crippleprophet - Tumblr blog

[crippleprophet]

As a wheelchair user I'm trying to reframe my language for "being in the way."

"I'm in the way," "I can't fit," and "I can't go there," is becoming "there's not enough space," "the walkway is too narrow," and "that place isn't accessible."

It's a small change, but to me it feels as if I'm redirecting blame from myself to the people that made these places inaccessible in the first place. I don't want people to just think that they're helping me, I want them to think that they're making up for someone else's wrongdoing. I want them to remember every time I've needed help as something someone else caused.

[crippleprophet]

Guys Jansport adaptive backpack is on sale for 32% off on Amazon right now (blue color, pink color is on sale for 24%). The usual price is $70, right now it's $47.

[crippleprophet]

the spirit is not willing and the flesh it is not so into the idea either

[crippleprophet]

link to the poem

hey anon it’s been 2 1/2 years but if you’re still around i want you to know this ask continually changes my life. it restores my soul in a way i may never have words for. i return to rest under it when i’m sore with dysphoria for my identity as a femme —

i struggle a lot with the limitations on my clothes due to living in an ableist & fatphobic society, my hair & accessories due to my fatigue & nerve pain, etc etc, & my stone/femme is often invalidated on the basis of my gender & sexuality (as if i have a faggotry separate from stone, a man-ness separate from femme)

but like. whether those words [would have] mean[t] anything to you or not — & i’m realizing as i type this that i was still 2 months out from claiming high femme myself when i answered this ask — you wrote my gender to me before i knew it myself. not just the achingly lovely image of a lipstick print which opens, although god that’s the closest i’ll ever have to doctrine, but the idea that my desire could imbue love, the potential to (co)create a consensual gaze that through some queer thermodynamics makes pride & lust possible with its heat —

that’s lifesaving shit. not for everybody, but it certainly has been for me.

you know that often-giffed scene from fleabag s1 where she says she doesn’t know what to do with all the love she has for her dead mother, & her best friend says i’ll take it, you have to give it to me, it sounds lovely? i’m so glad you got the lust i couldn’t give to the object of that poem.

i must say "jesus fuck i want my mouth around that scar" is a line that's been in my head for so long since i've read it. i hadn't fathomed that kind of wanting over my crip body before, reading it felt like a kiss mark right on a sealed letter and it opened it right up. i'll literally catch my surgery scar in the mirror now and smile over it. my bday (20s...wahoo) is coming soon and i must to pick an outfit to show it off, it's a nice scar, your poetry imbued it w/ absolute love. i don't get this feeling anywhere else but this community ♿💗 i hope all is so very well

OHH i cannot describe how very much this means to me, this is the pinnacle of what i want my poetry to do & such an incredible message to receive. your crip body is worthy of being wanted!!! and i’m so so honored to have had a part in your realization of that <3 <3 <3 i hope you have an absolutely fabulous birthday and a kickass outfit, so much love to you 🖤💕💕

[crippleprophet]

Navigating a college campus in a wheelchair should be an Olympic sport

[crippleprophet]

Hi! I've written a disability-centric fanfiction that took some inspiration from your poem that begins with "Jesus fuck I want my mouth on that scar" (a long-time favorite of mine!), including borrowing your phrasing almost word-for-word in one sentence, and I was wondering what your feelings would be on me publishing it on AO3 (with proper credit, of course). I hadn't intended to share it anywhere when I was writing it, I would have asked permission beforehand if I had, but it ended up being the first piece of fiction I finished and liked in a while and I wanted to share it. Let me know if you're comfortable with that or if you would rather I didn't!

link to the poem

omg thank you so much, i would be honored!! i’m prettydizzeed on ao3 (link) if you’d like to link to that as well as my tumblr. if you’re comfortable sending me the link i’d love to check it out!!

