#Cornelia de Lange syndrome

[allkindsofadvocacy]

Find Me Friday: Alyssa, Lucia, & Christopher!

Logo that says Reece’s Rainbow Special Needs Adoption Support in blue, below a blue & yellow paint stroke rainbow graphic with a yellow Ukrainian trident symbol on the right half. In this series, each Friday I’m able, I want to share a different child or group of children who are available for adoption and listed through the adoption advocacy website Reece’s Rainbow. Please note, names used on…

[murderousink23]

05/11/2024 is National Technology Day 🇮🇳, National Twilight Zone Day 🇺🇸, National Babysitter's Day 🇺🇸, National Train Day 🚂🇺🇸, Cornelia De Lange Syndrome Awareness Day 🇺🇸, National Miniature Golf Day ⛳️🇺🇸, Stamp Out Hunger Food Drive Day 🇺🇸, Eat What You Want Day 🇬🇧

[mindblowingscience]

Birth defects affect about 3% of babies born in the United States each year. The work, published in the journal Science Advances, identified crucial genetic interactions during the earliest stages of embryonic development that predicted birth defects characteristic of Cornelia de Lange syndrome and may offer clues about the genetic origins of many types of birth defects. Cornelia de Lange Syndrome is a genetic condition that affects many parts of the body, characterized by distinctive facial features, growth delay, intellectual disability, and limb abnormalities. The syndrome is caused by mutations in genes involved in the regulation of gene expression and development.

Continue Reading.

[good-old-gossip]

Scores of the wounded and sick die due to Rafah crossing closure

Palestinian Territory - The ongoing closure of the Rafah land crossing, which connects the Gaza Strip to Egypt, has resulted in a dire humanitarian crisis for Palestinian civilians and has accelerated the genocide that has been taking place since 7 October.

By blocking the Rafah crossing, Israel has tightened its grip and imposed a crippling siege on the Gaza Strip, cutting it off from the outside world and resulting in the deaths of scores of injured and ill people. Additionally, the closure of the crossing has hindered the flow of humanitarian aid and medical supplies, further undermining the efforts of the few remaining local hospitals.

The closure of the Rafah crossing has made it impossible for more than 11,000 wounded people to get the urgent medical care they need outside the Gaza Strip, while over 10,000 cancer patients and at least 2,000 patients with other diseases—of whom about 750 are children—require treatment outside the Gaza Strip.

Fewer than 4,000 cancer patients have been granted permission to leave Gaza to receive treatment abroad since October 2023, according to officials at the Palestinian Ministry of Health in Gaza and medical relief organisations. However, in practice, only about 600 patients have done so, and the remaining patients currently face an uncertain future due to the closure of the Rafah crossing, knowing that the majority of cancer treatments are not available inside Gaza.

Mona Abdel Rahman, a woman in her late thirties, was waiting for her name to show up on the list of patients who were permitted to travel for breast cancer treatment when the Rafah crossing was closed. This left her back at the starting line, vulnerable to further decline in her health.

She was diagnosed with breast cancer three years ago, according to her husband Saeed, and was getting treatment in Jerusalem on occasion until the Israeli military attack started, which prevented her from leaving the Gaza Strip to continue her care. With her health continuing to deteriorate, they were waiting for permission for her to travel to Turkey at any time to finish her treatment; however, the closure of the Rafah crossing denied her that opportunity.

Cancer patients in the Gaza Strip lack access to hormonal or immunological treatments for their disease, as well as infrastructure for producing chemotherapy, at a time when they are living in shelter centres, medical facilities, or hospitals that are ill-equipped to care for cancer patients. This is due to the severe deterioration of the health system and the closure of the majority of the local hospitals.

Some children in Gaza suffer from rare diseases that call for special treatment and ongoing monitoring. Munir Al-Dahdouh, for example, is said by his family to have a rare genetic disorder called Cornelia de Lange Syndrome, which stunts his growth, results in congenital deformities, and causes him to lose limbs.

The family made progress in getting their sick child treated abroad, but all of their efforts were thwarted until further notice by the Israeli army's closure of the Rafah crossing.

Approximately 40% of the medical cases authorized to leave the Rafah crossing were exiting at a rate of approximately 40 cases per day prior to the Israeli army seizing control of the crossing.

In addition to the serious consequences of halting the entry of life-saving aid and fuel supplies required to continue humanitarian operations and run all essential sectors, including the health system, the ongoing closure of the Rafah crossing puts thousands of injured and ill people in the Gaza Strip in grave danger of dying, without access to essential treatment outside the Strip, and potentially doubling the number of critical medical cases and deaths as a result of delayed treatment.

