#Dandy-Walker malformation

[happy2bmyownboss]

Our 2025-2026 Homeschool Curriculum, Schedule Plans, Resource Links, and Daily Routine - Tons of FREE resources!

It’s that time of year again for us… time to get the next school year planned out. We technically finished up our 2024-2025 school year before Easter but I’ve been busy with the garden and such so I am just now getting around to making our new schedule. It is always SO TEMPTING to take a few months off to just focus on this house but I know from past experience that this doesn’t go well and that…

[can-i-make-image-descriptions]

[Image IDs: Text. Image #1: During the first 13 weeks of pregnancy, when about 90 percent of abortions in America are carried out, the fetus's appearance ranges from a small clot of phlegm to an alienlike ball of flesh. At 22 weeks, though, a human fetus has grown to about the size of a small melon. The procedures that Hern performs result in the removal of a body that, if you saw it, would inspire a sharp pang of recognition. These are the abortions that provide fodder for the gruesome images on protesters' signs and the billboards along Midwest highways, images that can be difficult to look at for long.

Image #2: Many of the women who visit Hern's clinic do so because their health is at risk—or because their fetus has a serious abnormality that would require a baby to undergo countless surgeries with little chance of survival. But Hern does not restrict his work to these cases.

The phone at Hern's clinic rings constantly these days. Since the overturning of Roe and the corresponding blitz of abortion bans, appointment books are filling up at clinics in states where abortion remains legal. Women who have to wait weeks for an appointment may end up missing the window for a first-trimester procedure. Some book a flight to Boulder to see Hern, who is treating about 50 percent more patients than usual.

Image #3: These later abortions are the less common cases, and the hardest ones. They are the cases that even stalwart abortion-rights advocates generally prefer not to discuss. But as the pro-choice movement strives to shore up abortion rights after the fall of Roe, its members face strategic decisions about whether and how to defend this work.

Most Americans support abortion access, but they support it with limits—considerations about time and pain and fingernail development. Hern is reluctant to acknowledge any limit, any red line. He takes the woman's-choice argument to its logical conclusion, in much the same way that, at this moment, anti-abortion activists are pressing their case to its extreme. Hern considers his religious adversaries to be zealots, and many of them are. But he is, in his own way, no less an absolutist.

Image #4: "The fee will be about $6,000," the receptionist said. Late abortions are expensive because they are medically complex. For patients who need financial aid, the National Abortion Federation may cover some of the cost, and local abortion funds often contribute. The receptionist told this to Lindsey, and offered her the organization's number. "You can do partial cash and credit card, yes." she said. Often, if a woman cannot afford to pay for her hotel, her transportation to Boulder, or some part of her procedure, Hern will foot the bill himself, staff members told me.

Image #5: Hern stopped performing first-trimester abortions a few years ago; he saw too much need for later abortions, and his clinic couldn't do it all. The procedure he uses takes three or four days and goes like this: After performing an ultrasound, he will use a thin needle to inject a medicine called digoxin through the patient's abdomen to stop the fetus's heart. This is called "inducing fetal demise." Then Hern will insert one or more laminarias—a sterile, brownish rod of seaweed—into the patient's cervix to start the dilation process.

Image #6: When the cervix is sufficiently dilated after another day or two of adding and removing laminarias, Hern will drain the amniotic fuid, give the patient misoprostol, and remove the fetus. Sometimes, the fetus will be whole, intact. Other times, Hern must remove it in parts. If the patient asks, a nurse will wrap the fetus in a blanket to hold, or present a set of handprints or footprints for the patient to take home.

I interviewed half a dozen of Hern's former patients. Most of the women who agreed to talk had wanted a child. But they'd received serious diagnoses late in pregnancy: disorders with disturbing names such as prune-belly syndrome, trisomy 13, Dandy-Walker malformation, and agenesis of the corpus callosum. Some said they considered their abortions a kind of mercy killing.

Image #7: Amber Jones, who terminated her pregnancy at about 24 weeks in 2016, told me that her baby's diagnosis meant he would not survive. Hern reassured her, she said, that she "shouldn't be made to carry the pregnancy. That it's bullshit, and we have the right to access health care."

Image #8: Abortions that come after devastating medical diagnoses can be easier for some people to understand. But Hern estimates that at least half, and sometimes more, of the women who come to the clinic do not have these diagnoses. He and his staff are just as sympathetic to other circumstances. Many of the clinic's teenage patients receive later abortions because they had no idea they were pregnant. Some sexual-assault victims ignore their pregnancies or feel to ashamed to see a doctor. Once, a staffer named Catherine told me, a patient opted for a later abortion because her husband had killed himself and she was suddenly broke. "There isn't a single woman who was ever written on her bucket list that she wants to have a late abortion," Catherine said. "There is always a reason."

