#thats what i mean by difficulty communicating. sorry if things still dont make sense ive been chipping away at this for 15 hours

[qcellbit]

i dont expect everyone in the world to be medical experts but ive been seeing a lot of comments surrounding q!quackity after his last stream that have bothered me so i thought id clear a few things up (as someone who suffers from a brain injury).

i dont know if quackity the content creator has done his research into brain science but regardless of the federations canon goal with q!quackity, the brain is an extremely delicate organ and its impossible to surgically alter specific memories or traits. they mightve attempted to achieve something specific with their experimentation on him and regardless of whether or not theyve succeeded, theyve undoubtedly given him a brain injury. a brain injury can be caused by any manner of trauma to the brain and often results in:

nonspecific short and long term memory loss

difficulty comprehending written text

significant difficulty writing

significant difficulty speaking

confusion

psychosis (hallucinations)

emotional lability

bizarre and seemingly nonsensical behaviour

improvement is not a straight line and lapses in different areas of ability can occur at random completely disconnected from each other. q!quackity might have no trouble writing certain phrases one minute then be completely unable to write the next, but he might very well be emotionally sound throughout all of this. he may suffer from a long string of lapses in short term memory but be able to write the entire time - IF this is accurate to real life, which im currently treating it as since his symptoms all match my own.

and i cant believe this has to be said but please try to avoid laughing at any of these symptoms...? these are real effects that brain damage can have and giggling at and infantilising his inability to communicate is cruel. ive seen people making jokes about his "keysmashes" when that is something i myself and many other people with brain damage do when trying to text without realising.

[perhaps-mr-collins-has-a-cousin]

👪 Random Question Time! 👪 What are your parents like?

Oh goodness, well prepare yourself for a rather long answer this time. It’s long, but it still doesn’t feel complete, you know? How do you describe a whole, entire person? This answer is also somewhat rambly and disorganized because I didn’t feel like going through and editing it heavily enough for it to make sense and flow nicely, but…here it is anyway! 

To start with, my parents are both shy in a lot of situations, which explains where I got it from, but it doesn’t explain how the heck they ended up together, which has always confused me, even though they’ve told me the story several times. They’re just such different people in terms of temperament and interests, but somehow it worked! 

So my dad is super dependable. If we’re talking Myers-Briggs (which he thinks is utter baloney), I’ve always thought of him as an ISTJ? Super practical, but sometimes a weird sort of practicality that I, in my weird INFJ-ness would call oversimplification? He thinks I focus too much on feelings or things that are subjective, rather than on The Facts, and then I counter that just because feelings are subjective and immeasurable doesn’t mean they aren’t real or important, and round and round we go. I’m making it sound like we argue a lot, and really we argue pretty rarely, but we do like to Discuss. He’s actually pretty chill about letting me say what I want around him and letting me have my opinion even if he disagrees. It’s nice. And by the way, I don’t want to make it sound like he doesn’t care about people’s feelings either, because he really does. My mom has had some problems over the years, both physical and emotional, and I really think he’s been the most patient, compassionate, thorough caretaker anyone could ask for.

He’s got a weird sense of humor, but what dad doesn’t? His favorite joke is one that he made up himself, and it goes like this: 

How do you call a flower? 

With your tulips! 

(He told it at church once; it got a mixed reception.)

He’s pretty into physical fitness-y stuff, like before he retired he taught weight training and other physical education courses at our local community college. He still loves to ride his bike, I think that’s his favorite thing in the world to do. Reptiles and amphibians are another of his passions; we used to have at different times lizards and snakes and chameleons (the snakes were my favorite). Animals love him.

I get along best with my dad, but I’m probably most like my mom, at least on the surface. Our shyness manifests itself in a similar way: we’re both very soft-spoken, timid, usually only speak when spoken to, tend to like to avoid socializing altogether, etc. One of her favorite things to do is read, usually Christian fiction authors. She doesn’t really believe in herself, but I think she’s strong just to have dealt with all the difficulty she’s had in her life. She has such a soft heart and loves small children and animals, cats in particular. I’ve noticed she’s really good at reading people’s emotions. If I’m upset but try to hide it, she usually knows anyway. Is that an ISFJ thing? I don’t know, but I just feel like she’s an ISFJ. I can think of a couple times she saw me crying and started crying too because she felt my pain so strongly.

