finding-a-reason

[finding-a-reason]

Watch RogueRedhead with me on Twitch!

[finding-a-reason]

Hey guys! So sorry for the delay in updates, you’ve seen the highlights of my week, its been eventful, and exhausting. We replaced our dryer and so I’ve been trying to get laundry and cleaning done that I wasn’t able to in the hospital or post surgery. Im currently dealing with an infection due to Caiden pulling on my tube by the bumper and having to move and bend so much. Its painful but ill be getting into the doctors within the next couple days and the nurse said I would be fine as long as I go in within the week. I’m finding that not being able to run my tube when I’m alone with Caiden or cleaning drastically effects how my body is coping. I’ve been doing my best to stay hooked up as long as I can but with my current equipment it makes it very difficult and painful to stay hooked up 24/7. I’ve been more lightheaded, tire more easily, and the pain starts hindering what I can do before I can finish what I need to. Its been extremely difficult, but seeing caiden laugh and grow, being able to be home with my fiance, and seeing some friends again has made it worthwhile. I know its just a rough patch, and things will get easier. But I also think there’s some solace in just acknowledging that right now things are kinda rough. I hope you all are doing well, thank you for continuing to support me and help me reach my goal, every donation, share, and kind word are greatly appreciated!!! Sending love and light your way!

[finding-a-reason]

Hey guys! So sorry for the delay in updates, you've seen the highlights of my week, its been eventful, and exhausting. We replaced our dryer and so I've been trying to get laundry and cleaning done that I wasn't able to in the hospital or post surgery. Im currently dealing with an infection due to Caiden pulling on my tube by the bumper and having to move and bend so much. Its painful but ill be getting into the doctors within the next couple days and the nurse said I would be fine as long as I go in within the week. I'm finding that not being able to run my tube when I'm alone with Caiden or cleaning drastically effects how my body is coping. I've been doing my best to stay hooked up as long as I can but with my current equipment it makes it very difficult and painful to stay hooked up 24/7. I've been more lightheaded, tire more easily, and the pain starts hindering what I can do before I can finish what I need to. Its been extremely difficult, but seeing caiden laugh and grow, being able to be home with my fiance, and seeing some friends again has made it worthwhile. I know its just a rough patch, and things will get easier. But I also think there's some solace in just acknowledging that right now things are kinda rough. I hope you all are doing well, thank you for continuing to support me and help me reach my goal, every donation, share, and kind word are greatly appreciated!!! Sending love and light your way!

[finding-a-reason]

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

A runner will tell you that complete exhaustion is somehow one of the greatest feelings in the world

[finding-a-reason]

Decided to bite the bullet and take a pic of my tube for those asking! For those of you who would like to read about my gastroparesis journey, or to share or donate click the link below. I am 23 and adjusting enteral nutrition after being diagnosed with severe gastroparesis. My inbox is open for any tubie questions or for those who want to know more about it :)

Finding-a-reason

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Momma On A Mission- Alexis Lynn’s Tubie Supply Fundraiser ❤❤❤

Link: https://www.gofundme.com/alexis-tube-backpack-fundraiser

Given the recent circumstances I have reached out for help, if you could like or share it would be truly appreciated!