Given the deficiency of medical services in the Gaza Strip as a result of Israel's genocide, which has destroyed most hospitals and health facilities and resulted in the deaths and incarceration of numerous doctors and medical personnel, an immediate international intervention is required to reopen the Rafah crossing and assure secure transit for civilians, particularly safe passage for the sick and wounded to allow them to receive life-saving treatment abroad.

As the occupying power in Gaza, Israel is blatantly violating international humanitarian law and committing war crimes when it deliberately punishes sick and injured civilians and when it fails to fulfill its legal obligations to provide medical care. These abuses must not be tolerated.

[annieandro]

Restless Foot Syndrome

Central Processing Unit Syndrome

Asperger Syndrome

Chronic Intestinal Pseudo Obstruction

Mowat Wilson Syndrome

Pitt Hopkins Syndrome

Charge Syndrome

Oppositional Defiant Disorder

Progressive Disease

Trisomy

Shortened Achilles Tendon

Arterial Venous Malformation

Schizophrenia

Anxiety

Stormme Syndrome

Panhypopituitarism

Adrenal Insufficiency

Bicuspid Aortic Valve

Chiari Malformation

Sensorineural Hearing Loss

Unknown Genetic Syndrome

Congenital Cytomegalovirus Infection

Catastrophic Epilepsy

Chromosomal Condition

Arthogryposis

Charcot Marie Tooth Disease

Disease Tuberose Sclerosis

End Stage Heart and Lung Disease

Spina Bifida

Hydrocephalus

Shaken Baby Syndrome

Cornelia De Lange Syndrome

Parry Romberg Syndrome

[scoutandvioletfan]

Restless Foot Syndrome

Central Processing Unit Syndrome

Asperger Syndrome Chronic Intestinal Pseudo Obstruction

Progressive Disease Guillain-Barre Syndrome

Myasthenia Gravis Liver Disease

Trisomy

Unknown Genetic Syndrome

Shortened Achilles Tendon Arterial Venous Malformation Schizophrenia

Anxiety Stormme Syndrome

Panhypopituitarism

Adrenal Insufficiency

Bicuspid Aortic Valve Chiari Malformation

Sensorineural Hearing Loss

Congenital Cytomegalovirus Infection

Mowat Wilson Syndrome

Pitt Hopkins Syndrome

Charge Syndrome

Oppositional Defiant Disorder

Catastrophic Epilepsy

Chromosomal Condition

Arthogryposis

Charcot Marie Tooth Disease

Disease Tuberose Sclerosis

Williams Syndrome

Cornelia De Lange Syndrome

Apert Syndrome

Parry Romberg Syndrome

[brookston]

Holidays 5.11

Holidays

Aso ote Tala Lei (Gospel Day; Tuvalu)

Azores Day

Blow Bubbles For Your Cat Day

Bob Marley Day (Jamaica)

Christmas Banned Day (Puritans; 1659)

Day of the Military Police of the National Armed Forces (Indonesia)

Empty the Tanks Day

Feynman Day (On “Eureka”)

511 Day

Fritillary Day (French Republic)

Hawthorn Day

Human Rights Day (Vietnam)

International Strange Music Festival

International Technology Day

Joan of Arc Day (Orleans, France)

Lokadagur (Iceland)

The Long and Winding Road Day

Mata Tirtha Aunsi (Mother’s Day; Nepal)

Military Police Day (Indonesia)

Miskolc Day (Hungary)

Mixed Race Irish Day

Moose Hide Campaign Day (Canada)

National Deer Association Giving Day

National Foam Rolling Day

National Forest Planting Day (Russia)

National Girls Learning Code Day

National Hairy Nosed Wombat Day (Australia)

National Wear Red Pants Day

National Technology Day (India)

National Tree Planting Day (Malaysia)

Old May Eve

Parthenope Asteroid Day

Richard Feynman Day

Sex Difference in Health Awareness Day

Somerset Day (UK)

Tubeless Tire Day

Twilight Zone Day

Victoria Sponge Day

Witching Day (Isle of Man)

World Ego Awareness Day

World Keffiyeh Day

Food & Drink Celebrations

Chocolate Ball Day (Sweden)

Eat What You Want Day [also 12.16]

Eat Without Guilt Day

Hostess Cupcake Day

National Mocha Torte Day

Independence & Related Days

Imvrassia (Declared; 2011) [unrecognized]

Minnesota Statehood Day (#32; 1858)

