#i suspect a lot of people are feeling that rn because i haven't seen much talk of it yet

[arctic-hands]

I keep making and deleting this post. How do we talk about what happened to that hospital in Gaza without feeling so much despair you feel numb inside or start crying even if you're continents away and it doesn't affect you

[itsaspectrumcomic]

On anon bc identifiable info - advice/thoughts? - This is really long, I'm sorry D: I'm a rambler and all the info is important (to me)

I've always had problems with stuff (according to my mom, "things have always been harder for [me] than everyone else") like I'm always the last one out the door, I lose things a lot (like hats and pencils and water bottles) because I set them down and don't realize, I have a lot of trouble doing textbook homework/notes bc I have trouble focusing

And I have a lot of trouble with social stuff, I never have a lot of friends, I can't keep friends for more than like four years, I feel really disconnected with people and people generally initially like me but like me significantly less after interacting with me a bit

I read a lot, and when I was a kid I would lose all sense of reality outside the book until someone touched me or I finished the book, but I've had a harder and harder time reading anything but fanfic as I've gotten older, and I have a lot of trouble reading very technical/instructions/nonfiction stuff

I have pretty bad insomnia, and spent ~2 years when I was 10-13 ish sleeping ~3-4 hrs/night weekdays and ~12 hrs/night weekends, I have a really hard time getting to sleep specifically - and (tmi maybe tw eating) I've had chronic minor eating issues and constipation (chronic minor dehydration, losing ~ 10 lbs over summers from not eating, etc. like I'm not dying or anything but this will probably eventually cause wear damage)

---

But I'm also a very good student, very smart, generally very good at what I choose to do, I just became a National Merit semifinalist, like, I'm doing "fine". I'm not dying, I'm not failing classes or anything, I've struggled since second semester year before last with getting things done, but I have like a 3.7 gpa rn (I could have a 4 if I tried harder (while I am capable of trying harder, it would destroy me))

I was in Gifted + Talented in elementary school, I'm an honors/ap student (my G+T teacher told my mom that the "gifted" basically means "neurodivergent")

---

I didn't get help for anything until last year, when I kinda fell off (as much as you can fall off while getting a 3.7 gpa ig) and got assessed for insomnia, which I got help with pretty easily (apart for waiting times) which was amazing. Almost went too well iykwim

And I was looking into why I was having such a hard time with everything (social, focus, sleep, schoolwork,etc) and I resonated a lot with autism and some of the feeling very disconnected from society/ other people but I was like eeeh, I'm a teen and idk I'm not, like, having it that bad, so I was looking into more quantitative solid stuff and I took the AQ + CAT-Q + stuff which still have very subjective questions but I tried to be honest and I got 32 (AQ) and 139 (CAT-Q) and 157 (RAADS-R) but like idk I could be biased or misunderstanding or idk

I mentioned feeling like I had more, underlying issues to the doctor I'm seeing for the insomnia and she was basically like "I work with autistic kids - you're not autistic" which like on one hand, you're the expert and I've only really interacted with the internet so idk but on the other, you've spent all of two hours with me, mostly asking me direct questions about my sleep or talking to my mother, like, ofc you haven't seen anything of me. Did I make too much fake eye contact with you?? (BTW if you dislike eye contact for any reason, which I always have, look at noses (my mother taught me this one) or hair (my personal fav) bc it looks like you're looking at the face, but you aren't!!)

this is getting very long winded, I'm sorry if you choose to read all this but thank you it means a lot to me to get someone who knows something's thoughts on this

So I was like "I am having other problems" and she was like "I suspect you may have inattentive type adhd" and I was initially like what?? but I'm not hyperactive. Can't have adhd. What. But I've been kinda thinking about it and lurking at the edge of adhd communities and googling stuff (google is not helpful) and maybe? idk

SO to get to my point/question

I'm very smart. (not tryna be conceited it's just I am) I'm not currently *dying* struggling, though I am having trouble staying on top of classwork

I'm a girl

I live in the USA

I'm pretty good at acting normal, I have a couple friends (one has diagnosed adhd, one has diagnosed autism, one I'm not sure, one I think? could be neurotypical? but she's also like really not idk) (I (only?) have four friends (which is a lot, for me))

I don't know if I'm "adhd enough" (or "autistic enough" if I was right initially) ((or both idk)) to get a diagnosis. I have hypermobility that causes issues with my joints and has led to me not exercising enough and having to quit violin but I'm not hypermobile "enough" to get a diagnosis or help for it (which sucks because it's literally affecting my quality of life, like, I could be an amazing musician if I didn't have this. D: )

If I try, will I get a diagnosis, or will I be "adhd, but not enough"? Should I continue to spend (my parent's insurance) money on this if it probably won't go anywhere? I'm currently 17, starting my senior year of high school. Will things get disrupted in transition to college? If I go abroad for college?