Image #9: The reason doesn't really matter to Hern. Medical viability for a fetus—or its ability to survive outside the uterus—is generally considered to be somewhere from 24 to 28 weeks. Hern, though, believes that the viability of a fetus is determined not by gestational age but by a woman's willingness to carry it. He applies the same principle to all of his prospective patients: If he thinks it's safer for them to have an abortion than to carry and deliver the baby, he'll take the case—usually up until around 32 weeks, with some rare later exceptions, because of the increased risk of hemorrhage and other life-threatening conditions beyond that point.

Image #10: Hern was 34 when he performed his first abortion, a year before Roe v. Wade would be decided. A friend in D.C. who ran a loal clinic invited him to come learn the procedure. Hern's patient was 17 and in her first trimester of pregnancy. She wanted to be an anesthesiologist, he remembers.

Hern had learned how to do a dilation-and-curettage abortion in medical school, but still, he was terrified—and so was she. He recalls that after he finished and told her she wasn't pregnant anymore, she wept with relief. He did too. "I was overwhelmed by the significance of this operation for this young woman's life," he told me. "This was a new definition, for me, for practicing medicine."

Image #11: Regardless of the circumstances of pregnancy, in Hern's view, a woman's life—her humanity, her wishes—isn't just more important than her fetus's. It is virtually the only thing that matters. That approach is diametrically opposed to the view of anti-abortion advocates, for whom pregnancy means motherhood and, often, self-sacrifice.

Image #12: "So if a pregnant woman with no health issues comes to the clinic, say, at 30 weeks, what would you do?" I asked Hern once. The question irked him. "Every pregnancy is a health issue!" he said. "There's a certifiable risk of death from being pregnant, period."

Image #13: I asked Hern whether he ever worried that now, in a post-Roe world, he might have an even bigger target on his back. I wondered whether it was a bit reckless for him to be so outspoken with reporters like me. Actually, it's the opposite, Hern replied. Being so vocal "increases the political cost of assassinating me."

"That's dark," I said.

He simply shrugged. "This is what I have to think about." /End IDs]

This was an interesting read. Surprisingly nonpreachy given the subject; and well worth the time.

[drdilipkiyawatneurosurgeon]

Expert Pediatric Neurosurgery for Brain and Spine Care

By Dr. Dilip S. Kiyawat, M.Ch. (Neuro), Neurosurgeon

As a parent, the health and well-being of your child are your top priorities. When it comes to conditions affecting the brain and spine, the need for prompt, precise, and expert medical attention becomes even more critical. Pediatric neurosurgery is a highly specialized field that focuses on diagnosing and surgically treating neurological disorders in children—from newborns to adolescents.

Dr. Dilip S. Kiyawat, a leading neurosurgeon based in Pune, Maharashtra, provides world-class pediatric neurosurgical care with a focus on compassionate treatment, advanced surgical techniques, and long-term wellness.

👨‍⚕️ About Dr. Dilip S. Kiyawat

Dr. Dilip Kiyawat is a highly qualified and experienced neurosurgeon with an M.Ch. (Neurosurgery) degree. With years of dedicated service in neurosurgery, he has developed a particular expertise in pediatric neurosurgery, where precision, patience, and empathy are essential.

He has successfully treated numerous young patients suffering from life-threatening or debilitating brain and spine conditions. His mission is to save lives, preserve brain function, and help children grow up to live healthy, productive lives.

🧠 What Is Pediatric Neurosurgery?

Pediatric neurosurgery involves the surgical treatment of disorders of the brain, spine, and nervous system in children. Unlike adult neurosurgery, it requires additional care due to the delicate and developing structures of a child’s nervous system. Children respond differently to illness, injury, and surgery, which is why pediatric specialists are essential.

Dr. Kiyawat offers advanced surgical interventions for a variety of pediatric neurological conditions using minimally invasive techniques whenever possible. Early diagnosis and timely surgical care can prevent long-term complications and developmental delays.

🩺 Conditions Treated

Dr. Kiyawat provides comprehensive treatment for a wide range of pediatric neurosurgical conditions:

🔹 Congenital Brain and Spine Disorders

Spina bifida

Encephalocele

Chiari malformation

Dandy-Walker syndrome

Tethered cord syndrome

🔹 Brain and Spinal Cord Injuries

Head trauma due to falls or accidents

Spinal fractures

Post-traumatic hemorrhage

Swelling or pressure in the brain

🔹 Brain Tumors and Cysts

Removal of benign and malignant brain tumors

Arachnoid cysts

Pineal region tumors

Intraventricular tumors

🔹 Hydrocephalus (Water in the Brain)

A common pediatric condition where cerebrospinal fluid builds up in the brain, potentially causing pressure and damage. Treatment often involves surgical shunt placement or endoscopic third ventriculostomy (ETV).

