#ive had a doctor appointment where she just gave me painkillers and basically told me to live with it

[zeussim]

Pals with endometriosis, please tell me some of your symptoms because I think my doctor is incompetent.

She told me endometriosis meant extreme pain in the days before a period - I've had extreme, nauseating, on-the-floor-screaming, difficulty-breathing pains during my period and once around ovulation. And yes painkillers do not work.

Edit: read the updates on my tumblr. I had an endo cyst the size of a tennisball. It is gone now and I am all healed up.

[zephyr-together]

it’s been exactly one month since top surgery! here’s a summary of what all went down! disclaimer: please do not feel that you need to feel pressured to remember things from this post or any other, your doctor should instruct you on the most important things to do or not do, and also this is my experience and everyone’s will be different! 

I saw Dr. Kenneth Wolf! I highly recommend him if you’re in the area or able to get to him, very skilled and very cheap (only was $5400, $5900 if you get nipple grafts which I ended up deciding not to have) there is a 250 lb weight limit though, they weigh you the day of surgery so if you’re unsure if you’ll be able to make it I’d suggest seeing a surgeon who operates more on plus sized folks

he was/is SUPER booked, I had my consultation in October and had to schedule surgery in June. this made me confident I made the right decision though because of how many people go to him, and having to be stuck in the body I didn’t want for a lot longer than I thought made me more eager to have it so I wasn’t as scared as I would have been otherwise. that being said, it might be smart to ask ahead how long the wait time is so that you can save during that time! because I didn’t know about the wait I had already had most of my money that I got together since last June so I could’ve had it about four months sooner, but hey everything worked out in the end :) 

speaking of saving money, for this doctor there’s a $500 down payment that I paid when I went to the consultation visit (if you’re out of the area they can do consultation over email btw!) the rest was collected about a week and a half before surgery. I have a debit card so it had to be split up in three transactions. I’m very thankful they worked with me on that!

I went into a small room where the doctor met me, marked me up and took my picture. then he said the anesthesiologist would meet me, which she did in a few minutes and went over a bit of questions/paperwork and took me to the operating room! 

I lied down on a table with my arms out, it felt like I was an alien getting vivisected, that combined with my needlephobia made that a bit scary but I’ve been waiting so long so it was exciting too. they had me hooked up to an IV but I think they did that while I was under because I felt the needle go in and then out. and then in a minute I was out! 

I wasn’t aware of this because it was during the surgery but they have a machine to massage your legs to keep up circulation and I had a tube down my throat too. when I woke up the first thing I hear is “the surgery was a success!! :D” and it felt like a weird dream because of anesthesia but in what felt like a few minutes I was almost as awake as normal which was surprising because I was out of it for hours after getting wisdom teeth out so I thought this would be way worse in that way

I had three intense sensations when I woke up: nausea, tightness and hunger. they asked right away if I was nauseous and gave me an alcohol patch to put on my nose which immediately took the feeling completely away. I had a very specific craving for Burger King’s impossible whopper, I think that’s because of not being able to eat I wanted something substantial like meat (vegetarian so closest thing to it) and something QUICK because hungy 

the tightness was pretty intense and unexpected, I felt desperate to rip off my surgical vest but they assured me it’s actually fairly loose. I think it’s just the incisions that give you a tight sensation but what you see and feel on your body is the vest so your brain says that’s the culprit I think. as time went on I ended up feeling desperate for the vest actually but I’ll go into that later

when I got the whopper I’m VERY thankful my dad who met us after picking it up also got the milkshake because I couldn’t produce saliva at all and didn’t know that would happen. I think that’s from having the tube in my mouth. I also could barely hold anything with my left hand because of that being the arm I had the IV in, but both the no saliva and limp left hand things went away in a few hours I think

by the time we got home which was I think an hour and a half after I woke up, I had really intense pain in my throat and under my armpits. the painkillers they gave me eventually kicked in about an hour or so after I took them, I’d suggest to bring them to surgery maybe if possible so you can take them asap, I think I wouldn’t have had that at all if I did, at that level of intensity anyway. for my throat I basically went nuts and drank water, had popsicles, ice cream, fruit, cough syrup, etc and it went away in 2-3 days or so

speaking of the pain under my armpits, that was from the tubes in me to drain extra unwanted blood and puss and stuff like that, it sounds super awful but I wasn’t allowed to remove the vest for five days and I’m naturally sweaty so I didn’t even know there were tubes in me or that I was draining until like four days later. I was stuffed with tons of gauze under the vest so eventually when I did notice the drainage we pulled out the dirty ones and pushed in some clean ones (they provide you with the same kind of gauze). the main awful thing about it was just the idea of having tubes in me, it didn’t bother me so much when I thought it was part of the incision haha...