Hello! My name is Alexis and I am 23, me and my fiance have a one year old son, Caiden. 8 months ago I was diagnosed with gastroparesis, i’ll explain below but it causes me to have to rely on 24 hours enteral nutrition. Im a stay at home mom and due to my recent hospital stay funds are tight and keeping bills paid and caiden well taken care of has been top priority. Since making the adjustment ive realized three things.  1. A rectagular tube bag digging into my spine 24 hours a day is immensely painful, especially when I have back problems already. 2. Babies really really love cords, and tubes, and wheels which is essentially all the medical equipment I use. 3. Most tape causes blisters and tape must be used to hold my gj tube in place. I am working to raise money to buy a tube feeding backpack that will fit my needs and allow me to run my feeds while caring for my son, and dylan is at work. I’ll be working to raise it as well and setting as much money aside as I can but I could really use your support. Even a dollor or two brings me closer to my goal and is immensly appreciated. All money will go to buying a tubie backpack to fit my needs and an IV pole with a wheel lock, as my current one does not fit through doorways and makes our house hard to access. Sharing is also greatly appreciated thank you for your support! Severe Idopathic Gastroparesis, is to put it simply, complete and permanent stomach paralysis with no definitive cause of what brought it on, though they have theories. Its been 8 months that ive been dealing with this. I didnt see a specialist until nearly 6 months into it, because for any of you who know my health history, ive spent alot of my life in hospital, and after just regaining some form of normalcy, I wasnt mentally prepared to go through all the testing and being told how my body is failing me again. I started researching and all of my symptoms matched, getting full after a couple bites of food, losing 85 lbs in 7 months, constant nausea and vomiting, always starving but if I ate I was left curled up in pain for hours. I wanted to eat, desperately. But everytime I did I got sick. About 6 months in I lost all my energy, I could eat less than my one year old son and I was desperate for some sort of relief. So I went to a specialist and after lots of testing, they confirmed that I had Severe Ideopathic Gastroparesis and almost 0 motility in my stomach. I had spent months researching my options, medications for mild gastroparesis, meds i was allergic to, gastroparesis basic diet, gastric pacemakers, digestive enzymes, botox of the stomach, homeopathic remedies for mild cases, and lastly permanent feeding tubes and tpn as a last resort if all else fails. There are very few desireable options in my case and with my other health stuff. I went in for my follow up to explore my other options and had emergency labs drawn because upon arrival my heart rate was 37 bpm and I was very weak. I was directly admitted and my labs showed severe malnutrition, my potassium was 2.6, and I could’ve gone into cardiac arrest at any point. They gave me bags of saline and electrolytes, placed an NJ tube for nutrition, and did more tests and tried an IV antibiotic that can stimulate the stomach which did not work. It came to a point where in order to get home and stay alive I would need to have permanent feeding tube placed that bypasses my stomach and allows me to get nutrition without it getting stuck. I am on it 24 hours a day from a tube in my abdomen with a backpack. Essentially liquids are fine because the can exit the stomach with gravity alone. Until theres new research this is my option if i want to stay alive and be there for my family which I do with all of my being. As you can see from some of my pictures, my family is my world, I fight everyday for them. If those of you who can, can join with me and help make this transition a little easier this momma would definitely appreciate it. Thank you so much for your support ❤❤❤

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Decided to bite the bullet and take a pic of my tube for those asking! For those of you who would like to read about my gastroparesis journey, or to share or donate click the link below. I am 23 and adjusting enteral nutrition after being diagnosed with severe gastroparesis. My inbox is open for any tubie questions or for those who want to know more about it :)

Finding-a-reason

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Hey guys! I’m so sorry I’ve been MIA lately! Between my baby dropping phones in the toilet, being diagnosed with severe gastroparesis, adjusting to tube feeds, and chasing around a little guy things have been crazy! I am adjusting, but we could use some help, so ive started a go fund me. Totally ok if you can’t donate, but if you would like an update its all on the page and sharing is greatly appreciated! I’ll be posting more pics soon now that I actually have a phone with service 😂 ive missed you guys! Stay tuned for cute baby Pics, he’s gotten so big and just keeps getting cuter!

Momma on a mission Alexis Tubie backpack fundraiser link: https://www.gofundme.com/alexis-tube-backpack-fundraiser

#update #severegastroparesis #MIA #ansurvivor #stayathomemama #gjtube #momlife #hospital #jtube #enteralfeeding #help #medicalhelp #kangeroojoey #tubefeed #anorexiasurvivor #spoonie #spoonielife #tubie #tubielife #potsie #posturalorthostatictachycardiasyndrome

[finding-a-reason]

Decided to bite the bullet and take a pic of my tube for those asking! For those of you who would like to read about my gastroparesis journey, or to share or donate click the link below. I am 23 and adjusting enteral nutrition after being diagnosed with severe gastroparesis. My inbox is open for any tubie questions or for those who want to know more about it :)

Finding-a-reason

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Momma On A Mission- Alexis Lynn’s Tubie Supply Fundraiser ❤❤❤

Link: https://www.gofundme.com/alexis-tube-backpack-fundraiser

Given the recent circumstances I have reached out for help, if you could like or share it would be truly appreciated!

