#neuropathysucks

[cancer-n-champagne]

#neuropathysucks #bonepain #fuckcancer well I had waited long enough to see Doc again about nerve issue. Had my #nerve testing and got results back no change. Permanent #neuropathy I’m a little better since #chemo ended but this will be my #newnormal was hoping to have some improvement but my numbers have no change. Never thought this would be my life was hoping for improvement but 😝. Find a way to move on. All of this before I’m #40 thank god for my awesome caregivers mom & sis @sprwmn78 for helping me. Nighttime is such a bitch when my legs get tired and weak. Hope to get in pool soon bc no gym for me a risk @nbcf @youngsurvivalcoalition @breastcancer_awareness @hoaghealth @breastcancermagazine @livingbeyondbc @stupidcancer @su2c

[desireesavory]

I listen to the wind blowing through the trees when I'm walking to pass the time. I pay attention to the beauty of the sky, ignoring how long it takes to get through it. I don't look down. I look forward. #exerciseroutine #walkingforhealth #cancerfree #cancersucks #neuropathysucks (at Katy, Texas) https://www.instagram.com/p/B5yI7dlJcqH/?igshid=13xdgtwo1d7xw

[adrenalninja]

Brand new video just posted. Regarding taking too much b vitamins, taking crappy b vitamins, having environmental stressors, and genetic susceptibilities that result in neuropathy. Check for YouTube link in description. #bvitamin #bvitamindeficiency #vitamintoxicity #neuropathysucks #neuropathyawareness #mthfrgenemutation #mthfrawareness https://www.instagram.com/p/B04Mv5BA6hT/?igshid=1etg27g9rkpnj

[incurableoptimistest1994]

Ah, the fun of living with neuropathy 🙃! Trying to reduce my amatriptalyne because “I don’t think it’s doing anything” but BOY WAS I WRONG! Had all my meds and still feel like I’m on fucking fire 🔥 🙃 so I’m chilling out the back garden with my piss bag in the dark 😂 whilst everyone watches Forest Gump inside. #neuropathysucks #imonfire🔥 (at Llansamlet) https://www.instagram.com/p/BsBZj_dnJb6/?utm_source=ig_tumblr_share&igshid=my8qy47j7fr

[kimbalikes]

The Blokefolk have already been SUP boarding today, for a swim and are about to go snorkelling. I've been to breakfast, read my book and got whupped at Cards of Humanity. ⠀⠀⠀⠀⠀⠀⠀⠀ Unfortunately chronic pain and illness don't disappear on holiday. ⠀⠀⠀⠀⠀⠀⠀⠀ So I'm laying off the gluten, cocktails, too much fruit and dairy to reduce my inflammation flare and sore tummy. Meanwhile, there's a hammock with my name on it! #AIdisease #connectivetissueissues #neuropathysucks #chronicpainwarrior #invisibleillness #chronicillness #sjogrenssyndrome #AutumnStyleFile #kimbalikesStyleFile #TeamStyleFile #CurvyAU #realmumstyle #40plusstyle #inbetweenie #spotmystyle #realstreetstyle #makeyousmilestyle #colourmakesmehappy #everydaystyle #kimbalikesholidays X (at Castaway Island Fiji)

[tiffietiffietiffie]

Prayers please! And the thing about it is, I hardly have eaten anything for my feet to be so bothered... Thry hurt when I EAT and they hurt when I DON'T EAT! I don't understand...#DiabetesSucks #IllNeverUnderstand #NeuropathySucks #IHateYouDiabetes #IJustWantToWalkPainFree (at Habersham, Georgia)

[dialysiskeepsmealive-blog]

The pictures probably don't show it clearly, but I was a quilt with quilt like socks from @societysocks a great company that #donates a pair of socks with every pair they sell. If you can join their sock of the month club. It's fun getting cool socks in the mail #REMEMBER #DialysisKeepsUSalive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #societysocks #quilts #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry

[dialysiskeepsmealive-blog]

We finally were able to get a #nintendomini #goodmemories #IthoughtitwouldtakeforeverforZanetopresstheAbutton #traviswasaproat2 #gottacollectemall #systems #REMEMBER #DialysisKeepsUSalive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry (at Best Buy)

[dialysiskeepsmealive-blog]

Friday socks.#owl socks #purple socks. I couldn't pack all my costume stuff so I just am wearing purple and purple socks to dialysis while on my #vacation They said they would pull off fluids today. I'm hoping they do. My stomach really hurts from all this extra fluid. #REMEMBER #DialysisKeepsUSalive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry (at Freeport, Illinois)

