#neurological disability
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seeing people misuse thickened water makes me so fucking angry
they don't understand that it's a choice between "die" and "die" if someone isn't able to get it
you either risk dying of dehydration or you risk dying of aspiration trying to drink
dysphagia kills, don't misuse our resources
#physical disability#physically disabled#cripple punk#cripplepunk#dysphagia#neurological disability#I dont personally use thickened water but I care a lot about this because I have dysphagia and many people in my community do use it#also I'm headed that direction
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"Brain damage" only sounds like a harsh and offensive way to describe brain injuries because people constantly use it as an insult. It's a totally neutral descriptor of what it is. I have brain damage. My brain is damaged. It's not ableist to call it that, it's ableist to call people you don't like brain damaged because you think it's an inherently bad thing to be.

(Yes abled bodied neurodivergents, that includes you)
[ID: a dark red banner with the words "This post is about physical disabilities, do not derail." in grey font. Either side of it is a lighter grey wheelchair user symbol with the user leaning forward with the arms raised and back, giving the appearance of wheeling fast. End ID.]
#cripplepunk#actually disabled#banner borrowed from smoov-criminal#neurological disability#brain injury#acquired brain injury#cripple punk#traumatic brain injury#2k#described#50#100#500#1k#5k#10k#15k
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
#if one more person tells me to take a sick day i'm going to throw something at them#i just honestly cannot anymore#disabilties#disabled#actually disabled#epilepsy#ehlers danlos syndrome#physical disability#neurological disability#actually epileptic#zebra#chronically ill#chronic illness#spoonie#chronic fatigue#chronic pain#c punk#crip punk#cripple punk#fuck capitalism#anti work#disability culture#1k#5k#10k
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This is a threat
#disability pride#disability#autoimmine disease#chronic pain#chronic illness#chronically ill#mobility aid#queer#sapphic#achillean#bisexual#asexual#lesbian#gay#homosexual#pride month#lgbt#aromantic#nonbinary#transgender#transfem#transmasc#mental disability#pansexual#actually neurodivergent#neurodivergent#neurological disability#neurodiversity#actually neurodiverse#my art
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on the topic of mobility aids i just want to throw out a non-comprehensive list of tips from someone who's been using mobility aids for 10 years
everyone has different needs and responds differently to certain mobility aids
if a cane isn't right for you, it doesn't mean you shouldn't look into other aids to see if they help
neurological conditions and things like strokes and brain aneurysms can cause someone to struggle with balance for life and are more than welcome to try out mobility aids
it doesn't matter if it's a genetic condition or an injury- consider an aid
wearing braces and using walkers, canes, and so on is very normal after injuries. please use them if you are in pain for a long time after an injury. injuries are serious too
if you buy a cane and it didn't work out for you, you're hurting no one
folding canes are helpful but have a lower weight limit generally speaking
crutches may be a good idea for you if you really struggle with balance and stability
your mileage will vary with each type of aid. you may benefit more from one aid at one time, and more from another in other situations. you may need several different kinds
if you need a rollator, wheelchair or scooter, it really is okay to get or try one. if your insurance won't cover it it's okay to buy or crowdfund one
walkers and rollators require low upper body strength, unless they need to be lifted up on to a curb in which case the user may need assistance
even the lightest and most well constructed wheelchairs are still heavy. they require a lot of upper body strength and mass to propel if you are doing it completely by yourself. you may also need assistance transporting them, getting them up or down hills, on to curbs, and so on
if you struggle to walk for extended periods of time (30+ minutes uninterrupted) you probably need some type of aid. if you have poor balance you may need some type of aid.
