#Epilepsy Awareness

[kunaigirl]

Happy Disability Pride and awareness month! Let's talk about Epilepsy!

Hi there! I got tired of seeing my condition (that impacts my literal every day life) being left out or forgotten about during discussions about disabilities, so I made my own post about it! Let's go!

First Off! What the heck is epilepsy? Epilepsy is the fourth most common neurological disorder in the world, and it's a chronic medical condition. Epilepsy is a brain disorder that causes recurring, frequent, triggered, and unprovoked seizures to occur.

The official Epilepsy Foundation describes seizures as follows: "Seizures are sudden surges of abnormal and excessive electrical activity in your brain, and can affect how you appear or act. Where and how the seizure presents itself can have profound effects...Seizures involve sudden, temporary, bursts of electrical activity in the brain that change or disrupt the way messages are sent between brain cells. These electrical bursts can cause involuntary changes in body movement or function, sensation, behavior or awareness." (Source link)

Sounds like a lot of fun right? This is our life. Even with medication, we can be VERY limited to what can be safe for us. Seizure medications are NOT a cure, they only exist (at least as of now) as a tool to help have your seizures less often, or be triggered less intensely. Even on medication, seizures can still happen.

If you have epilepsy as a child like I did, it impacts your entire growing and developing experience. I spent MANY times as a child in and out of hospitals, neurologist and specialist offices, an getting so many EEG tests done. The pain of scrubbing the glue out of your hair for DAYS is horrible.

At a young age my seizures were so frequent and serious, it impacted my brain's ability to retain information. I had to re-learn the names of things at age 8 and 9. I had to re-learn HOW TO READ at age 10. I had to be home schooled because the public school system of my state at the time refused to work with me. I have VERY distinct and vivid memories of crying over my little baby ABC's book that I needed as a 4th and 5th grader. I knew I should've known this by this age. I knew that at one point I already did, and it was TAKEN FROM ME.

As an adult, I'M NOT ALLOWED TO DRIVE A CAR. And I can NEVER go to see a movie in theaters or go to see concerts or live music. There are entire TV shows I don't get to see. I can't go to clubs, arcades, dances, or raves. I miss out on A LOT of fun things. I always do, and I'm WELL AWARE of the fun I'm missing out on. The social, casual, and fun life experiences I'll never get to have. That WE'LL never get to have. And oh yeah! Seizures can KILL SOME OF US. Yep.

And the list goes on, and every person with epilepsy experiences it differently. There are multiple different types of seizures you can have, they're NOT always convulsing on the floor. For example, I have complex-partial-myoclonic-seizures. Meaning my muscles DO twitch when I have seizures, but I'm not always completely unconscious and sometimes I'm even able to stay sitting up. However, I'm still very "off" and can't focus or remember much for a good while after the fact. I can't talk or communicate during one, even with my slight bit of consciousness.

My experiences are not universal, I just wanted to talk about it and bring it up. It helps to talk about it even a little bit. Here's more about different kinds of seizures. Here's more about common seizure triggers. Here's more about CORRECT seizure first aid. And here's more general information/resources.

Please stop leaving us out of disability awareness. Please stop ignoring us or saying we're "not really disabled" or anything else like that. Please. Why does it always feel like the only people who care about epilepsy, are people WITH epilepsy? We're so tired of being ignored by others who don't have our condition.

If you're an epileptic person reading this, I see you. I love you. You're so strong, we all are. I believe in you, I believe in us. We're so much stronger than we get credit for, and it's going to be ok. Your anger and frustration are valid. Your emotions and struggles are real. You're valid, and I see you. Hang in there, we got this.

[oopsanonbinary]

every time i meet my pcp, psychiatrist, or neurologist i thank them for taking me seriously and helping me and they're like "oh i'm literally just doing my job" and i remind them "the last pcp i had told me i was too crazy to be referred to a neurologist and it turned out i had a seizure disorder, and this was after referring me for my migraines to an acupuncturist, so y'know, i appreciate your humility but the bar is presently creating a newer, deeper ring of hell"

[estellan0vella]

High-Frequency Burst ❀ includes: Gojo, Nanami, Sukuna, Toji, Megumi, Yuji & Toge Masterlist

[andr3yvishn3vsky]

Not all seizures are epileptic, and not all non-epileptic seizures are PNES. Hope this helps!

[galacticghoste]

Here's my flower fact \/\/\/

Heres my drawing for the Sonic Garden @shadowxamyweek!

