thelupusjournal

[thelupusjournal]

Hi everyone!

I wanted to open the door for anyone about to go on dialysis or has been on dialysis but wants support. I have had every form of dialysis (PD catheter, catheter going through main artery, and finally the fistula). So if anyone wants to message me or anything please don’t hesitate. I wished I had someone to help me decide things and knew how the process works. This post wasn’t a normal one so it has no title but I think it’s okay :)

[thelupusjournal]

Q and A #2

What are your plans for Christmas? I bought an advent calendar and I’m watching Christmas movies every other night.

[thelupusjournal]

Quick tip #3

My body has a lot of joint pain at times and in some moments it feels like certain areas are worse than others. I started going to the chiropractor and it made a huge difference. Now I will give a warning that at first your body is loose then later you definitely feel an ache. It’s nothing a little Tylenol or heating pad can’t help.

[thelupusjournal]

Quick Tip #2

When you’re stuck in bed, here are some ideas that I do or want to try. Having anxiety and being stuck in bed can be really suffocating so I hope this helps.

- Crocheting

- knitting

- drawing

- puzzle

-sing

-video games

-embroidery

-listen an audio book or read a book

-write in a journal

- Try writing lyrics or poetry

-play with music production on an app or laptop (garage band)

-Create a Pinterest vision board or any other occasion in the future or even the next day (wedding, first child, date night, nail designs for your next appointment)

[thelupusjournal]

Words of encouragement #1

I know the holidays can be stressful for everyone but especially with all the weather changes. I often find myself frustrated and at a loss because I like solving problems. However having Lupus or any chronic illness is not something you can control much less cure it. The thing that keeps me going is thinking of the good days and all the things I have in store for me. So even if you need to rest in bed you can make it through. Whether you believe it or not you are a fighter, you made it this far. I like to think of us as boxers because we are literally fighting for our lives every single day. So no matter what don’t give up the fight because you can do it

[thelupusjournal]

Q and A #1

What things do you do to make it through the rainy days? I for example keep a water heating pad on and keep myself as busy as possible.

[thelupusjournal]

Quick tip #1

When the cold weather comes, my body feels like it needs a new battery and oil to loosen my joints that lock up and ache. Through the years I found if you wear extensive layers and if possible keep an object with heat (hot hands, travel blanket that heats up, heating pads, etc)helps. It’s not a perfect fix but it allows you some freedom to not be stuck in bed for days.For extra protection you could speak with your doctor about the proper pain medication that would suit your needs the best.

[thelupusjournal]

The cold weather makes me look like this 24/7😂

A little man is helping me in the studio. Mostly by not helping, and being a silly little clown baby.

[thelupusjournal]

Welcome fellow Lupus warriors!

I wanted to make this group to help anyone I can with all the issues that come along with lupus. Sometimes there might be encouraging pictures or videos for bad days, other days I might start an open forum with a question to help everyone vent and come together. Please do not hesitate to ask any question, there is absolutely nothing that can't be asked. I really hope this helps make a difference for me and you guys.