She doesn’t do as many creative things now, but I know she has that creative spark. She’s written a few short stories (there was one based on Cinderella that I loved) and done some cool cross-stitches (she taught me how to cross-stitch too). My dad is like that too, only with him it was poetry. Way back in his college days he was rejected by a girl and to vent his feelings he typed a short poem out on a napkin about how she’d looked at him with cow eyes and how was he to know she wasn’t interested if she gave him the freakin’ cow eyes, and he kept it in a box of mementoes and it’s probably the funniest thing I’ve ever read and I still make fun of him for it.

Anyway, sorry, back to my mom, who is actually quite funny too. She’s funny because you don’t expect her to be funny, I guess, and then she’ll just say something that makes you laugh, and I feel like I’m doing a really bad job describing it, but there you have it. Also she can make the most awesome chili.

Well, that gives you somewhat of a very rough idea of my parents’ personalities! They’re truly lovely people, and my closest friends :)

[hyacinth-halcyon-blog]

Heyo! Ive got a question Im not sure how to articulate because ive a ton of anxiety about talking to new people but I love your blog and am a huge fan! I consider Loki (with Hel) my main deity. I've been feeling drawn to Freyr lately, but I'm a little torn. Although I haven't had a band experience with Sygyn (never interacted with their sons) Ive never been drawn to the Aesir. Ive wanted to reach out to angrboda for awhile and possibly other jotnar. 1/2

2/2 although ive been with Loki for awhile, poking other gods and toeing new relationships is new to me. I was wondering if you could talk more about your experiences of working with jotnar and how thats affected your life? I know you wrote a bit on it in another post (and probably several I haven’t seen) but like… What’s a sort of day to day feel? favorite thing? I mean it works for you? Sorry this ask is a mess. I dont want you to share anything you are uncomfortable with of course. thanx!

Hehe, no worries. I appreciate the excitement. :>

So it’s worth noting that a majority of the jotnar I work with are worldbreakers. Loki is the best known for shaking up people’s lives but all those associated with Ragnarok’s destruction have a tendency to create upheaval for the better. Case in point: my experiences with Surtr. He is generally quite understanding that his actions are creating difficulties for me but he’s still doing it because the chaos is necessary, the breaking of order is to fix disorder in my life. As I’ve said in my worldbreakers post from ages ago, in order to fix an improperly healed bone one has to break it so it can be set properly. Worldbreakers do just that, one devotee’s life at a time.

I mention this as other jotnar are more inclined towards continuity rather than upheaval and change. Ymir, for instance, tends towards less destructive methods. He’s generally one for slower ‘gentler’ approaches that are… constructive in nature rather than relying on destruction. (Tho the worldbreakers would argue that the destruction is constructive in the end ofc.) He tends towards being a more supportive entity as such.

Angrboda is more towards the worldbreaker mindset insofar as she’s definitely far harsher in methodology than Ymir is and will happily cause upheaval as necessary. She is harsh and will make you suffer. She is the one who offers sorrow and grief afterall. But after the pain of thurisaz’s prick is a bittersweet joy that only she can teach. She is the she-wolf teaching her cubs how to survive the harshest conditions, strengthening them to live in this monstrous world. She will let you be ground down but never destroyed. Sometimes you just need to wear away the surface to bring out the gem hiding below.

The jotnar are vast and primordial. Sometimes, well often actually, this primordial nature of theirs makes them feel alien to interact with. They are the natural forces. How is the eagle that births the winds supposed to have a human conception of the world? This can lead to very vague and frustrating miscommunications with them, but this primordial nature is a large factor in what draws me to them so I wouldn’t change it for the world. But something to consider and be aware of. Jorm in particular has been notorious for this in my experience but so has Angrboda.

In my daily life… The jotnar give me a sense of unconditional belonging. Even when my Avoidant Personality Disorder flares up I still feel welcomed by the jotnar. I am monstrous, I belong with them, I am theirs. Even with those who are harsher in their treatment, once you are part of them you are a part of them. -points at Fenrir and Surtr for personal examples of this- I haven’t doubted that their tasks, though impossibly difficult and often painful, come from places of deepest care and concern. Even now with Angrboda being gone, something that is incredibly painful for me to cope with, I trust her that it’s for the best to be without her and to have Surtr in her place.