Siam (Changed its name to Thailand; 1949)

2nd Saturday in May

American Indian Day [2nd Saturday]

Birth Mother's Day [2nd Saturday]

Black Fae Day [2nd Saturday]

Brunch for Lunch Day [Saturday before Mother's Day]

Cook With Your Kids Day [2nd Saturday]

Cornelia de Lange Syndrome Awareness Day [2nd Saturday]

Duckling Day (Boston) [2nd Saturday]

Global Big Day [2nd Saturday]

International Lugger Falcon Awareness Day [2nd Saturday]

International Migratory Bird Day [2nd Saturday]

Jamestown Day (Virginia) [2nd Saturday]

Letter Carriers "Stamp Out Hunger" Food Drive Day [2nd Saturday]

Martin Z. Mollusk Day (Ocean City, NJ) [Saturday of 1st Full Week]

Mother Ocean Day [Saturday before 2nd Sunday]

National Animal Disaster Preparedness Day [2nd Saturday]

National Archery Day [2nd Saturday]

National Babysitters Day [Saturday before Mother's Day]

National Bake Sale Day [2nd Saturday]

National Balloon Day (UK) [2nd Saturday]

National Cycling Day (Netherlands) [2nd Saturday]

National Dog Mom’s Day [Saturday before Mother's Day]

National Mild Day (UK) [2nd Saturday]

National Miniature Golf Day [2nd Saturday]

National Train Day [2nd Saturday]

National Windmill Day (Netherlands) [2nd Saturday]

Native American Day (f.k.a. American Indian Day) [2nd Saturday]

Prairie Appreciation Day [2nd Saturday]

Stay Up All Night Day [2nd Saturday]

Sun Awareness Day [2nd Saturday]

World Belly Dance Day [2nd Saturday]

World Binturong Day [2nd Saturday]

World Bonsai Day [2nd Saturday]

World Buckfast Day [2nd Saturday]

World Collage Day [2nd Saturday]

World Fair Trade Day [2nd Saturday]

World Migratory Bird Day (UN) [2nd Saturday]

Yale Day of Service [2nd Saturday]

Weekly Holidays beginning May 11 (1st Full Week)

Armed Forces Week (thru 5.18) [2nd Saturday to 3rd Sunday]

Brain Injury Awareness Week (thru 5.17)

National Mills Weekend (UK; thru 5.12) [2nd Saturday & Sunday]

World Migratory Bird Weekend (thru 5.12) [2nd Saturday & Sunday]

Festivals Beginning May 11, 2024

Bacon Festival (McDonale, Tennessee)

Beer, Bourbon & BBQ Festival DC Metro (Washington D.C.)

Brews, Boils & Bubbles (New Orleans, Louisiana)

Buzz B-Q (North Little Rock, Arkansas)

Cochon de Lait Festival (Mansura, Louisiana)

Dillsburg PickleFest (Dillsburg, Pennsylvania)

Fairy Society for the Prevention of Cruelty to Royal Humans Foundation Day (Shamanism)

Hiawassee Highlands Wine Festival (Hiawassee, Georgia)

Hickory Hops Brewer's Festival (Hickory, North Carolina)

La Ceiba Carnival (La Ceiba, Honduras) [thru 5.25]

Lotus Lantern Festival (Seoul, South Korea) [thru 5.15]

Maryland Craft Beer Festival (Frederick, Maryland)

MT Brewers Spring Rendezvous (Bozeman, Montana)

Mud Bug Boil Off (Thibodaux, Louisiana)

'Of Ale & History Beer Festival (Middletown, Virginia)

Oz Comic-Con (Perth, Australia) [thru 5.12]

Paradise Chocolate Fest (Paradise, California)

Paso Robles Olive Festival & Lavender Festival (Paso Robles, California)

Rip Van Winkle Wine, Brew & Beverage Festival (Catskill, New York)

Stilwell Strawberry Festival (Stilwell, Oklahoma)

St. Louis Microfest (St. Louis, Missouri)

Saint Pontius Fair (Barcelona, Spain)

Taste of Pennsylvania (York, Pennsylvania)

Verde Valley Wine Festival (Cottonwood, Arizona)

Washington State Chili Cookoff (Ocean Shores, Washington) [thru 5.12]

Westminster Kennel Club Dog Show (New York, New York)

West Virginia Strawberry Festival (Buckhannon, West Virginia) [thru 5.12]

Feast Days

Alfred Stevens (Artology)

Ansfrid (Christian; Saint)

Anthimus of Rome (Christian; Saint)

