#nicuparents

[irishprematurebabies]

https://www.hippocraticpost.com/australasia/stillborn-and-preterm-statistics-for-covid-19-first-wave/ Interesting research. The research of 52 million births from 26 countries, published in Nature Human Behavior, reported a 3-4 per cent reduction overall in preterm births, averting almost 50,000 preterm pregnancies during the first month of lockdown alone. But the decrease in preterm births was limited to only high-income countries including Australia. The International Perinatal Outcomes in the Pandemic (iPOP) Study, one of the largest such studies of its kind, involved 167 collaborators across 42 countries. Murdoch Children’s Research Institute co-led the project alongside The Children’s Hospital Research Institute of Manitoba, University of Manitoba, The University of Edinburgh and UNSW Sydney. #preemiefamily #preterm #prematurebabiesawareness #neonatolgy #neonatal #prematurity #earlybaby #earlybabies #premature #research #nicuparents #nann #NICU https://www.instagram.com/p/Cpvrxnaqzb2/?igshid=NGJjMDIxMWI=

[terribell85]

Just in case you didn’t get the memo: I PUBLISHED MY FIRST BOOK LAST MONTH! You can get it on Amazon! The link is in my bio/comment section go ahead and snag a copy, if it’s not your story, donate it to your local NICU or house of worship as a resource for families. #nicunowwhat #nicuparents #nicunurses #nicu #resources #selfpublished https://www.instagram.com/p/CBmH7jyp7AX/?igshid=to9fh0q30f7b

[malialaka]

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A post shared by AmberMaliah.TemanaKai.Laniakea (@chickswhorip)

#borrowaloha #mahalot in 10 days this lil mutu moko , booboo boss is officially 3 yrs old (original kanaka bday). Trying to keep track of everything and having less strokes myself working on memory. Just wow laulau!!! Congrats to all the Keiki who survived #HeartWeek in Hawaii and my lil brave boy, more blessings to those who make it this far that he may follow in inspiration . Mahalo to all that have supported and prayed for us and helped us lele both islands in the last 6 years, last year has been a good recovery frame. . Although he had a major seizure a week ago, he’s shown so much progression without having much internal physical traits, or consistent likeness as my siblings and I ,other than our biggest strength- versatile adaptation. We found in lab tests that this isn’t from my family genetics, but what we did learn from him is even more greater , astonishing and amazing even for someone so young , and very rare in this world - definitely not lil 2 lb anymore. As his birthday rolls on in , we want to give more than we already do , as do all our birthdays. Mahalo to all the aumakua , mini me Temana and I can finally break a little of the barrier and I hug more again as my immune system is strong enough to manage my lil pohaku ( mr. Sniffles and cigarette smoking still- 5 feet away please) #repost #Laniakealove , 8 surgeries and 7 months later... #Schoenhardtchallenge working on using his mouth with nippling before he forgets...cooing is so cute though and not annoying loud 🎉💗 it sounds more soothing than crying. Making him volunteer . Learn to use his right hand which he favors his left. Associate pressure on pulling, and his pacifier pressure on his lips, so he can later hold his pacifier. Currently he is blind, we don't know if he can see or it's blurry all together since the clot in the #3rdVentricle is at the level of eye organs. His eyes wonder but I found he has areas he can find a bit a focus because he can stare in that direction or tries too.#brainbleedawareness #hydrocephalus #bloodcot #gestationaltube #gitube #nobrain #GiveForward #shunts #nissen #braintap #nicumom #NICU #nicuparents #preemie #invisibledisabilities #enable @laniakea_love #laniakealove #mylilfatgecko #childdisibilityhawaii #hawaii #cerebellumagenisis #stroke #ivh4 #iv3 (at Kapiolani Medical Center for Women & Children)

[meggsbacon30-blog]