Hello! My name is Alexis and I am 23, me and my fiance have a one year old son, Caiden. 8 months ago I was diagnosed with gastroparesis, i’ll explain below but it causes me to have to rely on 24 hours enteral nutrition. Im a stay at home mom and due to my recent hospital stay funds are tight and keeping bills paid and caiden well taken care of has been top priority. Since making the adjustment ive realized three things.  1. A rectagular tube bag digging into my spine 24 hours a day is immensely painful, especially when I have back problems already. 2. Babies really really love cords, and tubes, and wheels which is essentially all the medical equipment I use. 3. Most tape causes blisters and tape must be used to hold my gj tube in place. I am working to raise money to buy a tube feeding backpack that will fit my needs and allow me to run my feeds while caring for my son, and dylan is at work. I’ll be working to raise it as well and setting as much money aside as I can but I could really use your support. Even a dollor or two brings me closer to my goal and is immensly appreciated. All money will go to buying a tubie backpack to fit my needs and an IV pole with a wheel lock, as my current one does not fit through doorways and makes our house hard to access. Sharing is also greatly appreciated thank you for your support! Severe Idopathic Gastroparesis, is to put it simply, complete and permanent stomach paralysis with no definitive cause of what brought it on, though they have theories. Its been 8 months that ive been dealing with this. I didnt see a specialist until nearly 6 months into it, because for any of you who know my health history, ive spent alot of my life in hospital, and after just regaining some form of normalcy, I wasnt mentally prepared to go through all the testing and being told how my body is failing me again. I started researching and all of my symptoms matched, getting full after a couple bites of food, losing 85 lbs in 7 months, constant nausea and vomiting, always starving but if I ate I was left curled up in pain for hours. I wanted to eat, desperately. But everytime I did I got sick. About 6 months in I lost all my energy, I could eat less than my one year old son and I was desperate for some sort of relief. So I went to a specialist and after lots of testing, they confirmed that I had Severe Ideopathic Gastroparesis and almost 0 motility in my stomach. I had spent months researching my options, medications for mild gastroparesis, meds i was allergic to, gastroparesis basic diet, gastric pacemakers, digestive enzymes, botox of the stomach, homeopathic remedies for mild cases, and lastly permanent feeding tubes and tpn as a last resort if all else fails. There are very few desireable options in my case and with my other health stuff. I went in for my follow up to explore my other options and had emergency labs drawn because upon arrival my heart rate was 37 bpm and I was very weak. I was directly admitted and my labs showed severe malnutrition, my potassium was 2.6, and I could’ve gone into cardiac arrest at any point. They gave me bags of saline and electrolytes, placed an NJ tube for nutrition, and did more tests and tried an IV antibiotic that can stimulate the stomach which did not work. It came to a point where in order to get home and stay alive I would need to have permanent feeding tube placed that bypasses my stomach and allows me to get nutrition without it getting stuck. I am on it 24 hours a day from a tube in my abdomen with a backpack. Essentially liquids are fine because the can exit the stomach with gravity alone. Until theres new research this is my option if i want to stay alive and be there for my family which I do with all of my being. As you can see from some of my pictures, my family is my world, I fight everyday for them. If those of you who can, can join with me and help make this transition a little easier this momma would definitely appreciate it. Thank you so much for your support ❤❤❤

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Decided to bite the bullet and take a pic of my tube for those asking! For those of you who would like to read about my gastroparesis journey, or to share or donate click the link below. I am 23 and adjusting enteral nutrition after being diagnosed with severe gastroparesis. My inbox is open for any tubie questions or for those who want to know more about it :) Finding-a-reason https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Momma On A Mission- Alexis Lynn’s Tubie Supply Fundraiser ❤❤❤

Link: https://www.gofundme.com/alexis-tube-backpack-fundraiser

Given the recent circumstances I have reached out for help, if you could like or share it would be truly appreciated!