Asaph (Christian; Saint)

Chester Gould (Artology)

Comgall (Christian; Saint)

The English Carthusian Martyrs (Christian; Martyrs)

Francis di Girolamo (Christian; Saint)

Gangulphus of Burgundy (a.k.a. Gengulf; Christian; Saint)

Gladys Rockmore Davis (Artology)

Greet the Sun Day (Starza Pagan Book of Days)

Ice Saints (Europe)

Ignatius of Laconi (Christian; Saint)

Jean-Léon Gérôme (Artology)

King of the Elements (Celtic Book of Days)

Majolus of Cluny (a.k.a. Maieul; Christian; Saint)

Mamertus, the first of the Ice Saints (Christian; Saint) [Three Chilly Saints #1]

Ma Zu (Goddess of the Sea’s Birthday; Buddhism, Taoism)

Nimnim (Muppetism)

Nisga'a Day (Nisga'a Nation/British Columbia)

Paul Nash (Artology)

Paulus Aemilius (Positivist; Saint)

Radunitsa (Ancestors’ Veneration Day; Belarus, Russian Christians, Thomas Sunday Slavs)

Salvador Dali Day (Artology; Church of the SubGenius; Pastafarian; Saint)

Syn’s Blot (Pagan)

Walter of L’Esterp (Christian; Saint)

Lucky & Unlucky Days

Lemuria (Day 2 of 3; Ancient Rome) [Unlucky to Marry.]

Prime Number Day: 131 [32 of 72]

Sensho (先勝 Japan) [Good luck in the morning, bad luck in the afternoon.]

Premieres

Ahab the Arab, by Ray Stevens (Novelty Song; 1962)

Cats (UK Musical Play; 1981)

Cooked, by Michael Pollan (Book; 2013)

Dark Shadows (Film; 2012)

Fantastic Planet (Animated Film; 1973)

Firestarter (Film; 1984)

Fox-Terror (WB MM Cartoon; 1957)

Go Down, Moses, by William Faulkner (Short Stories; 1942)

Good-Bye Mr. Moth (Andy Panda Cartoon; 1942)

Higher Ground, recorded by Stevie Wonder (Song; 1973)

The Incredible Journey, by Sheila Burnford (Novel; 1960)

The King's Generally Daphne du Maurier (Novel; 1946)

The Kissing Booth (Film; 2018)

A Knight’s Tale (Film; 2001)

M (Film; 1931)

MacArthur Park, by Richard Harris (Song; 1968)

The Natural (Film; 1984)

Penny Dreadful (TV Series; 2014)

Poor Little Me (Happy Harmonies Cartoon; 1935)

Road Trip (Film; 2000)

Second Variety, by Philip K. Dick (Novella; 1953)

Sniffles Takes a Trip (WB MM Cartoon; 1940)

Swab the Duck (Noveltoons Cartoon; 1956)

Tales of Brave Ulysses, recorded by Cream (Song; 1967)

Turn Coat, by Jim Butcher (Novel; 2009)

28 Weeks Later (Film; 2007)

Water Babies (Disney Silly Symphonies Cartoon; 1935)

Wolf! Wolf! (Mighty Mouse Cartoon; 1944)

Woodstock (Soundtrack Album; 1970)

Woolen Under Where (WB MM Cartoon; 1963)

Today’s Name Days

Gangolf, Joachim, Mamertus (Austria)

Kiril, Kirila, Metodi (Bulgaria)

Franjo, Mamerto (Croatia)

Svatava (Czech Republic)

Mamertus (Denmark)

Leevo, Liivar, Liivo (Estonia)

Osmo (Finland)

Estelle, Mayeul (France)

Joachim, Mamertus (Germany)

Argyris, Armodios, Dioskouridis, Methodios, Olympia (Greece)

Ferenc (Hungary)

Achille, Fabio, Fiorenzo, Marziale, Stella (Italy)

Karmena, Manfreds, Milda (Latvia)

Mamertas, Miglė, Pilypas, Skirgaudas (Lithuania)

Magda, Malvin (Norway)

Adalbert, Benedykt, Filip, Franciszek, Iga, Ignacja, Ignacy, Lew, Lutogniew, Mamert, Mira, Żegota (Poland)

Chiril, Metodie, Mochie (România)

Blažena (Slovakia)

Fabio, Francisco (Spain)

Märit, Märta (Sweden)

Asa, Ervin, Erwin, Irvin, Irving, Irwing, Marlo, Marlon, Marlow, Marvin, Merle, Merlin, Mervin (USA)

