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#of course i say 'probably won't expand upon' but if someone asks about any of these i *will* start rambling about them
just-someone-online · 6 months
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Fairy Tail AUs
I did a couple of these for Transformers a while back and I figured it might be fun to do again.
Slayer Swap AU - In which the various dragon, god, and devil slayers follow slightly different paths in life and end up in each others guilds.
Dragon Swap AU - In which the Dragon Slayers are raised by each others dragons instead of their own, leading to five much different people in the present day.
Changeling AU - In which everything doesn't go back to normal after the titular body swapping episode, forcing everyone to focus up and train and get used to their new bodies as best as they can. Whether they're strong enough to endure Phantom's attack remains to be seen.
Renegade Guild AU - In which Fairy Tail is forcibly disbanded alongside Phantom Lord in the aftermath of their battle. Never one to bow to the council's wishes, Fairy Tail reforms as the newest dark guild. Luckily for the council, the illegal guild has decided to take its frustrations out on the other dark guilds instead of striking back.
Phantom Lucy AU - In which Lucy chooses to join Phantom Lord instead of Fairy Tail. Unfortunately, she quickly finds that it isn't what she had hoped it to be, especially once Jude comes knocking...
Erza in Edolas AU - In which Anima targets the Tower of Heaven while it's exploding, bringing both it and Erza to Edolas. Now, trapped in this strange new world without her magic or friends, Erza searches for a way home as she fights against the royal army alongside Lisanna and a distrusting Fairy Tail.
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fragmentedblade · 7 months
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Can you expand more on Ratio's philosophical influences? You seem super knowledgeable!
I've been sitting on this for some time because I didn't know what prompted this message and thus I didn't know what to answer and how. I guess it may be the comment I wrote about him having a socratic but also a sophist air?
There are a lot of details in Ratio's overall design that point towards philosophical references. I want to draw attention to the fact that since this is a vague message on anon I don't really know what to focus on or what could I skip because it's information already known, so what I'm going to say is a very brief summary of many ideas, which of course makes such ideas but the shadow of an echo of themselves, so faint they almost become untrue. I fervently advise to look more deeply into any of this if something catches anyone's interest. And I also want to point out that the problem of knowing a little bit of something, even its existence, is that seeing turns to seeking, and an excess of seeing is also a blindness; what I mean by this is that I'm not sure how much of what I am going to say was intentional by the developers/writers and how much is just me suffering the blindness of seeing too much haha
However, I also want to clarify that I do think many of the things I’m going to say are present even if perhaps not intended by the writers/designers. This is due to the fact that Ratio’s main influence is platonism, and platonism is everywhere in western philosophy and in general western culture; once you see it you cannot unsee it. So perhaps I am reading too much or making correlations between things in his design that were not meant to be linked, giving a depth to the character that is probably incidental, but that I would say nonetheless exists because it pertains to a certain philosophical tradition in which the elements stem from each other. I hope this will become clearer in its development if it isn’t right now. 
Ratio has an Apollonian air. At first that and his mask made me wonder if he was going to be linked to the Mourning Actors, who alongside the Masked Fools for now remind me a lot of the Nietzschean Apollonian and Dyonisian dichotomy. This was conjecture on my side so I won't go on about this on this ask.
Ratio retains however the Apollo air. When I saw his splash art he reminded me instantly of the Belvedere Apollo, down to the strap under his chest like the sculpture has the quiver's strap. His sixth eidolon too recalls that sculpture, since it seems to be a mix of the pose in Michelangelo's David with the cloth in the Belvedere Apollo. Among other things, Apollo is a god linked to truth, medicine, archery and divination. The owl seems to be a reference to Athena, though. 
Ratio also has the laurel or bay branch on his head, which is one of Apollo's traits. Laurel on someone's head became linked to victory as well as academic and artistic merit (I know in Italy people still use it when graduating, for instance; I mean, that's where the word comes from). The fact that he has half of it is most likely due to an aesthetic choice, especially given how the character designs are pointedly asymmetric in this game; however, I think it works well with how, no matter how much he achieves and how hard he tries, Ratio is never gazed upon by Nous nor accepted by the Genius Society with the frustration, bitterness and questioning that brings both himself and others.
This last point, being ignored by something akin to a divinity, works also with his Apollonian air, I'd say. Given his Apollo look, his snake-like pupils made me think instantly of Delphi. Delphi was where a temple to Apollo was (linked to a mythological snake, and snakes thus became associated with Apollo in imagery), and it was famous for its prophecies. Socrates (the master of Plato and main figure in his dialogues) is said to have started the habit of questioning he is mostly famous for because a friend of his went to the temple in Delphi and was told by the Oracle that the wisest man in Athens was Socrates. Socrates was perplexed by this because he knew nothing, and started posing questions to supposedly erudite people about the matters about which they were experts, only to come out of that feeling unsatisfied with the answers. Thus, Socrates thought the Oracle may be right after all, but he was only the wisest man because he at least knew that he knew nothing. 