The jotnar are wise and are the source of wisdom and knowledge. They are natural creators and builders. They are monstrous and destructive. They are my life; it is devoted to them. They give me strength and guidance and community. And above all, they give me love. And I give them all I have in return.

[misterbitches]

Im not intelligent at all. In the conventional sense. The ramblings of a girl who just has sooo much going in in her head it's constant. But im not a genius. Or that confusing.

It just sounds like I am bc fandoms have this issue where they can JUSTSO point out the issues in soletiing. They can pick and prod and go oh problematic! But then you go to name the problems and the difficulties within society like for ex: the idea of representation in general. Salivating over it. How fucking sad that is. How we are trained to accept it. So in a BL and also RACE in the bl genre they exploit viewers naivete both domestically and internationally. Ive seen tons of people liken being asian to being a person of color. However, in their predominantly homogenous society (or intentionally publically homogenous society), they are not "poc" (also name the of color; i dont use bipoc idc if u do but it's called being asian guys cos yall aint talkin about black ppl lmao)

They as humans seeing other humans who look like them everywhere, engage with the world differently than an american in asia or asians living outside of their home country (like bae doo nanwhen she worksnin the US is not the same as the bae doo nanworking on a korean program) I dont complain about it in everything i see bc ppl say it ALL THE TIME. but it is NOT the same. Being a person of color is very distinctly an american concept. This is all stuff people will get to know on their own if they choose to dig more.

I do my best to underline what my ugly little eyes process. How i figure things out as a black female american artist too! Im hard on shit cos i should be. I take it seriously. And even if i dont take it seriously bc THEY dont then thats their problem.

I know this is a complaint that I am not alone in. I know it's the internet. I just don't get how people can write really heavy analysis but they refuse to actually probe the underlying issues. Not everyone is me, or like my friends, but if there's way fewer people talking about this stuff it seems absolutely glaring when theres few people engaging in the way i do. It seems like im the glitch but I am thinking just as much just differently.

I really loved where your eyes linger but there was little deep class analysis. I remember few convos a bout it. I know a lot about korea (sigh being a black ex kpop fan lol mess) and i love the history but all ofnit matters! Korea's relation to labor!

People bringing up thai actors snd actresses leaving the industry and doing acting as something quick. As an artist~ who went to film school with insanely wealthy ppl and isnin tons of debt you have to understand how shitty that is. People have monetary access and they just fucking do whatever just because they want to. Meanwhile you have young people being coerced into this bullshit mainstream life to LITERALY just make money bc they dont come from a rich background. The wealth gap in thailand is BAD, theres a dictatorship, they had a fucking coup. The governments like here do not respect their people. Their marginalized groups. Trans thai women, black thai ppl, poor thai ppl. And it LITERALLY CANNOT DO ANYTHING EFFECTIVELY IN CAPITALISM. No nothing can be perfect but if it's going into our eyeballs and we can view the worlld critically then why the fuck not!???

I dont say the things i see are wrong always. I reply when i think i need to. I try and engage with others but not to kuch avail. I just want to rb stuff and tdhink lajfhhdjwhjej.

But like yea theres a lot of just wrong or misguided stuff. A lot of the times it is just historical inaccuracy in framing or idk. A refusal to think outside the box. I dont care. Theres more to life than just sort of looking and not thinking especially for othrr artists.

Idk im sorry. I dont see how i can change how i view things. I really wish people would expand their palettes too and go deeper into other means of art from places! Things not in the mainstream! Theres a lot of good thai artists and a lot of them critical as fuck about their country as they should be. Authority, austerity, patriarchy, capital, racism etc like that is central to a power thats interested in growing gains and fiscal and social power. Theres rly radical or left leaning etc ppl out there in the world and these countries in these communities. So they exist. No people in these countries dont have NO clue whats going on. Cultural relativism is alsos something people should understand. I had a good talk with ppl on here a while ago about that. Talking about shit, critiquing, but being respectful to a group. Part of thay is realizing these groups CLEARLY know their own issues and all our cultures share the same goal. Guess what it is. It rhymes with acquiring wealth. Money means you hurt people. In the post, we talked about use of "wife" and "husband" which is a stupid joke that has been "explained" a billion times and yet the explanations still dont seem to answer or justify a minor problem (it's very funny to me that a language that doesnt have gendered pronouns is now very specific about two men. Hmmm wonder why. It is annoying.)

