#the idea that im okay with being permanently disabled is intolerable to able bodied society
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at some point in disability you stop wanting to "get better" and this is just really hard for able bodied people to understand for some reason
#i had an interaction with a doctor which prompted this#theyre almost certainly a quack but they promised they could find a cure for my eds#to be unequivocal no such thing exists eds is genetic and changing that is beyond the current limits of medicine in almost every case#i was there for regular blood testing and when they said this to me my response was pretty unenthusiastic#something like 'thats not really what im here for'#which was clearly completely baffling to the doctor#part of that has to do with the way doctors are really solution oriented but also#i dont really want to be 'cured'#its hard to explain but this is my body now and ive gotten used to it#what matters is my day to day quality of life not a return to 'normal'#in my eyes disability isnt a bad thing its a neutral one#the idea that im okay with being permanently disabled is intolerable to able bodied society#this doctor has a ton of pther red flags id like to separately post about but ive gone on long enough#to the person who sent me the ask about intersectionality bw transgender and disabled identity#i see you it just turns out a lot of research has been needed to answer you#a reply is coming tho#anyway#disability#salt baby talks#chronic illness#ehlers danlos syndrome#postural orthostatic tachycardia syndrome#ableism
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