This works very well with Ratio because Socrates starts the journey by being distinguished among his peers, gazed upon, by a god (Apollo was supposed to possess the Pythia, or at the very least the prophetic power came from him), while Ratio never gets that recognition, and seems resigned to that already ("If this day I have not gained the recognition of Nous, it stands to reason that I never will at any point in the future" and "One day, I received a letter from the Interastral Peace Corporation (...). I could tell the solemnity of the invitation, so I excitedly passed it on to Mr. Ratio. Yet, he said nothing. I could sense his heavy silence even through the headgear. He then politely asked me to leave. The moment I closed the door, I heard a grim sigh followed by a self-deprecating laughter... Perhaps he realized he would never be accepted into the Genius Society..."). The mix of arrogance and humbleness, although enhanced in Ratio in a comical degree, is already somewhat present I would argue in the way Socrates talks in Plato's dialogues. Arrogance was also a trait Heraclitus, the author of the line cited in the name of his banner (“Panta rhei”), was famous to have.
So Ratio takes the position at the IPC. The Intelligentsia Guild is "often seen as a vendor of knowledge", and is looked down upon by the Genius Society. This is where I think the philosopher/sophist dichotomy comes in. Sophists were teachers, and were paid. They also were known to use rhetoric to convince (I would say there's a reference to this in one of Ratio's daily messages). In the political landscape of Athens, they were very useful for young men interested in politics. Some sophists became quite rich and famous. Usually philosophers, who didn't receive any money and did everything for the "love of knowledge" itself, looked down on them. At least in the texts of Plato that's often the case, although some sophists are portrayed under a better light even there; btw many of the things I've been saying come from Plato, but since this is an intricate subject on its own that isn’t directly pertinent to the ask I won't dwell on it right now.
Education in ancient Greece consisted of both intellectual and physical training. Intellectual education included music, poetry, mathematics, astronomy,... Physical fitness was held as something very important in a young man's curriculum as well. I think this is where the fanservicey choice of making Ratio so fit and pretty comes from. And I say “pretty” because beauty too is an important concept for Plato, and ancient Greece in general. It is also part of what linked the need of a young man to develop himself both intellectually and physically. Beauty is linked to harmony and order, both on an individual basis and cosmologically, often in some philosophical trends to a mathematical level; pythagoreanism has a lot of this.
Indeed I think pythagoreanism has to do somewhat with Ratio's design, considering his link to mathematics and geometry, and given his name ("Ratio" made me think of the golden ratio and in general pythagorean ratios even before it made me think of "reason" tbh), but in general the main philosophical reference in Ratio seems to be Plato, who was influenced greatly by pythagoreanism; this is one of the perhaps unintended indirect yet present links I mentioned at the beginning.
Platonism is very present in many ways in Ratio. It's noticeable even in his visual design, with how buff and handsome he is, arguably the references to Apollo and Athena, the geometry imagery, and even the sculptures he creates with his technique, but the influence is seen throughout his entire character, story, dialogue lines,... Part IV of Ratio’s character story, the way he talks with Roseth and what he says, has in my opinion an echo of platonic dialogues, as does his line “To spread knowledge, we must first make people realize their folly” recall Socrates. In the Trailblaze mission the main character had to argue for their innocence, which to me brought to mind the Apology of Socrates. On the other hand, the way this was done was very reminiscent of the socratic method, both in the discussion and counterargument mechanic of the game as, and especially so, in the use of memory. The main character had already the knowledge they seeked, yet they had forgotten about it, and had to retrieve it through memory guided by the intense questioning of Ratio; this, if applied to the research of a more essential knowledge instead of circumstantial, is the core of Socrates' maieutics. Maieutics is "midwifery". Socrates called by that word his method because he thought he was helping give birth to truths or knowledge that were already present in people's minds, if forgotten. It's what Ratio's skill, "intellectual midwifery", references. 
The fact that Socrates' method, the "intellectual midwifery" to put it in in HSR terms, works in platonic philosophy is because it is taken that there are eternal truths, something Ratio believes as well (“The beauty of truth is that it never changes, even when no one understands it. Well, that's true for me, at least”). This has to do with what is called the theory of Forms or the theory of Ideas. The world that we see is but the shadow of that other conceptual abstract world, of which we have but forgotten memories and that we can access only with the mind's eye. