nevertrustadoctorwho

[nevertrustadoctorwho]

Never trust a doctor who looks at you and says "you can't be this sick at 23" and then does a physical exam on your EDS joints and tries to say you don't have EDS because its not as bad as this one person they knew. And THEN says you have scoliosis, your pelvis is out of whack and you have a limb length difference and they can fix ALL of that in one adjustment! (I suspected the scoliosis, and the limb length difference makes Everything Make Sense, but. Those ARE NOT fixable with an adjustment!!!!)

Bonus points: when they saw the pelvis, they said "I bet you veer to the side when you walk" and I said "No. I walk STRAIGHT. I am a DANCER." and they said "I know you think you do"

Ah yes. Age famously keeps you from being sick, as we all know. (/sarc)

Also, scoliosis is pretty common in certain forms of EDS. So there is that.

[nevertrustadoctorwho]

Hi I'm the anon from this post. (https://www.tumblr.com/nevertrustadoctorwho/786980702649548800/never-trust-a-doctor-who-spends-the-entire?source=share) and I want to note two things. She was not changing the meds herself. She spent the entire appointment telling me that I should tell my psychiatrist to change those meds. There was no reason other than losing weight because the medicine was working. (I never said it wasn't.)

I don't know about you, but I think it's better to trust the psychiatrist with my psyche meds. The ONLY problem with the medicine was that it caused nausea as a side effect, but I also was already diagnosed with several stomach conditions. I needed a new referral because my old gastro doc left + a long period of issues with insurance preventing me from seeing a new one. I ended up getting ONE med changed and it wasn't the ones she wanted me to change, it was a stomach med.

I won't blame anyone for not knowing that because I didn't mention it, or that I had prediagnosed problems. I just didn't think it was important.

But even if the meds WEREN'T working, that wasn't what I was there for. It was for a referral to a gastro doctor which I had to go to another doctor for because she ignored what I was there for the entire time.

Hope this cleared things up! By the way, I did get the referral! My new gastro doctor is a sweetheart who has been explaining my conditions very clearly and works with me.

This does. I expected it was a situation kind of like that, but some people see the word "fatphobia" and see red and want to assume the worst of the anon. Unfortunately it seems like the "respect women's choices" and "bodily autonomy" site has a bit of a hot button response to that term still! I'm glad you have a better doctor now.

[nevertrustadoctorwho]

The point isn't that changing meds isn't normal. The point is that ignoring a chronic illness and not referring out when it's something that you're not qualified to treat is medical neglect. Anon still needs to have their concerns addressed even if the doctor thinks they need to lose weight.

Anon added some context here.

Never trust a doctor who spends the entire appointment telling you that you should change your combination of meds to a DIFFERENT combination of meds just so you can lose weight.

(Not even what the appointment was for. I was trying to get a referral to a gastro doctor so I could get meds for my chronic stomach issues)

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[nevertrustadoctorwho]

Do not trust a doctor who tells you that your vaginal bleeding that has been going on for 3 months straight is 'just normal spotting'. No, seriously. It could literally be cancer.

That's so dangerous to ignore, wow.

[nevertrustadoctorwho]

Never trust a doctor who spends the entire appointment telling you that you should change your combination of meds to a DIFFERENT combination of meds just so you can lose weight.

(Not even what the appointment was for. I was trying to get a referral to a gastro doctor so I could get meds for my chronic stomach issues)

Anon added context here.

[nevertrustadoctorwho]

"I have come to believe with fervent passion that the focus on multiple personalities is missing the point. Dissociative identity disorder is not rare; it is not unique; it is not special. It is just a logical set of symptoms to some terrible trauma. It is a normal way to react to very abnormal childhood treatment."

- Carolyn Spring

[nevertrustadoctorwho]

An article I wrote on my blog about explaining food intolerance to people, with tips at the bottom for handling difficult conversations with people who don't believe you.

[nevertrustadoctorwho]

Same with people diagnosed with bipolar. A lot of the medications are the same, anyway.

Too many people commenting on my posts that are critical of antipsychotics with variations of "I was prescribed antipsychotics I didn't want and it's medical abuse to do that to someone who isn't actually schizophrenic-" and it's like... Guys you do know that forcibly medicating diagnosed schizophrenics is just as wrong and abusive, right? Right??

[nevertrustadoctorwho]

Never trust a doctor who insists that institutions aren’t a thing anymore when you tell them your worst fear is ending up in one (because other doctors have threatened to place you in one for the rest of your life (don’t trust those doctors either))

Yeah, that's just gaslighting.

[nevertrustadoctorwho]

Never trust a therapist that tells you you’re hopeless and there’s no point in helping you because you’ll never amount to anything (especially if you’re 11 and this is said in front of your abusive mother)

Well, we all know who was paying that one...

[nevertrustadoctorwho]

never trust a doctor that goes against an MRI reviewed by a neurosurgeon and three other neurologists during the hospitalisation that diagnosed you with trigeminal neuralgia because you have the usual symptom of constant pain and too much eloquence for him to believe you have such a severe disorder it's actually just work stress and absence of spirituality. and once you finally cut him that you will not pay an expensive appointment to be told to go to church he throws a fit calls you intolerant and "too aggressive" to be put any form of pain relief treatment anyway

Gotta love the bias against anyone who's deemed "high functioning".

[nevertrustadoctorwho]

once I went to a psychiatrist and she told me I wasn't sick, I just needed to do yoga. I was later diagnosed with borderline. if you know something's wrong, DON'T TRUST THEM!

Geez. Yeah, yoga does not magically fix trauma lol.

[nevertrustadoctorwho]

Never trust a doctor who suggest weight loss pills and then says “well, now that I’ve suggested it you’ll change your mind eventually” when you refuse

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[nevertrustadoctorwho]

Never trust a doctor who asks if you’ve tried sleeping less when you explain that you’re so tired that you need 12-14 hours of sleep a day to function

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[nevertrustadoctorwho]

Cross-posting this post here because I think it's important to talk about how many people are using AI chatbots for medical advice. It's not a good thing to become reliant upon.

[nevertrustadoctorwho]

This! They need to verify you don't have other autoimmune conditions or similar.

Never trust a doctor that diagnoses you with fibromyalgia without testing you for any differential diagnoses.

This happens way too often. It really is treated as the "everything we don't want to investigate further" diagnosis sometimes.

[nevertrustadoctorwho]

Never trust a doctor who finds lesions in your brain and then says “well, those could be benign” instead of investigating further. Why did we even do the MRI if he wasn’t going to acknowledge anything we found???

What the hell that's awful.