It's merely a head-cannon but I would think she could develop epilepsy as a side affect of her condition, but idk I just wanted to feel more seen since epilepsy is not really talked about enough which sucks for me since I suffer from it, so might as well make my own stuff.

But yeah I found it interesting since Shadow apparently smells like Lavender sooooo idk it could be possible. Also bc it's one of my fav flowers / colors. Also the color is also associated with epilepsy. Funny how life works

[anonymouslydisabled]

Having an episodic medical condition means having to write detailed documents for people on what they should do in the event of an episode, walking them through every scenario, having to explain your episodes to everyone whose going to be a recurring figure in your life, wear extremely obvious medical I.D., and constantly try to raise awareness about your condition because ignorance kills.

And that's all just in HOPES that people will use basic common sense. And still your episodes are still handled incorrectly on a regular basis.

[haikyuupaladin]

Under The Lights, the short film by Miles Levin about a boy with epilepsy and his experience at prom is going to get a feature length film version if they can hit their crowdfunding goal!

This is one of the biggest attempts at an epilepsy awareness campaign in a while. And the short film was brilliant. They managed to convey the idea of the photosensitive trigger visually in the film without ever actually risking triggering photosensitivity.

If you want to support it, you can do so at the link below:

Link

[xemnote]

I re-watched Squid Game season 1 and then watched season 2!

Here are timestamps with no spoilers for anyone with photosensitivity because oh god season 2 can be brutal. The highlighted parts are the ones that are strobes and the rest are smaller things I felt needed mentioning 💜

This next image has more detail on the strobe parts so you know when exactly to look away or pause without having to look at the time stamps but it will have spoilers!

SPOILER WARNING BELOW

[valhallaas]

Did you know November is Epilepsy Awareness Month? 💜

It’s funny to think about because in November of 2017 I had my very first seizure. I thought I was doing well. All the tests were coming out fine even without medication. But, in May of this year I had my first seizure in over 6 years.

It’s a terrifying feeling, and I’m sure it’s scary to witness. It’s terrifying to think that I still don’t know (well, I have an idea) of why I have these seizures. Epilepsy is a life threatening disability. Even if it is a silent one.

SUDEP—sudden and unexpected death of an epileptic person—is the leading cause of death in epilepsy. It occurs in about 1 in 1,000 cases of epilepsy and this number increases to 1 in 150 in individuals with poor seizure control.

Epilepsy is under-researched, underfunded and very misunderstood. Show your purple power to support those fighting this monster and to honor those taken too soon.

To learn more, visit www.epilepsy.com

[brain-buddies]

[glitchdollmemoria]

do people who disregard photosensitivity realize that seizures can fucking kill or do they just not care. do people not realize that their "aesthetic" "cool" flashing lights that happen without SUFFICIENT warning... are fucking capable of killing people. i dont even care if i sound pissy right now because i am pissy, im sick of feeling like myself and others with epilepsy arent even afforded the right to be an afterthought to most people. im not even photosensitive but ffs this shit makes me so angry.

seizures themselves can be deadly if they go on too long, theyre essentially electrical overloads in the brain, you know, that organ that controls the entire rest of the body? and seizures can result in injuries or death from falls. from choking on our own vomit. from drowning in our own bathtubs, if we think we might be safe to bathe and then get proven wrong. maybe someone just wanted to watch a video or movie while they took a spa day.

did you know that epileptics are more likely to die younger than those without epilepsy, with all those risks and more? and have you heard of SUDEP? sudden unexpected death in epilepsy, death without a known cause, a rare but very real possibility for us. it kills approximately 1 in 1000 epileptics a year, if not more since it may not be accurately tracked. thats thousands of us dead a year. we do not need you to add to our death rates.

"all these things are known risks, epileptics just have to be more careful-" epileptic people should not have to be on constant fucking high alert. how about instead, people just learn to give a shit about life threatening disabilities? it takes so little effort to just offer a CLEAR and VERY OBVIOUS warning AHEAD OF TIME, for a SIGNIFICANT AMOUNT OF TIME, before your stupid flashing lights. or just dont add them at all. are they necessary? are they really necessary? would you really fucking rather photosensitive epileptics have to be constantly on guard, IMPOSSIBLY on guard, rather than you just considering their safety? nobody can anticipate every instance of unexpected flashing lights they might come across. but you, creators, are able to provide warnings, and if for any reason you arent, then hire someone else to edit the warnings in or just get rid of the fucking lights altogether.

