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#did this all on mobile bc im on holiday without my laptop so i hope the links work!!
msdanvers · 1 year
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Do you have any favorite really long supercorp one shots?
hi i’m sorry this took a while!! so first of all you should absolutely immediately read they don't love you like i love you by @searidings (M, idiots to lovers). yes, also if you have read it before. do it again
and this ask made me realize i read a lot of multichapter fics BUT here are some great one shots that are at least 15k words!!
we are what we pretend to be by @c--and--b (T, fake dating, idiots to lovers, do i need to say more)
lena luthor vs. the outdoors, by @jazzfordshire (E, mutual pining, sharing a bed)
don't let her stick it to your heart by @searidings (G, enemies AND lovers, uni professors AU)
an animal within an animal, by @mooosicaldreamz (E, sexiest fic you will read this year)
let all your damage damage me by @searidings (M, soft & sad & horny). gonna stop myself here and tell you to just read all of faye searidings’ masterpieces because they are ALL great ok. thank you
shaken by @unnecessary-database (mutual pining, friends/idiots to lovers, absolutely amazing, got distracted and reread the entire thing instead of replying to this ask)
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mycelier · 4 years
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My name is Simone and I would like to tell you a tale!
I will not have access to my laptop for some days more and because writing on my phone is kind of painful (physically, because I am working on hand mobility now), this may end up in drafts and taking a while to post. I am going to share what has been happening the last 2 months because I feel like everything went from 0 to 100 in the span of a few weeks and its been really, really wild.
So!!! LETTUCE begin!
For roughly 5 years I've been struggling to get a diagnosis on an extremely painful area of my arm. There was literally nothing visible; no lump, discoloration or any other physical abnormality to indicate anything was wrong. I spent thousands on pretty much every kind of imaging you can do, and was told time and time again that there was nothing wrong and, perhaps, it was psychosomatic and I needed therapy or, more often than not, I was given a shrug and a vague "i dunno" response.
This year, something changed. I deal with chronic pain (my spine is congenitally fused in my neck and lower spine and I have baby bone spurs all over), and in the process of trying to work on that I brought up my arm again to a dr I no longer see. He'd told me my arm was SEVERAL things over the years I had been seeing him but this time said it was a fibromyalgia knot, something I had been told by a team of doctors some time before that. I said okay cool and was sent to a physical therapy rehab center where the dr worked with myofascial release and stretches to help with injuries. This amazing man fixed my plantar fasciitis and helped get my chronic headaches under control but NOTHING we did helped my arm pain. Within a month he was worried bc we had started to notice that there was a hardness to the spot that never changed with any exercise or massage.
Worried that there was a nerve being trapped or crushed (another diagnosis I'd gotten over the years), this amazing man sent me to a neurosurgeon who immediately frowned and said he didn't think my neck pain and my arm pain were connected. He ordered an MRI of my arm and despite it not being visible on an MRI 2 years before, he found something PHYSICALLY THERE where I said I had pain. He considered doing the surgery to remove it (despite being a neurosurgeon he was fascinated with this weird horribly painful spot) but eventually sent me a surgeon for an oncology center, assuring me it was because this new surgeon was one of the best in Texas for removing soft tissue tumors, not because there was any thought of cancer.
I met with the surgeon who gave me one more diagnosis of an AVM (arteriovenous malformation), snd said they were benign and not necessary to remove as well as the possibility that if removed it would likely return. Truly, at this point after 5 years of constant nauseating horric pain when someone brushed against me or if I gently brushed against ANYRHING, a pain so bad that it had basically made me stop using my right arm as much as possible (of course I'm right handed lol), I said GET THAT FUCKER OUT OF THERE MAN and my first surgery was scheduled.
Surgery one occurred Nov 5th and was an out patient event. I went home and passed out. At some point my mom said that while I'd been in recovery the dr said the thing in my arm hadn't looked like what he expected so he had sent it to pathology. I went back to work and was hanging out until the Tuesday before Thanksgiving when I went in for a super immediate meeting with a different doctor who told me that what had been in my arm was a synovial sarcoma, aka, cancer! He, this incredibly kind man I did not know, gently discussed chemo and told me I needed to have a CT scan immediately. Based on the CT, i was either in stage one or stage four if it has spread to lungs. The day before Thanksgiving I received the news that it was stage one, it had not spread, and i was so fucking happy.
Then it was time talk about next steps. My surgeon marked out a circle on my arm to indicate how much he was gonna remove in order to guarantee clear margins..but it was not enough of a meeting for me to grasp the surgery I was about to receive.