you're not hurting anyone if you end up not needing the aids. it's fine to try them
it doesn't matter if the pain or exhaustion or bad balance is related to your weight. you deserve to be as mobile as you want to and can be. its okay for fat people to use mobility aids. it's not embarrassing. being a fat person using a mobility aid in public isn't embarrassing. the people insinuating that are. fat people deserve quality of life
#cripple punk#crip punk#cpunk#punk#disabled#actually disabled#disability#disabled rights#disabled pride#disability awareness#disability pride#physical disability#neurological disability#neurodivergence#mobility aids#chronic pain#our writing#fat lib#fat liberation
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sometimes when chronically ill/disabled/neurodivergent people say “I can’t do this thing” they really mean “I can technically do this thing I guess, but not without pretty significant repercussions” and I really need more fully-abled people to understand the validity of that
#almost forgot about internalized ableism for a second there#rants & reflections#chronic illness community#disability community#disabled community#chronic illness rant#undiagnosed chronic illness#autistic thoughts#audhd problems#adhd things#untreated adhd#pots#potsie#endometriosis#dysautonomia#heds#probably heds#probably eds#hypermobile eds#ehlers danlos syndrome#ehlers danlos#hypermobile spectrum disorder#physical disability#invisible disability#neurological disability#undiagnosed disability#chronic pain#chronic fatigue#adhd autistic#cptsd things
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I hope everyone had a great disability pride month!
Special shout out to the disabled people who:
are dying because of their disabilities
are living their best life despite and with their disabilities
hate their disabilities
don't want anything to change besides other people being ableist
are visibly disabled
disabilities are invisible
are are chronically ill
were born this way and never knew anything else
became disabled suddenly
became gradually disabled
have neurological disabilities
have developmental disabilities
have more than one disability
have no official diagnosis
have experienced ableism
need mobility aids
need medication
need caretakers
need medical devices
whose disability is considered "gross" or "unsightly"
whose life expectancy is shorter because of their disability
whose quality of life isn't high
To all the disabled people reading this, if you are proud to be disabled or not, i am proud of you. Being disabled isn't always fun and you deserve to hear it, even if just from a stranger on the internet
I am proud of you
#disability#disabled#tumblr#cripple punk#ableism#chronic illness#chronically ill#disability pride#disability pride month#july#disabled pride#neurological disability#developmental disabilities#physical disability#invisible disability#mobility aids#visible disability
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shout out to clumsy people.
shout out to people with coordination issues.
shout out to people with dyspraxia.
shout out to people with apraxia.
shout out to people with muscle weakness.
shout out to people with paresis.
shout out to people with paralysis.
shout out to people with arthritis n/or joint deformities.
shout out to people with chronic pain whose pain makes it hard to control their movements.
shout out to people with chronic fatigue whose fatigue makes them hard to control their movements.
shout out to people with balance issues.
shout out to people with other conditions that make hard to control body n/or movements.
shout out to people who are undiagnosed n struggling with control movements.
it's not your fault. it's not your carelessness. you deserve support n accommodations. you shouldn't be judged or mocked. you deserve respect. your struggles deserve respect.
#positivity#disability#disabled#coordination issues#dyspraxia#apraxia#actually dyspraxic#clumsy#arthritis#chronic pain#chronic fatigue#learning disabilities#developmental disabilities#neurological disability#neurological disorders#repetition#repetition tw
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Neurological disabilities can make you neurodivergent (if you want that label) but neurodivergence doesn’t mean you have a neurological disability.
Okay? Okay.
#actually autistic#autism#autistic adult#neurodivergent#neurodiversity#neurological disability#cripple punk
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july is disability pride month so that means…
DISABILITY BOOK RECS!!
here are some fiction and nonfiction book recs that i feel have some valuable things to contribute to disability literature! i encourage you to check some of them out!! :)
(alt text included in images)



#disability#actually disabled#cripple punk#disabled#literature#disability advocacy#disability pride#physically disabled#books#booklr#chronic disability#disabilties#neurological disability#ableism#reading#image description in alt#elsie c berg
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Having ADHD and trying to have executive functionality is like having a toddler for a brain.
It keeps screaming because it wants something. One particular thing. But it won’t actually tell you what that things is.
So you keep trying to give it things in the hopes it will stop screaming. You change the music, you light a candle, you give it a fidget toy, you take it for a walk, you feed it something yummy all the while, your brain (the toddler) Keeps crying and screaming.
In the end you’re in tears. You’re pretty sure you’re not going to get anything done today so you take a shower and change into something comfy.
