endoflifespecialist
endoflifespecialist
Just Another Thought
373 posts
I have many hats; I blog about work at the funeral home and my thoughts on my daughters disability.
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endoflifespecialist · 4 years ago
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Some days are harder than others. We went to church and she made a mess of blessed bread all over the church. Also gave herself a haircut (still can’t find the scissors) and painted her face pink with marker. But she colored one of the pictures from Sunday school and had to put it up to Venerate it. This alone makes all worth it. #downsyndrome #trisomy21 #beautiful #daughterslove #orthodoxchristian (at South Ogden, Utah) https://www.instagram.com/p/CJmXu5uh5AX/?igshid=1qnyizm8kfsx4
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endoflifespecialist · 5 years ago
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#tiktok #havingfun #halloween2020 #knifeskills #sharpobjects (at South Ogden, Utah) https://www.instagram.com/p/CGeK09Th_wg/?igshid=1dkzixqnkwjur
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endoflifespecialist · 5 years ago
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I know October is Down syndrome awareness month but little known fact, mom’s who have a child with disabilities are very likely to develop anxiety and or depression. So mommas it’s hard but if you get the opportunity to have some “me” time and some time with other adults without kids, do it. I got to hang out with my family without having to chase Evilyn around worried she would fall off the dock or get into things. Mostly the dock. I had a full three days to reconnect with my siblings and parents. I got to take the longest bath ever in my dream 🛁 (claw foot). Bubbles and everything. I got to hog the bed and enjoy my glass of wine or a beer with out having to worry Evilyn might drink it too, or break the glass (one of her favorite sounds). So be aware of yourself mommas you need to function and that means adult time and self care. #selfcare #familytime #adultsonlyvacation #reconect #sandpointidaho #downsyndromeawareness #nothingdownaboutit #trisomy21 (at Sandpoint, Idaho) https://www.instagram.com/p/CGSaIXCBjrO/?igshid=wehggnof832y
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endoflifespecialist · 5 years ago
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The first time in ever my father informed me that all of us, me and my siblings have been together on a family vacation. We all were so lucky to be able to meet in the same place and share this beautiful day with our beautiful cousin @tbockas and now our handsome new cousin Inlaw. love you guys and thanks for the opportunity to meet new friends and family. #weddings #sandpointidaho #familyiseverything #cousins #beautifulbride (at Sandpoint, Idaho) https://www.instagram.com/p/CGNnvTDh4bl/?igshid=ug12zb0qgqu7
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endoflifespecialist · 5 years ago
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She s always keeping me on my toes and never a dull moment. When Evi graced us with her beauty and later Heath and I would spend the next 3 months in Primary Children’s with her. I was un aware at how lucky I am to have her in our lives. She doesn’t say much but she understands a lot. This month is #downsyndromeawareness month so be aware be very aware how amazing my girl is. (at South Ogden, Utah) https://www.instagram.com/p/CF0LisjBxK7/?igshid=1egfj8zwibv0n
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endoflifespecialist · 5 years ago
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#axethrowing #socialaxeogden #bachloretteparty #yep #funtimes @tbockas @southogdensmiths @brianajromero (at Social Axe Throwing Ogden) https://www.instagram.com/p/CFnjb_ThQXW/?igshid=4sv2u7kz4hsr
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endoflifespecialist · 5 years ago
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#funmom #tarotreader #tistheseason for #orangelipstick #positivity (at South Ogden, Utah) https://www.instagram.com/p/CFm-HTBB8Od/?igshid=1w6n4scttk23i
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endoflifespecialist · 5 years ago
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Todays therapeutic adventure took me to the cemetery after work. I have always felt comfortable in uncomfortable places, or at least with uncomfortable topics to most. When I go to a funeral I find peace. I look at the fact that an individual who may have been in pain or who may have just been ready to go is now at peace. Head stones in cemeteries are like beautiful creative reminders of the remembered. The photos were more for my “artists therapy” but I had some fun with the camera filters on my phone. I’m supposed to do this creative therapy once a week. I wonder where I will wander next week. #artistictherapy #death #headstones #ogdencemetery #deathdula (at South Ogden, Utah) https://www.instagram.com/p/CFVvYGUhI_p/?igshid=1d05u6u8hi0lt
