crippledcryptidd

[crippledcryptidd]

📢 Please Hear Our Cry – Support Queer Refugees in Gorom Africa South Sudan 🏳️‍🌈

We are queer refugees living in gorom refugee settlement camp. Every day we face unimaginable struggles — from hunger, stigma, and denial of healthcare to violence and rejection simply because of who we are.

This photo is just a glimpse into our reality. We didn’t choose this life of suffering — we were forced to flee our homes for safety, only to land in another place where our identities are still criminalized, ignored, and violated.

We urgently need your support and advocacy. Help us raise awareness, share our stories, and stand with us in solidarity. Your voice, your donation, and your compassion can make a difference.

We are still human. We are still here. We are still fighting for dignity and survival.

✊🏾🏳️‍⚧️🏳️‍🌈

[crippledcryptidd]

bebsi's fun and funky cripple bonanza (ask game)

merry cripmas everyone. here's a disability ask game made for physically disabled people. feel free to share it if you aren't physically disabled but I'd like to keep the answering exclusive to my fellow cripples. remember to send an ask if you want an ask etc. etc. let everyone talk.

How did you find cripplepunk? Do you like it? Would you leave a good Yelp review?

Is there some ableist interaction you're still bitter over?

What's your favourite and least favourite thing about cripplepunk?

We all know that cripplepunk is separate from both "cripple" and "punk" as individual concepts. But how do you relate to those two concepts?

Is there a disability aid you don't need (as in, you can survive without it) that you would like anyway? What is it?

Do you or did you know any other physically disabled people IRL? If yes how does it differ from people here online?

If you have any marginalized traits, what ones intersect most with your disability? If they all intersect too much you can just pick one.

Of course we are all such perfect cripples who do no wrong but, hypothetically, what trait or behaviour do you have that the ableds would hate and consider you a bad cripple for?

Tell us the symptom you have that is the most minor inconvenience symptom ever but god you hate it.

Do you have any physical disability icons?

How well do you react to pity? How does it rate amongst all the reactions people can have to your disability?

An abled is walking towards you. Do you: a) punch them. b) kick them. c) bite them?

Is there an aspect of disability or disability rights you don't find a lot of support or discussion on but you'd like to?

Which slogan is the best physical disability slogan? If they all suck come up with your own.

What's something people assume you just would get handed or have access to, but you don't?

Were you born physically disabled? Yes or no; describe your experience.

What's been the most surprisingly helpful little bit of advice you have been given or can give wrt physical disability?

What would cripple pride look like to you?

What community, if any, is the best at accommodating your disability?

Can you work a job? Ability aside, if you could pick your ideal job, what would it be?

Everything in the world is interconnected. What rights do you think go hand in hand with disability rights?

Are you familiar with crip theory?

What's your least favourite holiday as a physically disabled person?

Which is worse for your disability, the heat or the cold?

If you are multipy disabled, how do your other disabilities interact with your physical disabilities?

[crippledcryptidd]

Happy disability pride month!!

[crippledcryptidd]

I have central hypothyroidism and am starting thyroid hormone replacement

Endocrinology is being very helpful but i do have a couple questions that i might ask in a message

If not i will at my follow up appointment

I had an endocrinology appointment with a new doctor today and it went so well

He actually listened and is looking into whats happening

Right now he thinks it might be pituitary dysfunction and theres test ordered like nearly 20 labs have been ordered i have to get them a different day though since i have to fast and i ate before my appointment

[crippledcryptidd]

I turned 20 today 🎉🎉

ID one: a selfie of a pale person with brown hair wearing a spaghetti strap dress that is black and grey gingham as well as gothic makeup; long black eyeliner that comes in at the inner corner, filled in black eyebrows that comes down in the inner ends and the line connects with the inner corner eyeliner, dark red lipstick, and blush high up on her cheeks. End ID

ID two: a cake with pink icing covered in blue, white, light pink, and dark pink sprinkles sits on a grey table it has blue icing swirls on top and 2 candles one shaped like a 2 and the other shaped like a 0 both are lit. End ID

[crippledcryptidd]

I had an endocrinology appointment with a new doctor today and it went so well

He actually listened and is looking into whats happening

Right now he thinks it might be pituitary dysfunction and theres test ordered like nearly 20 labs have been ordered i have to get them a different day though since i have to fast and i ate before my appointment

[crippledcryptidd]

If there's anything I'd like people to take away from this Migraine Awareness Month its

that a migraine isnt a severe headache

It's a complex neurological disorder

Its a cascade of neurological activity in an over sensitised brain, the main symptom of which is usually a severe headache.