now that I complained about the tube and throat pain I will say the “pain” for me of the actual incision area was almost nothing for me at all, just a bit of a weird tingly or pokey sensation every so often and that’s all really. but again everyone is different ! 

appetite was funny because it felt like I’d feel really hungry and eat hardly anything and feel good! another post suggested to have pineapple to help with bruising and I think it worked because I ate pineapple constantly and had pretty much no bruising at all

also I hope this isn’t too gross but I couldn’t pee and I was constipated. it wasn’t too much trouble because for the. pee I could just push and it’d come and for constipation that’s a problem that happens for me in general. both took about a week to wear off. they’re side effects of anesthesia I believe. other side effects I had from that were my legs and arms would feel pretty sore at times and my legs were wobbly, they said that I’d need to move my legs around a bit every once in a while to prevent clotting and I got a bit nervous about that so I ended up going for two walks a day! probably not needed to do that much but I think it helped speed up leg recovery 

after that more intense pain was gone after just a few hours I felt fine to watch shows and play viddy games! I thought I’d be zonked out for days or something but I was pretty alert after just a few minutes of coming out like I said. I could’ve probably drawn or made plushies too but it just felt so weird to move my arms at that point and was probably for the best I didn’t and just watched stuff and played games and slept a lot. it felt a bit frustrating how boring it was at times after a week or so but I just focused on how much of my life I’ll feel good now because of this so the recovery time isn’t that bad knowing that

five days after the surgery I had my first post op appointment! this was for the doctor to inspect the incisions, give us ointment to put on the scars and more gauze, and to finally be able to throw away all of the gauze that was under the vest! at this point I was allowed to take off the vest to replace the gauze and put ointment on as well as shower, and was given bandaids to put on the tubes for showering. however the sensation of not having the vest on at this point was SO horrible to me, I felt like a doll that was being pulled and unraveled apart, it made me want to throw up too so I took a shower as fast as possible and then just opted to get my hair shampooed at salons every other day for a couple weeks, so in retrospect I could have not gone five days with no shampoo but nothing can go absolutely perfectly after all!

a couple days later I ran out of oxycodone and tried replacing it with motrin which gave me three vivid nightmares in a row of having really bad fights with my parents and friend over dumb things which sounds silly but it messed me up emotionally and I kept sobbing uncontrollably out of nowhere that I felt like such a burden to take care of. I thought I was just emotional from the surgery but as soon as I switched to tylenol that went away completely! I don’t think it’s that motrin is bad because I looked it up and it’s a rare side effect, it’s just either that my body specifically doesn’t like it or it was the way it was combined with the antibiotic I had 

the second post op was to remove the tubes and it was 13 days after the first post op. they said if you live out of the area you can remove the tubes yourself so I’m very thankful we’re in the area haha. the left tube came out so smooth and quick that I didn’t feel it even come out at all! the second hurt for a second but I think because it kept getting bent backwards but it didn’t hurt too much. the tubes were SUPER wiggly and actually pretty flat so I think they’re constantly improving them to make them less and less noticeable. 

I was told I had to use the bandaids on my holes for showering and keep gauze on them too for just two more days and I could also throw the vest away then. I still felt too sensitive to get rid of the vest yet and wore it for another week, I still have it in case I want it for now (been going without it for about three days at this point) it still feels very strange without it since it feels like it’s holding you together but I think no matter how healed you are it will a shock to your body to not have that on anymore...also the “holes” from the tubes are more like slits which just look like slightly more open areas of the incisions so it’s barely noticeable. there’s some swelling where that used to be but that’s going down! 

now at this point where I’m at, I still feel best putting ointment on with gauze and bandage wraps I bought as a transition from the vest to nothing under the shirt which seems to be working pretty well! it might be that I’m autistic that I’m so sensitive to that feeling and had to have my vest on longer and now this instead of nothing. also I took three weeks off of work initially (I work a desk job) and asked for a couple more weeks of working from home before going back to the office to be able to adjust

also I will say if you live alone, I think you can handle surgery and taking care of yourself if you’re determined, as long as nothing you need to use to feed yourself and whatnot is up too high, too low, or too heavy. but if you can I’d highly suggest staying with someone who can help take care of you, it really helps easy the transition. in my summary I will say there was almost no pain at all but a whole lot of WEIRD stuff I wasn’t used to, but in the end it’s not a whole lot to deal with, considering! 