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endoflifespecialist · 5 years ago
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#scofieldutah for the last trip of the season with new and amazing and positive change coming the Sorensen families way. #privateproperty #familytime #ghosttowns #camping (at Scofield, Utah) https://www.instagram.com/p/CE2rfm2h9b1/?igshid=gq0kj50ainhm
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endoflifespecialist · 5 years ago
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Went camping had a good time. Got dirty. Yup. 😂 #camping #scofield #fun #family #offthegrid (at Scofield Reservoir) https://www.instagram.com/p/CE2q4SPB-dY/?igshid=p84nilk6pupd
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endoflifespecialist · 5 years ago
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Finally finished Μάτι to hang up in my home. The belief is it protects you from the envy of others. My Παππού would say that it would be a good visual reminder not to be envious of others. I don’t believe he was superstitious but I have always had a special place in my heart for it. I was inspired to make this after perusing @yiayiasmarket she has some really awesome things on her site. #evileye #ματι #greek #γιαγιά #παππού (at South Ogden, Utah) https://www.instagram.com/p/CEwca9zBYL9/?igshid=ivzu0mdo6xjm
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endoflifespecialist · 5 years ago
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This little lady got a hat from Γιαγιά last year from the fair. She loves it. We had to strike some poses for the #instagram #downsyndrome #nothingdownaboutit #trisomy21 #ablefinder @ablefinder @hdangle1 #runningforevilyn #herlifematters (at South Ogden, Utah) https://www.instagram.com/p/CEuFpoTBr_c/?igshid=4pjowgzvxpdc
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endoflifespecialist · 5 years ago
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Finally It’s soft with great color contrast and I love the tassels. #crochetersofinstagram #creative #theropy #selfcare #selflovejourney (at South Ogden, Utah) https://www.instagram.com/p/CEft_3lBf4T/?igshid=22x7n5je7pw2
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endoflifespecialist · 5 years ago
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Strength happens in many situations. It happens in self care and self reflection. It happens in numbers and in change. The first time I stepped into the Narthex I knew. The first time I my kids and I went to church I knew. I knew the strength we would get from this amazing community would be a blessing and it has been. I was taken in with open arms and I have amazing friends because of it. I can’t wait to get out of this covid19 crap. I would love to see all my kumbadi in one room. Play some ball have some coffee. Catch up on life and stuff. 🤨😉 (at South Ogden, Utah) https://www.instagram.com/p/CEXr4fRBRMh/?igshid=ws51evqnjacl
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endoflifespecialist · 5 years ago
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This could make me reflect on many things. Why I found faith again gives me hope. Being a mom to amazing kids. Being a wife to a super understanding and supportive husband. My sister and I were talking the other day and she and I were talking about my Witchcraft days. She basically told me it was weird when I said I was getting baptized and going to the Orthodox Church, but it really isn’t. Give me a religion that doesn’t judge me for my sins but wants me to learn from them and realize I am only human. Wants me to learn from the poetic chants of monks hundreds and thousands of years before me. Iconography and no judgement. That gives me new additions to my family. It gives me hope for my mental health and my everyday life. #theshadowlandtarot #hope #orthodoxchristian #loveyourself #loveyourneighbor #nojudgementzone #thestar (at South Ogden, Utah) https://www.instagram.com/p/CES8s6eh3yR/?igshid=1p1vintm5kkms
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endoflifespecialist · 5 years ago
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Nothing like southern comfort cinnamon rolls with homemade cream cheese icing. Gerome said it is the best frosting I have made. Evilyn liked them as well. Baking and cooking for my family makes me happy. It is literally the reason Heath started dating me. Peanut Butter Chocolate Bars and cookies if I remember correctly were the in. In his belly and in his ❤️. It’s my way of saying, #icare #pleaseforgiveme #irespectyou #thankful #yoursuper (at South Ogden, Utah) https://www.instagram.com/p/CEQBNkOBU8h/?igshid=kfqbycxuo42k
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endoflifespecialist · 5 years ago
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This little one at 4am decide it was crawl into bed time. She draped herself right across me and that was that. #dowsyndrome #trisomy21 #kids #momlife #ablefinder (at South Ogden, Utah) https://www.instagram.com/p/CEOp1yAhUD2/?igshid=iwwevopht7ma
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