pokeleyn

[pokeleyn]

"The gap between high-functioning and low-functioning Autistic people is too wide. This is why they need to be two separate diagnoses."

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

There is no gap, there are people there.

THERE IS NO GAP, THERE ARE PEOPLE THERE!

MSN Autistic people exist. Separating the spectrum is to leave us behind. Stop forgetting about us.

[pokeleyn]

i think doing it scared is actually really brave

[pokeleyn]

I hate having many words inside of my brain and not having the ability to write it out in a way i like/makes sense/is what i mean.

If i could make all my lots of jumbled of words in my head make sense then, i would say alot of good things that are very *insert articulate word for what i feel in my head that i can't express*

[pokeleyn]

i was diagnosed with OCD when i was a pre teen but never talk about it because the way it effects me can be really intense. and i am not sure if this is the same for most people with OCD but the more i feed into my compulsions to quiet my intrusive thoughts the worse my OCD overall gets. also seeing or hearing people talk about specific parts of they OCD can make my own OCD worse too. that is why i just never talk about it.

[pokeleyn]

i think it would be cool to be able to say a few things. even if the quality of me speaking was not the best and i still used aac most the time. Just a random thought i get sometimes.

[pokeleyn]

i have been addicted to watching tornado siren videos for the past week. i can not stop. i just love them so much.

[pokeleyn]

‘we dont need autism awareness anymore’

but this month april 2025 we are having to say ‘autism is a disability’ and its still argued against

we need awareness and acceptance and we cant have acceptance before we have awareness. people are not as aware of autism as you think. awareness is not just knowing autism exists

[pokeleyn]

i really like pinterest

[pokeleyn]

I’m gonna say this, and I’m taking a deep breath as I say this because it’s probably going to piss off some people lol.

Unless you’re nonspeaking/nonverbal, then you don’t get it. Yes, even if you’re a part time AAC user. Yes, even if you’re an occasional AAC user. Yes, even if you use AAC the majority of the time but are verbal or demiverbal or semiverbal.

You don’t get it. You don’t get what it’s like to rely completely on a device. On other people. You don’t get the fear, the anxiety, the loneliness, the pain. You don’t get the ableism we face. Or the fact that we can’t experience certain connections.

You don’t get that I can’t say thank you and therefore get weird looks. You don’t get that I can’t say please, or sorry, or anything like that. You won’t get what it’s like to have to make your parent your medical proxy because you can’t make doctors appointments yourself, so therefore they know everything about your medical history. You have no privacy. You don’t get what it’s like.

You don’t get the fear of seeing your devices battery slowly die because you’ve been using it but you still have hours left of class or you are out in public and know you need something to communicate but your device will inevitably die on you.

You don’t get what it’s like to go into the AAC community and see part time users be risen up and supported, then for full time users to be ignored and and told our experiences are so different that they shouldn’t even be talked about in these spaces because it leaves people out.

You don’t get what it’s like to be beyond frustrated with other AAC users because although they’re apart of our community, they’re forcing themselves into our conversations as full time nonverbal/nonspeaking users. You don’t get that frustration. The want to scream.

You don’t get what it’s like to see people push themselves into your community for only their self gain. For their own selfishness. For the sake of saying “I’m an AAC user too!!!! I can say these things!!” When no…I’m not talking about you. I’m not talking about part time AAC users.

I feel like people don’t realize that yes, AAC users are a minority themselves, and a marginalized community, but full time users, they’re a marginalized community and a minority within the very community that they fucking built.

Part time AAC users, occasional AAC users, people who are not nonspeaking/nonverbal, it’s time to start realizing your own privilege within the community. It’s time to start letting us talk too. It’s time to stop forcing your way into our conversations. It’s time to listen to us.

I get increasingly frustrated as the days go on, and I’m tired of being frustrated.

[pokeleyn]

#aac

Autism Acceptance Month 2025 AAC app sales

That time of year again! Here's the infographic from Lauren (Enders) Gonzalez (and a link to the Facebook post).

[pokeleyn]

i never know what to post haha i am still on here I just have no words for anything so i have not posted much

[pokeleyn]

my therapist tell me today it will be 3 weeks before i see her again. i feel very sad. i cried. i really like going and also just breaking routine makes me feel horrible in side.

[pokeleyn]

[pokeleyn]

i really would love to be outdoors more in nature and look at birds and walk around and stuff. maybe we can go to some nature preserves. a lot of times i am in the house but i do like being outside when it is warmer.

[pokeleyn]

i think roger from craig of the creek is my favorite character

[pokeleyn]

semi verbal person here:

stop trying to read people’s AAC while we’re crafting a sentence.

for context, that’s essentially the equivalent of reading someone’s mind while they’re trying to figure out what to say.

[pokeleyn]

i was sick all week but i think i am starting to feel better. i am resting some more today and watching some Carl the collector.