#seizurelife

[beccab1009]

I’m really missing the ball on top of my head. Having hair the goes down to your butt, then to having no hair at all is a real change. It has been weird not having all that hair. But in the past few months it has grown so much. Next Monday though all of that growth will be shaved off. Some of you know that I will be having another surgery. I am very excited and a little terrified. Lol. But this surgery is what I’ve been waiting for the last two years. I will be getting the RNS System put in. Hopefully this will stop me from having seizures! https://www.instagram.com/p/CAnndOMhnaK/?igshid=isxhsj4logd2

[lauraann97]

Thanks For The Memories, Officer!

Thanks For The Memories, Officer!

It’s known that when you have seizures you can’t drive right? But in the State of Michigan once you are 6 months seizure free, you are able to drive again; woohoo!! However, when you do have seizures, you are “technically” supposes to report it or whatever and get your license suspended. I never did that, because it’s a pain in the ass! It’s a huge hassle; plus I just didn’t drive. I knew the…

[2fat4skates]

My pitbull is my #bigspoon! #fivemoreminutes she insissts as I wake up. My #selfcare was staying in bed with Bailey and Begeezus to meditate and cuddle and #fuckit we took a 2hr snooze. #ilovemypitbull #seizurelife #flankedbydogandcat #majorityrule #petparenting is soo easy. I miss my kids!

[lungsrlife]

IDENTIFY

For further information & Consultation:

+91-9136189766

+91-9319464065

www.drprashantsaxena.in

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#identify #eaddl #love #journey #awareness #epilepsyawareness #heart #seizurefree #staypositive #seizure #seizurelife #freeepilepsyexpo #epilepsyeducation #seizurealertdog #seizuredisorder #seizuressuck #epilepsystrong #helpinghand #freeexpo #epilepsy #purple #epilepsyawarenessday

[healthyyybeautyy]

in six days it will have been one whole month with NO seizures!

[beccab1009]

I met with my neurologist today and she improved the settings on my RNS again. It’s so interesting to look at the information it gathers, and when the device actually sends that shock.

I love my neurologist way more than my last one. She will get right to the point and not sugar coat things. But she can also joke around, and have some fun. She is definitely worth the hour drive. Lol

[beccab1009]

I had my RNS surgery on Monday. The surgery went a lot better then the last one. There weren’t any extra trips to the OR this time. The last surgery was for a SEEG, and I ended up having a hematoma in recovery. I had the same surgeon as before, one of the best. Him and his team did an awesome job. I came home yesterday afternoon, and I’m hoping recovery will be easy. Thanks for everyone that was praying and thinking about me!

[beccab1009]

Today makes it one month since my RNS surgery. It is wild that it has already been a month. Recovery has been awesome. A lot easier then recovery from my SEEG. I have an appointment next week with my doctor. So hopefully I will get cleared to go back to work!

[beccab1009]

If you look up the official definition of epilepsy, it will be something like this. But here is my definition for normal people to understand. My brain isn’t like most peoples. We piss each other off a lot. I try and be nice but it normally doesn’t want to be.

[beccab1009]

《Caution》The second picture might be a little to much for some people. I haven’t shared my picture of my stitches and staple marks from my SEEG. As you can see I had staples that ran right along my hair line. They had to put 26 in. Then I got 16 stitches at every hole where they put a probe. This picture was two weeks after I had my SEEG. The morning of this picture I had my staples taken out. The second picture is from my recent surgery. June 1st I had the RNS implanted. It was really nice they didn’t shave a lot of my hair. They just trimmed a little bit of it.

[beccab1009]

Sharing my story is all I want to do. I’ve had epilepsy for the past 8 years. It has been a crazy ride. It started when I was a freshmen in high school. I didn’t really know anything about epilepsy. I’ve heard the name before. But then once I got diagnosed I started researching about it. Fast forward 8 years I have more knowledge about it. I’m finally getting answers I want. I recently had surgery for the RNS. I’m excited to continue to share my story with others so they get educated.

[beccab1009]

It has been two weeks since my RNS surgery. Since I still can’t go back to work I find myself having way too much screen time. Which a lot of it is due to TikTok. It’s kinda like quick sand, it drags you in and you can’t get out. Lol. But to help with that, I was super excited to finally get this book! I love this family and the bond Harold and Rachel have. I’m excited to continue reading it! Ladies…and guys I guess too lol If you need a good book to read about a husband and wife, here it is. They also have a YouTube channel. So if you’re having a bad day watch some of their vlogs. Their kids are the cutest, they’ll brighten anyone’s day!

[beccab1009]

This quote is so powerful. Nick Vujicic is a motivational speacker. He was born with tetra-amelia syndrome, which means he doesn’t have arms or legs. He doesn’t let that get to him. He became a speacker to share his story and spread positivity.

● I had the opportunity a few years ago to listen to him at a conference. His words are so impact full. It definitely changed my look on life.

● So by changing your attitude about epilepsy it will impact your whole life. If you have a positive attitude about having epilepsy, it will change your life for good. If you’re attitude is negative, then you’re just putting yourself in torture. Epilepsy is something that we will have to live with forever. So why have a bad attitude about it. I’m brace it and enjoy the life that you have been given! https://www.instagram.com/p/CAgJ2Mkjbd-/?igshid=15bjemqj3dgf9

[2fat4skates]

#seizurelife is this week over yet?! I'm exhausted!

[2fat4skates]

Meeeeoooowwwwwww #fussypussy I look just like BeeGee today! #ilovemyneurologist but getting my seizures under control has been a lot of work. 9 months and we are still having 3-5 seizures per week. I am physically exhausted, constantly bruised, dropping things, completely forgetting things, removed from establishments and still unable to work my previous jobs. #seizurelife is exhausting some days. (at Highland Hospital)

[2fat4skates]

💖💚 In bed with the dogs during the day 💚💖 #seizurelife perks. Today I a had a long seizure and my therapist drove me home how nice! Now to #snugglemydogs and rest.