It is disabling, especially when it's chronic (15 days a month, at least 8 of those with migrainous symptoms, for over 3 months)

[crippledcryptidd]

believe it or not but people addicted to drugs are able to have stuff like chronic pain and they still deserve pain meds

some people here are not normal about ppl w substance abuse and u need to show solidarity with them or perish

[crippledcryptidd]

[crippledcryptidd]

For all of the northerners that stood up for Texas during our freeze and said, "Don't make fun of them, they've never dealt with this before. Their infrastructure isn't made for snow and freezing."

This one is for you.

Where I live 108°F with 80% humidity with no wind is normal.

Pacific North West is dealing historic best waves 35-40°C or 95-105°F.

First of all. Don't make fun of them for bitching about the heat. Just like Texas isn't built for a freeze and our pipes burst, Pacific North West isn't built for heat and a lot of their homes don't have AC.

If you live somewhere with a high humidity like 80+ HUMIDITY IS NOT YOUR FRIEND. The "humidity makes it feel cooler" is a lie once it gets beyond a point.

If you live somewhere with a lower humidity, misters are nice to cool off outside.

Once you get over 90°F (32°C) a fan will not help you. It's just pushing around hot air. (I mean if you can't afford a small AC unit because they're expensive as hell, by all means a fan is better than nothing).

If you have pets, those portable AC units aren't safe. If your pets destroy the outtake thing, it'll leak CO2. Window units are safer.

Window AC units will let mosquitoes or other small bugs in. Sucks, but that's life.

Now is not the time to me modest. If you have to cover for religious reasons, by all means. If you don't, I've seen people wear short shorts and a swim top. It's not trashy if it keeps you from getting heat stroke.

If you do have to cover up for religious reasons, look for elephant pants or something similar. They're made with a breathable material.

Shade is better than no shade, but that shit it just diet sun after some point. Don't think shade will save you from heat stroke.

I know the "drink your water" is a fun meme now, but if you're sweating excessively you need electrolytes. Drink Gatorade, Powerade, or Pedialite PLEASE. I don't care if you're fucking sitting in one spot all day. That shit WILL save you from heat stroke.

Most importantly. RESEARCH THE DIFFERENCE BETWEEN HEAT STROKE AND HEAT EXHAUSTION PLEASE!

If you're diabetic and can't drink Gatorade, mix water, fruit juice, and either lite salt or pink salt

If you can afford it, cover windows with thick curtains to insulate the house

If you have tile floors, lay on them with skin to tile contact. If you don't, laying your head on cool counters works too.

If the temperature where you're at is hotter than your body temperature, don't wear heat wicking clothing. Moisture wicking is safe though.

Check your medication labels. Many make you more susceptible to sun and heat

-Room temperature water will get into your body faster. This is something I learned doing marching band in high summer in Georgia, and it saved all of our asses. Sip it, don't gulp it, especially if you're getting into the red; same goes for whatever fluid you're drinking. And just in general drink during the day.

-If you are moving from an air conditioned space to an un-air conditioned space, if at all possible try to make the shift gradual. When my dad and I were working outside and in un-ac houses a few years ago, he'd turn the air down to low in the truck about ten-fifteen minutes before we got where we were going. This way your body doesn't go from low low temps to high temps. S'bad for you.

-If you can, keep your lights off during the day. Light bulbs may not generate a lot of heat, but the difference is noticeable when it gets hot enough. I literally only turn my bedroom light on in the evening when it gets too dark.

Don't be afraid to just like... pour water on yourself if you need to. The evaporation will cool you off.

Put your hand to the cement for 15 seconds. If you can't handle the heat, it'll burn your dog's paws. Don't let them walk on it.

Dogs with flat faces are more prone to heat stroke. Don't leave them out unsupervised.

Frozen fruit is delicious in water.

Wet/Cold hat/handkerchief on your head/neck will help you stay cool.

