cfs-culture-is

[cfs-culture-is]

chronic fatigue PLUS iron deficiency anemia culture is always feeling terrible and like you could collapse any second from existing like ??? what kida sick JOKE is this /lh

cfs culture!!

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cfs culture is bringing your meds and a toothbrush whenever you visit a friend, just in case that you need to sleep over

cfs culture!!

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cfs culture is wanting to go everywhere in pjs but APPERENTLY its not okay to do that >:{

cfc culture!!

[cfs-culture-is]

cfs culture is intentionally going to the doctors looking like shit so maybe they’ll realize something is actually wrong

cfs culture!

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cfs culture is doctors recommending exercise to you even though it's proven to make cfs worse >:(

cfs culture😔🤝

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CFS culture is clean bedding

cfs culture!

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CFS culture is cuddly toys

cfs culture :DD

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CFS culture is pyjamas

cfs culture <3

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CFS culture is wanting to scream at people who say they get tired too

cfs culture!!

[cfs-culture-is]

Asks and submissions are on people!! Have fun

[cfs-culture-is]

cfs cane user culture is putting the stupidest stickers on it

[cfs-culture-is]

chronic illness culture is remembering you have it and being annoyed when you do

[cfs-culture-is]

I'm seeing people use the term "chronic fatigue" incorrectly all of a sudden lately. Granted, I've only seen it on Twitter, but I still want to talk about it here. If you're using the term improperly, I'd like it if you'd stop and inform yourself on the subject.

Chronic fatigue is not just being very tired, in case you're not aware. It disables you and comes with cognitive dysfunction (persistent state of confusion, inability to focus, inability to process new information or articulate your thoughts, poor memory, and more).

Chronic fatigue especially ISN'T being tired due to punctual external reasons that'd tire any person without a preexisting condition and it DOESN'T go away with proper rest. Proper rest simply avoids worsening it, and even that can fail, seeing as obtaining proper rest when you have chronic fatigue ranges from very difficult to Not Happening.

Not everyone's chronic fatigue is equally disabling, some people can lead a "normal" life at a great cost (and risk of permanently making it worse) while others are bedridden, but it's not a tiredness caused by a factor that if you remove it, will fix it, unless of course you find effective MEDICAL TREATMENT that makes it go away AS LONG AS YOU KEEP TO YOUR MEDICAL TREATMENT, or get a specific SURGERY in case yours comes from tethered (spinal) cord and/or CCI. This surgery consists on fusing some of the vertebrae of your neck permanently, by the way.

Some conditions that cause chronic fatigue; your brain being deprived of enough oxygenated blood (orthostatic intolerance, anemia, hypotension), your immune system attacking your own body (autoimmunity), metabolic issues on a CELLULAR level (ME/CFS), gastrointestinal issues, chronic pain, and a long, long etcetera. Mine comes from a combination of a genetic mutation that makes ALL my organs function poorly, orthostatic intolerance and autoimmunity.

It's a disabling condition nearly impossible to combat and even more impossible to push through. I've been trying to treat mine for 3 years, researching and trying new things non-stop for 3 years, and I'm still housebound and unable to work.

Please, I beg you, don't trivialize the term "chronic fatigue". The medical establishment and society at large already don't take it seriously, believe it can be cured by positive thinking/CBT or exercise, or believe it's a myth to justify laziness.

Please, don't turn "chronic fatigue" into the next "gaslighting" or "emotional labor". The harm that'd cause to the disabled/chronically ill community would be unmeassurable. We deal with enough disbelief and lack of care as is.

[cfs-culture-is]

with great pain comes the great inability to form a coherent sentence

[ID: a 4-page comic in illuminated manuscript style of a person standing outside. /1: They look to the distance and say: "What is that dolorous cloud: that dreadful fright I see now on the dark horizon?" /2: They turn, upset, and say: "Alas! It is the brain fog approaching!" A purple cloud enters the panel. /3: They hold up their hands against the approaching cloud, saying: "A curse upon that fog that steals my eloquence. I...hate...it" /4: The cloud surrounds them and they say: "cloud"..."bad" /ID]

[cfs-culture-is]

cfs culture is your body not cooperating with you at the most important times 💔

[cfs-culture-is]

cfs culture is starting to get that dizzy feeling and going "ah shit here we go again"

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Introduction!!

Hey there! Welcome to cfs-culture-is, or, Chronic Fatigue Syndrome culture is

Decided to join in with the other culture is blogs so here!

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About me:

My name is Jonathan, i use jey/he

mlm and nonbinary

autism, tics, adhd

hispanic, christian

minor!!

I enjoy ranting about stupid stuff and music

my canes name is Oliver 💪

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About the blog:

This blog is exclusively for people with cfs or chronic illness

It is a safe space for lgbt, poc, all religions and illnesses

flag in pfp created by @themogaidragon

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What is cfs?

(sources from google because im too lazy to type it out🥲)

"People with ME/CFS often describe this experience as a “crash,” “relapse,” or “collapse.” During PEM, any ME/CFS symptoms may get worse or first appear, including difficulty thinking, problems sleeping, sore throat, headaches, feeling dizzy, or severe tiredness."

"A disease characterized by profound fatigue, sleep abnormalities, pain, and other symptoms that are made worse by exertion."

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dni:

anti-lgbt, racist, abelist, fatphobic, fakeclaimers, maps, zoophiles

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Inspired by:

@chronicillnessmemes

@ace-culture-is

@aro-culture-is

@aego-culture-is

@agenderflux-culture-is

@ptsd-culture-is

@xenogender-culture-is

and much more😅