#just love me/cfs...
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theghoulofme · 1 year ago
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currently banning myself from listening to music cause i can feel it becoming too much and i have a concert to go to in a week
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sanjarka · 1 month ago
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feeling like sharing an unpopular opinion (at least i feel like it is)... i don't think people knew about peeta's pre games crush on katniss. like their classmates or his brothers etc. really don't feel that was the situation at all. peeta wears his heart on his sleeve in the games as a weapon, not as part of genuine, unavoidable and uncontrollable vulnerability.
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astriiformes · 3 months ago
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Having a loved one with a poorly-understood chronic illness is hard and scary at the best of times, but right now with the federal government absolutely gutting funding for healthcare research, I am so seethingly angry that I might just starting biting people.
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deplcythebattery · 4 months ago
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everyone: oh you're so lucky you get to stay home all the time!
me, chronically ill: ah. yeah. haha. lucky. i get to stay home. i don't get the fun parts of that though! i can't partake in my hobbies for more than an hour every two to three days :) i do get to watch a lot of tv though! oh you think that gets boring after a few hours? haha. yeah it fucking does. imagine that being the only thing you can do and then tell me how lucky i am
#cfs/me#fibromyalgia#chronic illness#functional neurological disorder#chronic pain#wrote 1k words in two sessions (15 min each) and then dared to take a full hour to start painting the back patch of my battle vest yterday#body didn't like that! it's also raining today so not only is the arm i painted with excruciatingly painful but so is the rest of my body!#staying home is so so so so so so fun haha isn't it when you literally can't do anything to alleviate the boredom!#i can't do shit i love all day every day. stay home for a week doing nothing and then tell me how lucky i am.#having a really rough day. yesterday was good so apparently i can't have more than one good day a week.#i also have to keep taking language classes if my residency gets sorted to receive aid even though we're moving#so what little i have to put towards things i enjoy i now have to divide towards class work too.#i've cried three times today i'm just so fucking tired and sad and it's so unfair i can't even do the stuff that brings me joy#brain so fried today i couldn't listen to music with my new headphones i've lived in for almost week. i'm that fucking spent today.#isn't that fun isn't it so fun to deal with this rather than going to work#god#i'd give fucking anything to not be like this i just want to not have to figure out what to spend my energy on#and i don't want to have to sacrifice the time i could put towards things that bring me joy#this is not living. for three years it's been oh i can do this when i get better or i could do that when i get better#doesn't seem like i'm getting better any time soon and in the meantime i can't even do things that make me happy.
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siriuslylantsov · 2 months ago
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ohhh yes i love it when people make me feel bad and embarrassed about being excited about something
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torchickentacos · 17 days ago
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me after my mom called and said 'hey I found this old canon eos 400D with a bunch of lenses if you're interested'
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#why yes. I am. a bunch of lenses you say?#an actual legitimate camera?#it's probably older than a solid chunk of my followers on here but like hi yes I am listening actually.#she says it had a battery issue and it was too complicated for her to figure out#but I would loooove to at least see it and troubleshoot.#I love my new camera but it's not a 'real' camera because that's just not an affordable thing for me.#it's a very fun digital/instant hybrid that's GREAT for little trips and printing 'polaroids' [instax film] with friends and stuff#but I've really been struggling with the automatic controls. it does not have good... dynamic range I think it's called?#its lighting autofocus is bad and it's going to be the death of me#but if I can get this old camera mom found working then I might be able to get some cool stuff done with it that this one can't do.#it's out of date and I'd need to buy a CF card/cf reader (usb probably and not just an sd adapter)#but all things considered that's probably less than $40 for a few hundred dollars worth of equipment counting the lenses.#and filters! it has a polarizing filter that I am very excited about. even my current one could use it.#it 'sees through' polarized/reflected light. it's how people take pictures through windows or water or minimizing leaf shine etc.#and like. 'real' camera equipment is like >1k these days for the camera alone. it's not an easy hobby to get into#so it's really a 'take what you can get' kind of thing for me.#if I can get this to work then I'll have a great vacation/road trip/hangout instant-printing camera AND an Actual Camera™#even if the actual camera is a legal adult.#it would still get me laughed off of the photography reddit lmao but I'm suuuuper excited to mess with it soon.#loving the instax mini evo but it is much better suited to 'easy' shots and not actual focus/lighting/etc.#great camera! I will still use it for years but I am learning what it's suited for and what it isn't.#and hopefully what it isn't suited for will be something this new (well. old) one *is*#no live view which is... pretty fucking annoying but I am still excited
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frankenyume · 3 months ago
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Hello self ship nation... Oh to sleep next to my fictional bf...