So im not the only person on the planet doing this. Or the few ppl ive seen that do. Im not new my thoughts arent new. Ive gotten to see another side to a culture i knew not much about and that means i can put the context of my beliefs and life and try and understand thheirs. For ex i learned from ITSAY because of a sign that said 'french food' that they were the only country to not be colonized back then. Do you know how integral that history is to their region? That was an interesting detail (i didnt finish itsay bc ihad a lot going on and i was rly upset that i would see hownrich they are and i hate that.)

Anyways thats my complaint. It used to feel like a sting of rejection. I left online for months in 2019, i started organizing more, joined a union, trying to do some panther work shit like that. I learned a lot in those months and it changed my life! But when I came back, I felt so isolated. It wasnt my true friends tho sometimes theyre ANNOYINGGGGG (love u) but it was me being like "if we are going to complain guys then lets put our money where our mouth is" lets be fucking serious about it then. No say it with your chest dude. It isnt difficult. Go with the fucking flow, talk about it, critique it, think. You can still fucking like itnor love it.

I am BLACK ok and i love rap. I am a black woman. I will continue to clown black men that cant seem to not clown themselves and listen. No i wont support monetarily: drake is a creep and i hate him but i bump that niggas song. Thats fucking LIFE. I got so sick of hiding myself and it became clear that it wasnt that i wasntthinking well or hard enough. They just didnt like that i said we need to commit class suicide and inspect out middle class sensibilities and middle class wealth hoarding (google it) if thats what we engaged with. Every part of you, antagonize it. I still have my privileges; class, skin color, even my father being a nigerian immigrant, me being cis, im not str8 but not a lesbian and those are differences.

Insecurities in general but some shallow thoughts (?) on discussion in "fandom" space. FYI, this will most likely stay the same. I tend to stay in my own bubble socially IE me and my friends are similar in our views. During this awful year while running my union's account, im surrounded by like minds. Me and my friends? We changed together. We grew up and saw what we didnt like and what we want. We do our best.And i CHOOSE my life to be that way bc it should be. There is no solution. I dont believe in solutions because the solution is to abolish capital or just divest. Abolishing capital and labor are a huge one and i will die before that happens (but so help me as long as im alive? Black women to FREEDOMMMM is my motto!) so making your own path in life is the best thing an artist can do IN MY OPINION.

However with technology and stuff this puts another layer onto things. Tech, social media, this shit....it THRIIIIIIIVESSSSSSS off of conflict and shallow readings of the world. We are literally primed for it. Engagement in bites. Impossible for me with my brain; i got used to it and i paid for it by limiting my scope. Not being encouraged to THINK AND READ before just speaking

(For ex i am in iww, i helped form a branch here. It is a radical union. Unionism is imprative to me-if ur interested u should read up on some. Look up peter cole! Google inthesetimes Ilwu. Gives you some understanding. Ive always been progressive and now i am....very left idk ic ant label myself. But even in my progrssiveness i had the gall to tell my white friend, whoa has her privileges but i had mine with our class disparity, that we dont need unions, i have WORKED retail. Ive done barista work for sonoing and i do gig work. So i wasnt out of touch. I had been stiffed even with a shoot i was working on by rich kids. So i had a frame of reference . But i didnt know what the FUCKa union was and why it is imperative. Then learning about anarcho syndicalism and all these other things. It changed my fucking life but two years earlier i was this idiot spouting shit like that making one of my best friends fucking upset. We DO AND CAN CHANGE. Think!!!!)

So were i a creator for tv id just constantly try and push the buttons if i need big money. Make them sell into me (thank you sonic youth!) theres Endless possibilities guys which means theres SO MUCH TK EXPLORE!!!! When i wanna have fun with it i just have fun. When i want to think i do. I dont understand why we are so dedicated to upholding things and doing mental gymnastics to end up in a space you dont need mental gymnastics for. What about these critiques makes you uncomfortable? Saying we're all part of the problem as spectators? Im sorry but we will always be. Thats LIFE. God fuck. Fuck me. I feel so fucking worthless and stupid sometimes. I know I am not. I know i am talented and intelligent. I know my friends and family. I know how to approach ppl. I know how to tell people if they are rich but want to be progressive whatsup. I choose how i live part of that is being ok to say what i want.