Hello! My name is Alexis and I am 23, me and my fiance have a one year old son, Caiden. 8 months ago I was diagnosed with gastroparesis, i’ll explain below but it causes me to have to rely on 24 hours enteral nutrition. Im a stay at home mom and due to my recent hospital stay funds are tight and keeping bills paid and caiden well taken care of has been top priority. Since making the adjustment ive realized three things.  1. A rectagular tube bag digging into my spine 24 hours a day is immensely painful, especially when I have back problems already. 2. Babies really really love cords, and tubes, and wheels which is essentially all the medical equipment I use. 3. Most tape causes blisters and tape must be used to hold my gj tube in place. I am working to raise money to buy a tube feeding backpack that will fit my needs and allow me to run my feeds while caring for my son, and dylan is at work. I’ll be working to raise it as well and setting as much money aside as I can but I could really use your support. Even a dollor or two brings me closer to my goal and is immensly appreciated. All money will go to buying a tubie backpack to fit my needs and an IV pole with a wheel lock, as my current one does not fit through doorways and makes our house hard to access. Sharing is also greatly appreciated thank you for your support! Severe Idopathic Gastroparesis, is to put it simply, complete and permanent stomach paralysis with no definitive cause of what brought it on, though they have theories. Its been 8 months that ive been dealing with this. I didnt see a specialist until nearly 6 months into it, because for any of you who know my health history, ive spent alot of my life in hospital, and after just regaining some form of normalcy, I wasnt mentally prepared to go through all the testing and being told how my body is failing me again. I started researching and all of my symptoms matched, getting full after a couple bites of food, losing 85 lbs in 7 months, constant nausea and vomiting, always starving but if I ate I was left curled up in pain for hours. I wanted to eat, desperately. But everytime I did I got sick. About 6 months in I lost all my energy, I could eat less than my one year old son and I was desperate for some sort of relief. So I went to a specialist and after lots of testing, they confirmed that I had Severe Ideopathic Gastroparesis and almost 0 motility in my stomach. I had spent months researching my options, medications for mild gastroparesis, meds i was allergic to, gastroparesis basic diet, gastric pacemakers, digestive enzymes, botox of the stomach, homeopathic remedies for mild cases, and lastly permanent feeding tubes and tpn as a last resort if all else fails. There are very few desireable options in my case and with my other health stuff. I went in for my follow up to explore my other options and had emergency labs drawn because upon arrival my heart rate was 37 bpm and I was very weak. I was directly admitted and my labs showed severe malnutrition, my potassium was 2.6, and I could’ve gone into cardiac arrest at any point. They gave me bags of saline and electrolytes, placed an NJ tube for nutrition, and did more tests and tried an IV antibiotic that can stimulate the stomach which did not work. It came to a point where in order to get home and stay alive I would need to have permanent feeding tube placed that bypasses my stomach and allows me to get nutrition without it getting stuck. I am on it 24 hours a day from a tube in my abdomen with a backpack. Essentially liquids are fine because the can exit the stomach with gravity alone. Until theres new research this is my option if i want to stay alive and be there for my family which I do with all of my being. As you can see from some of my pictures, my family is my world, I fight everyday for them. If those of you who can, can join with me and help make this transition a little easier this momma would definitely appreciate it. Thank you so much for your support ❤❤❤

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

I hope you dont mind but given our recent situation ive reached out for help! Started a fundraiser for some tube/medical supplies that essentially make 24 hour feeds less painful and easier with chasing around the little guy. Anyone who can help or share would be greatly appreciated!!!

https://www.gofundme.com/alexis-tube-backpack-fundraiser

[finding-a-reason]

Reblog so you make enough money to cover your bills .

#luckymoney

[finding-a-reason]

skinnymeme:

it’s completely acceptable to stay alive for tiny reasons. because you want to hear your favorite song one more time. because your dog will miss you if you leave. because the moon is just too pretty to never see again. because you haven’t seen the next season of a really good tv show. because you want to see the christmas lights this year. if you’re alive, you’re doing enough. if you’re surviving, i’m proud of you.

[finding-a-reason]

Can I just die now? I'm tired, tired of the lies, tired of the bullshit, tired of staying strong for people that don't care. I just want to be done