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notruevampire · 8 months ago
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I dunno if I'll ever get over not getting to see Starset back when I loved every single song they had put out or even when they finally put out an album with a single song I hated.
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The posing and Aurel laughing at him🤣
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madou-dilou · 1 year ago
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"Gods -Sarai, get up. Just -what am I going to tell them ?"
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honey-skulls · 3 months ago
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The fact that pots and cfs/me is incurable (I'm convinced that that's a lie, just like with "incurable" stuff like cancers, there is possible treatments, but doctors couldn't give less of a fuck about us and thus aren't doing research on what could help us) and this constant song and dance of fighting with parents and doctors to get help or even believed at all and going nowhere. And most importantly, that this is my new forever, and I'll NEVER be able to go back to what i could do only 2 years ago, is finally sinking in
And I'm only fucking 21, 20 when it started
I'm seeing people lamenting about not being able to do what they did in their 20s now, but i haven't even got to try adulthood at all before it got ripped away from me forever
How the fuck am i supposed to keep going knowing that no one will ever understand or give me help, i will constantly get not believed and pushed into crashes by doing the bare minimum, and everything i was planning and excited about doing because of the freedom of adulthood, be it learning new hobbies, travelling somewhere, or just where and how I'd like to move in and live in the future, has to be dumped in the trash
But yeah it's all anxiety in my head. Go take walks, loose weight, drink water, play less video games (i play around 6 hours a week) and go play board games at the public library, they say
Great
This is my new "life"
#usually those kind of vents never leave my drafts#but i'm so fucking done#if i keep getting pushed while refusing to give me the help i need#I'm gonna get stuck in a wheelchair at best. or genuinely bed bound at worst#i know it. i SAW it in cfs and pots spaces while looking for advice and help#it keeps happening. and i can see how the same thing that made them end up like that is happening to me#having to live in and fight this body is already bad enough#why do i have to keep fighting *everyone* around me on top#the more I'm forced to have to interact with government official healthcare like assurance maladie centers or the mdph (disability house)#the worst i get treated#so far. what I've seen is that the best way for me to get help is going to highly specific. rare. and scattered around the country. private#and expensive specialists#it's how i got my autism diagnosis after 15 years of running around therapist to therapist#it's how i (half) got my pots diagnosis after almost 10 years of being told I'm “just fat and don't do sports” (a lie on both front btw)#if i want anything. i need to avoid official infrastructures. save up money. and drive for hours. and hope that i win the coinflip of them#knowing what they're talking about#thought getting a diagnosis still hasn't gotten me any help. but at least i can fill up the official disability paper and wait for an answe#though I'm sure I'll have to fight with them too#cfs/me#pots syndrome#PROBABLY CAN'T DRIVE TOO BECAUSE OF MY DISABILITIES. SO STUCK RELYING ON PUBLIC TRANSPORT. OR OTHER PEOPLE TO DRIVE ME TO THOSE PRIVATE#SPECIALISTS. WHILE I HAD TO DROP OUT OF SCHOOL AND GENUINELY DON'T KNOW HOW I'LL POSSIBLY GET A JOB LATER. SO CAN'T MAKE MONEY#IT'S FUCKING GREAT. I LOVE IT HERE /S#vent#rant
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pumpkinrootbeer · 1 year ago
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ogfoofodoxx thinking about how the most defining character trait of haymitch is how protective he is. not in the sense it's the most obvious, but how all of his actions are fueled by this desire to protect. how hard he works at keeping katniss alive in the first games, him fighting to keep them from augmenting katniss's body, him yelling at plutarch to keep finnick from having to share his trauma, him being so involved in peeta's recovery and being the one to bring katniss home. him holding mayslee's hand as she died, fighting for plutarch to stay and rescue peeta, being the one to find katniss and finnick when johanna had an episode, begging coin to believe peeta's warning. it being heavily implied or either outright stated that he was one of the people who fought to protect effie.
makes me physically ill because no one does that for him. everyone who would of, died.