🔹 Other Neurological Conditions

Epilepsy surgery

Craniosynostosis (early fusion of skull bones)

Peripheral nerve injuries

Neurocutaneous syndromes (e.g., neurofibromatosis)

🧑‍🔬 Advanced Technology and Patient-Centric Care

Dr. Kiyawat employs state-of-the-art imaging and surgical tools such as:

Neuroendoscopy

MRI-guided surgery

Neuronavigation systems

Microsurgical techniques

This ensures less invasive procedures, faster recovery times, and minimal complications. Each patient receives an individualized treatment plan after detailed evaluation, imaging, and counseling with parents.

💬 Why Choose Dr. Dilip Kiyawat?

✅ Specialized pediatric neurosurgical expertise ✅ Modern surgical techniques with high success rates ✅ Empathetic approach toward children and families ✅ Focus on long-term neurodevelopmental outcomes ✅ Accessible consultation and multiple hospital locations

📍 Hospital Locations

Dr. Dilip Kiyawat practices at two reputed hospitals in Pune, making it convenient for patients from the city and nearby regions:

🏥 Jehangir Hospital

📍 32, Sassoon Road, near Pune Railway Station, Pune – 411001 🕒 Known for advanced infrastructure and multidisciplinary support for pediatric care.

🏥 Sainath Hospital

📍 Sant Nagar, Pune – Nashik Highway, Moshi Pradhikaran, Moshi, Pimpri-Chinchwad – 411070 🕒 Accessible to patients from North Pune and PCMC region.

📞 Contact Information

For appointments, consultations, or queries, reach out through any of the following:

📱 Phone: +91 98220 46043 🌐 Website: www.drdilipkiyawatneurosurgeon.com 📧 Email: drdilipkiyawatneurosurgeon@gmail.com

🗓️ Book Your Consultation Today

If your child is facing any neurological symptoms such as persistent headaches, abnormal movements, developmental delay, or has suffered a head injury—early intervention could be life-changing.

👉 Don’t wait. Book your consultation today with Dr. Dilip Kiyawat, a trusted expert in children’s brain and spine care.

[dr-sravanthi-vadlamudi]

Dandy Walker Complex

#DandyWalker

#Complex

#Malformation

#Chromosome

#Defects

Dandy-Walker Complex

This refers to a spectrum of abnormalities of the cerebellar vermis, cystic dilatation of the fourth ventricle and enlargement of the cisterna magna. The condition is classified into Dandy-Walker malformation (complete or partial agenesis of the cerebellar vermis and enlarged posterior fossa), Dandy-Walker variant (partial agenesis of the cerebellar vermis without enlargement of the posterior fossa) and mega-cisterna magna (normal vermis and fourth ventricle).

The birth prevalence of Dandy-Walker malformation is about 1 per 30,000. Causes include chromosomal defects, more than 50 genetic syndromes, congenital infections or teratogens such as warfarin, but it can also be an isolated finding. The overall prevalence of chromosomal defects is about 40%, usually trisomies 18 or 13 and triploid

https://drsravanthivadlamudi.com/fetal-blood-transfusion

#DrSravanthiVadlamudi

[roamwithahungryheart]

Rare Disease Day 2023

I'd like to start by saying a huge thank you to everyone for your support and love after my recent surgery, it truly means so, so much.

As it's Rare Disease Day once again, I want to share my experience in the hope that it helps someone out there to not only understand what it's like to live with a rare disorder, but also to feel a little less alone. So, let's get down to it.

For those of you who don't already know, I was born with a Dandy-Walker malformation and an atrioventricular septal defect specifically known as Tetralogy of Fallot. ToF is characterized by four defects, and according to my current surgeon, my case isn’t textbook. God's plan was to make me as unique as possible!

I had corrective surgery at just 5 weeks old, and my second repair in October 2022. I’ll need further surgeries in the future.

While ToF is one of the more commonly known conditions, DWS is largely unrecognized. Even the specialists I’m under don’t know everything about DWS. That’s the trouble with a disorder with so many variants.

According to statistics from the Dandy-Walker Alliance, 1 in 10,000 children are born with DWS. It’s also more likely to affect women than men. Some people don't live past the age of 40.

My malformation and co-existing symptoms are milder than they could have been. I’m one of the lucky ones who won’t need a hydrocephalic shunt, or end up in a wheelchair, but for some, that’s the reality of living with DWS.