Also, will I crash and burn in college without my mother's considerable support? (tw eating again) I have always had a really hard time getting and preparing and eating food, and without her/structure idk how much I will eat. I loose weight over the summer bc we don't eat as a family much. when I'm on my own, will I struggle even more? Especially trying to juggle food and school and living independently? What about after college? My uncle was fine until he graduated college and now he's alone and a misogynist and mormon and lives with my grandma and seems kinda really miserable except way more hate-filled - am I doomed to the same path?

anyways this is really dark I'm sorry

specific questions for you are:

should I pursue ADHD diagnosis? Autism?

is there anything specific I should mention/not mention/think about?

is there anything you think I (+ people in similar situations) should research, any specific sites/books/communities you think would be valuable?

would therapy help with anything? social, focus, etc. (I have not had a chance, and I have been noncommittal at mentions bc. i strongly dislike people, and talking to people, and emotions ): )

are things in general going to get better, or worse? please be honest, not reassuring

If you decide to answer this, partially or completely, thank you, it means a lot to me to get someone else's thoughts on this, if not, I completely understand, either way, I hope you have a good day :)

Hello! A lot of what you wrote feels very familiar to my own experience - I was also considered a good student but found things increasingly difficult to cope with, struggled socially, lost and forgot stuff, couldn't focus etc. You're definitely not alone in feeling this way!

You are not doomed and you are not your uncle. Things can always get better, even when you're at your lowest. You never know what will happen next - you could make a friend, you could discover a new passion, you could be offered a cool opportunity, you could get the chance to pet a really friendly dog. Life isn't a straight line - you might be struggling for a bit, and then some nice stuff will happen, and then you might go through a rough patch again, but then things will improve again and you might feel better than you did before.

For eating when you go to college - identify the foods you generally find easy to make and eat and make sure you have a supply avaliable for when you're struggling. For me, that's pasta (you can get dry pasta which lasts ages in the cupboard, but you could also try fresh ravioli which has stuff inside like spinach or tomato or cheese so it's a bit more varied), crackers, bananas, and breakfast bars. That way if you can't make a proper meal, you at least eat something. Also try to carry a water bottle with you everywhere (if you struggle to drink water you could try flavoured water or juice.) If you forget about needing to eat you could set alarms to remind yourself.

Side note: did you know that hypermobility and autism very often occur together?

Onto your questions:

should I pursue ADHD diagnosis? Autism?

It's definitely worth looking into - I can't guarantee you'll get a diagnosis because it really depends on the person/people assessing you and some are more biased than others (if you're able to choose, look for people who say they specialise in diagnosing women and girls or have positive reviews from people in that demographic). Personally I found it helped a lot with getting accommodations, people understanding me, and understanding myself (even before the diagnosis was official). I will say it's usually quite a long process so be prepared for that.

Btw, you can definitely have ADHD without being hyperactive - that's the inattentive type which is more about trouble focusing.

is there anything specific I should mention/not mention/think about?

Honestly a lot of what you've written will probably come up in an assessment! I had to fill out a form with info about my experiences as a child and the traits I have now, as did my mum. If you're high masking (basically when you try to act 'normal' and hide your neurodivergent traits) do your best not to mask so the assessor gets to see you as you really are.

is there anything you think I (+ people in similar situations) should research, any specific sites/books/communities you think would be valuable?

Untypical by Pete Wharmby is an excellent book if you want to learn more about autistic experiences. The author is autistic himself and has an engaging writing style.

How to ADHD is a YouTube channel that focuses on coping techiques for ADHD and is informative as well.

I've found the autism communities on Reddit to be welcoming and supportive - you might like r/AutismInWomen which is inclusive and accepting of self diagnosis and those who are questioning.

You could also follow some of these people on instagram:

morgaanfoley - posts about her experiences as an autistic person

_ellawillis - posts about autism and ADHD and their daily life

candy.courn - posts about autism and disability as well as how that intersects with their experience as an asian person. Also has the most beautifully pink house

colourblind_zebra - makes cute and colourful art about chronic illness and neurodiversity

elliemidds - posts about autism and adhd and runs a community called We are Unmasked (weareumasked on insta)

itsemilykaty - posts about autism, mental health, and her book Girl Unmasked (which I haven't read yet but is supposed to be very good!)