Pickle juice is great for electrolytes! You can even make pickle juice Popsicles!

Heat exhaustion is more, "drink water and get you cooled off." Heat stroke is more "Oh my god call 911."

Image Description provided by @loveize

[Image description: an infographic showing the difference between heat exhaustion and heat stroke. The graphic is labeled "Heat Dangers: First Warning." Signs of heat exhaustion: faint or dizzy, excessive sweating, cool, pale, clammy skin, rapid, weak pulse, muscle cramps. If you think you or someone else may be experiencing heat exhaustion, get to a cool, air-conditioned place, drink water if conscious, and take a cool shower or use cold compress. Signs of heat stroke: throbbing headache, no sweating, red, hot, dry skin, rapid, strong pulse, may lose consciousness. If you think you or someone else may be experiencing heat stroke, call 911. End description]

Be safe.

-fae

[crippledcryptidd]

if you don't do anything else today,

Please have a moment of silence for the people who were killed instead of freed when news of emancipation finally reached the furthest corners of the american south.

have another moment for the ledgers, catalogs, and records that were burned and the homes that were destroyed to hide the presence of very much alive and still enslaved people on dozens of plantations and homesteads across the south for decades after emancipation.

and have a third moment for those who were hunted and killed while fleeing the south to find safety across the border, overseas, in the north and to the west.

black people. light a candle, write a note to those who have passed telling them what you have achieved in spite of the racist and intolerant conditions of this world, feel the warmth of the flame under your hand, say a prayer of rememberance if you are religious, place the note under the candle, and then blow it out.

if you have children, sit them down and tell them anything you know about the life of oldest black person you've ever met. it doesn't have to be your own family. tell them what you know about what life was like for us in the days, years, decades after emancipation. if you don't know much, look it up and learn about it together.

This is Juneteenth.

white people CAN interact with this post. share it, spread it.

[crippledcryptidd]

Since its getting warm in parts of the world again i want to remind everyone on medicine to check all of them to see if and how they cause issues with heat

Also look into signs and first aid of heat related illnesses and how to stay cool

Here’s some links that might be helpful

List of medicine that causes issues with heat and how (it says for clinicians but can be helpful for those on medication too)

https://www.cdc.gov/heat-health/hcp/clinical-guidance/heat-and-medications-guidance-for-clinicians.html#:~:text=Medications%20and%20heat%20interact%20in%20three%20primary%20ways%3A&text=Heat%20can%20degrade%20or%20damage,inhalers%2C%20EpiPens%2C%20insulin).

Information on heat related illnesses

https://www.hopkinsmedicine.org/health/conditions-and-diseases/heatrelated-illnesses-heat-cramps-heat-exhaustion-heat-stroke

Daily water intake

https://www.health.harvard.edu/staying-healthy/how-much-water-should-you-drink#:~:text=For%20healthy%20individuals%2C%20the%20average,for%20women%20about%2011.5%20cups.

Staying cool

https://www.cdc.gov/climate-health/php/resources/protect-yourself-from-the-dangers-of-extreme-heat.html#:~:text=Stay%20in%20an%20air%2Dconditioned,Schedule%20outdoor%20activities%20carefully.

[crippledcryptidd]

Migraine misdiagnosis: sinus headache

(This post is not to diagnose anyone or say anyone is misdiagnosed. It does not replace medical advice or care by medical professionals, if you have concern of misdiagnosis please talk about it with a medical professional)

Migraine and sinus diseases share a number of symptoms leading to both patients and providers mixing up the 2. Migraine is a primary headache disorder classified in the International classification of headache disorders 3rd edition (ICHD3) and most known for its headache that often presents unilaterally (one sided) and moderate to severe pain wise. Other common and well known symptoms of this disorder are nausea, vomiting, sensitive to sensory stimuli. Headache attributed to disorder of the nose or paranasal sinus (“sinus headache”) is classified in the ICHD3 as a secondary headache disorder. The criteria for this disorder specify that inflammation or infection of the sinuses must be confirmed by imaging or nasal endoscopic procedure. (Link 4)

