email to my teacher (warning alot of personal stuff)
Hey so, sorry to email you out of nowhere like this? But i feel like maybe im finally at a point where i can explain more thoroughly why im having trouble with school or just succeeding in general. I think its really important that i tell you some of this junk because theres a chance it might make the rest of the year easier for you and me.
I wanted to start off with apologizing for all the trouble ive caused you throughout the year with the annoying comments, disruptions and backtalk. And most of all the terrible ability i have with doing and turning in work.
This email is mostly to explain my situation and reasoning for acting/struggling the way i have been (not to annoy you or be sarcastic).
Alright so, if you havent noticed i struggle with some things and one of them i never really bring up is ptsd. I have been diagnosed and im hoping to enlighten you on my specific issues with it, (everything i mention will apply to me as to make it less confusing from here on)
I have a specific type of ptsd called Complex post-traumatic stress disorder (C-PTSD; also known as complex trauma) This type of ptsd is different in that it results from repetitive, prolonged trauma. My causes for being diagnosed are specifically natural-detachment from my mother and physical/sexual abuse growing up and some other things im not going to mention.
My side effects from this are,
Attachment – "problems with relationship boundaries, lack of trust, social isolation, difficulty perceiving and responding to other's emotional states, and lack of empathy"
This is strongly linked to my reactive attachment disorder and explains alot to why i am the way i am. Heres a link to a website http://www.webmd.com/mental-health/mental-health-reactive-attachment-disorder#1 that explains a bit of what it is so that i do not have to make this already long email that much longer, i would also really appreciate it if you read even just a little.
I have an extreme lack of trust in others and am constantly doubting myself, there is not a second of the day where i dont think im a horrible person, i could be doing better, im disgusting to look at ect. The social isolation is a big problem for me, because im “this way” i feel that bothering others with my presence/problems/medical difficulties ect. is not necessary and for the better. Hence why i refrain from asking when i really need help, im scared to bother you. I dont want to make you angry and i know you and mrs mumford are already so stressed by the time my bell starts.
Biology – "sensory-motor developmental dysfunction, sensory-integration difficulties, somatization, and increased medical problems"
This ties into my Fibromyalgia and eds which ill explain more about after i go through ptsd. Its all kind of one big mixed bag of disorders that tie together and make me the way i am.
Affect or emotional regulation – "poor affect regulation, difficulty identifying and expressing emotions and internal states, and difficulties communicating needs, wants, and wishes"
Like i talked about before i feel extremely useless and annoying when asking for help or even talking about the things i enjoy. And when trying to explain my difficulties i stop midsentence or forget words/forget what my problem is and it becomes frustrating.
Dissociation – "amnesia, depersonalization, discrete states of consciousness with discrete memories, affect, and functioning, and impaired memory for state-based events"
THIS is what i blame for never being able to remember anything. With fibromyalgia i have whats called “brain fog” and with the constant dream like state im in because of dissociation it makes my memory absolutely terrible. Remembering your names in class took me until almost 3rd quarter and it was utterly embarrassing(i still forget sometimes), its even more embarrassing when i forget basic buttons on the calculator and have to ask in front of everyone looking like an idiot.Or when i try to shout out an answer in class and it comes out gibberish because my mind is everywhere all at once, Or when we have a test on the formula we learned a week ago, and of course my mind draws a blank. I cant remember, and it makes me so frustrated with myself that i want to break down right there in class. It renders me doing weird things too, like the other day i put the icecream in the bread drawer, and on sunday i woke up and got ready for school. Theres alot of other things i could say but its as if fibro is laughing in my face.
Dissociation in my own words is feeling like nothing is real, things dont feel like they happened. What does feel real is the pain/feeling in my body, i am a very anxious and jumpy person so im very sensitive to loud sounds/touch/weather and certain (triggering) talk among students. And yet i still feel in a daze,My vision will sometimes blur and i am very prone to falling/accidents, staying focused can be extremely frustrating because my brain feels like a cloud, its almost uncontrollable like a dream. I dont think anyone can control those very much so i think its a good example.
