Nothing honest to god bothers me more than when I buy something for myself or bring something home for ME and out of the kindness of my heart I decide to share it, and it all fucking disappears in 7 seconds. Like those wipes were meant for ME but I left them out for everyone and now they're almost half gone cause my sibling uses them nonstop and leaves the god damn thing open so they DRY OUT when I've told them twice already not to 🤦♀️ and I hate to be a mean bitch but I bought those specifically for myself for very specific situations and not just because I need to tinkle 🤦♀️ those things were NOT CHEAP BRO
7 notes
·
View notes
I'm about 4 days away from submitting my research paper and finishing my masters degree 😭
i officially applied to graduate and everything!this has been the hardest 3 yrs of my life and completing this paper has been the bane of existence. it's actually terrifying to think about life post degree (I'm on my 3rd degree and have been in uni over 10 years straight). I have faced some of my toughest challenges during the course of this degree and have learnt lessons that can only be learned in hindsight. the mental health journey has been rough but really that's a whole other post. as I said, my toughest challenges.
I actually can't picture life outside of school but the thought of not having the 24/7 existential dread of homework has been keeping me going
when I finally submit I'm either going to hermit for at least 2 months or going straight to the club 💜
12 notes
·
View notes
I just bought myself a manga about the artist going through severe illness and I found it comforting to read someone else's experience, so I thought maybe I would share a little about my experience with MCAS again. so here's all the pills I take!
cromolyn. 2 ampules mixed with water 4x/day (although I'm often out of bed for 12 hours or less and have trouble keeping track of time, so often it's 3x instead). mast cell stabilizer.
multivitamin. I only took this for a week so far and stopped to gather data. (my paranoia was getting bad, which often means I'm reacting to a med. this is a cheap one with many fillers.) meant to make up for difficulty accessing food and possible malabsorption.
fludrocortisone. 2 pills a day. for POTS.
atenolol. 1 per day. also for POTS.
montelukast. 1 per day. technically for asthma, but works by blocking one of the signals the mast cells send.
loratadine (aka claritin). 1 pill 2x/day, which we had to fight the insurance about after a while. antihistamine, meant to prevent anaphylaxis by blocking a different mast cell signal.
aspirin. 2 pills 2x/day. to reduce inflammation and control chronic pain.
whichever oral hormonal birth control my insurance will give me (it varies). 1 per day. menstruation makes my MCAS flare and I still have incomplete cessation even after an ablation, so I keep taking it even when not putting myself at risk of pregnancy.
dye-free diphenhydramine (aka benadryl). another antihistamine, taken when my MCAS flares to reduce or completely end the symptoms. (the pink dye in the regular formulation is actually a very common trigger.)
low-dose prednisone. steroid kept on hand for unavoidably high-demand occasions (like moving across the country) or unshakable prolonged flares (like, a week).
that's 8 pills in the morning, 3-4 at night, 8 ampules in the day, and 2 different emergency meds. plus I try to drink a gatorlyte every day (also good for POTS and certain mineral shortages) and try to avoid triggers (including heat, stress, and overexertion -n- )
3 and 4 were the first meds that ever made me feel any better, before we'd figured out it was MCAS. (likely with secondary POTS/EDS.) 6 and 7 are the first line treatment for MCAS, they're the first medications I actually took *for* it. they are often used in combination with famotidine (aka pepcid) but that made my paranoia super bad so I stopped taking that one.
this was my regimen established before I got covid last july, which made my MCAS much worse, which also made it impossible to get a new doc post-move since I can't physically get to an appt. so this is likely to change once I have medical care again. being sick is a lot of work!
80 notes
·
View notes
Achtung, Achtung. 🚨 Health Beschwerdepost under cut... ⚠️ Lesen auf eigene Gefahr. 🧨 You have been warned. 🥲
Diese scheiß Periode, scheiß Endometriose, verdammte Scheiße, ich könnte schreien. Mein ganzes scheiß Becken tut Scheiße weh, als wäre der komplette Knochen überzogen mit einer dünnen Schicht Schmerzen. Und das seit Mittwoch. Vorgestern und gestern hab ich mich noch zur Arbeit geschleppt mit Ibuprofen 800 intus. Heute ging es einfach nicht mehr, also ab zum Arzt. 15 Minuten für eine Strecke, für die ich sonst die Hälfte brauche. Natürlich geschlossen zwischen den Jahren. Der Vertretungsarzt? AhHAHHAAHAHHAhhahshjfjrhajej eine halbe Stunde mit Bahn und zu Fuß entfernt. Natürlich regnet es in Strömen und jemand labert und packt mich von der Seite an in der Bahn. Ich war so kurz davor auszuholen. Dann: Gööögle Mäps zeigt mit das falsche Gebäude an, ich irre zehn Minuten umher, Internet im Arsch. Als es endlich wieder da ist, kann ich in der Praxis anrufen und nach deren Versteck fragen.
...
Plot Twist: Alle waren So Nett zu mir. 🥺 Und ich kam ganz schnell dran und der Arzt war nett und hat zugehört und trotzdem andere Fragen gestellt um was anderes auszuschließen. 😭 Ich bin so erleichtert, psychisch zumindest. Krankmeldung und Rezept für IBU 600 bekommen. Dann Netto (Kekse!), Apotheke (ibu) und dm (Monster Tampons). Halb eins wieder zurück Zuhause. Um neun bin ich los. Was für eine Weltreise. Wärmepflaster drauf, jetzt erstmal frühstücken und auf die Couch. 🥹 Alles wird gut.
(außer Silvester. Das ist wahrscheinlich im Arsch. ☘️👀🤪😑😔)
10 notes
·
View notes