The defining trait of Dandy-Walker Syndrome is an abnormality of the cerebellum, forming a cyst at the base of the skull, and complete absence of the cerebellar vermis. In severe cases, increased cerebral fluid is present. Children born with DWS will have delayed development and poor motor control. My hands mirror each of their movements, and I occasionally experience myoclonic jerks.

Another side effect of DWS is epilepsy. I've had a lifetime of headaches, dizziness and seizures. There are 41 different types of seizure, and I can experience any one of them at any given time. So in short, it's sometimes a real chore to get through the day! But in spite of it all, I've managed to live a reasonably normal life.

I turn 30 this year, and I've been thinking a lot more about my future goals, because as I'm sure you know, women face a lot of pressure to have their shit together by the time they turn the big 3-0. I’m a woman who would love to have children, but know that because of my health, it might never happen. Or if it does happen, there’s a significant chance my child could end up with all the same health complications I have. I can’t count the times I’ve kept myself awake at night, sometimes even cried because of it. Sometimes it’s scary having to admit and accept that. However, I'm a big believer in the old adage 'where there's a will, there's a way'. It's gotten me this far, and I don't intend to let anything stop me from living the life I deserve.

If you're reading this and you have a rare chronic illness or disability - or any disorder - I hope you take a little time today to remind yourself of how unique and wonderful you are. Take pride in being perfectly imperfect.

You are seen, you are loved, and you are stronger than you believe.

[iamsomeonestrong]

September is Hydrocephalus Awareness Month.

More than one million Americans live with Hydrocephalus. As it's one of the lesser known neurological conditions, it's so important to raise awareness and show support for those living with it.

For more information, visit the Hydrocephalus Association

[andhumanslovedstories]

We have to stop naming disease processes after the people who identified them, I think Christmas Anemia is still the worst but I’ve recently discovered Dandy-Walker Syndrome and that shouldn’t be the name of a congenital brain malformation, it should be how a chap in 1910 might refer to his confirmed bachelor acquaintance with a great deal of eyebrow wagging

[badtonki]

Corpus colossus

It is estimated that at least one in 4,000 individuals has a disorder of the corpus callosum. Impairments in social interaction and communication in individuals having a disorder of the corpus callosum may overlap with autism spectrum disorder behaviors. The corpus callosum acts as a bridge so that input from. Each hemisphere of the brain controls movement and feeling on the opposite side of the body. It acts as a connective pathway that links the left hemisphere and the right hemisphere of the cerebral cortex. Individuals with these disorders have a higher risk of hearing deficits and cardiac abnormalities than individuals with the normal structure. by primary degeneration of the corpus callosum, is a rare complication of chronic alcoholism.1 Although nutritional deficiencies have been suspected. The corpus callosum is a hard, C-shaped structure found in the middle of the brain. Other disorders of the corpus callosum include dysgenesis, in which the corpus callosum is developed in a malformed or incomplete way, and hypoplasia, in which the corpus callosum is thinner than usual. It contains 200 million nerve fibers that pass information back and forth. Children with the most severe brain malformations may have intellectual impairment, seizures, hydrocephalus, and spasticity. The corpus callosum is a structure that connects the right and left sides of the brain. The effects of the disorder range from subtle or mild to severe, depending on associated brain abnormalities. ACC can also be associated with malformations in other parts of the body, such as midline facial defects. Cast and crew from the film Mad Max: Fury Road and celebrities walked the red carpet at Event Cinemas. ACC can occur as an isolated condition or in combination with other cerebral abnormalities, including Arnold-Chiari malformation, Dandy-Walker syndrome, schizencephaly (clefts or deep divisions in brain tissue), and holoprosencephaly (failure of the forebrain to divide into lobes.) Girls may have a gender-specific condition called Aicardi syndrome, which causes severe cognitive impairment and developmental delays, seizures, abnormalities in the vertebra of the spine, and lesions on the retina of the eye. Pictured: Quentin Kenihan Companion (Corpus Colossus). The corpus callosum transfers motor, sensory, and cognitive information between the brain hemispheres. It connects the left and right sides of the brain, allowing for communication between both hemispheres. It is caused by a disruption of brain cell migration during fetal development. The corpus callosum is a thick band of nerve fibers that divides the cerebral cortex lobes into left and right hemispheres. In ACC the corpus callosum is partially or completely absent. Agenesis of the corpus callosum (ACC) is one of several disorders of the corpus callosum, the structure that connects the two hemispheres (left and right) of the brain.