The day of my second surgery, dec 8th, came quickly and i met with the plastic surgeon, the kindest, most patient man. He moved my arm around and explained how he was going to hijack a vein from my forearm in order to keep the blood flow health to the flap he was gonna take from the donor site: My inner thigh.
It has been 11 days and I am living in an inpatient rehab facility, working on dealing with the nerve damage/pain, the EXTREME pain of my donor site, and the lost mobility that I am working on getting back, both in my leg and my hand. The majorities of my arm is numb...except where the nerve pain burns my wrist and forearm and makes it painful to wear my arm sling (I can't fully extend my arm, nor can I lift, push, pull or use my arm in any way that would stress out my new arm flap). Also may have a brand new urinary tract infection but as I write this I'm chugging water for a urine sample to hopefully get that treated. Below are some pictures I have taken/had taken of my arm! Im not ready to look at my leg outside of the bandages (which, since having the wound vac removed today, hell yeah, will need daily dressing changes).
EDIT: I tried posting pictures of my arm last night and my post disappeared immediately so I will try to make a new post with these photos in case the whole post was erased because of them. I will tag them as post surgery photos. I do not consider them gory or excessive but hey that's just me.
I intend to post more things as I keep healing and as I gain more mobility. I was given "independence" in my room yesterday which means I can officially get up without any assistance needed (using my badass new cane to help me lift my foot in and out of bed)!!!! Which also means I can get up whenever I want without the bed alarm going off. I have a badass cane that has been the best tool in helping me get around (and has inspired my mom and others to suggest and look into getting me a cane sword which makes me laugh REAL hard). See below me using the cane to move my foot in and out of bed!
Part of why I'm posting this is because I really needed to talk about it and while later posts may not be this long or expository but I wanted to have a base post to explain other ones related to this one!!!
I will update with some newer pics tomorrow night when my mom comes by to help me take newer pics. The arm flap looks super healthy (according to the drs), and when they changed my leg dressing they said its looking really good and healthy!
I......also really wanted to post my Amazon wishlist. Due to this stupid wild bad lottery ticket, I've been struggling to pay my bills and rent but!!! I have good insurance, thankfully (since I live in the US and my hospital stay and this rehab stay would have more than bankrupted me), and im hoping my disability checks will get here in time for rent!!! I'm putting up my wishlist bc I can't afford some of the "essentials" on there and, also, because I havent been able to have any kind of comfort during any of this. I never ask for anything for holidays because usually i...dont want to burden people with spending money on me since I know how hard money is, especially right now. And if I don't have enough for rent later I might have to create a go fund me...but right now everything looks good for rent and bills just...not for anything fun.
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Thank you so much for your time!!! And happy holidays you wild bastards!!!
https://www.amazon.com/hz/wishlist/ls/36PG6BAYD18U7?ref_=wl_share
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painfog · 4 years
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Hey so I saw you mention top surgery and was curious. I was supposed to be having top surgery this summer but that’s postponed. I was curious how that went with chronic pain? I’m scared about the surgical binder with my fibro and back pain. Any advice or info would be greatly appreciated!! (You can answer privately if you prefer)
ive actually been meaning to write up a big post on this pretty much since i had top surgery but still haven't got around to it yet so I'm happy to talk about it lol. ill go over stuff now n still aim to do a more in depth post later when im on my laptop (but writing this now bc i tend to forget everything haha). ill stick to the more fibro / chronic illness specific stuff & stuff i wasnt expecting rather than rehashing everything. apologies im on mobile so i cant put this under a cut
firstly, im sorry ur surgery got postponed! i know that must be gutting, so i hope it gets rescheduled asap & the time until then passes easily for u ❤️
I had double incision with free nipple grafts on the 4th of september 2019 with Mr Miles Berry at the london wellbeck hospital. i think he did an amazing job and can't recommend him enough for his work! i think the last pics i took of my chest were for tdov, and ill rb them after i post this for reference. i didnt have drains at any point of the surgery
for ppl with fibro, i was told that the pain after surgery either tends to trigger a flareup, or be really easily manageable, and it's hard to predict which it will be beforehand. its best to prepare for a flareup and be pleasently surprised if u dont get one. for me, i had a flareup that sucked but wasnt too bad as far as flareups go
you'll probably get given painkillers. take them regularly. it's easier to treat pain preemptively. if u don't get given them (no idea how it works outside of the uk) id say def get codine and paracetamol. u can't take ibuprofen for a while
i woke up from aneasthetic freezing cold + in a lot of pain. apparently most ppl dont need the full dose of morphine, but i did. after that it was a bit better. i was just So Goddamn Hungry literally it's all i was talking about