And then your brain stops screaming.
Turns out you were uncomfy and thats why your brain (the toddler) kept screaming. The jeans were too tight and you were kind of cold and the discomfort was distracting you.
Now you can actually work.
#adhd#actually adhd#executive dysfunction#adhd problems#adhd brain#adult adhd#mental health#neurological disability
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*post about brain damage*
90% of comments: I got a mild concussion once and-
sometimes you don't relate to things and that's ok 🙂
#physical disability#physically disabled#cripple punk#cripplepunk#brain damage#neurological disability
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I keep seeing people put accommodations for people with epilepsy on the same level as sensory accommodations for autism and like... no??? Obviously both are important but epilepsy can kill people, SUDEP is a thing. If you expose someone with photosensitive epilepsy to strobing lights they could suffer permanent brain damage or die. Epilepsy is a condition with physical, sometimes deadly consequences. I'm not sure how many different ways I need to say this before it sticks, but epileptic seizures are physical neurological phenomena that can cause lasting neurological damage or death. Epilepsy can kill you. You can die from epilepsy.
#actually disabled#disability#epilepsy#photosensitive epilepsy#neurological disability#cripplepunk#cripple punk#actually epileptic#SUDEP#neuropunk#I myself am one of the few people on the planet who can say I could completely literally just drop dead from stress#and yet the world keeps making me stressed#50#100#500#1k#5k
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breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence
and existence is everywhere all the time no matter what even if you wish it wasn't
.
#i fucking wish it wasnt too for what its worth#disabled#disabilities#actually disabled#physical disability#physical disabilities#neurological disability#epilepsy#ehlers danlos syndrome#hEDS#hypermobile ehlers danlos syndrome#spoonie#chronically ill#chronic illness#chronic pain#chronic fatigue#crip punk#cripple punk#cpunk#c punk#seizures#seizure disorder#actually epileptic#disability culture#1k
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This is a threat
#disability pride#disability#autoimmine disease#chronic illness#chronically ill#chronic pain#mobility aid#queer#sapphic#achillean#bisexual#asexual#lesbian#gay#homosexual#pride month#lgbt#aromantic#nonbinary#transgender#transmasc#transfem#mental disability#pansexual#actually neurodivergent#neurodivergent#neurological disability#neurodiversity#disabled#my art
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My Service Dog is suspected to be in early Heart Failure (AID REQUEST)
please reblog!
At a routine vet visit to check the progress of a course of antibiotics she was taking for a cold that's been taking all our city dogs by storm, my vet recognized that my 2 year old Labrador service dog, McCoy, had a jugular vein distention. Because this is not supposed to happen in healthy dogs, let alone in young healthy dogs, we chose to run a ProBNP blood test on her, which is used to measure heart health and check for potential damage or heart disease. The "normal" range is <900pmol/L, "suspected" damage is 900-1800pmol/L, and "abnormal" is >1800pmol/L. My dog came back with a result of 1300pmol/L.
We are currently being referred to the CVCA in Louisville, Kentucky, to have an echo performed on her heart to hopefully get a definitive answer on what is going on. However, this is all getting incredibly expensive, and I am a physically disabled student who was not expecting or prepared to suddenly be potentially losing my best friend and partner in everything that I do. I'm asking for any help with funding so we can keep on top of not only these sudden vet expenses, but any of the following expenses that may come due to her results as well as continuing to manage her day-to-day. We were doing just fine before this all happened, but the echocardiogram alone is expected to be a minimum of $400. I'm terrified and I don't know what to do. She's my everything. Any help that can be given, even if its just sharing, is appreciated.
my cashtag is $ikeohh
my ko-fi is tuptastic
i don't know what to do.


#tw animal illness#cw animal sickness#cripplepunk#cripple posting#cripple punk#angry cripple#disabled#disability#actually disabled#seizure disorder#epilepsy#dysautonomia#mutual aid#neurological disability#young and disabled#physically disabled#cpunk#mentally disabled#chronic illness#chronic pain#fundraiser#service dog#service dog in training#service animals#disability aids#service dogs
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