Ironically consrrvatives say this shit alot. But they arent ever alone bc their ideology is default. But yea it does feel shitty. It even feels shitty when ur in left circles but people STILL dont even wanna do that. These perspectives really arent ss many as they should be. I dont want to feel so alone with it. I know there are more. I just love art and the world so fucking much, endless possibility. Endless pain but endless good.

[gooeyguy]

email to my teacher (warning alot of personal stuff)

Hey so, sorry to email you out of nowhere like this? But i feel like maybe im finally at a point where i can explain more thoroughly why im having trouble with school or just succeeding in general. I think its really important that i tell you some of this junk because theres a chance it might make the rest of the year easier for you and me.

I wanted to start off with apologizing for all the trouble ive caused you throughout the year with the annoying comments, disruptions and backtalk.  And most of all the terrible ability i have with doing and turning in work.

This email is mostly to explain my situation and reasoning for acting/struggling the way i have been (not to annoy you or be sarcastic).

Alright so, if you havent noticed i struggle with some things and one of them i never really bring up is ptsd. I have been diagnosed and im hoping to enlighten you on my specific issues with it, (everything i mention will apply to me as to make it less confusing from here on)

 I have a specific type of ptsd called Complex post-traumatic stress disorder (C-PTSD; also known as complex trauma) This type of ptsd is different in that it results from repetitive, prolonged trauma. My causes for being diagnosed are specifically natural-detachment from my mother and physical/sexual abuse growing up and some other things im not going to mention.

My side effects from this are,

Attachment – "problems with relationship boundaries, lack of trust, social isolation, difficulty perceiving and responding to other's emotional states, and lack of empathy"

This is strongly linked to my reactive attachment disorder and explains alot to why i am the way i am. Heres a link to a website http://www.webmd.com/mental-health/mental-health-reactive-attachment-disorder#1 that explains a bit of what it is so that i do not have to make this already long email that much longer, i would also really appreciate it if you read even just a little.

I have an extreme lack of trust in others and am constantly doubting myself, there is not a second of the day where i dont think im a horrible person, i could be doing better, im disgusting to look at ect. The social isolation is a big problem for me, because im “this way” i feel that bothering others with my presence/problems/medical difficulties ect. is not necessary and for the better. Hence why i refrain from asking when i really need help, im scared to bother you. I dont want to make you angry and i know you and mrs mumford are already so stressed by the time my bell starts.

Biology – "sensory-motor developmental dysfunction, sensory-integration difficulties, somatization, and increased medical problems"

This ties into my Fibromyalgia and eds which ill explain more about after i go through ptsd. Its all kind of one big mixed bag of disorders that tie together and make me the way i am.

Affect or emotional regulation – "poor affect regulation, difficulty identifying and expressing emotions and internal states, and difficulties communicating needs, wants, and wishes"

Like i talked about before i feel extremely useless and annoying when asking for help or even talking about the things i enjoy. And when trying to explain my difficulties i stop midsentence or forget words/forget what my problem is and it becomes frustrating.

Dissociation – "amnesia, depersonalization, discrete states of consciousness with discrete memories, affect, and functioning, and impaired memory for state-based events"

THIS is what i blame for never being able to remember anything. With fibromyalgia i have whats called “brain fog” and with the constant dream like state im in because of dissociation it makes my memory absolutely terrible. Remembering your names in class took me until almost 3rd quarter and it was utterly embarrassing(i still forget sometimes), its even more embarrassing when i forget basic buttons on the calculator and have to ask in front of everyone looking like an idiot.Or when i try to shout out an answer in class and it comes out gibberish because my mind is everywhere all at once, Or when we have a test on the formula we learned a week ago, and of course my mind draws a blank. I cant remember, and it makes me so frustrated with myself that i want to break down right there in class. It renders me doing weird things too, like the other day i put the icecream in the bread drawer, and on sunday i woke up and got ready for school. Theres alot of other things i could say but its as if fibro is laughing in my face.

 Dissociation in my own words is feeling like nothing is real, things dont feel like they happened. What does feel real is the pain/feeling in my body, i am a very anxious and jumpy person so im very sensitive to loud sounds/touch/weather and certain (triggering)  talk among students. And yet i still feel in a daze,My vision will sometimes blur and i am very prone to falling/accidents, staying focused can be extremely frustrating because my brain feels like a cloud, its almost uncontrollable like a dream. I dont think anyone can control those very much so i think its a good example.

