#neurological disability

[a-sassy-bench]

do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?

like honestly. what do you think being disabled means?

[chronicsymptomsyndrome]

Gentle reminder that your disability and/or chronic illness struggles are valid, even if others have it worse. It’s not like there’s one definitive Most Disabled Person In The World and they’re the only one entitled to accommodations or reactive emotions. That’s not how it works <3

[voidmire-system-error]

shout out to clumsy people.

shout out to people with coordination issues.

shout out to people with dyspraxia.

shout out to people with apraxia.

shout out to people with muscle weakness.

shout out to people with paresis.

shout out to people with paralysis.

shout out to people with arthritis n/or joint deformities.

shout out to people with chronic pain whose pain makes it hard to control their movements.

shout out to people with chronic fatigue whose fatigue makes them hard to control their movements.

shout out to people with balance issues.

shout out to people with other conditions that make hard to control body n/or movements.

shout out to people who are undiagnosed n struggling with control movements.

it's not your fault. it's not your carelessness. you deserve support n accommodations. you shouldn't be judged or mocked. you deserve respect. your struggles deserve respect.

[amandacanwrite]

Having ADHD and trying to have executive functionality is like having a toddler for a brain.

It keeps screaming because it wants something. One particular thing. But it won’t actually tell you what that things is.

So you keep trying to give it things in the hopes it will stop screaming. You change the music, you light a candle, you give it a fidget toy, you take it for a walk, you feed it something yummy all the while, your brain (the toddler) Keeps crying and screaming.

In the end you’re in tears. You’re pretty sure you’re not going to get anything done today so you take a shower and change into something comfy.

And then your brain stops screaming.

Turns out you were uncomfy and thats why your brain (the toddler) kept screaming. The jeans were too tight and you were kind of cold and the discomfort was distracting you.

Now you can actually work.

[wheelie-sick]

seeing people misuse thickened water makes me so fucking angry

they don't understand that it's a choice between "die" and "die" if someone isn't able to get it

you either risk dying of dehydration or you risk dying of aspiration trying to drink

dysphagia kills, don't misuse our resources

[valcaira]

Shoutout to paralyzed people. Those with complete paralysis, incomplete paralysis; Those whose paralysis was caused from accidents, brain injuries, strokes, spinal cord injuries, neurological illnesses; Those with paraplegia, quadriplegia, hemiplegia, tetraplegia. Who were born paralyzed or became paralyzed later in life.

Those who have a carer, those who use a wheelchair full-time, those who use crutches or canes and those whose mobility aid is a hospital bed. Those with incontinence, who wear adult diapers, ostomy bags and catheters. You are not "lesser" for needing care or not being able to live independently. You deserve to live a comfortable life with autonomy and dignity.

We rock. We're fucking amazing. I love you.

[the-firefly-system1]

Shout out to those who have to be carried or dragged around their house because their house isn't accessible to their mobility aids

Shout-out to those who have to crawl and scoot around their house because their house isn't accessible for their mobility aids

Shout out to those who have to use a office chair with wheels around their house because their house isn't accessible to their mobility aids

It's fucking tough having a inaccessible house

[neuroticboyfriend]

there's a lot of talk about joint pain in chronic illness communities which like fair, it hurts like a bitch. but shoutout to my fellow spoonies who are painfully incapacitated by things like muscle spasticity and nerve compression. just because people can't see red, swollen, dislocated, or malformed joints doesn't make your pain not real. and extra shoutout to spoonies who deal with all these types of pain, because i know how hard it makes things.

[crippledcryptidd]

Re decorated cane

ID: a black cane with various stickers, spikes in the middle, cat lights wrapped around it and a purple and black, witch cat squishamellow keychain with a black wrist strap around the top, it is leaned againsted a white door with part of a black halloween decoration in frame and standing on a grey brown hardwood floor. The lights are on but the picture is taken with flash so it is not dark. End ID

[yrfemmehusband]

hi chronically ill and disabled ppl how do you deal with the feeling that your illness or disability taints every positive experience in your life asking for a friend (i am struggling)