Many with migraine have been misdiagnosed by self diagnosis or professional diagnosis with “sinus headache” despite the need for confirmation of current or past sinus inflammation or infection, delaying their diagnosis of migraine. Those misdiagnosed by professionals can also end up being treated, including surgical treatments, for something they do not have. One study found 81.5% of participants had been misdiagnosed as having sinusitis when they had really had migraine. (link 2) Harvard has stated that over 85% of those suspecting a sinus related cause to their headaches actually have migraine. (Link 1)

Both of these disorders have multiple features in common including pressure in the face, seasonal and barometrical triggers, and cranial autonomic symptoms. (link 1). Cranial autonomic symptoms, symptoms related to the autonomic nervous system in and around the head and face, are a common but lesser known type of symptoms of migraine. (link 3) These include nasal congestion, runny nose, tears, ear fullness, and more (link 3). These things can also be seen in sinus infections and inflammation.

While their symptoms present similarly in certain aspects, they also have their differences. Thick, infectious looking mucus and fever are a sign that it’s a headache cause by a sinus disease. (link 1) Sensitivity to sensory stimulus, nausea and vomiting, one sided, moderate to severe headache are common features of migraine attacks not associated with sinus infections or inflammation or the headaches they may cause. (Link 1)

Sources and more information

https://www.mdpi.com/2075-4418/13/4/590

https://ichd-3.org/11-headache-or-facial-pain-attributed-to-disorder-of-the-cranium-neck-eyes-ears-nose-sinuses-teeth-mouth-or-other-facial-or-cervical-structure/11-5-headache-attributed-to-disorder-of-the-nose-or-paranasal-sinuses/11-5-2-headache-attributed-to-chronic-or-recurring-rhinosinusitis/

[crippledcryptidd]

hello physically disabled person reading this. it is not your fault that your medical supplies are made from a lot of single use plastic and you can continue using them guilt free. your health comes first. thank you for existing.

[crippledcryptidd]

I’m getting so fed up of the same few popular part-time wheelchair users on TikTok claiming that any attitude other than “I love my chair! Wheelchairs = Freedom!”is purely a symptom of internalised ableism.

Wheelchairs are tools, and for a lot of people they are far from perfect. I’m happy that these people can associate using their chairs with a reduction in symptoms and being able to stay out longer and do more, but it’s not always that simple for everyone.

My wheelchair is painful and exhausting to be in a way that wouldn’t be solved with a better, more expensive chair even if I had that option available. It causes me additional health problems (pressure sores and digestion problems spring to mind) and the places my large powerchair can go is also much more limited compared to an active manual chair (I know because I’ve used both).

And when I’m in my chair, I’m restricted to it in a way that these people simply aren’t. I’m literally strapped in to remain upright in a way that feels claustrophobic and definitely isn’t comfortable. I can’t transfer without a hoist, and given how few of those are available in public that means once I’m in my chair I’m essentially locked in – even just redistributing my weight is a whole bunch of effort.

And for a lot of people, even if they can use a lightweight active manual chair, it’s not all sunshine’s and rainbows. There’s trauma and pressure sores and pain and digestive problems and loads more that can all be associated with wheelchair use.

It’s not ableist for me to feel limited by my wheelchair when I literally am. I am happy when I go to the pool and can move without being restricted by my wheelchair or gravity and I often fantasise about levitating up out of my chair and leaving it behind. That’s exactly as ableist as someone with chronic pain in their legs fantasising about not having to walk places, but some parts of our community don’t seem to be able to see that.

I’m not saying wheelchairs are inherently bad (they’re just tools), or even that everyone in my exact situation would hate theirs. I’m just saying there’s no right way to feel about something that is so complex, and just because your experiences don’t fit the simple wheelchair-positive narrative that my TikTok algorithm is forcing on me, it doesn’t make you a bad wheelchair user.

[crippledcryptidd]

New wave inspired look

ID: a selfie of a pale person in front of a blue grey wall. They have long brown hair with half up and a ribbon in it and have on a gingham dress. Her makeup is new wave inspired. Winged eyeliner, blue, pink and purple eye shadow, red lipstick and sharp red blush. End ID

ID: a mirror selfie in a bathroom of the same person in the same look. He hold up his phone and has one hand on the sink. End ID

ID: a mirror selfie of the back of the same person showing their hair, it is long and brown done in a half up half down style with a ribbon that has a black cat pattern on it tied around the pony tail. End ID