Today is Also…

Day of Year: Day 131 of 2024; 235 days remaining in the year

ISO: Day 5 of week 19 of 2024

Celtic Tree Calendar: Saille (Willow) [Day 27 of 28]

Chinese: Month 4 (Ji-Si), Day 3 (Jia-Xu)

Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]

Hebrew: 2 Iyar 5784

Islamic: 2 Dhu al-Qada 1445

J Cal: 11 Magenta; Foursday [11 of 30]

Julian: 27 April 2024

Moon: 15%: Waxing Crescent

Positivist: 19 Caesar (5th Month) [Paulus Aemilius]

Runic Half Month: Ing (Expansive Energy) [Day 1 of 15]

Season: Spring (Day 53 of 92)

Week: 1st Full Week of May

Zodiac: Taurus (Day 21 of 31)

[brookstonalmanac]

Holidays 5.11

Holidays

Aso ote Tala Lei (Gospel Day; Tuvalu)

Azores Day

Blow Bubbles For Your Cat Day

Bob Marley Day (Jamaica)

Christmas Banned Day (Puritans; 1659)

Day of the Military Police of the National Armed Forces (Indonesia)

Empty the Tanks Day

Feynman Day (On “Eureka”)

511 Day

Fritillary Day (French Republic)

Hawthorn Day

Human Rights Day (Vietnam)

International Strange Music Festival

International Technology Day

Joan of Arc Day (Orleans, France)

Lokadagur (Iceland)

The Long and Winding Road Day

Mata Tirtha Aunsi (Mother’s Day; Nepal)

Military Police Day (Indonesia)

Miskolc Day (Hungary)

Mixed Race Irish Day

Moose Hide Campaign Day (Canada)

National Deer Association Giving Day

National Foam Rolling Day

National Forest Planting Day (Russia)

National Girls Learning Code Day

National Hairy Nosed Wombat Day (Australia)

National Wear Red Pants Day

National Technology Day (India)

National Tree Planting Day (Malaysia)

Old May Eve

Parthenope Asteroid Day

Richard Feynman Day

Sex Difference in Health Awareness Day

Somerset Day (UK)

Tubeless Tire Day

Twilight Zone Day

Victoria Sponge Day

Witching Day (Isle of Man)

World Ego Awareness Day

World Keffiyeh Day

Food & Drink Celebrations

Chocolate Ball Day (Sweden)

Eat What You Want Day [also 12.16]

Eat Without Guilt Day

Hostess Cupcake Day

National Mocha Torte Day

Independence & Related Days

Imvrassia (Declared; 2011) [unrecognized]

Minnesota Statehood Day (#32; 1858)

Siam (Changed its name to Thailand; 1949)

2nd Saturday in May

American Indian Day [2nd Saturday]

Birth Mother's Day [2nd Saturday]

Black Fae Day [2nd Saturday]

Brunch for Lunch Day [Saturday before Mother's Day]

Cook With Your Kids Day [2nd Saturday]

Cornelia de Lange Syndrome Awareness Day [2nd Saturday]

Duckling Day (Boston) [2nd Saturday]

Global Big Day [2nd Saturday]

International Lugger Falcon Awareness Day [2nd Saturday]

International Migratory Bird Day [2nd Saturday]

Jamestown Day (Virginia) [2nd Saturday]

Letter Carriers "Stamp Out Hunger" Food Drive Day [2nd Saturday]

Martin Z. Mollusk Day (Ocean City, NJ) [Saturday of 1st Full Week]

Mother Ocean Day [Saturday before 2nd Sunday]

National Animal Disaster Preparedness Day [2nd Saturday]

National Archery Day [2nd Saturday]

National Babysitters Day [Saturday before Mother's Day]

National Bake Sale Day [2nd Saturday]

National Balloon Day (UK) [2nd Saturday]

National Cycling Day (Netherlands) [2nd Saturday]

National Dog Mom’s Day [Saturday before Mother's Day]

National Mild Day (UK) [2nd Saturday]

National Miniature Golf Day [2nd Saturday]

National Train Day [2nd Saturday]

National Windmill Day (Netherlands) [2nd Saturday]

Native American Day (f.k.a. American Indian Day) [2nd Saturday]

Prairie Appreciation Day [2nd Saturday]

Stay Up All Night Day [2nd Saturday]

Sun Awareness Day [2nd Saturday]

World Belly Dance Day [2nd Saturday]

World Binturong Day [2nd Saturday]

World Bonsai Day [2nd Saturday]

World Buckfast Day [2nd Saturday]