[cosmosogler]

hnnnnnnnnnnnghhhhhhhhhhhh

i woke up on time but i didn’t want to do anything so i ended up getting out of the shower late. and then eating breakfast late. i was hungry, and i knew i had to teach for four hours straight, so i made four waffles instead of two. and a pbj, and the rest of my lunch, in the last 5 minutes before i left instead of like 15.

i biked to campus pretty fast... i got to class 1 minute before it started. i did my lecture and stuff and tried to be a lot more active with the matter model. 

they asked another question that stumped me and i’m embarrassed because my notes were wrong too and i had to correct them when i figured it out. i’m embarrassed because it’s a basic physics newton’s laws sort of thing.

i was hung up on why the force on the sensor and the frictional force are always equal even when the block the sensor is attached to is accelerating. i looked up the horse and cart problem and understood it way better... two hours after the students had asked and the new section had started.

it really rustles my jimmies that i can’t make the three sections of exactly equal quality. i feel like i let my students down when i can’t very well explain a concept to them specifically, but i can to the next group!!!

suzanne mentioned today that she has a lot of trouble with basic stuff too, along with jennica, just because we haven’t taken the classes in forever. i did apologize to the students while trying to answer the question- i said i’d been working with energy for so long that forces didn’t really mean anything any more. we don’t even work with any numbers in class basically.

i was so exhausted afterward but i only had a five minute lunch break to shove the entire pbj in my mouth before i had to head over for my psychiatry appointment. i let the doctor prompt me on which information she wanted, but i did have a list of things to talk about in my life in chronological order to keep me on topic. i think it was a productive meeting since i kept it kind of, more organized than if i was just rambling about my childhood for an hour and a half, you know? 

she raised her eyebrows a couple times... especially at the stuff leading up to and just after my heart surgery. i don’t know if i’m too focused on the negatives or what but i really just remember having a pretty bad time social life wise. 

i know one family did come to visit me in the hospital- actually it was a student i didn’t spend a lot of time with. joey. he and his family came to bring me a card and hang out in the common area for a few minutes to see how i was doing. i was hooked up to my iv and i think i had just gotten the drainage tube out so i was on some strong painkillers. mom must have been talking to them. i fell asleep in the wheelchair.

it was too much i guess. the painkillers on top of the effort of keeping up with a conversation while my insides were still putting themselves back in place after getting a garden hose yanked out of my entire chest cavity.

i guess some people care more than they let on. and some people care less. he didn’t really do much to help me out with the bullying that doubled down after i got back. i still reflexively punch people that try to tickle or touch my nerve-damaged side. maybe his parents were more worried than he was. i dunno. it was 15 years ago.

now that i think about it... what the doctor said i should have had, at the hospital and going back to school afterward... i’m really upset. at the time i’d blinked and smiled and said “none of that ever occurred to me.” 

but now i’m really sad. knowing what i didn’t have that should have been provided, i guess. i told her the hospital really was very busy, and that my parents were basically always around so they must have thought i was covered. and i had no idea the school was supposed to, i guess, assign some kind of buddy to make sure i could get around okay? 

i’ve already talked about the wheelchair. 

near the end she said “it sounds like no one’s really been there to support you.” i said “yes.” and showed her my teeth. it wasn’t really a smile. i think she could tell though. wasn’t foolin no one.

she made sure my meds were refilled for the next month. i talked about my grandparents too. on glenn’s side. how nice they were to me. i can’t say how they treated everyone, or even glenn and my uncle don, but the people who attended grandma pearl’s funeral had only the most glowing, actually kind of really sincerely fond memories.