Behavioural control – "problems with impulse control, aggression, pathological self-soothing, and sleep problems"
Im pretty okay with impulses, i of course have alot of very impulsive thoughts but i am good at controlling them id say, same with aggression but i very much so struggle with sleep problems because of nightmares from ptsd and chronic pain from fibro, i have not been diagnosed with insomnia but im sure i fit the criteria im just really bad at opening up with doctors/people ect.
These are just a couple more symptoms to help explain,
Cognition – "difficulty regulating attention, problems with a variety of "executive functions" such as planning, judgement, initiation, use of materials, and self-monitoring, difficulty processing new information, difficulty focusing and completing tasks, poor object constancy, problems with "cause-effect" thinking, and language developmental problems such as a gap between receptive and expressive communication abilities."
Self-concept – "fragmented and disconnected autobiographical narrative, disturbed body image, low self-esteem, excessive shame, and negative internal working models of self".
Alterations in relations with others, including isolation and withdrawal, persistent distrust, a repeated search for a rescuer, disruption in intimate relationships and repeated failures of self-protection.
Loss of, or changes in, one's system of meanings, which may include a loss of sustaining faith or a sense of hopelessness and despair.
Variations in consciousness, including forgetting traumatic events (i.e., psychogenic amnesia), reliving experiences (either in the form of intrusive PTSD symptoms or in ruminative preoccupation), or having episodes of dissociation.
Changes in self-perception, such as a chronic and pervasive sense of helplessness, paralysis of initiative, shame, guilt, self-blame, a sense of defilement or stigma, and a sense of being completely different from other human beings
Now that im done explaining the ptsd, Fibromyalgia
Fibromyalgia is a chronic pain disorder that my doctor believes to be linked to my other disorders, Fibromyalgia has to do with the senses we as humans all have, feeling, hearing, taste, and sight. The difference between someone with fibro and an average healthy person is lets say theres a knob for how strong each of these senses are, so imagine someone taking all those knobs and turning them all the way up to max sensitivity. Youd think oh cool youre like a super hero (like my sister likes to say) but no its the exact opposite, it does not benefit me whatsoever. Feeling, paired with ehlers danlos syndrome both my joints and my muscles are constantly in pain and some days ill have what you call a “flare up” which is where getting out of bed usually isnt an option for my body, i cannot remember the last time i didnt feel at least a dull ache in my head, i get migraines at least once everyday and unfortunately i get nauseous so i dont eat very much . Almost everything is irritating to my skin, a simple light rub of my finger on the top of my forearm is irritating and raw feeling (like ive been sitting there rubbing the same spot for hours) /Writing is over all painful, including typing as well/
If youve ever woken up in the morning with sore muscles from pushing yourself too hard the day before,that is how the muscles in my body feel, if you press on them they ache, and sting/burn when i use them. painful touch for most of my body paired with constant anxiety of getting bumped into/touched is stressful and tiring. On a good day my pain scale is a 5 from 1-10 but thats if im really lucky.
Then theres the weather, if im too hot and i start to sweat, the sweat stings my skin and i end up going into a frenzy of scratching and agony. If its too cold my joints will start to lock up and become painful, its like they freeze and when i move them it feels like im shattering ice in my hand mixed with dull muscle ache. If its a good temperature theres still the feeling and i swear, the sound i can hear of my joints grinding together like two pieces of rubber being rubbed against eachother slowly.
Hearing is also bad, loud sounds are very irritating to my ears and will cause my migraine to get worse.(Talking too loud)Other irritating sounds, paper rubbing against paper roughly making that blblblb sound, high pitched noises of any loudness, squeaks, repetitive beeps ect.
Sight wise turning on lights abruptly is painful and makes my migraine worse, any bright light in general.
Taste doesnt really matter so i wont mention, but because these knobs are turned full blast it means the nerves and pain receptors in my body are being over worked constantly by my brain
And my brain thinks its doing its job by constantly acting like ive been running triathalons.
The recollection of pain comes in avalanches of distress for me. I usually experience the intense turmoil of fibromyalgia in the winter, or whenever cold fronts shatter the air and its frail victims. My limbs cannot contain the strength possible to function during those cold spells. Fibromyalgia’s lengthy sentence comes and goes for some, but, as a teenager, it’s disheartening. For the rest of my life, I will never be able to remember living without every waking moment marked by pain.