World Collage Day [2nd Saturday]

World Fair Trade Day [2nd Saturday]

World Migratory Bird Day (UN) [2nd Saturday]

Yale Day of Service [2nd Saturday]

Weekly Holidays beginning May 11 (1st Full Week)

Armed Forces Week (thru 5.18) [2nd Saturday to 3rd Sunday]

Brain Injury Awareness Week (thru 5.17)

National Mills Weekend (UK; thru 5.12) [2nd Saturday & Sunday]

World Migratory Bird Weekend (thru 5.12) [2nd Saturday & Sunday]

Festivals Beginning May 11, 2024

Bacon Festival (McDonale, Tennessee)

Beer, Bourbon & BBQ Festival DC Metro (Washington D.C.)

Brews, Boils & Bubbles (New Orleans, Louisiana)

Buzz B-Q (North Little Rock, Arkansas)

Cochon de Lait Festival (Mansura, Louisiana)

Dillsburg PickleFest (Dillsburg, Pennsylvania)

Fairy Society for the Prevention of Cruelty to Royal Humans Foundation Day (Shamanism)

Hiawassee Highlands Wine Festival (Hiawassee, Georgia)

Hickory Hops Brewer's Festival (Hickory, North Carolina)

La Ceiba Carnival (La Ceiba, Honduras) [thru 5.25]

Lotus Lantern Festival (Seoul, South Korea) [thru 5.15]

Maryland Craft Beer Festival (Frederick, Maryland)

MT Brewers Spring Rendezvous (Bozeman, Montana)

Mud Bug Boil Off (Thibodaux, Louisiana)

'Of Ale & History Beer Festival (Middletown, Virginia)

Oz Comic-Con (Perth, Australia) [thru 5.12]

Paradise Chocolate Fest (Paradise, California)

Paso Robles Olive Festival & Lavender Festival (Paso Robles, California)

Rip Van Winkle Wine, Brew & Beverage Festival (Catskill, New York)

Stilwell Strawberry Festival (Stilwell, Oklahoma)

St. Louis Microfest (St. Louis, Missouri)

Saint Pontius Fair (Barcelona, Spain)

Taste of Pennsylvania (York, Pennsylvania)

Verde Valley Wine Festival (Cottonwood, Arizona)

Washington State Chili Cookoff (Ocean Shores, Washington) [thru 5.12]

Westminster Kennel Club Dog Show (New York, New York)

West Virginia Strawberry Festival (Buckhannon, West Virginia) [thru 5.12]

Feast Days

Alfred Stevens (Artology)

Ansfrid (Christian; Saint)

Anthimus of Rome (Christian; Saint)

Asaph (Christian; Saint)

Chester Gould (Artology)

Comgall (Christian; Saint)

The English Carthusian Martyrs (Christian; Martyrs)

Francis di Girolamo (Christian; Saint)

Gangulphus of Burgundy (a.k.a. Gengulf; Christian; Saint)

Gladys Rockmore Davis (Artology)

Greet the Sun Day (Starza Pagan Book of Days)

Ice Saints (Europe)

Ignatius of Laconi (Christian; Saint)

Jean-Léon Gérôme (Artology)

King of the Elements (Celtic Book of Days)

Majolus of Cluny (a.k.a. Maieul; Christian; Saint)

Mamertus, the first of the Ice Saints (Christian; Saint) [Three Chilly Saints #1]

Ma Zu (Goddess of the Sea’s Birthday; Buddhism, Taoism)

Nimnim (Muppetism)

Nisga'a Day (Nisga'a Nation/British Columbia)

Paul Nash (Artology)

Paulus Aemilius (Positivist; Saint)

Radunitsa (Ancestors’ Veneration Day; Belarus, Russian Christians, Thomas Sunday Slavs)

Salvador Dali Day (Artology; Church of the SubGenius; Pastafarian; Saint)

Syn’s Blot (Pagan)

Walter of L’Esterp (Christian; Saint)

Lucky & Unlucky Days

Lemuria (Day 2 of 3; Ancient Rome) [Unlucky to Marry.]

Prime Number Day: 131 [32 of 72]

Sensho (先勝 Japan) [Good luck in the morning, bad luck in the afternoon.]

