The thing about chronic pain is once youâve had it for long enough you canât remember what not being in pain felt like. You only recognize it as ânot as debilitating as usualâ or âvery much more fucking debilitating than usualâ so you have no grasp anymore of what itâs like to do things without factoring your pain levels in.
People who arenât in constant pain think that if youâre having a âgood pain dayâ it means youâre not in pain and should be able do to things. But having a good pain day doesnât mean youâre not in pain, it means youâre in less than excruciating pain. Maybe your pain is low enough that you can ignore it.
But people who donât live in pain donât understand that ignoring it takes energy, and even if itâs low enough that we can ignore it doesnât mean itâs gone and it doesnât mean we want to go out and do a bunch of things that will make it so bad it cannot be ignored.
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i like the idea of having a step-by-step schedule (like breakfast at x time, study at x time, etc.) but whoâs gonna regulate that shit? me? that bitch is a toddler
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Iâve been having a rough couple weeks
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Hey maybe people should actually just get free treatment to begin with? đ€đ€
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When someone asks you if youâre feeling better yet:
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Things my body canât tolerate:
- Heat
- Cold
- Humidity
- Rain
- Extreme Dryness
- Over exertion
- Mild exercise
- No exercise
- Standing up
- Sitting down
- Lying flat
- Lying on my side
- Lying on my back
- Lying on my stomach
- Sleep
- No sleep
- Eating
- Not eating
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Definitions of âIâm fineâ from someone with chronic pain
Iâm having a relatively low pain day
I feel normal but donât want to bum you out
Iâm hurting a lot but I donât want you to think Iâm complaining
Iâm hurting a lot but youâre only asking to be nice so I wonât tell you that
Iâm not doing fine but Iâm trying to convince myself I am
I am too tired to tell you how I actually feel
It makes me too upset to tell you how I actually feel
I have forgotten what âfineâ is so I use the word and I hope you donât question it
This list is by no means complete, these are just what I find most often in my life
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Anyone else get that feeling?
I got a spur of the moment tattoo yesterday just to remember what normal pain is like and how it can heal and get better
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Guys, look. They finally made a baby stroller for wheelchair-bound mothers. This is so important.
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Will always reblog
US Helplines:
Depression Hotline: 1-630-482-9696
Suicide Hotline: 1-800-784-8433
LifeLine: 1-800-273-8255
Trevor Project: 1-866-488-7386
Sexuality Support: 1-800-246-7743
Eating Disorders Hotline: 1-847-831-3438
Rape and Sexual Assault: 1-800-656-4673
Grief Support: 1-650-321-5272
Runaway: 1-800-843-5200, 1-800-843-5678, 1-800-621-4000
Exhale: After Abortion Hotline/Pro-Voice: 1-866-4394253
Child Abuse: 1-800-422-4453
UK Helplines:
Childline (for anyone under 18 with any problem): 08001111
Mind legal advice (for people who need mental-health related legal advice): 0300 466 6463
[email protected]
b-eat eating disorder support: 0845 634 14 14 (only open Mon-Fri 10.30am-8.30pm and Saturday 1pm-4.30pm) e-mail:
[email protected]
b-eat youthline (for under 25âs with eating disorders): 08456347650 (open Mon-Fri 4.30pm - 8.30pm, Saturday 1pm-4.30pm)
Frank (information and advice on drugs): 0800776600
Drinkline: 0800 9178282
Rape Crisis England & Wales: 0808 802 9999 1(open 2 - 2.30pm 7 - 9.30pm) e-mail
[email protected]
Rape Crisis Scotland: 08088 01 03 02 every day, 6pm to midnight
India Self Harm Hotline: 00 08001006614
India Suicide Helpline: 022-27546669
Kids Help Phone (Canada): 1-800-668-6868
FREE 24/7 suicide hotlines:
Argentina: 54-0223-493-0430
Australia: 13-11-14
Austria: 01-713-3374
Barbados: 429-9999
Belgium: 106
Botswana: 391-1270
Brazil: 21-233-9191
China: 852-2382-0000
(Hong Kong: 2389-2222)
Costa Rica: 606-253-5439
Croatia: 01-4833-888
Cyprus: 357-77-77-72-67
Czech Republic: 222-580-697, 476-701-908
Denmark: 70-201-201
Egypt: 762-1602
Estonia: 6-558-088
Finland: 040-5032199
France: 01-45-39-4000
Germany: 0800-181-0721
Greece: 1018
Guatemala: 502-234-1239
Holland: 0900-0767
Honduras: 504-237-3623
Hungary: 06-80-820-111
Iceland: 44-0-8457-90-90-90
Israel: 09-8892333
Italy: 06-705-4444
Japan: 3-5286-9090
Latvia: 6722-2922, 2772-2292
Malaysia: 03-756-8144
(Singapore: 1-800-221-4444)
Mexico: 525-510-2550
Netherlands: 0900-0767
New Zealand: 4-473-9739
New Guinea: 675-326-0011
Nicaragua: 505-268-6171
Norway: 47-815-33-300
Philippines: 02-896-9191
Poland: 52-70-000
Portugal: 239-72-10-10
Russia: 8-20-222-82-10
Spain: 91-459-00-50
South Africa: 0861-322-322
South Korea: 2-715-8600
Sweden: 031-711-2400
Switzerland: 143
Taiwan: 0800-788-995
Thailand: 02-249-9977
Trinidad and Tobago: 868-645-2800
Ukraine: 0487-327715
(Source)
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