[crippleprophet]

ID: a reply by @headlessandhellbent to this post (link). the reply reads “HEY. My MRI results just came back with mild matter disease this morning. What a wild time I'm living in, I'm 29.” end ID

i just read your posts about the situation, i’m so sorry you learned your results without any support/explanation!! it’s been a little over a year since i officially found out about my brain damage so i’m certainly not an expert but i feel a lot more comfortable with things than i did when i made that post. i’m not always able to respond promptly but if there’s anything i can help with feel free to dm me or send an ask!!

my neurologist didn’t take my results as meaningful even when white matter disease super correlates to my symptoms, i didn’t have these lesions when i got an mri at ~17, there’s ever-increasing scientific evidence of previsible brain damage, etc etc so i definitely know what it’s like to deal with this without support from medical institutions. regardless of what any doctor says or does, you know your body & experiences best and it should be up to you to decide how significant this is to you. it’s okay for it to be a big deal.

[crippleprophet]

anybody else have a sick4sick exes situation where like. you develop what used to be So-&-So’s Chronic Illness & then you’re fucking missing them when your symptoms flare

[crippleprophet]

been playing with this concept (link), currently in the form of a 3-part 30-line poem but like. i have substantially more to say on the subject lol

[crippleprophet]

alternate heds iconography poll

[crippleprophet]

to the discerning cripple kt tape too is a type of lingerie

[crippleprophet]

THE TYRANNY OF THE SUN IS OVER

[crippleprophet]

i do find it hilarious as somebody with involuntary movements that tumblr asks to confirm whether i want to boop someone but not whether i want to follow them from my dash, something that happens often enough for me to have a disclaimer about it

[crippleprophet]

happy crip time tdov 💖❣️ as a homebound person, i have a fraught relationship with most understandings of visibility, but i’m happy to be able to celebrate transness with y’all in all our semi-isolated glory 💓😘

(ze/zem/zyrs or any pronouns)

image description: three selfies of Mac, a white man femme with a red buzzcut & stubble, round black glasses, & septum piercing. ze is wearing a pink fluffy bathrobe and poses with zyr long pink & red nails as the bathrobe showcases some strategic cleavage. the photos each have a different snapchat filter: blacklight neon lipstick prints, VHS effects, & cartoon cherries. end image description.

[crippleprophet]

fucked up fucked up fucked up fucked up

[crippleprophet]

literally every time i reset my shoulder it immediately comes back out of place. i’m not doing anything i’m literally just laying still in bed i don’t know what to do.

[crippleprophet]

Survey recruitment; I gave feedback as a later consultant & Tuttle is another Autistic AAC user who was involved in the project from the start. Shares are Definitely Helpful :)

Are you an autistic adult who uses speech and other tools (such as augmentative and alternative communication [AAC]) to communicate?

If you answered yes, please consider participating in this survey at this link:

We are interested in learning about the speech, AAC, and assessment experiences of autistic people who use speech and AAC. We are curious if a modified version of the Communicative Participation Item Bank (CPIB) can be a reliable tool for clinicians to utilize in measuring the internal experiences of speaking autistic people. Regarding assessment, we are interested in understanding how their speech efficacy, or the extent to which one can use speech to completely communicate their intended meaning, was measured and considered in the evaluation process and if the evaluation resulted in a recommendation of an AAC tool.

The survey includes a mix of multiple choice, slider, and written response questions and is estimated to take between 10-20 minutes.

No identifying information will be collected in this survey.

Please reach out with any questions or concerns via email.

We thank you in advance for contributing your insight on this important topic!

Karina Rayl, B.S. (Lead Investigator)

Graduate Student

Speech and Hearing Sciences

Portland State University

Email: krayl@pdx.edu

Pang Lee Herr, B.S. (Lead Investigator)

Graduate Student

Speech and Hearing Sciences

Portland State University

Email: pherr@pdx.edu

Brandon Eddy, M.A., CCC-SLP (Co-investigator and Faculty Advisor)

Associate Clinical Professor

Speech and Hearing Sciences

Email: beddy@pdx.edu

Amy Donaldson, Ph.D. CCC-SLP (Co-investigator and Faculty Advisor)

Associate Professor

Speech and Hearing Sciences

Email: adonald@pdx.edu

Tuttle (External Collaborator)

Email: tuttleturtle@gmail.com

Alyssa Zisk, Ph.D. (External Collaborator)

Email: ahzisk@gmail.com