turtley-ausome

[turtley-ausome]

Hey! I’m an AAC user working on making AAC-related content, and I’d love your help!

What kind of videos and would you want to see? What kinds of text posts too?

I’m especially looking for ideas I can:

- make at home

- make out and about

- make with friends

Anything you’d like more of? Anything you never see but wish you did?

Thank you so much in advance!

AAC vlogging woud be cool (I hope im understanding this post rigt), conversation or interview between 2 (or more evn!) AAC users or mix of AAC user and non AAC users, general content of using AAC out in public, idk!

[turtley-ausome]

Speech therapy go good today! She help me make folders for day program prom is on Friday and for moving becase im moving to group home next week eeeeeeeee!!

[turtley-ausome]

I know I've said this before but I LOVE your dino pants!!! They just look so soft and comfortable. Also very excited for you to move into the group home in a week!!!!!

Thank u so much i love them to! Gymboree kids leggings got on sale! Am very exited to!

[turtley-ausome]

is just a general feeling of others not understanding severity, like people with lower support needs only having their own experience to refer from and saying to quote unquote do it scared when I made it very clear i couldn't do it at all already.

getting tired of people thinking they know exactly what i’m going through and that our struggles are all the same because we both are autistic,

then me saying something like “actually i need my aac at all times and can’t communicate words without it” or “i actually physically can’t do that and being encouraged to doesn’t feel inspiring it feels like you’re telling me im not trying hard enough”,

and them being shocked horrored at me and act like i said im an alien and be unable to understand that i actually can’t do certain things no matter what.

[turtley-ausome]

Normalize dressing literally however you want.

Normalize dressing alternative.

Normalize dressing for comfort.

Normalize dressing formal in informal settings.

Normalize not liking formal clothes.

Normalize wearing tails, ears, and other things considered "cringe."

Normalize needing to dress a specific way because of sensory processing issues.

Normalize not having one set fashion sense and changing things up.

Normalize wearing clothes associated with the opposite binary gender, including for both cis people and trans people.

Normalize wearing revealing outfits just because you like them.

Normalize dressing "dramatic" or "over the top."

Normalize cosplay.

Normalize historical fashion.

Like...

It's your body! It's your skin! You deserve to feel comfortable in it, whatever that means for you.

[turtley-ausome]

it is 2015. phineas and ferb, the amazing world of gumball, and steven universe are on the air. you are currently playing undertale

it is 2025. phineas and ferb, the amazing world of gumball and steven universe are back on the air. you are currently playing undertale

[turtley-ausome]

I did not have choice, need group home or else i stuck live in hospital institution forever, I am finaly moving DDS group home next week after 6 years hospitlised. 6 yers my life gone practicly. I will finaly be living in community when I move into group home! They also care manger has ben talking to me about reprentive payee to take care of my money and a gardianship.

I am scared but i know have so much to gain from this they keep reminding me!

I get really confused, and even angry sometimes at lower support needs people who don’t understand the true meaning of autonomy and when it comes to caregivers and guardianship.

I mentioned ONCE in a group about wanting to go into assisted living and looking into it. Immediately got dog piled by people saying to absolutely not go into assisted living because itd “take away my autonomy” and “I should just live with others for as long as possible.”

Assisted living, group homes, guardianship, whatever, can very much mean that someone actually GAINS autonomy. And independence. The goal is for quality of life. We should be focusing on quality of life instead of what YOU want. What YOU want as a lower support needs person because you’ve heard bad stories.

Higher support needs people often don’t get the decision. It’s life or death for them. Y’all HAVE to realize that.

Stop forcing your narrative on young higher support needs people who are looking into different options for their care. Yes. It’s SCARY to be put in a bad situation, but often times it’s trial and error for us. Y’all HAVE to realize that. We don’t have the privilege to pick and choose between if we just live independently or go in a group home. It’s group home, or death, or living in a fucked up, maybe even abusive situation already.

Stop it.

[turtley-ausome]

Fidgets are a must for procedure days

[turtley-ausome]

I got so excited for 'Lars of the Stars' that I did a poster-like fanart!

[turtley-ausome]

Things are moving along! My hospital bed and shower chair being delivered to group home today! Move in 11 days omgggg

[turtley-ausome]

something I very much needed to read today

[turtley-ausome]

Well my loves, it appears as though the answer to "Can the Big Pattern Company (Simplicity/Burda/McCalls/ect.) survive the death of JoAnn?" has come.

The answer is no. No it cannot. It has been sold to a liquidator just like JoAnns was.

So if there is ANYTHING you want I suggest you get it now. simplicity.com is currently having a pattern sale and I snatched up some that might be useful for cosplay purposes.

I am very glad these last couple of years I have built up my collection.

[turtley-ausome]

My friends who just got their first glasses: i need this highly expensive special cloth to wipe them, I also have this eyeglass cleaner from the same company, did you know you shouldn't use your t shirt unless it's specifically soft

Me who's worn glasses since middle school: *slaps soap onto the glasses and washes them in the sink then wipes them with toilet paper* what

[turtley-ausome]

Testing... Testing... Is this thing still on?

[turtley-ausome]

steven is a really funny character actually. he never went to school. one of his powers is astral projection for no real reason. hes a musical prodigy. he was so traumatized by the end of the show they had to make an entire epilogue series about it. he spent seven years looking like a 3rd grader. he was even bisexual

[turtley-ausome]

My group home bedroom the walls painted pink and purple yipeee!

[turtley-ausome]

Autistic regression/loss of skills/change in skills and abilities in adulthood isn't as uncommon as people think.

It's simply not talked about, for a number of reasons:

People might be ashamed and only talk in private, or anonymously, especially older folks.

They may lose the skills to even communicate these challenges to others in a palatable or easy-to-make-viral way.

It gets blamed on something else, like other disability/mental illness, drugs/alcohol, workplace burnout etc, and isn't recognized as a feature of their autism.

Their internal experience could be more noticeable than the outward, so it isn't picked up on until there's consequences, or it never is.

They are undiagnosed or don't know they're autistic, so it's not recognized as a part of autism.

The skills lost or abilities regressed may be things the person doesn't care too much about or find valuable, so they don't make a big deal of it.

They don't have the platform to make this a known thing anyways, even if they are trying to get the word out.

Some people may not even notice they've lost skills or had a change in their abilities.

Many reasons.

It's important for the people who this may happen to, to know that they aren't making things up, that it's happened to others before, that they aren't some unicorn among unicorns.

Big changes or swings in skills and abilities and needs can, and do, happen to people, and it's a normal part of how their autism manifests, and they deserve to be met where they're at.