Behavioural control – "problems with impulse control, aggression, pathological self-soothing, and sleep problems"

Im pretty okay with impulses, i of course have alot of very impulsive thoughts but i am good at controlling them id say, same with aggression but i very much so struggle with sleep problems because of nightmares from ptsd and chronic pain from fibro, i have not been diagnosed with insomnia but im sure i fit the criteria im just really bad at opening up with doctors/people ect.

These are just a couple more symptoms to help explain,

Cognition – "difficulty regulating attention, problems with a variety of "executive functions" such as planning, judgement, initiation, use of materials, and self-monitoring, difficulty processing new information, difficulty focusing and completing tasks, poor object constancy, problems with "cause-effect" thinking, and language developmental problems such as a gap between receptive and expressive communication abilities."

Self-concept – "fragmented and disconnected autobiographical narrative, disturbed body image, low self-esteem, excessive shame, and negative internal working models of self".

Alterations in relations with others, including isolation and withdrawal, persistent distrust, a repeated search for a rescuer, disruption in intimate relationships and repeated failures of self-protection.

Loss of, or changes in, one's system of meanings, which may include a loss of sustaining faith or a sense of hopelessness and despair.

Variations in consciousness, including forgetting traumatic events (i.e., psychogenic amnesia), reliving experiences (either in the form of intrusive PTSD symptoms or in ruminative preoccupation), or having episodes of dissociation.

Changes in self-perception, such as a chronic and pervasive sense of helplessness, paralysis of initiative, shame, guilt, self-blame, a sense of defilement or stigma, and a sense of being completely different from other human beings

Now that im done explaining the ptsd, Fibromyalgia

Fibromyalgia is a chronic pain disorder that my doctor believes to be linked to my other disorders, Fibromyalgia has to do with the senses we as humans all have, feeling, hearing, taste, and sight. The difference between someone with fibro and an average healthy person is lets say theres a knob for how strong each of these senses are, so imagine someone taking all those knobs and turning them all the way up to max sensitivity. Youd think oh cool youre like a super hero (like my sister likes to say) but no its the exact opposite, it does not benefit me whatsoever. Feeling, paired with ehlers danlos syndrome both my joints and my muscles are constantly in pain and some days ill have what you call a “flare up” which is where getting out of bed usually isnt an option for my body, i cannot remember the last time i didnt feel at least a dull ache in my head, i get migraines at least once everyday and unfortunately i get nauseous so i dont eat very much . Almost everything is irritating to my skin, a simple light rub of my finger on the top of my forearm is irritating and raw feeling (like ive been sitting there rubbing the same spot for hours) /Writing is over all painful, including typing as well/

If youve ever woken up in the morning with sore muscles from pushing yourself too hard the day before,that is how the muscles in my body feel, if you press on them they ache, and sting/burn when i use them. painful touch for most of my body paired with constant anxiety of getting bumped into/touched is stressful and tiring. On a good day my pain scale is a 5 from 1-10 but thats if im really lucky.

Then theres the weather, if im too hot and i start to sweat, the sweat stings my skin and i end up going into a frenzy of scratching and agony.  If its too cold my joints will start to lock up and become painful, its like they freeze and when i move them it feels like im shattering ice in my hand mixed with dull muscle ache. If its a good temperature theres still the feeling and i swear, the sound i can hear of my joints grinding together like two pieces of rubber being rubbed against eachother slowly.

Hearing is also bad, loud sounds are very irritating to my ears and will cause my migraine to get worse.(Talking too loud)Other irritating sounds, paper rubbing against paper roughly making that blblblb sound, high pitched noises of any loudness, squeaks, repetitive beeps ect.

Sight wise turning on lights abruptly is painful and makes my migraine worse, any bright light in general.

Taste doesnt really matter so i wont mention, but because these knobs are turned full blast it means the nerves and pain receptors in my body are being over worked constantly by my brain

And my brain thinks its doing its job by constantly acting like ive been running triathalons.