Premieres

Ahab the Arab, by Ray Stevens (Novelty Song; 1962)

Cats (UK Musical Play; 1981)

Cooked, by Michael Pollan (Book; 2013)

Dark Shadows (Film; 2012)

Fantastic Planet (Animated Film; 1973)

Firestarter (Film; 1984)

Fox-Terror (WB MM Cartoon; 1957)

Go Down, Moses, by William Faulkner (Short Stories; 1942)

Good-Bye Mr. Moth (Andy Panda Cartoon; 1942)

Higher Ground, recorded by Stevie Wonder (Song; 1973)

The Incredible Journey, by Sheila Burnford (Novel; 1960)

The King's Generally Daphne du Maurier (Novel; 1946)

The Kissing Booth (Film; 2018)

A Knight’s Tale (Film; 2001)

M (Film; 1931)

MacArthur Park, by Richard Harris (Song; 1968)

The Natural (Film; 1984)

Penny Dreadful (TV Series; 2014)

Poor Little Me (Happy Harmonies Cartoon; 1935)

Road Trip (Film; 2000)

Second Variety, by Philip K. Dick (Novella; 1953)

Sniffles Takes a Trip (WB MM Cartoon; 1940)

Swab the Duck (Noveltoons Cartoon; 1956)

Tales of Brave Ulysses, recorded by Cream (Song; 1967)

Turn Coat, by Jim Butcher (Novel; 2009)

28 Weeks Later (Film; 2007)

Water Babies (Disney Silly Symphonies Cartoon; 1935)

Wolf! Wolf! (Mighty Mouse Cartoon; 1944)

Woodstock (Soundtrack Album; 1970)

Woolen Under Where (WB MM Cartoon; 1963)

Today’s Name Days

Gangolf, Joachim, Mamertus (Austria)

Kiril, Kirila, Metodi (Bulgaria)

Franjo, Mamerto (Croatia)

Svatava (Czech Republic)

Mamertus (Denmark)

Leevo, Liivar, Liivo (Estonia)

Osmo (Finland)

Estelle, Mayeul (France)

Joachim, Mamertus (Germany)

Argyris, Armodios, Dioskouridis, Methodios, Olympia (Greece)

Ferenc (Hungary)

Achille, Fabio, Fiorenzo, Marziale, Stella (Italy)

Karmena, Manfreds, Milda (Latvia)

Mamertas, Miglė, Pilypas, Skirgaudas (Lithuania)

Magda, Malvin (Norway)

Adalbert, Benedykt, Filip, Franciszek, Iga, Ignacja, Ignacy, Lew, Lutogniew, Mamert, Mira, Żegota (Poland)

Chiril, Metodie, Mochie (România)

Blažena (Slovakia)

Fabio, Francisco (Spain)

Märit, Märta (Sweden)

Asa, Ervin, Erwin, Irvin, Irving, Irwing, Marlo, Marlon, Marlow, Marvin, Merle, Merlin, Mervin (USA)

Today is Also…

Day of Year: Day 131 of 2024; 235 days remaining in the year

ISO: Day 5 of week 19 of 2024

Celtic Tree Calendar: Saille (Willow) [Day 27 of 28]

Chinese: Month 4 (Ji-Si), Day 3 (Jia-Xu)

Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]

Hebrew: 2 Iyar 5784

Islamic: 2 Dhu al-Qada 1445

J Cal: 11 Magenta; Foursday [11 of 30]

Julian: 27 April 2024

Moon: 15%: Waxing Crescent

Positivist: 19 Caesar (5th Month) [Paulus Aemilius]

Runic Half Month: Ing (Expansive Energy) [Day 1 of 15]

Season: Spring (Day 53 of 92)

Week: 1st Full Week of May

Zodiac: Taurus (Day 21 of 31)

[nationaldayof]

Today is officially National Dog Mom’s Day; National Crouton Day; National Archery Day; National Train Day; National Miniature Golf Day; National Babysitter’s Day; Cornelia De Lange Syndrome Awareness Day; National Birth Mother’s Day; Stamp Out Hunger Food Drive Day; National Fruit Cocktail Day; National Apple Pie Day; and National Frog Jumping Day.