[crowpunkcognitivedecline]

this is a cripple punk post [also focusing on all kinds of HSN disabled folks]; ableds must tag reblogs with #i’m able bodied

for the record

i generally shower exactly once a week & wash my hair the same day

sometimes i can’t change undergarments for a few days, sometimes i change them multiple times a day

i rely on several adaptive tools to shower, period

i do need to shave/trim pubic and body hair for my hygiene, and can’t keep clean otherwise

in winter, i often can’t wash my hands unless i have lotion with me or they’ll crack painfully

i change clothes once or twice a day to make up for most of this the best i can

i’m saying this because all of those things are very common issues for many disabled people (especially high-support ones), and because i feel like if i’m going to talk about destigmatizing hygiene struggles, i should at least be open about my own.

hygiene is very difficult and energy consuming. it involves a lot energy that many of us can’t access.

not being able to maintain one’s personal hygiene doesn’t make anyone selfish, disgusting, or undeserving.

if you can’t be kind and supportive and not say “ew” when you hear about one of the most common impairments moderately to severely disabled people experience, you don’t support disabled people. if you don’t support disabled people who smell bad or have dandruff or cracked hands or un-exfoliated skin, you don’t support disabled people.

yes, even if you have sensory issues. yes, even if you’re germaphobic. your disabilities are not an excuse to be ableist to others. find a way to be kind anyway.

[a-sassy-bench]

the pharmacy infrastructure in america is crumbling and we need to talk about it. the drive-thrus are always closed due to staffing. the lines wrap around the aisles. the pharmacy closes unexpectedly. there are constant errors in prescription doseages. calling leads to being on hold indefinitely. auto-refills don't happen, and there is no notification telling you so. there are signs in the windows saying they can't dispense medication because it would be illegal with no pharmacist in the building, but if you go inside sometimes there are cashiers handing out bottles of pills.

it's already a nightmare to even get a prescription. constant fights with insurance. my neurologist had to ask me how good my coverage was to decide what to prescribe me because the medication that would be best for me is $1,300 a month.

and now, after you jump through all of those hurdles, there isn't even anyone there to fill the prescription.

it is so horrifying to stand in line waiting for life-saving medication and have it be harder and harder and harder to access each time. we need to be talking about this. screaming about this.

people are going to die.

.

[dyspunktional-revan]

I still see the lightning bolt disability pride flag (the one with the zigzag-shaped non-bg part) being used occassionally.

Your reminder that it can *kill* people with epilepsy, as well as hurt those with other kinds of photosensitivity (I'm autistic and have chronic migraines, I can't look at it)

The creator was alerted of that and has long since made a photosensitivity-friendly redesign. It is also open to further edits. Her tumblr is capricorn-0mnikorn, she has the flag in her pinned, but just in case, perhaps also will draw attention more, I'll add it here too:

[Image description, copied from the creator's original post:

A “Straight Diagonal” version of the Disability Pride Flag: A charcoal grey flag with a diagonal band from  the top left to bottom right corner, made up of five parallel stripes in  red, gold, pale grey, blue, and green

/End image description]

[chronicsymptomsyndrome]

How do I recover from severe burnout with an overwhelmingly messy recovery space

How do I clean my overwhelmingly messy recovery space properly if I am severely burnt out

How do I recover from severe burnout if I’m constantly using all of my energy doing the bare minimum

How do I recover from severe burnout

How do I recover

[wheelie-sick]

I feel like people don't understand the severity of dysphagia very well. they see it as struggling to swallow and occasionally coughing on something we swallow wrong. that can be what mild dysphagia looks like but dysphagia can be incredibly serious too.

sometimes people's reflex to cough up what goes "down the wrong tube" can become impaired and material can build up in people's lungs. sometimes we can have that reflex but still choke and die. often people with severe dysphagia have feeding tubes because swallowing is too dangerous. some people with dysphagia have to suction the saliva out of their mouth because swallowing it is a choking hazard. dysphagia is one of the things that tends to kill people with fatal neurological disorders. dysphagia is some people's inevitable cause of death. it's not always severe but having severe or progressive dysphagia is a serious diagnosis.

[valcaira]

I am... still not over the fact that one day I woke up with my right side suddenly paralyzed. Without any warning. It's been several weeks now without any improvement. I want to cry. I want to yell and scream. I'm scared. This is fucking terrifying! Who knows what'll happen next? The doctors didn't find an organic cause thus dismissed me so fuck me I guess!

Just like that! One half of my body! Gone! I still can't fucking cope with this. And everyone around me acts like it's not a big deal. Fucking hell.