[scarrow]

“When I was pregnant with my first daughter, she would kick responsively, and then she would take naps. It seemed logical. This baby never stopped moving, but she never did anything responsive, either. The movements were so random…

“Because of that worry, at 35 weeks, my midwife sent me for a “peace of mind” ultrasound...

“I know [the nurse] said the words “Dandy-Walker,” which I know now is a brain syndrome that has varying degrees of severity. I remember asking, “Are babies with this ever normal?” and she said that sometimes they were. She told me they couldn’t know the severity of the situation until after I had an MRI. That’s how they would determine if my baby would be OK or if she would be “incompatible with life.” Those are the words they used. Incompatible with life…

“Waiting was awful. I imagined every possibility: What would it be like to have the miracle baby who was OK and exceeded all expectations? What if she died at birth? What if she lived only a couple of years? What does it mean to get a DNR (a do-not-resuscitate order), for an infant? Hospitals are legally protected from trying to save a baby and not legally protected from letting a baby die…

“The neurologist, who told us that our baby had Dandy-Walker malformation, [said it was] the most severe presentation of the syndrome. It basically meant there were holes in her brain. She also had agenesis of the corpus callosum, which meant the bridge between the two hemispheres of her brain didn’t grow. So we had two malformations, each of which had a wide range of outcomes, but, combined, had a horrible prognosis. The doctor said, “We expect your baby to have moderate to severe mental retardation; she’s going to have moderate to severe physical disability; she is probably never going to walk or talk; she will possibly never be able to lift her head; she is going to have seizures all of the time.” At first, I was thinking, “This doesn’t make sense, she’s always moving,” and then he mentioned seizures, and I understood…

“In that moment, I had to shift my thinking. I was hoping for special ed, and had been focusing on questions like: How much should you save to know your special-needs daughter will be OK after you die? I was thinking about long-term care and mild to moderate disability. Instead, I had to think about a baby who was probably not going to live very long, and the longer she lived, the more pain she would be in. That realization – that I was more scared of her living than of her dying — is what made the choice for me…

“The doctor asked if we had any questions, and I said, ‘What does a baby like this do? Does she just sleep all day?’ The doctor looked so uncomfortable. He said, ‘Babies like this one are not generally comfortable enough to sleep.’ 

“[at the abortion] After the injection, he asked how I was feeling, and I just said,  “I feel so sad. I’m going to miss her…

“Then on the fourth day, they induced my labor. I got Pitocin, and it was actually a very natural birth. It was quite healing for me. I couldn’t do anything for this baby — I couldn’t fix her brain or make her well, but I could deliver her from my body. I chose to view her, so they cleaned her up and brought her in and she looked a lot like my older daughter. She was beautiful and she was whole. I got her footprints and had her cremated and they sent us her ashes in the mail a few days later. We wanted to name her after a flower, so we called her Rose.”

A few things strike me about all these late-term abortion stories. When the potential parents learned their child would have a disability, they weren’t angry. They may have been sad, but they started planning and researching how to give a disabled child a good life. The only people who chose late-term abortions are those who believe there is no good life possible: that the baby’s suffering will only increase more and more until an early death. 

But, again, here’s a sampling of the comments this story received… they were vastly negative. 

“Pro-Life Comments”

Those medical problems aren’t that bad.

“Apparently medical necessity doesn't matter anymore. It's just a matter of if it feels right to abort or not. This is an appalling story. That baby had unique, unrepeatable DNA and this was her one chance at life. Now she's been erased.”

“Very sad story for many reasons! Of course, I can't help but wonder what the child's life might have been like had mom had the will to allow him/her to be born. Perhaps the child would have overcome many of the disabilities and had a reasonable life, or perhaps the medical problems would have been so severe, the child would have died. But, did mom had the right to decide whether the child lives or dies? I still don't think so.”

“This article has not swayed my opinion on late term abortions in any way. Everything about the story from the way the doctors informed the patient to the concerns of the parent were fairly biased and selfish. Even with the severe malformation, the child could have lived a very fulfilling life. My brother has lived a full life (he's now in his 40's) with a similar condition. Sure, he's never going to be a neurosurgeon or complete college, but he has held down a job for the last 25 year, owns a home and even got married to someone with a similar condition. He does require some home care, which the family provides, but it was far from a burden.”

The parents wanted a “perfect” baby

“She murdered a baby because it wasn't perfect? She murdered Rose. MURDERER ! ! !”

“Sorry but I don't agree with this mother's decision. She got pregnant and when she found out that it was not perfect, she had this poor little baby euthanized. that was so selfish of her. If this baby was not viable, her little heart would have stopped on its own… Many children have medical problems & live well with support of family who LOVE then UNCONDITIONALLY. I'm sure some one with a huge heart would have loved to adopt and love Baby Rose. These parents stole that opportunity of that life option away. And who said she died peacefully. I'm sure it was a quiet and very painful death. Shame on these parents. They never gave Rose the chance at life, all because she wasn't perfect.” 