again, my epilepsy is not photosensitive, but i will never stop being protective of my photosensitive siblings. my own life is scary enough with the form of epilepsy i have, i cannot imagine how terrifying it must be to have to maneuver through the world with photosensitivity, and i dont want careless assholes to go killing my fucking community because you dont give enough of a shit to worry epileptic people. i am pissed off and emotionally exhausted and the shit with elon musk having a flashing gif on his twitter account was the straw that broke my back today so youre getting a pissed off PSA. everyone better start doing a whole damn lot better.

link to the CDC page about SUDEP

link to the epilepsy foundation site page about seizure risks

people without epilepsy are encouraged to reblog but know that i am already angry and will not tolerate bullshit on this post. give a fuck about other peoples lives and safety or im blocking you.

[seizehopesworld]

Stay alive, even if your disability takes you down. Keep climbing that mountain, even if the chill burns your fingers and your feet grow tired.

Stay alive, even if it’s hard, even if your brain constantly tells you aren’t good enough or you’re better off dead.

Honestly, just stay alive because we need you. The world needs your special strength of mind and love. What if your heart touches someone else’s and that wouldn’t have happened if you weren’t here? We need you here.

Stay alive. We need you here. Fight back any thought that says otherwise.

[estellan0vella]

Fraying Ties Older Brother Sukuna AU HFBU

The buzz of the tattoo parlour hums in the background as you sketch the final touches on a client's custom design. It's a calming routine that helps you focus, a necessary reprieve from the unpredictable nature of your epilepsy.

As you admire the intricate patterns forming on the paper, the door chime jingles. You look up, expecting a potential client or one of the regulars. Instead, your heart sinks as you see your parents storming in.

Their faces twist in disgust as they take in the sight of the parlour. The scorn in their eyes immediately focuses on you, and you brace yourself for the onslaught.

"Well, look who it is," your mother sneers, her voice dripping with condescension. "Still wasting your life away in this dump?"

You open your mouth to respond, but your father cuts you off with a derisive laugh. "And look at that," he points to the large tattoo on your arm. "Making yourself even more of a freak than you already are."

Heat flushes your cheeks, anger bubbling up inside you. But before you can retort, Gojo saunters over from his piercing station, his casual demeanour a stark contrast to the rising tension. "Hey there, Mr. and Mrs. Y/L/N," he says with a smile that doesn't reach his eyes. "Can I help you with something?"

"Stay out of this, Gojo," your father snaps. "We're here to talk some sense into our daughter."

"Yeah, I don't think that's gonna happen," Gojo replies, his tone light but his eyes hardening. "Maybe you should leave before things get out of hand."

"Out of hand?" Your mother scoffs. "The only thing out of hand is our daughter throwing her life away and associating with people like you."

"People like me?" Gojo's eyebrows shoot up, amusement flickering across his face. "You mean successful, independent, and happy? Yeah, terrible influences."

Your parents' faces darken, but before they can retort, Toji and Geto join the fray. Toji crosses his arms, a menacing glint in his eyes, while Geto stands tall and imposing beside him.

"Is there a problem here?" Toji asks, his voice low and dangerous.

"Yes," your father barks. "Our daughter is the problem. She needs to come home and stop this nonsense."

"Nonsense?" Geto echoes, a smirk playing on his lips. "You mean her job that she's amazing at? The career she's passionate about?"

Your mother's eyes narrow, her gaze flicking to your tattoo again. "And look at her, covered in those hideous tattoos. It's disgraceful."

"Disgraceful?" you finally find your voice, your hands trembling with rage. "The only disgrace here is how you treat me. You've never accepted me for who I am, and you never will."

"Watch your mouth, young lady," your father growls, stepping towards you menacingly.

"I'm done watching my mouth," you snap back. "You're a miserable old bastard, and you," you point at your mother, "are a condescending bitch."

The room goes silent for a moment, the weight of your words hanging in the air. Your father's face turns red with fury, and he raises his hand as if to strike you. But before he can make contact, Toji steps forward, grabbing his wrist in a vice-like grip.

"Touch her," Toji warns, his voice a deadly whisper, "and you'll regret it."

Yuji and Megumi, who had been quietly observing the chaos, rush to your side. Yuji clings to your leg, his eyes blazing with defiance. "I'll kick you again!" he shouts at your father, his small frame trembling with anger.

Megumi nods, his own expression fierce. "Yeah, and I'll help!"