The best worst day

10-30-2017. The best worst day of my life. My baby boy was born and we were overfilled with joy! It was only a mater of minutes before the nurses began to wipe him off and take his vital signs. Everything was looking good until they went to check his temp. They were going to use his rectum to do this but when they went to, there was no anus. He was born with what is called imperferated anus (no butthole and 1/5000 babies who get it). Because of this he was immediately taken and had an IV put into his tiny little hand. At this point my husband and I were both in shock and had no idea what was going to happen to our baby. Because of this condition, he couldn’t eat. The doctors began to call around to different hospitals to find a nICU bed. They found one that was 2 hours away from the hospital he was born in. They immediately had a helicopter come take him. He was only 4 hours old when they came to take him. As the nurse walked out of the room he was screaming and I could do nothing about it. I was stuck in the bed. I was stuck in the hospital for the next day as I was awaiting to be discharged. As soon as I was discharged we went to the hospital our baby was at and spent the next week and a half down there. He was in the nICU, cold, alone, and without his mom and Dad. My heart ached because I couldn’t be with him. My heart ached because I couldn’t fix him and comfort him. When we got to the hospital we had to wait until he was out of surgery. He had to have a colostomy done and has a stoma now. Once he was out of surgery we were able to go into his room with him and be by his side. At this point he is one day old and feels alone because I can’t hold him. I can’t let him know I’m there. It was two more days before I could hold my boy. Once I held him and cuddled him, he looked at me and realize who I was. His eyes filled with tears as mine did. I was so overwhelmed with emotion. I was able to hold my baby. The next day was the first time he was able to eat. He was two and a half days old when he got his first meal! And boy oh boy was that the best thing that has happened to him! He LOVED this. He was so happy. Now our next step was to get him to eat 80ml. This only took about three-four days. By the end of this he was wanting more than 80ml and we couldn’t give him more because we had to wait for the doctor to give us the green light. Once they saw his stoma was working they began to show my husband and I how to put his colostomy bag on and how to care for it. And let me tell you, this was the most stressful this I’ve ever done. This bag is extremely sticky so it will stick to his skin. Not only did they put the bag on but also tape on the edges. And this bag has to be changed every 2-3 days. It was almost time to come home and we roomed in at the hospital with him. This means we stayed the night at the hospital with him and did all the care for him so the nurses knew we understood what we were doing. The next morning we were discharged and able to go home! Colostomy bag and all. We were told that he would have at least a couple more surgeries left to construct the anus and to reconnect his stoma. We were ok with this for the time being... once we got home we had some adjusting to do. This is not normal newborn care. We have to empty the bag every diaper change, be sure to let the gas out of the bag, and check it for leaks. Leaks are not your friend. In the hospital the bag would stay on for about two days. At home the bags would only last for about 24 hours. (This is ok but not preferred). I gave him a bath and put a clean bag on. The bags began to leak and not stick. It started to leak multiple times a day causing us to change it more than once a day. It was the soap I was using to bathe him! Switched from baby soap to dial (I hate this soap for his skin) and the bags are back to sticking for around 24 hours. We are still learning and working through this and it’s hard. But oh so worth it to help our baby boy 💙 he is now almost a month old and a very strong fighter.

[alloileverything-blog]

Celebrating and creating awareness on #WorldPrematurityDay You never know how strong you are, until you become a preemie parent. 1 in 10 babies is born too soon every year and premature birth is the largest contributor to infant death. Lots of love the families who know the struggle and here's to the education and prevention in the future. Please consider donating to the March of Dimes to help change this scary statistic. Today ONLY this awesome organization is TRIPLING your donation until midnight. Started the day with our donation in honor of Dominic “Speedy” Gonzalez who is the brightest three year old I’ve ever had the privilege of “momming ” 💜💜💜💜 Here's to all the fighters and fellow parents/relatives in the "NICU club", Some who unfortunately don't get to take their babies home 💜💜💜💜 #nicumom #nicunurses #preemie #preemiepower #November17 #preemieparents #preemieawareness #prematurityawarenessmonth #purple #33weeker #thedominicjarin #Nicu #nicubaby #nicuparents #MarchofDimes #donate #alloileverything

[surveycircle]

New on my Pinterest: New Studies @SurveyCircle http://bit.ly/2De7Qh7 : Participants needed for online survey! Topic: "Behavioral outcomes of preemie children aged 5-18 years" http://bit.ly/2J9ZAUa via @SurveyCircle #preemie #behavior #outcomes #preterm #micropreemie #nicu #NicuParents #children #survey #surveycircle http://bit.ly/2X9TmNZ #SurveyCircle #Research #Survey #Study #CallForParticipants #Participants #Respondents | Participate now: http://bit.ly/2KD52lN

[bluestwos]

30 days later 12.12.19

Today you came into this world. You demanded attention inside of me and demanded an audience upon your entrance into the world. So many people have awaited your arrival and I’m so insanely anxious to hold you. I deeply miss your sister and wish she could’ve stayed around for the party but it was her who helped you and me get to this day.  She will always be a part of us but her main job has been and will continue to be your very own guardian angel. I pray that you defy the odds and push through this stage of development. I pray that God continues to shower us with blessings. I thank God for the strength he gave us both. I’m so thankful to have you and can’t wait to hold you and look into your beautiful eyes💜

[irishprematurebabies]