“This is heartless and she is trying to make it sound like she's not selfish. She is sending her [older] daughter the message that if your aren't perfect, healthy, you don't deserve to live. This is sort of sick. Probably a shallow pretentious woman and husband who can't be bothered with ‘less than.’”

You should count on a miracle/God/Nature instead:

“I was told at 6 months [pregnant] that my daughter would be very sick and disabled. That she would never walk, and most likely would die after 3 weeks and if she lived, she would never be able to take care of herself…. Sometimes you have to trust yourself that you can handle it, and trust GOD that is will all work out. I did not trust these doctors and I am so HAPPY I didn’t, or I wouldn’t have my beautiful daughter.” [I’m happy for you too! But miracles don’t happen every time.]

“Don't even TRY to normalize this. Being a nurse in my younger years, I saw babies born that would not have a chance These mothers knew that, and carried to term, delivered, and held their precious babies until they passed. Don't even try to act like this 8 month termination is anything but murdering the poor baby. Let NATURE take its course. Barbarians.” [Author was certain she wouldn’t be allowed to hold her dying baby; that the hospital would work hard to extend her painful life.]

Murder

“You murdered your baby just in time to celebrate your birthday... selfish.”

“Just pretty much another Mother destroying a new life! The value of life does not stop and start on an liberal ideological timeline!”

“What in the name of everything good and holy is wrong with these sick SOB's? They actually believe they can chop up an infant child as "their" body. These people are monsters of the worst kind in human history, Hitler, Stalin, Pal Pat had nothing on these despicable women and those that butcher children. Get an education, look at what you are doing before you comment or do anything. How does anyone make it OK to butcher a baby with no pain killer, NOTHING!” [reminder that in this case, the fetus was given a single shot and died peacefully, then was delivered whole vaginally.]

[dontshootmespence]

Medically, a miscarriage is classified as an abortion. Meaning that when someone miscarries and the fetus needs to be removed it is medically charted as an abortion. For reasons such as anencephaly, Dandy Walker Malformation,trisomy 13 where the child will VERY likely die right after being born, to remove that pregnancy is termed an abortion. Regardless of what people believe, this will medically affect millions. I am not crazy for thinking this and I am not in an echo chamber. I work in the medical field and KNOW how this will affect people.

As for consequences, a child is NOT A CONSEQUENCE. Period.

This is a pro-choice blog.

It’s an I wanted this baby but at my anatomy scan I found out my baby will die after it’s born blog.

It’s an I’m not financially, mentally or emotionally stable enough to bring a child into this world blog.

It’s an I can’t live with the result of my sexual assault blog.

It’s an I miscarried but the fetus will not evacuate on its own blog.

It’s an I will die if I carry this to term blog.

It’s an I don’t want to be fucking pregnant blog.

It’s a pro-choice blog.

If you see this decision as a win, educate yourself. People with uteruses WILL die. And if that’s okay with you, don’t claim you’re pro-life.

Oh, and a big, fat FUCK YOU.

[happy2bmyownboss]

You just don’t know…

Whew!!!! This weekend was crazy fun and exciting… there is plenty more excitement to come in the next few months though with a wedding and then the arrival of my first grand child… I just can’t wait! This post isn’t an update on all of that though … we will post soon about that. This post is one that has been on my heart and maybe someone else needs to read it. Continue reading You just don’t…

[theradiologyinsider]

Dandy walker malformation #fetal #ultrasound #sonography #neonates #malformation #radiology #radiopaedia #radiologist #art https://www.instagram.com/p/CncmMulhZZl/?igshid=NGJjMDIxMWI=

[drdilipkiyawatneurosurgeon]

Ensuring the Safety of Children's Brain with Expert Pediatric Neurosurgery

Introduction

A child’s brain is the foundation of their growth, development, and future. Any neurological disorder can be alarming for parents, but with the right medical intervention, many conditions can be successfully treated. Early diagnosis and expert treatment are key in managing neurological issues in children.

Dr. Dilip S. Kiyawat, a highly qualified M.Ch. (Neuro) Neurosurgeon, specializes in treating pediatric neurological disorders. With years of experience and advanced medical technology, he provides comprehensive diagnosis, surgical expertise, and compassionate care for children suffering from brain and spinal cord conditions.

This article provides detailed insights into common pediatric neurological disorders, their symptoms, treatment options, and why Dr. Kiyawat is the trusted choice for parents.