uncle don seems to have had a complicated relationship with his parents. but he loved them enough to take care of them for a very long time after they got old. glenn didn’t. i don’t think i should ask what happened. i know parenting is hard and there’s probably not a perfect way to do it. but there’s... functional ways to do it. and i hope that they were functional parents.

anyway i caught the bus back to the physics building and had sooo much trouble sitting down to actually study. i didn’t want to open anything or even get out my notebook to try some practice problems. i sent danielle at the drc a semi-long email about my academic progress, since i had that midterm on tuesday, and some concerns about the upcoming friday test.

after that i strongarmed jennica into getting dinner with me. we went to subway. she didn’t actually want anything but i figured some exercise might help her settle down, and also it gave suzanne a small break. entropy can get contagious and jennica had been stopping her to look at this or that dress for several minutes. and i appreciated the company. going to subway alone when i’m so exhausted is super awkward. at least with jennica there if i couldn’t make a decision quickly enough i could smile apologetically at the lady behind the counter and say “sorry, i’m hella tired.” and jennica would laugh and the moment would continue.

it ended up not helping jennica that much but it did help me to get some food. 

i think this was after i realized mom never put the 900 dollars back into my bank account. i talked seriously with jennica and taylor about some bank options and how to switch my direct deposit and stuff. they said it’s super easy. i asked one of them to go with me on saturday to make sure i get a good deal. taylor said that wouldn’t be a risk but jennica told me a couple things to watch out for and i think she also agreed to go with me but i’m not 100% sure on that.

anyway, after i ate i was in a much better mood. not a good mood, but a less bad one. i did finally get out my notebook and start... actually taking notes on the textbook. i didn’t get very far at all- i was interrupted- but i felt like it was working for me a little bit. i was trying to take the equations, and finding the main ideas for how we interpret those equations, and then writing that down in my own words. it’s been four hours and i still remember the difference between poisson’s equation and laplace’s equation- even though laplace is just a special case of poisson. i think, if i can identify the most important ideas behind the main equations given in the text, i can write that down and that will help me remember what the hell green’s theorem is or whatever next time it comes up on a test.

i also tried something new after i was interrupted. suzanne had gone to talk about the class with one of the undergrads in the same section and he allowed me to sit in on the session while we worked through practice problems covered in class. 

suzanne made it so much easier though.

the new thing i tried is that i tried to basically repeat what suzanne was saying but in my own words. and i asked questions about what each variable *was*. and if i felt i didn’t understand it well enough i said it again a different way. 

i couldn’t tell if it was slowing her and john down or not. i tried to pull back on the goofs at least. i also talked to john a little bit just trying to identify what it is about the professor’s lectures that has me so lost. and i figured it out!

he takes these practice problems from the book but then generalizes them to include all cases. this turns his math into monstrous entire-blackboard-spanning messes of variables and summations. and he skips important logic steps so it looks even more like a wall of chalk.

suzanne walked us through the simplest cases and then explained how some parts could be expanded to account for harder scenarios. i found that SUPER helpful because it let me point out myself where something could be made more complicated. 

i have a lot of trouble with lectures, but conversations are so much easier. i don’t necessarily remember exact words or phrases but the idea sticks with me a little better. maybe it’s an active listening thing? or a participation thing. i had a good time in discussion-based classes back at villanova too.

i like john though. i hope he likes me enough to let me intrude on his tutoring time again. i felt bad that i was explaining really basic concepts- not to him, but to myself. but he seemed to react as if i was kind of, splainin at him about how image charges worked. 

really it was because i had to remind myself a couple times that they are not actual charges that appear in a grounded plane as a response to a real charge. they are a math thing we use because it’s convenient.

hopefully that helps tomorrow on the test! i think the discussions are starting to help a little more... now that i’m getting less anxious about not getting stuff right away. i mean taylor and jennica give me Looks, sometimes, when i ask for a definition i should probably know by now. i get turned around by the notation kind of easily though, especially when i’m trying to identify the point where i stopped understanding the question. but if Looks are the worst they can do, well, i’ve had worse happen. in this department! with the e&m professor. 

in the conservatory, with a knife.

dated jokes are the best.

anyway i think that is also going to be my good thing about myself for today because i am already running kind of late since mom called and wanted to chat for 10 minutes while i was trying to write. i got my test tomorrow. so i will try to rest now.