidays approach know you’re not alone I’m right here with you.

[potsofcoffey]

I wanna take a quick 25 year nap. Ya know just a lil snooze to perk me up

[potsofcoffey]

You know what? I wish I didnt have a chronic illness. I wish that I was completely healthy, and able to keep up with all of my abled peers that are passing me by. But I’m not. I am not completely healthy. I am not able to keep up with abled people. I’m just now, after all these years and setbacks, beginning to accept it.

Its okay to wish that you didnt have this chronic thing.

Its okay to not be okay with the circumstances surrounding you.

But I’ve gotten myself through the last week by reminding myself that:

I will go at my own pace.

I will persist.

I will keep trying to keep myself at baseline.

I will accept my flares, and I will get through them.

Ive got nothing left in me but pain and spite, and goddamn it, I’m gonna make it carry me through as long as I need it to.

[potsofcoffey]

How many points did you get up to today?

I’m chronically and mentally ill and sometimes feel like my day was a waste. I make things like this to remind me that I AM productive and successful, even if it doesn’t seem like it at first!

The start of your day (or whenever you get around to doing these things!):

Wake up - 1 point

Get out of bed - 8 points

Open the curtains - 2 points

Brush teeth - 3 points

Take meds - 5 points

Eat something - 3 points

Make a full breakfast - 6 points

Change clothes - 5 points

Drink some water - 2 points

Drink a full glass of water - 5 points

Take a shower - 8 points

Get some fresh air (window okay) - 1 point

Walk outside (for any reason) - 5 points

Get somewhere on time - 6 points

(Total possible = 60)

Middle of your day (or whenever you do these things!):

Eat something - 3 points

Eat a full meal - 6 points

Drink juice or soda - 1 point

Drink a full glass of water - 5 points

Take meds - 5 points

Do something nice for yourself - 6 points

Take a nap if you need to - 5 points

Watch a full episode of something or read a full chapter - 4 points

Answer emails or other online responsibilities - 5 points

(Total possible = 40)

End of day (or whenever!):

Eat something - 3 points

Eat a full meal - 6 points

Drink juice or soda - 1 point

Drink a full glass of water - 5 points

Take meds - 5 points

Do something nice for yourself - 6 points

Watch a full episode or read a full chapter - 4 points

Watch a movie (in chunks is okay) - 8 points

Go to bed after an hour or more of phone distraction - 3 points

Go to bed when tired - 9 points

(Total possible = 50)

Bonus:

Eat some leafy greens - 3 points

Make tea - 2 points

Put on some lotion/moisturizer - 3 points 

Meet up with a friend - 5 points

Do the dishes - 8 points

Do the laundry - 8 points

Take out the trash - 3 points

Take your pet for/go on a walk - 5 points

Make a phone call - 8 points 

Treat yo self - 5 points

(Total points = 50)

Congrats! You got some points and I’m super proud of you. Not all of these are things everyone can accomplish, so don’t feel bad if you didn’t get 200 points :)  Feel free to reblog with the number of points you got in the notes, or not - no pressure! Make your own too if this one doesn’t work for you :D

[potsofcoffey]

I got a meaningful tattoo today. It’s hard to come to terms with chronic illness. I have had chronic fatigue and POTS for years now.

I sleep… A lot. And I mean a lot. I feel like a lump blocking people’s paths and generally like a nuisance if I’m honest.. But I choose to believe that’s what makes me lovable.. and perfect for all the same reasons I fucking love snorlax. And sometimes I need patience from others and myself and sometimes I need to take it Easy.

I didn’t angle my snorlax for everyone else’s eyes. I faced it towards me as a reminder. As one thing I love (Snorlax) and another I choose to love, (being chronically exhaustedly me)

Also, it’s a great conversation starter and a segway into spreading POTS awareness.

If It means something to you, then get it. Your significant marker doesn’t have to be a ribbon or a color or a day. Make it bold, as bold as you. Even a slumbering Snorlax is bold. 💪🏻💪🏻

[potsofcoffey]

I’ve been ill for so long I’ve forgotten what not being in pain or exhausted feels like

[potsofcoffey]

Gentle reminder that just because someone’s mental illness/chronic illness/disability isn’t as bad as someone else you know of (likely on social media) it doesn’t mean that person is faking, begging for attention, or otherwise trying to plot against you somehow. Everyone affected by any ailment experiences things differently.

[potsofcoffey]

[potsofcoffey]

Hey All!

I need some followers, so if you are spoonie, Potsie or all around as broken as my body is come join me! Because we all need the support and I’m trying to spread as much love as I can to as many people as possible.

Remember you are loved and perfect even if you feel like utter canned beans.

[potsofcoffey]

I’m never not tired. I live with varying degrees of fatigue every day.

[potsofcoffey]

i know being extremely ill is a tremendous burden and i would never truly want to be sicker than i currently am, but fuck i hate being stuck in the grey area of chronic illness. that area of being able to shower yourself most days, of being able to cook sometimes, of being able to walk up a flight of stairs, of being able to drive a car, but also of not being able to work or study, of not being able to stand for longer than 5 minutes, of not being able to walk long distances or play sports or, let’s be honest, have sex. i don’t know where i am or where that leaves me, and what makes it harder is that the line between what a chronically ill person can do and should do is very, very blurry. it’s so, so hard living your life in a constant state of limbo

[potsofcoffey]

Invisible Disability Awareness | Pt. 1

[potsofcoffey]

Okay if someone is heat intolerant and they’re really upset and miserable because they’re outside or without air conditioning when it’s really hot they’re not “having a fit” or being a baby. The heat is making them violently ill and putting them in danger. It’s a dangerous health concern and you’re a huge dick if you’re minimizing that and laughing at them.

[potsofcoffey]

[potsofcoffey]

Your illness has not made you ugly

Your feeding tube has not made you ugly.

Your ostomy has not made you ugly

Your cane has not made you ugly

Your wheelchair has not made you ugly

Your oxygen has not made you ugly

Your wig/your bald head has not made you ugly

Your teeth or lack of has not made you ugly

Your body has not made you ugly

Your medications has not made you ugly

Your rashes, blemishes, scars and bruises has not made you ugly

Not being able to shower has not made you ugly

Flashbacks and paranoia has not made you ugly

Changes in your body and brain has not made you ugly

Having seizures has not made you ugly

Your trauma, depression and anxiety has not made you ugly

Your hallucinations, brain fog, and confusion has not made you ugly

Your lack of control over your body, brain, mood and life has not made you ugly.

Please never feel ashamed or ugly about what your illness has done to you, no matter what it has changed it can not change the beauty that you have, so even if you feel like youre not beautiful right now, please remember,

You are beautiful and your disability can never take that from you.

[potsofcoffey]

push me down and whisper naughty things in my ear like “i wont ever make your illness about me” or “i know youre sick, i know youre not faking”