thatchronicfeeling

[thatchronicfeeling]

The deep feeling of grief when mourning your own health<<<

[thatchronicfeeling]

It’s not just that Pride events are inaccessible to me because of Covid. I’ve never been well enough to attend in-person Pride events. For years now, I’ve had to find other ways to celebrate my sexuality.

It’s that I can’t access HOSPITAL safely. Disabled folk like me cannot access medical care safely. That is not ok.  Oh, and if you think you’re able bodied? Accessing in-person medical care is not safe for you either now. The removal of Covid mitigations puts all of us at risk. So WEAR A MASK.

Wear a mask to protect your community. Wear a mask to protect disabled folk like me. Wear a mask to protect YOU.

[thatchronicfeeling]

[Image Description: Drawing of a stick figure who is bedbound in a darkened room. Their thought bubble reads "I have got to get sluttier". End ID.]

[thatchronicfeeling]

[Image Description: Photograph of a honeysuckle flower. The flower has reddish pink petals, which have an orange-white underside where the petals roll back to reveal the stamens and stigma. End ID.]

Honeysuckle

[thatchronicfeeling]

if you're still out there masking I'm out there too and I love you. we are not alone.

[thatchronicfeeling]

wheelchairs should be free fuck you

[thatchronicfeeling]

Wow. You can scroll down through the layers of the ocean here. Sea dragons! Harp sponges!

[thatchronicfeeling]

Holy **** oh right okay. So I was about to make a post about how using speech to text has already been a game changer for me but as you can see by the line of asterix at the start of this post the bloody thing auto censors swear words. (Yet bloody got through, ig Because it is a description and also British slang.). Hint: the word I was trying to say there starts with F and ends with K.

Oh and guess what else you can't say you can't say? **** [Nipples]. had to type that myself. penis is ok but **** [clitoris] isn't, and all my attempts to say "clit" were Misunderstood, which may just be my speech but at this point I am not willing to give the benefit of the doubt. Vagina is OK too but every time I say it there is a moment when an * shows up on screen first before the full word does. this doesn't happen when I say the word penis.

It is completely heinous. Anybody who needs speech to text is immediately forced to comply with the rules set out by people in a position of power and then enforced by a machine — a machine that is a very powerful accessibility tool. Imagine trying to dictate a letter to a doctor or fill in an E consult with speech to text, only to have words of your anatomy censored as if they are taboo. there is already far too much stigma around genital physical health — and note that I could say genital but can't say **** [clitoris] — for it to be okay for these words to be censored.

And even if somebody just wants to swear In a message to their friends or write smut/**** [pornography], they should be able to. There is no justification for this feature. No reason for it to be default.

I'm trying to find a way around this. There is a settings icon on the little speech to text bar that comes up, but this only gives me options For the speech typing launcher, auto punctuation, and to set the default microphone. it's making me extremely angry

[thatchronicfeeling]

watched the stalks of a lavender bush by the bus stop dip and sway from the sheer amount of fat little bumblebees on it and you know what. some things in this world are good

[thatchronicfeeling]

things you DO NOT need to be a man

a dick

he/him pronouns

XY chromosomes

things you DO need to be a man

the swiftness of a coursing river

the force of a great typhoon

the strength of a raging fire

the mysteriousness of the dark side of the moon

^this post was brought to you by LGBT^

Let's

Get down to

Business

To defeat the huns

[thatchronicfeeling]

i’m gonna hold your hand with a glove on when i say this

when disabled/chronically ill people tell you they can’t do something, then that is not your cue to tell them that they can actually or that they’ll always find an excuse if they’re looking for one.

when a disabled/chronically ill person says they can’t do something, sometimes that doesn’t mean it’s outside the realm of possibility, sometimes it means if they (attempted to) do that, they will seriously hurt themselves.

when a disabled/chronically ill person says they can’t do something, sometimes it’s preventative care, and they refuse to do that thing to prevent a flare up from happening/their symptoms getting worse in the first place.

disabled/chronically ill people are not “looking for excuses”, they are giving you reasons why. something they don’t even have to do! so maybe just accept the reasons they give you.

[thatchronicfeeling]

you say "bedbound, like a victorian invalid" I say "bedbound, like a devastatingly handsome bisexual in the 2020s"

[thatchronicfeeling]

Definitely. You deserve to be treated well. An alternative (if the above doesn't feel doable and/or you can't think of an excuse for why you need to leave suddely) is to make it through the appointment, make sure you have a note of the doctor's name, and do everything you can to make sure you see a different doctor the next time.

FYI: You can leave your doctor's appointment at any time, even smack in the middle of it, if you are feeling disrespected.

[thatchronicfeeling]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[thatchronicfeeling]

"May I have your name?" the faerie said.

"William," she said with a smile.

"Ah ah!" The faerie gave a wicked laugh. "I have your name! Now no-one will call you by it!"

"Thank you," she said.

"To win it back, you must- what?"

"I will find me a new one," she said, "one that suits me better."

[thatchronicfeeling]

your time is worthwhile if your disability means you have to rest most of the time. if you can only do a few events a month, or a year, that's alright. if you need to sleep a lot, lie down a lot, that time isn't wasted. it doesn't make your experiences any less meaningful. feeling like you're missing out on different activities doesn't make the ones you do any less worthwhile. being disabled and restricted in activities doesn't make you boring or diminish your worth. there's no threshold for things you have to do to "really experience life" - you experience it by being alive. and every disabled life is a life that's worthwhile

[thatchronicfeeling]

Fluffy bumble bee with butterfly bush

Buff-tailed Bumble Bee (Bombus terrestris)