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also you have to change them more during different parts of the year! where i’m at we get lots of snow and ice which means rock salt, which absolutely destroys your tips. i had to change mine after a month during the snowiest part of the winter

heyyyyy reminder for other cane users.

don't forget that cane tips need to be replaced.

i've been using my cane for almost two years on a near daily basis and i JUST switched out the tip and

[image IDs in alt text]

the new tip versus the old tip. i'm not sure how clear it is but, YEAH, there's like. half a millimeter of tread left on the old tip, if that

the replacement was LITERALLY 2 dollars. i bought two to justify the four dollar shipping but. TWO BUCKS.

i had noticed that i was having slipping issues on linoleum recently, but i did not realize how bad the issue had gotten until the new tips came so. PLEASE check your cane treads and if they're notably worn out PLEASE get yourself a new tip they're SO cheap and the grip i get on the new one is INSANE

please don't forget to replace your cane tips!

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I wish more abled&healthy people would understand that my mandatory rest time is not the same as free time

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other disabled people, what do you do for an afterschool job? not having one isn’t rly an option for me at the moment because my family and fiancé can’t afford to support me and i need something that won’t be too physically demanding. but most jobs that are compatible with a college student schedule are not compatible with my physical limitations. i worked retail full time for three years and know i can’t do that anymore, so what even is there? idk what to even look for

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Aaron Wheelz

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lil irl pic for the feed ☀️

today was the first 60+ degree day in new york and i’m loving it. i’m super temperature sensitive so this is in the sweet spot for me. if it’s too hot i’m prone to fainting and other heat related symptoms, and if it’s too cold my pain levels skyrocket. but these early spring days? perfect.

i was able to go out into the woods for a bit and it felt great. before my disability got this bad i was an avid hiker and i spent as much time outside as i could, so it’s my goal to get back to that.

anyways, general life update i guess? i’m learning to cope with my recent fibromyalgia diagnosis. i guess it feels good to have answers, even if that answer was basically “well, guess you’re just gonna be in pain forever.” i’ve been making an effort to do light exercises and i’ve made a lot of dietary changes to help with my symptoms but it hasn’t helped me yet. i’m hoping to get the funds to start PT and i’m also supposed to be seeing an orthopedic doc about what might be a deformity in my knees causing them to hyperextend. so. i’ve got a general idea of what i’m gonna do, i guess. in the meantime though, i’m gonna keep “gardening” to manage the bulk of my symptoms, lol. 🍃🍃

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another protest, another sign

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‘Free Luigi’ billboard has gone up in lower Manhattan the evening before his next court appearance.

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Why is it?? That I can go through the whole day feeling fine and dandy but the second I lay down for bed impending doom settles on me?

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Reblog if you understand that disability is not a monolith and two people with the same disability do not have identical experiences ✨

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come on americans, help a girl out

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If you're a disabled young person, you've most likely been hit with the "pfft you think you're in pain now? Just wait til you're my age" bullshit from older people at least once. Everyone talks about how invalidating it is

But I haven't seen anybody mention how it's terrifying, too. Yes, I know health deteriorates with age. I know that old age is a disability unto itself. I know that the healthiest person alive will start getting aches and pains past the age of 40 and may even need mobility aids

I know all this stuff. And it always makes me think "yeah, if I can't walk without joint pain even while using mobility aids AT AGE 21, how painful will life be for me at the age where it gets painful for everyone?"

And it's hard not to feel like I'm doomed, y'know? Where most people get a period of health that they wish they appreciated more when they start to lose it, my starting point was a body that doesn't work properly and it's only gonna get worse from there. It's worse every fucking year.

TLDR stop telling disabled young people that their pain will only get worse to the point of being unimaginable as they age, WE FUCKING KNOW

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i got a diagnosis today.

fibromyalgia with hypermobility (but not enough to be considered EDS) and a possible deformity in my knees that they think is causing an abnormal gait and the dislocations. chronic fatigue was also mentioned but i’ll be having a sleep study to see if it could be an issue with that first. i’ve been referred to physical therapy, aquatic therapy, and an orthopedic doctor as well.

i should be happy to have a diagnosis but in reality i’m just tired. i’ve seen the stigma about fibromyalgia not being a “real illness” and i’ve also seen first hand how much it can affect someone. i’m not sure if i’ll be able to afford all of the PT they want me to do and i’m worried i still won’t be taken seriously.

i guess i’m just going to have to take some time to reflect on it. i’m thankful to finally have some answers but i have a lot of questions now too.

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there’s definitely things that i just straight up cannot do but there’s so many things that i shouldn’t do if i want any chance of functioning for a week

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I want to kill [remembers suicide jokes are bad for my mental health] Elon Musk

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vent post:

i’m not really doing so hot lately. my pain has gotten pretty bad over the past few weeks and i’ve been extremely fatigued just trying to keep up with my (somewhat light) class load. i’ve got $20 left in my bank account and couldn’t pay my phone bill today and my financial state is causing a lot of other issues.

i still can’t find a fucking job and i feel like a burden on my fiancé and my parents. i don’t know how i’m going to pay my bills or my tuition or my meds. i don’t want to ask for help because i was able to financially take care of myself for years before i became too disabled for my old job. i’ve applied to so many new ones and only got one interview and they fucking ghosted me after i accidentally let it slip that i’m disabled. idk where to look next and i’m starting to give up

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physically disabled people should be allowed to do activities that might cause a flare up or illness without other people acting like the time they need to recover is no longer owed to them.