#potsukchallenge

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Day 4 of #PoTSUkChallenge favourite salty snack... well I don’t have any of mine in right now so it’s a picture of a starbar! My go to salty snacks tend to be cheese crisps or salty popcorn. I also love anything salty and sweet... I quite like sweet and salty nut bars So the reason salt is so important for people with PoTS is that it helps the body better absorb fluids and also increases blood volume so people with pots are recommended by DOCTORS to have a slightly elevated salt intake. I’ve found it one of the easiest life style changes to make. In case of flare ups I carry around a tiny Tupperware container with little salt sachet’s (you can buy them in bulk)in so if things are tough I will add salt to any food or drink I can get my hands on... water, juice, coffee whatever! #PoTS #dysautonomiaawareness #PoTSUK https://www.instagram.com/p/B3Njd1_hXWP/?igshid=fw6qof05fbh1

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Day 2 of #PoTSUKChallenge is ‘what does PoTS look like to you?’ Naps! Lots of naps! I have to nap every day and make sure I’m getting enough sleep. If I’m tired or have not had enough sleep it makes my #PoTS dramatically worse so sleep is very important. I have to plan my activities and energy required to try and pace myself (I’m not the best at this). I have to try and balance fluid intake, rest, time sitting/standing and activity to ensure I’m looking after myself. Standing still is a major issue for me. So today’s image is me tucked up in bed with the covers up to my chin just before today’s afternoon nap. Night night x #Nap #ChronicIllness #invisableIllness #invisabledisability #Pacing #Fatigue #PoTSUK #InvisibleDisabilities @potsuk @invisibledisabilities #NapTime #Tired #TiredAllTheTime https://www.instagram.com/p/B3HsIjTBbfI/?igshid=1mue6e8a4gdp4

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Day one of the #potsukchallenge is a selfie I can do that! Second image is a list of the challenges for each day. I’m going to attempt to do every day so you have been warned. It’s #PosturalOrthostaticTachycardiaSyndromeAwarenessMonth which is why I’m doing this. #PoTS can be really debilitating and there is no cure. I have PoTS it affects me every day but I’m thankful most of the time it’s controlled with medication and management but it’s a very delicate balancing act. #InvisableIllness #PosturalOrthostaticTachycardiaSyndrome #InvisableDisability https://www.instagram.com/p/B3EdtluhKYL/?igshid=81zadm9xg2cu

[jemmabrown]

So as I’ve previously said I’m going to attempt to do the #PoTSUKChallenge and post a photo every day as part of #Dysautonomnia awareness month. Today’s photo is a selfie so that was easy! 2nd photo is a list of the challenges for each day... it doesn’t fit unfortunately. @potsuken have you got a version that will fit on insta? (at Weston, Southampton) https://www.instagram.com/p/B3Eb3EYBKc2/?igshid=r9111pdt5j58