shortaspoon - Tumblr blog

[shortaspoon]

This. All this. Sometimes taking care of myself means sleeping 16 hrs a day and using the rest of the time to (slowly ) shower or bathe and get some nutrition. Maybe catch a little news so I have a clue what’s going on in the world.

everyone says 'prioritize your health' 'look after yourself' until they realize that making your wellbeing your first priority means making everything else a lower priority. and yeah, that's sometimes ok if it's temporary, but if those health issues are chronic? oh boy do they not like it when you actually take their advice. sometimes prioritizing your health means neglecting your work, your household chores, your social life. 'looking after yourself' means not putting your energy into looking after everyone else first. and the same people who tell you to prioritize your health will get upset with you when they realize it means you're no longer priorizing them.

if you have disabled or chronically ill people in your life and you extend them sympathy and tell them to look after themselves when they're feeling sick, but then you get upset at then because they keep canceling plans. please. reevaluate.

[shortaspoon]

Turns out that I not only have fibromyalgia but also POTS, and lupus and Sjogren’s and non radiographic axial spondyloarthritis. Plus the bulging C5/6 and 6/7 discs and lordosis in my lower back. My year is off to a bang.

[shortaspoon]

Number 8,836,091 thing I hate about fibromyalgia:

Anytime anything is going wrong or I’m stressed about something it will trigger a flare and make everything 10x harder to manage. It’s the most frustrating situation every single time.

[shortaspoon]

I got these Loop earplugs a few months ago and they are amazing. You can hear the person, tv, whatever directly in front of you but they cut all the background noise. Their customer service is also top notch. The first pair I ordered got lost by the USPS and Loop got a pair on the way ASAP because I had ordered them to use at an event.

having auditory processing issues is so funny its like the second theres any background noise it sounds like the people talking to you are communicating in simlish