[nationaldaycalendar]

May 13, 2023 | NATIONAL DOG MOM'S DAY | NATIONAL APPLE PIE DAY | NATIONAL CROUTON DAY | STAMP OUT HUNGER FOOD DRIVE DAY | NATIONAL BIRTH MOTHER’S DAY | CORNELIA DE LANGE SYNDROME AWARENESS DAY | NATIONAL FROG JUMPING DAY | NATIONAL ARCHERY DAY | NATIONAL BABYSITTER’S DAY | NATIONAL MINIATURE GOLF DAY | NATIONAL FRUIT COCKTAIL DAY | NATIONAL TRAIN DAY

May 13, 2023 | NATIONAL DOG MOM’S DAY | NATIONAL APPLE PIE DAY | NATIONAL CROUTON DAY | STAMP OUT HUNGER FOOD DRIVE DAY | NATIONAL BIRTH MOTHER’S DAY | CORNELIA DE LANGE SYNDROME AWARENESS DAY | NATIONAL FROG JUMPING DAY | NATIONAL ARCHERY DAY | NATIONAL BABYSITTER’S DAY | NATIONAL MINIATURE GOLF DAY | NATIONAL FRUIT COCKTAIL DAY | NATIONAL TRAIN DAY National Dog Mom’s Day | Second Saturday in…

[allkindsofadvocacy]

Find Me Friday: Sariah, Sal, Jeremy, & Jordan!

PD: Logo that says Reece’s Rainbow Special Needs Adoption Support in blue, below a blue & yellow paint stroke rainbow graphic with a yellow Ukrainian trident symbol on the right half. In this series, each Friday, I want to share a different child or group of children with you who are available for adoption and listed through the adoption advocacy website Reece’s Rainbow. All the kids who are…

[murderousink23]

05/13/2023 is National Apple Pie Day 🥧🇺🇲, National Frog Jumping Day 🐸🇺🇲, National Fruit Cocktail Day 🥭🥝🍍🍎🍉🍇🍒🍐🍌🍊🇺🇲, National Babysitter's Day 🇺🇲, National Birth Mother's Day 🇺🇲, National Train Day 🚅🇺🇲, Cornelia De Lange Syndrome Awareness Day 🇺🇲, National Miniature Golf Day 🏌️‍♀️🏌️‍♂️⛳🇺🇲, Stamp Out Hunger Food Drive 🇺🇲, Hummus Day 🇬🇧, Woeld Cocktail Day 🍹🇬🇧

[scoutandvioletfan]

Cornelia De Lange Syndrome Apert Syndrome

Parry Romberg Syndrome

Lymphangioma

Superior Mesenteric Artery Syndrome

Menigitis Moyamoya

Fetal Alcohol Syndrome

Treacher Collins Syndrome Williams Syndrome TAR Syndrome Locked-In Syndrome

Loeys-Dietz Syndrome Utero Pfeiffer Syndrome

Servere Bipolar Disorder

[petnews2day]

Science Update: Mouse model of rare disease highlights importance of balance between two opposing proteins | NICHD

New Post has been published on https://petn.ws/mhU9

Science Update: Mouse model of rare disease highlights importance of balance between two opposing proteins | NICHD

Reducing levels of the protein WAPL may partially correct disease traits caused by a deficiency of NIPBL, a protein with the opposite function, suggests a mouse study by scientists at the National Institutes of Health. Most cases of the rare developmental disorder Cornelia de Lange syndrome result from genetic mutations that reduce NIPBL’s ability to […]

See full article at https://petn.ws/mhU9 #SmallPetsNews

[mydiecastheaven]

Hello all Dusty Attic Toy Show Fans and North Texas Diecast Collectors Club Members. We are proud to be affiliated with the 24th Annual Texas Country Reporter Festival in Waxahachie, TX on October 26th from 9am until 7pm. It’s FREE to get in, family-friendly, and fun! Pets are welcome on a leash. This one-day arts and music festival will take place around the historic courthouse square in downtown Waxahachie.

We will have our NTDCC 60 Ft Track set up for all to come and race cars during the TCR Festival. So make it a point to come by and see us. All cars are $1 each with proceeds benefiting CdLS and the Cornelia de Lange Syndrome Foundation. Come by our booth to learn more about CdLS with our club Member, Carl Brown. His daughter, Ms. Julie, has had CdLS since birth. She is a sweet young lady and Carl will tell you all about her!

So make it a point to come out and check out all the food, crafters galore, live music and all the rest of the festivities of the LARGEST ONE DAY FESTIVAL in the state of TEXAS! Race some cool cars for a great cause – and create some great memories! We will have a lot of Hot Wheels on hand to race down the track. Donations will be welcomed as well.

We hope to see you and the family there!

Your DATS Crew & NTDCC Members

[a-perverted-sentimentality-blog]

((Okay so this is something distinctly different, and won’t be happening very often. But this is a cause very close to my heart. Anyway, today is Cornelia de Lange Syndrome Awareness Day!

This is something close to me because my little sister was born with it, and without her, my family and myself would never have even heard of the syndrome without her and her diagnosis. 

In spite of this, I’m not really the best person to talk at length about it, so link up above in case anyone is interested.