You smile down at them, your heart swelling with gratitude and love. "It's okay, boys," you say softly. "I've got this."

But your father isn't done. "This is exactly why you need to come home," he snarls. "Look at what kind of people you're surrounding yourself with."

You laugh, a bitter sound that echoes in the tense room. "These people," you say, gesturing to Gojo, Toji, Geto, and the kids, "are more family to me than you ever were. So why don't you just fuck off?"

"Fuck off!" Yuji and Megumi echo in unison, their voices filled with innocent ferocity.

Gojo bursts into laughter, clapping a hand on your shoulder. "You heard the lady. Time for you to leave."

Your parents stand there, stunned and humiliated. Finally, with one last glare, they turn and storm out of the parlour, slamming the door behind them.

The tension in the room dissipates, replaced by a collective sigh of relief. You sink into a chair, your hands still shaking, but a weight lifted from your shoulders.

"Those are the only people you can tell to fuck off," Toji says, ruffling Yuji's hair affectionately.

"Yeah," Geto adds, crouching down to Megumi's level. "But you did good, sticking up for Y/N."

Yuji grins up at you. "Did we do good, Y/N/N?"

"So good," You say. 

As you pull Yuji and Megumi into a hug, the door chime jingles again. This time, it's Sukuna, back from his errands. He steps inside, immediately sensing the residual tension in the air. His sharp eyes scan the room, taking in your pale face and the relieved expressions of your friends.

Before he can ask what happened, Yuji rushes over to him, eyes wide with excitement. "Suku! Me and Megumi told Y/N/N's parents to fuck off! And I threatened to kick her dad again!"

Sukuna's eyebrows shoot up in surprise, and then a slow, dangerous smile spreads across his face. "Did you now?" he says, his voice low and amused. He ruffles Yuji's hair, pride glinting in his eyes.

Toji steps forward, crossing his arms over his chest. "Yeah, her parents showed up, causing trouble. We had to step in. Y/N handled it like a champ, though."

Gojo appears beside you, pressing a sugary soda into your hand. "Here, drink this," he says softly as he guides you to a chair. "You need to get your blood sugar up."

You take the soda gratefully, sipping it slowly as the room starts to feel more grounded. Sukuna walks over, his eyes softening as they meet yours. He crouches down beside your chair, one hand gently cupping your face. "You okay, baby?"

You nod, feeling the weight of his concern. "Yeah, I'm okay. Just...a lot to deal with."

Sukuna's thumb strokes your cheekbone as you sip on the drink. "Did they touch you?"

"No," Toji interjects. "But her dad was about to. I made sure he didn't."

Sukuna's jaw clenches, his anger barely contained. "They're lucky they didn't." He looks back at you, his expression softening again. "I'm proud of you. You stood up to them."

You manage a small smile, the support from everyone around you filling you with a sense of belonging. "Thanks. It was time."

Megumi tugs at Sukuna's sleeve, his serious little face looking up at him. "We helped too, Suku. We protected Y/N/N."

Sukuna's expression softens even further as he looks down at Megumi. "You both did great," he says, ruffling the boy's hair. "I'm proud of you, too."

Gojo chuckles, the tension fully melting away now. "Well, looks like we've got the best team here. No one messes with our family."

Your heart swells at his words. Family. That's what this was. Not the toxic relationship with your parents, but this—a group of people who truly cared for you.

You take another sip of the soda, feeling the lightheadedness start to fade. "Thank you, all of you. I don't know what I'd do without you."

Sukuna stands up, pulling you to your feet and wrapping an arm around your waist. "You'll never have to find out," he promises, his voice a low growl. "We're here for you, always."

Yuji and Megumi cheer, their youthful exuberance a balm to your weary soul. You laugh, the sound light and genuine. Surrounded by your chosen family, you know that no matter what comes your way, you'll be able to face it together.

taglist - @sad-darksoul @thejujvtsupost @kyo-kyo1 @kalulakunundrum @ryomku

[andr3yvishn3vsky]

Non-epileptic seizure doesn't mean that the seizure is due to FND or PNES! There are much more conditions than epilepsy and PNES. Stop seeing only white and black, when there exists a gray side.

[magentasky234]

Heads up photosensitive epileptics and people who get migraines: This "Mis-Sold PCP Claim Check" video has rapid flashing lights on YouTube. Please report it if you don't get those issues from flashing lights.

[e-v-i-lb-o-y-s]

So much love at the third annual Cam for a Cause Gala 💜

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