1lb 2 oz, born at 22 weeks and spent almost a year in hospital. A big one now and hopefully will come off all mechanical ventilation. There were 2 siblings at home which inevitably is extremely difficult for younger children to be separated from their mum and vice versa. Hopefully their new journey together is easier. https://eu.statesman.com/story/news/healthcare/2023/02/06/premature-baby-born-22-weeks-st-david-medical-center-austin/69856746007/ #preterm #earlybaby #pretermbirth #pretermbaby #nicuparents #neonatolgy #NICU #specialneedsfamily #ireland #preemie #preemiefamily (at Ireland (country)) https://www.instagram.com/p/Cobr-LkqMCj/?igshid=NGJjMDIxMWI=

[terribell85]

I know there are a lot of people who have read my book or plan on reading my book, it would help me out a lot if you would go and review it on Amazon once you’ve read it! Thanks so much for your continued support! #nicunowwhat #nicuparents #nicunurses #nicu #resources https://www.instagram.com/p/CA-r9oOpVzT/?igshid=pqsa5v8bnhxz

[crackiehatesfeet]

Throwback Thursday to the first time ever they held hands. They were 3 weeks old and starting to get regular cuddle time with each other in the Nicu. They had adjoining rooms and could visit each other with a lot of help from the nurses. Both of their heart rates would stabilize when they were together. * * I vividly remember this moment. * * #momblogger #fortbirthday #tbthursday #tbt #nicu #twins #fraternaltwins #nicugrads #holdinghands #brothersforlife #twinsofinstagram #nicumom #nicudad #nicuparents #32weeker #firsts #twoyearsago (at University of Maryland Medical Center)

[surveycircle]

Participants needed for online survey! Topic: "Behavioral outcomes of preemie children aged 5-18 years" https://t.co/iv9vU2X3H4 via @SurveyCircle#preemie #behavior #outcomes #preterm #micropreemie #nicu #NicuParents #children #survey #surveycircle pic.twitter.com/tf7peSa4Jo

— Daily Research (@daily_research) June 26, 2019

[hypeceo1]

Rylyn Lee MacTaggart 3/14/16 - 4/7/16 Today is a hard day for us as it was a month ago that we lost the strongest fighter we've ever met in our daughter Rylyn! 💔 You came in this world almost 4 months early and spent every moment of your 24 days on this Earth showing your parents and family how strong you are! 💖 We cherished all time we spent with you, just looking at you move all over your isolette, touching you, holding your little feet, hands and caressing your hair! The way your eyes got so big when you heard or voices! Though GOD needed you more than this world did we miss you everyday and would give anything to have you back! We are very happy we got to be with you when you came in this world and were there when you left us! We are very proud to be your parents & #DaBud loves his little sister! He talks about you everyday and knows Angel Rylyn is with him and watching over him always! You will be with us forever and we will see you again someday! #loveyoubabygirl #daddyslittleprincess #daddysgirl #RIPRylyn #NICUparents (at Good Samaritan Hospital Medical Center)

[irishprematurebabies]

Today is World Prematurity Day. Today is about increasing awareness of prematurity. Today we stand united around the world. This year's focus is on the introduction of skin to skin immediately after birth. The message to be conveyed is " A parents embrace is a powerful therapy"  In IPB we have been massive advocates of  skin to skin care since 2009. Research has documented its powerful effects on preterm babies and parents. The WHO is pushing the message today across the globe.  Preterm babies and parents both thrive with skin to skin care. #worldprematurityday #worldprematurityday2022 #Ireland #skintoskin #kangaroocare #preterm #neonatolgy #pretermbirth #prematurity #prematurityawareness #neonatal #nicu #nicunurses #nicuparents (at Ireland (country)) https://www.instagram.com/p/ClD40tgqmKH/?igshid=NGJjMDIxMWI=

[terribell85]

IT’S HERE!! My very own hard copy of my very first published book! You can buy it now from Amazon! 🌻 It’s designed to be a practical guide for parents who find themselves in the NICU! If that’s you, this book is for you, and if it’s not you, this book is for you to give away! Consider buying a couple and donating them to a hospital, birth workers, or nonprofits who help in the NICU, or you can just buy one for your shelf to support me! 🌻 Seeing it in real life, touching the cover, seeing the names of those that helped me in print, overwhelms me all over again! 🌻 I use to write poetry growing up and into my years in the Army, and then I had a blog; several iterations of blogs actually, but I’ve stayed consistent for almost ten years with one, yet I never considered myself a writer or an author. 🌻 But God says something completely different about me, and it is time for me to walk in the identity of who He says I am: A WRITER AND AN AUTHOR, and this is just the beginning! #nicunowwhat #infullbloom #firstofmany #published #ididit #2020goalaccomplished #nicu #resources #nicuparents #nicunurses https://www.instagram.com/p/CAibn0CphUd/?igshid=8jso5mf5tt90