#DIES EXPLODES COMBUSTS#thg#haymitch abernathy#:v#haymitch acting like he doesn't care about anyone when he actually cares about everyone#he's acting like he's winning the idgaf war but love has disarmed him completely.#Tbc katniss and peeta would but they are literally incapable of being that for him. bc they are infant#also thinking about how we get this sense that while he has some modicum of power with the revolution his sway only goes so far#which is to say not far at all#the times we actually see what the negotiating process is like for him he has to beg coin to listen to him#and he says Plutarch didn't listen to him between cf and mockingjay when he tried to get them to stay for peeta#I just get this sense that most of the time he's in the room but isn't really allowed to make decisions#and constantly has to fight to be heard#I mean again I will always circle back to this they literally locked him in a room to detox#and the descriptions we get in cf is his withdrawal symptoms are incredibly severe#so clearly they weren't dependent on his imput#idk idk I just get this sense they valued his input up until the point he reminded them all he still views people as people.#him coaching katniss was to say in mockingjay during her speech in two also makes me chew drywall#how much of that is what he thought she needed to say to stay alive and how much is what he had always wanted to say#also thinking about how he wasn't lying when he told Plutarch he couldn't go back to twelve sober.#bc he gets katniss home and then immediately gets blackout drunk#I am of the opinion that he genuinely can't get sober while living in 12#I like to think he lets himself leave eventually never to the capitol of course but in my hc he goes to 11#just bc of his fondness for chaff and seeder but that's just a self indulgent headcanon#ALSO ALSO.#thinking about how he's fighting a revolution that he doesn't even believe will bring chance#well. he thinks it'll change things but that change will be temporary and fighting will break out again#my perfect pessimist idiot. in my heart of hearts he gets a therapist moves and actually recovers
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pangyham · 1 year ago
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GAH LONG POST..
xingqiu and chongyun have insanely good potential for angst my god. xingqiu in particular is so fun to think about in the context of chongyun. what do YOU know about chivalry boy
thinking about how he and hu tao kinda operate on similar notions of justice and all that shmick except hu tao is more strictly averse to disrupting the Natural Order (incredibly vague and generalized concept rn sorry) whilst xingqiu sets his principles more arbitrarily. chongyun's presence somehow foils a lot of his notable character traits. gestures hands vaguely in the air but sth sth hu tao would not approve of xq's moral infractions
perhaps im just reading too deep into this but shrugs ill admit something's changed in Me the last 2 years and coming back to xq and cy has me like. scratches head now hold on im not entirely sure if i even like the way xq treats cy. its kinda one of the main points of their dynamic- the whole.. pranking this oblivious guy who i really adore etc. but its deeper implications leave me a little unsatisfied and a little troubled (?).. in the long run i personally dont really see anything substantially appealing about their (leaning towards romantic in this context) relationship other than like ?? the tropes that mhy imposed upon them. they were created as a compatible Duo ykwim. they reference each other a lot in their lore and even in-game but.. idk maybe i just view them separately instead of a joint unit that anaylzing them individually revealed a lot of crevices and cracks in their ship that's built upon their mainstream appeal
but anyway i've thought a lot about them as a duo and is it nuts to say i like them as a romantic ship but if they were unrequited. i can see them working out but it necessitates a complete subversion and reconstruction of xingqiu (chara development basically LOL) on my part that i would totally invest myself in but im not entirely sure how to execute it
i like xingqiu a LOT as a flawed character. i wouldnt go as far as to say hes toxic, just very conflicted and insecure. hes a fun character to think about. re: the hu tao bit i mentioned above, i think they would have a really fun, witty, and transformative friendship
but anyway. yes i like xq and i still like xy. theyre just a bit more complicated now aha. im still capable of enjoying fluffy ship dynamics but lately ive been in a Character Study Mood ... mmm.. ive yet to organize my chongming thoughts
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yaoi-hate-machine · 12 days ago
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waow i just walked over to an empty field and jumped and danced around to crazy music for 10 min bc i was feeling insane after watching live videos of one of my favorite vocalists. and now i am exhausted and sweaty as hell
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databent · 4 months ago
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i really really gotta learn to get better at listening to my body and staying within my limits. i think i did wayy too much today i can already feel my chest aching worse than it has been for the past few days. told myself i was gonna take it easy but then wildly underestimated the time and energy cooking was gonna take me, and also pushed myself way too hard to get some aquarium cleaning done because ive been extra focused on that lately and thought i could handle it (the getting sweaty and shaky and physically exhausted afterwards says otherwise however). sigh
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leatherbookmark · 3 months ago
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reading the notes of that one post that reposts a tweet about books using modern online slang and being painful to read and while some people sound like they genuinely don't like it, some sound like they're just repeating what they heard others say. and some act like having a character say "cool" would give them an aneurysm, which makes me wonder about their age
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