that night in hospital was probably one of the most uncomfortable in my life. you have to sleep sitting up for like blood reasons, so my back pain was quite bad bc of it. moving around a bit and adjusting pillows helped. if u have anything that normally helps ur back pain bring it with u to the hospital, & dont be afraid to ask the nurses for help with it (even if they can just adjust ur pillows for u). i couldnt rly sleep much but distraction helps. bring ur phone + headphones. i did a few ask memes when i couldnt sleep
the first week from surgery was rly tough, the first few days especially. this was bc i still had to sleep elevated for a few days and i couldnt get comfortable. i was too exhausted to do anything but couldn't sleep and it rly started to get me down. then i got some sleeping tablets (just nytol) and that helped so much. i literally cannot recommend it enough bc the not sleeping properly made everything hard (and like esp because with fibro the whole pain/fatigue/depression cycle is so real). once i started sleeping better recovery became a lot easier, and the tablets made the awkward sleeping positions more manageable. if i had to give only one bit of advice this would be it
on that note, ik everyone says this but do get a V pillow. it helps u adjust to sleeping on ur back and if u sleep on ur side normally it means u can like lean slightly sideways on it which makes it sm easier. also this isn't even top related but they make good back pillows when ur watching stuff in bed even now
get urself some video games (if ur into them) and easy entertainment shows lined up for when u wanna have them. recovering from major surgery makes ur fatigue even more pronounced so ur not going to be able to do all that much, but having light entertainment ready to go stops u getting as bored. its also a good excuse to finally play/watch the things you've been meaning to for a while
go outside when u can. if u have a garden just walk around it. it helps with a lot of stuff, and idk about u but i always forget how much it does. even just helping u sleep better if u get trapped in a fibro fatigued-but-can't-sleep cycle. and it goes so far helping u feel human in the first week
the first week is rly hard for a lot of ppl - its frustrating to have all that pain and exhaustion and not being able to wash or change the binder, and with the swelling and bandages under the binder it doesn't really feel like there's much change, which all sort of adds together. i keep going on about this week bc it helps to mentally prepare for it - there's no need to dread it, you just need to remind urself how worth it itll all be and that the rest of recovery is a lot better than the first part, and in time it won't have seemed that bad. big picture stuff
when u get the chest reveal, everything's better. i didnt stop smiling. and when u put the post op binder on afterwards, without all the bandaging, u like feel for the first time how much flatter u are??? and its amazing. even with the swelling. and then u get to shower and u feel human again and its great. (ik some ppl have their post ops/chest reveals much earlier than a week, but 5 days to a week is pretty standard in the uk. mine was 6 days i think)
more post op binder stuff: i got given 2. the first one i woke up in after the surgery and wasn't allowed to take off until my post op, and the second one i got given at my post op to change into after i showered. After that i alternated every few days. whatever u get given, if u get less than 2 i recommend getting another one so u can alternate them (if u want help sourcing them hmu. ive also still got mine i need to give away)
the post op binders were actually a lot easier to wear full time than normal binders. they were like more stretchy, and stretchy the full way round (bc they dont have the compression bit at the front). i used to sleep in my normal binder every time i slept with my ex, and that hurt like a motherfuck sometimes. the post op binder was much kinder to my ribs
i had to wear the post op binder full time, taking it off like once a day to shower n let my chest breathe (and massage my scars once i started that). some surgeons arent that strict abt wearing it that long, but it really helps swelling, & bc i didnt have drains it was rly important to stop fluid buildup. ik quite a few guys in my trans groups who stopped wearing their binder fairly early and then got quite a lot of swelling so i didn't want to risk it & i wore it for the full 6 weeks. at some point (icr when but maybe at 6 weeks? bc my post op was at 8 weeks bc he was on holiday) i didnt wear it during the day and only wore it at night
all in all the binder didnt bother me that much. it was more comfortable than my regular binders and i just kinda got on with it. it was annoying tho and i was glad when i could stop wearing it. for me the most annoying part was that it was a full length binder (i always wore half length before) and the riding up at the hips was rly irritating. i actually quite liked sleeping with it tho it was a pretty nice pressure stim ahah
some post op binders r more comfortable than others. if u have to buy ur own, i rly suggest going with a proper surgical one (they arent too hard to find second hand for free or cheap, again im happy to help here) bc they're kinder to chronic pain. i know that having a comfortable post op binder made it all a lot easier for me. there are also lots of alternatives w lots of price ranges tho, so that's not ur only option
ok i think thats everything right now! sorry its so long, but let me know if u have any questions!!
finally: before i got top ppl told me that its honestly life changing, and i didnt realise how true that would be. literally every single aspect of my life is at least partially better because of it, and most of them drastically so. I'm really excited for you to get that for yourself, and im wishing u all the best for it 💕
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