Side note: I also have an instagram if you'd like to follow :) I'm itsaspectrumcomic there as well!

would therapy help with anything? social, focus, etc. (I have not had a chance, and I have been noncommittal at mentions bc. i strongly dislike people, and talking to people, and emotions ): )

Therapy can help a lot - with the right therapist! Look for people who specialise in neurodivergence, particularly in girls. The best ones are on the spectrum themselves :) It's OK if you don't click with the first one you try. You can 'shop around' until you find someone you're comfortable with (which I know can be exhausting but it's worth it when you find the right one).

are things in general going to get better, or worse? please be honest, not reassuring

Like I said before, things will get better, and then you might struggle for a while, and then things get better again. It comes in waves, at least for me. I know when you're having a hard time it can feel like it's going to last forever, but I promise it won't. There are always bright spots.

[kaitlynnlauryenn]

I don't understand. I talked with my boyfriend yesterday & I told him all the fears & anger I had towards him.

My frustration towards being so miserable all the time & being completely consumed by our relationship.

How hard it is for me to connect with him because the things that frustrate him & upset him make me mad at him.

I can still barely get through my day without feeling as if it's my fault for being kicked out.

That if we didn't date then maybe I wouldn't have torn my family apart for being an abusive environment when they all tried so hard to create communication & community with each other & I couldn't.

Then maybe I'd have a car rn & be in an apartment not stressing & worrying about how I am gonna get another job because I cannot afford to live if I don't get one.

I wouldn't be at my bf's parents house hiding because I've been on social media all day & haven't eaten & just want to smoke a fucking cigarette & I am embarrassed & don't want to be seen smoking by my bf's younger brother. (who knows I smoke & has seen me already)

The conversation I had with my bf yesterday gave me so much relief & freedom. Being able to communicate openly & not be judged or for him to be angry at me.

Especially because I was telling him that the things that anger me are the same things that other ppl struggle to talk with him about & I know that he really tries.

Like he is literally just autistic & he's finding out as an adult.

Same as I am with my ADHD, even though I've suspected this for years.

Like things that are hard to understand about myself come from expecting SO MUCH FROM MYSELF.

But every time I think about expecting less it means I am incapable in all facets of my life.

It's like the veil of my misery being my fault is falling, but also not really because I am the only one who can heal myself & take off this weight that wants to stay here.

I am so fucking doneeee.

I wanna be brave.

I wanna face the things I am afraid of & give myself confidence & compassion & support but I am just drowning in self pity & misery.

I've literally spent all day avoiding this melt down & I am still having it.

I don't want to cry anymore. I don't want to be DISTRAUGHT, like so distraught that you can see in my face & my eyes that I am miserable.

You know how faces tend to sit & rest in the position of whatever emotion you are feeling?

Like yes, you can hide a feeling & pretend to be happier or more content than you are, but you can always see the real emotions someone feels in their eyes. Or when they rest their face. Like you really can't hide.

And when you feel MASSIVELY DISTRAUGHT like 85% of your day on a regular basis it shows.

When you look at me you can see my pain.

People used to tell me that I always looked so happy & that I glowed & was so pretty.

Fucking no one says that to me anymore. Nobody. The customers from my job can see it.

Old fucking white men take it up on themselves to try & make me smile more or brighten a face that feels so dark. I am so fucking ashamed.

My distraught robs me of my freedom to move & do anything.

Learn, pick up new skills, motivate myself in a way that brings in positive interactions or people, or opportunities.

Like what you put out you get back. I know this fr. I've seen it happen to me. Over & over. In positive ways too. In a lot of positive ways actually.

It makes me feel so guilty for projecting such horrid pain & anger & anguish.

I want to be done healing.

I want to feel stable.

I want to eat because not eating only makes this pain I feel so much worse & intense.

I want to be able to navigate interacting with people who I know I don't agree with or who don't agree with me & not feel the need to disintegrate.

I want to speak up when I am mad or feel mistreated or disrespected.

I want to not be in complete distraught every day all day.

I want to feel free & comfortable to eat & to EATTTTTT.

I want to stop making everything I need to do for myself into Mount Everest.

I want to relax & let go of all the things pounding in my head so that I can recharge.

I want fucking peace.