The abnormality of fibro weighs on my shoulders when I’m asleep, awake, or anywhere inbetween. I wake up at 4:30 each morning in order to be shuffling around by 6:20 a.m. The heaviness of my body pulls me down and pains me as I take a shower, put on my clothes, and put my small backpack on my shoulder to head out to school. Any sense of touch creates extreme levels of pain for me. Touching my arm, poking my leg, and brushing against my back hurt as much as twisting my ankle. My distraught reaction is a lot like a dog crying in pain and distrust after you accidentally step on its paw. Because im always in pain im always right next to the emotional breaking point, im always on the verge of tears. The smallest things can make me break down.
The pain prohibits me from being a teenager. Thanks to fibro, I cannot dress up in my favorite clothes and be what you call “Extra” everyday as i so much wish to be during the winter. My hands are crooked and shake too much usually to apply makeup. I struggle with applying eyeliner, because my hands hurt too much wrapped around a brush. The uncomfortable school chairs make me weep when I return home, because they destroy my concentration, forcing me to focus on the overwhelming pain I feel. I used to excel in school, but now, I can barely think fast enough, and come off as ditzy. I feel like I’m constantly struggling to maintain the fragments of my intelligence I lost due to fibro medication and fibromyalgia itself.
My GPA, became my ball and chain in school, rather than an accomplishment worth sharing. During the year, my schedule is dictated by the weather. Cold weather causes agonizing, excruciating pain that races down my spine and branches through my limbs. If a cold front passes, rain falls, snow falls, or temperatures drop, I freeze like the Tin Man, except there isn’t any oil to move my joints. The way I get sleep should be considered a torture method. Many people feel refreshed or renewed when they wake up after 8 hours, but I feel completely restless and exhausted. And thats if the nightmares from the PTSD dont interrupt. I toss and turn for hours in pain, because the pain signals interrupt the sleep cycle. I cry intensely whenever I think of sleep; school usually means a lack of sleep, but I am further deprived without choice. My biological system cannot allow me to rest, and continues to tense my muscles in a constant state of flight or fight.
With most schools starting at 8 a.m., my body struggles to run on 8 hours of sleep (which really feels like two). The exhaustion prevents me from hanging out with some of my closest friends. In the early stages of having fibromyalgia, I used to be able to do school clubs, hang out with my best friend, and go to cons with my friends often. Now, I spend my time huddled down, trying to make up for the nights of lost sleep. The lack of sleep and the endless pain contribute to extreme depression. And to keep my mood relatively happy i act like a goose in school with friends which doesnt do me good with teachers, I do it to not break down and let myself get too low around others because i know id regret embarrassing myself like that more than anything. The pain yearns for my thoughts to leap toward suicidal thoughts, and I was obsessed with death for years and still am. There was a time when I searched for ways to end my life, because nobody could help me and I couldn’t face living the rest of my life knowing that I’ll always be in pain. I still have these thoughts, and I believe I always will as long as I emit pain. Hence why i was in the hospital for a week recently, the hopelessness and embarrassment is dragging me down. The whole idea of having fibromyalgia embarrasses me. I’m embarrassed that I am constantly being called crippled, disabled, or chronically ill.Or worse not being noticed at all while struggling. I’m embarrassed that fibromyalgia makes me feel like I’m 67 instead of 16. I’m embarrassed that I will never be able to be an artsy beat poet like Patti Smith, or a rock ‘n’ roll guitarist like Keith Richards.
So i think thats as much as i can cover for you right now with my two of my biggest problems , im extremely exhausted and im not joking when i say my fingers feel like they are gonna fall off haha.
Im terribly sorry for how long this email is but i think i got most everything with these two topics in there, also dont feel obliged to reply to this, im already embarrassed i even wrote all this down (terribly).
Quick thing i would like to say before i end the email, with all respect i am not looking for sympathy in any way. I am simply stating the way i am in hopes that if you understand itll make things less stressful for me and you. So dont feel like you have to do anything for me.
Thankyou for reading if you got this far, really. (btw forwarding this to Mrs. m******d is totally okay with me)
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