[dialysiskeepsmealive-blog]

My awesome #vacation techs! #purple #polkadot socks I'm getting very frustrated with my #vacay dialysis nurse and home Drs. I have extremely low blood pressure. It normally runs anywhere from 60/40 to 80/60. And when I am doing dialysis get gets lower, much lower. So understandably my nurse is extremely nervous when this happens. So she stops pulling fluids off. (I don't pee so any fluid I eat or drink has to be taken off with dialysis) Well this has not been happening. I am up over 15 pounds of fluid. My face is swollen, my legs are swollen and my stomach are swollen. My lose pants are uncomfortably tight. If she doesn't take fluid off tomorrow it is going to go around my heart and lungs. Causing me to have to go to the hospital. I have asked my home Drs to help. They say they can't. I finally had to call my dialysis complaint line. They gave me numbers to call on the morning, but if they don't help, I get to spend part of my vacation in the hospital. So not necessary. I only had 6 dips of liquid today. I've been so nauseas I've couldn't eat all day. I was finally able to eat some toast. It's not my fault I have low BP. The medicine you can take to raise it did absolutely nothing. Prayers would be appreciated and thanks for letting me vent. #REMEMBER #DialysisKeepsUSalive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #polkadot #purple #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry

[dialysiskeepsmealive-blog]

What to do when your birthday falls on a dialysis day??? Bring a birthday party to dialysis. With flashing tiaras around the room everywhere I looked I could see my partying dialysis mates. Everyone got a pencil and vanilla wafers (even diabetic patients can sneak a wafer) and when all we can do is just lay there the flashing tiaras made my day. I'm not suppose to take pictures of other patients and it took awhile for everyone to get theirs. But it was a fun party that I look forward to hosting every other year. I also found out that one of my fav. Mates shares a birthday with me, but now that I go in an hour later I miss seeing her and her family. But I did get one of her birthday donuts. #REMEMBER #DialysisKeepsUSalive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry #Happy birthday #happybirthdaydialysisway

[dialysiskeepsmealive-blog]

You know I love pigs 🐷🐷🐷 #REMEMBER #DialysisKeepsUSalive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #pigsocks #pigs #pigfun #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry

[dialysiskeepsmealive-blog]

Monday's ride Janelle! And my look. #CanYouGuessMySocks #swipeforanswer. I waited months for the perfect jacket to go with this outfit out then forgot to take a picture...#duh Please remember #DialysisKeepsUSalive 💜💜💜 #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #crueladeville #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #101dalmations #wigfun #makeupfun #jewelryfun #jewelry #imsolucky #greatneighbors (at DaVita Dialysis Center)

[dialysiskeepsmealive-blog]

Wednesday dialysis was #toadally terrific. Self canulated again. #DialysisKeepsUsAlive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry #toads #toadsocks (at DaVita Dialysis Center)

[dialysiskeepsmealive-blog]

I'm a pink rock star in my new outfit! Wearing pink with sparkly gold heart socks. Tried to match my face to my outfit. As always having fun getting ready. #DialysisKeepsMeAlive #PleaseBeAnOrganTissueAndBoneMarrowDonor #YouHaveToMakeItFUN #dialysissocks #dialysis #socks #sockfun #funsocks #sockgame #sockselfie #sockobsession #onecanneverhavetoomanysocks #kidneys #kidneywarrior #PKD #neuropathysucks #spoonie #wigfun #makeupfun #jewelryfun #jewelry #pink #gold #sparkly #rockstar

[kimbalikes]

Not coping with the eleventy billion percent humidity. Not coping at all. My skin hurts and my joints ache. ⠀⠀⠀⠀⠀⠀⠀⠀ So I'm making myself as comfy as possible with a fun @gormanclothing dress, @sussanfashion linen shorts and comfy as @zierashoes ⠀⠀⠀⠀⠀⠀⠀⠀ #SummerStyleFile #kimbalikesStyleFile #stylefileINSTA #sharedmystyle #CurvyAU #realmumstyle #40plusstyle #inbetweenie #spotmystyle #realstreetstyle #everydaystyle #australianstyle #makeyousmilestyle #styleatanyage #styleisageless #styleissizeless #colourmakesmehappy #iwillwearwhatilike #TTRlovingpreloved #thethriftedredhead #GormieGirlGang #gormanOOTD #showusyourgorman #AIdisease #connectivetissueissues #neuropathysucks #chronicpainwarrior X