Understanding Pediatric Neurological Disorders

Neurological disorders in children can be congenital (present at birth) or acquired due to injury, infections, or other medical conditions. Some of the most common conditions that require neurosurgical expertise include:

1. Brain Tumors in Children

A brain tumor is an abnormal growth of cells in the brain. Common symptoms of pediatric brain tumors include: 🔹 Persistent headaches 🔹 Nausea and vomiting 🔹 Seizures 🔹 Vision or hearing problems 🔹 Balance and coordination issues 🔹 Behavioral or cognitive changes

Treatment: Dr. Kiyawat specializes in advanced brain tumor surgeries, minimally invasive procedures, and post-surgical rehabilitation to ensure the best possible outcome for children.

2. Neurological Disorders

Neurological disorders affect the nervous system, including the brain, spinal cord, and nerves. Some of the common conditions include:

✅ Epilepsy: A disorder causing repeated seizures. ✅ Cerebral Palsy: A condition affecting movement and muscle coordination. ✅ Hydrocephalus: A buildup of fluid in the brain, leading to increased pressure. ✅ Developmental Delays: Delays in motor skills, speech, and cognitive function.

Symptoms to Watch For: 🔹 Seizures or convulsions 🔹 Delayed speech or movement milestones 🔹 Difficulty in coordination or muscle weakness 🔹 Sudden behavioral changes

Treatment Options: Depending on the severity of the condition, medications, surgical procedures, and therapy can help manage these disorders effectively.

3. Spinal Cord Problems in Children

Spinal cord abnormalities can lead to mobility issues, nerve damage, and chronic pain. Some common conditions include:

✅ Spina Bifida: A birth defect where the spinal cord does not develop properly. ✅ Tethered Spinal Cord Syndrome: A condition causing restricted movement of the spinal cord. ✅ Scoliosis: An abnormal curvature of the spine.

Symptoms of Spinal Cord Issues: 🔹 Weakness in the legs or difficulty walking 🔹 Bowel and bladder control problems 🔹 Back pain or spinal deformities

Treatment: Dr. Kiyawat offers advanced neurosurgical procedures, including spinal cord decompression and corrective surgeries to improve a child’s mobility and quality of life.

4. Congenital Neurological Disorders

Some neurological disorders are present at birth and can significantly impact a child’s life. Early diagnosis and treatment play a crucial role in managing these conditions.

✅ Chiari Malformation: A condition where brain tissue extends into the spinal canal. ✅ Dandy-Walker Syndrome: A brain malformation affecting balance and movement. ✅ Craniosynostosis: A premature closure of skull sutures leading to skull deformities.

Symptoms of Congenital Neurological Disorders: 🔹 Abnormal head shape or skull growth 🔹 Developmental delays 🔹 Coordination and movement difficulties

Treatment: Surgical interventions and therapy help correct these conditions and ensure better neurological function.

Why Choose Dr. Dilip Kiyawat?

🔹 Highly experienced neurosurgeon specializing in pediatric cases 🔹 Expert in brain and spinal cord surgeries 🔹 Minimally invasive and advanced surgical techniques 🔹 Personalized treatment plans for every child 🔹 Comprehensive care including post-surgical rehabilitation 🔹 Compassionate approach, ensuring the comfort of young patients

Dr. Kiyawat is dedicated to ensuring safe, effective, and child-friendly neurological treatments to help children lead a healthy and active life.

Hospital & Consultation Details

👨‍⚕️ Dr. Dilip S. Kiyawat 📍 M.Ch. (Neuro) Neurosurgeon 📞 Contact: +91 98220 46043 🌐 Website: www.drdilipkiyawtaneurosurgeon.com 📧 Email: drdilipkiyawtaneurosurgeon@gmail.com

🏥 Hospital Locations:

🔹 Jehangir Hospital – 32, Sassoon Road, near Pune Railway Station, Pune 411001 🔹 Sainath Hospital – Sant Nagar, Pune - Nashik Hwy, Moshi Pradhikaran, Moshi, Pimpri-Chinchwad, Maharashtra 411017

Book Your Consultation Today!

Your child's brain and spinal health are of utmost importance. Early detection and expert treatment can make a significant difference in their well-being. If you notice any concerning symptoms, consult Dr. Dilip Kiyawat today to get expert guidance and the best pediatric neurosurgical care.