The recollection of pain comes in avalanches of distress for me. I usually experience the intense turmoil of fibromyalgia in the winter, or whenever cold fronts shatter the air and its frail victims. My limbs cannot contain the strength possible to function during those cold spells. Fibromyalgia’s lengthy sentence comes and goes for some, but, as a teenager, it’s disheartening. For the rest of my life, I will never be able to remember living without every waking moment marked by pain.

The abnormality of fibro weighs on my shoulders when I’m asleep, awake, or anywhere inbetween. I wake up at 4:30 each morning in order to be shuffling around by 6:20 a.m. The heaviness of my body pulls me down and pains me as I take a shower, put on my clothes, and put my small backpack on my shoulder to head out to school. Any sense of touch creates extreme levels of pain for me. Touching my arm, poking my leg, and brushing against my back hurt as much as twisting my ankle. My distraught reaction is a lot like a dog crying in pain and distrust after you accidentally step on its paw. Because im always in pain im always right next to the emotional breaking point, im always on the verge of tears. The smallest things can make me break down.

The pain prohibits me from being a teenager. Thanks to fibro, I cannot dress up in my favorite clothes and be what you call “Extra” everyday as i so much wish to be during the winter. My hands are crooked and shake too much usually to apply makeup. I struggle with applying eyeliner, because my hands hurt too much wrapped around a brush. The uncomfortable school chairs make me weep when I return home, because they destroy my concentration, forcing me to focus on the overwhelming pain I feel. I used to excel in school, but now, I can barely think fast enough, and come off as ditzy. I feel like I’m constantly struggling to maintain the fragments of my intelligence I lost due to fibro medication and fibromyalgia itself.

My GPA, became my ball and chain in school, rather than an accomplishment worth sharing. During the year, my schedule is dictated by the weather. Cold weather causes agonizing, excruciating pain that races down my spine and branches through my limbs. If a cold front passes, rain falls, snow falls, or temperatures drop, I freeze like the Tin Man, except there isn’t any oil to move my joints. The way I get sleep should be considered a torture method. Many people feel refreshed or renewed when they wake up after 8 hours, but I feel completely restless and exhausted. And thats if the nightmares from the PTSD dont interrupt. I toss and turn for hours in pain, because the pain signals interrupt the sleep cycle. I cry intensely whenever I think of sleep; school usually means a lack of sleep, but I am further deprived without choice. My biological system cannot allow me to rest, and continues to tense my muscles in a constant state of flight or fight.

With most schools starting at 8 a.m., my body struggles to run on 8 hours of sleep (which really feels like two). The exhaustion prevents me from hanging out with some of my closest friends. In the early stages of having fibromyalgia, I used to be able to do school clubs, hang out with my best friend, and go to cons with my friends often. Now, I spend my time huddled down, trying to make up for the nights of lost sleep. The lack of sleep and the endless pain contribute to extreme depression. And to keep my mood relatively happy i act like a goose in school with friends which doesnt do me good with teachers, I do it to not break down and let myself get too low around others because i know id regret embarrassing myself like that more than anything. The pain yearns for my thoughts to leap toward suicidal thoughts, and I was obsessed with death for years and still am. There was a time when I searched for ways to end my life, because nobody could help me and I couldn’t face living the rest of my life knowing that I’ll always be in pain. I still have these thoughts, and I believe I always will as long as I emit pain. Hence why i was in the hospital for a week recently, the hopelessness and embarrassment is dragging me down. The whole idea of having fibromyalgia embarrasses me. I’m embarrassed that I am constantly being called crippled, disabled, or chronically ill.Or worse not being noticed at all while struggling. I’m embarrassed that fibromyalgia makes me feel like I’m 67 instead of 16. I’m embarrassed that I will never be able to be an artsy beat poet like Patti Smith, or a rock ‘n’ roll guitarist like Keith Richards.

So i think thats as much as i can cover for you right now with my two of my biggest problems , im extremely exhausted and im not joking when i say my fingers feel like they are gonna fall off haha.  

Im terribly sorry for how long this email is but i think i got most everything with these two topics in there, also dont feel obliged to reply to this, im already embarrassed i even wrote all this down (terribly).

Quick thing i would like to say before i end the email, with all respect i am not looking for sympathy in any way. I am simply stating the way i am  in hopes that if you understand itll make things less stressful for me and you. So dont feel like you have to do anything for me.  

Thankyou for reading if you got this far, really. (btw forwarding this to Mrs. m******d is totally okay with me)