🔵 Because every child deserves a healthy and bright future! 🔵

[plugmains]

Charge syndrome

#Charge syndrome skin#

#Charge syndrome skin#

As well as, rhombencephalic abnormalities, hypothalamo-hypophyseal dysfunction, external/middle ear malformations, mediastinal visceral malformations, and mental retardation.ĭental malocclusion, Deep palmar crease, Delayed puberty, Malar flattening, Delayed eruption of teeth, Brachydactyly, Clinodactyly of the 5th finger, Broad columella, Chorioretinal coloboma, Anophthalmia, Cleft upper lip, Retinal detachment, Epicanthus, Split hand, Esophageal atresia, Cupped ear, Dandy-Walker malformation, Cryptorchidism, Dysphagia, Duodenal atresia, Downslanted palpebral fissures, Double outlet right ventricle, Facial palsy, Facial asymmetry, Feeding difficulties in infancy, External ear malformation, Posterior choanal atresia, Overfolded helix, Hand polydactyly, Nystagmus, Obsessive-compulsive behavior, Optic atrophy, Renal hypoplasia, Omphalocele, Preaxial hand polydactyly, Autosomal dominant inheritance, Parathyroid hypoplasia, Preauricular skin tag, Otitis media, Patent ductus arteriosus, Sinusitis, Retinal coloboma, Retinopathy, Renal agenesis, Webbed neck, Vesicoureteral reflux, Aplasia/Hypoplasia of the earlobes, Aplasia/Hypoplasia of the corpus callosum, Aplasia/Hypoplasia of the cerĬHARGE syndrome is a complex genetic disorder caused by heterozygous pathogenic CHD7 variants (most often private, truncating), which are usually de novo but can be inherited in an autosomal dominant fashion. Other symptoms may include a cleft palate, issues with balance, kidney health concerns and intellectual disability. Physical features of the syndrome include asymmetrical facial palsy, short and wide ears with little or no earlobe, small thumbs and fingers, and upper body hypotonia. The main symptoms of the syndrome, and from which the syndrome derives its name, are:Ĭoloboma: a slit in the iris or retina that may lead to vision lossĬranial nerve abnormalities: issues with the connection between the nose and throatĬhoanal Atresia: a blockage in the back of an individual’s nose that can make breathing difficult. What are the main symptoms of CHARGE syndrome?

[roamwithahungryheart]

May is Dandy-Walker Awareness Month.

If you'd like to learn more and support a brilliant non-profit organization, visit the Dandy-Walker Alliance website.

This month, I'm aiming to raise awareness of this rare condition and give you an insight into what it's like to live with DWS.

As a way of celebrating not only myself, but also other women with chronic illnesses and disabilities, I've started the #someonestrong campaign. If you'd like to share your story and help me get this off the ground, please go to the Someone Strong blog. I hope to create a safe space for women to share their experiences, form friendships and most importantly celebrate their strength.

I hope to see you there. As always, thank you for your support x

[iamsomeonestrong]

Hi!

I'm Lauren, I'm 29, and I have Dandy-Walker Syndrome. I also have a complex congenital heart condition.

You might be wondering, what exactly is DWS? What heart condition do I have? Well, I'll tell you. Because it's a little complicated.

I was born with a Dandy-Walker malformation and an atrioventricular septal defect, specifically known as Tetralogy of Fallot. ToF is characterized by four defects, and according to my current surgeon, my case isn't textbook. Always reassuring! I had corrective surgery at just 5 weeks old, and I'll need further surgeries in the future - in fact, I'm due to have my next surgery this year.

While ToF is one of the more commonly known conditions, DWS is largely unrecognized. Even the specialists I'm under don't know EVERYTHING about DWS. That's the trouble with a disorder with so many variants.

According to statistics from the Dandy-Walker Alliance, 1 in 10,000 children are born with DWS. It's also more likely to affect women than men. My malformation and co-existing symptoms are milder than they could have been. I'm one of the lucky ones who won't need a hydrocephalic shunt, or end up in a wheelchair, but for some, that's the reality of living with DWS.

The defining trait of Dandy-Walker Syndrome is an abnormality of the cerebellum, forming a cyst at the base of the skull, and complete absence of the cerebellar vermis. In severe cases, increased cerebral fluid is present. Children born with DWS will have delayed development and poor motor control. My hands mirror each of their movements, which means making coffee can sometimes be a little more dangerous! Over the years, I've learned to control my mirroring, but it hasn't been easy!

I started this blog as a way to document my experience, but also in the hope that someone else out there would find it and get in touch. After a while, I got to thinking - what if this wasn't just a blog, but a safe space for other women to share their experiences with disabilities and chronic illnesses?

As a result, Someone Strong was born. I'm hoping to turn this into a social media campaign to shine a light on women with rare conditions and the strength it takes us to get through each day.

So, if you're reading this, please join me and share your stories. I look forward to meeting you x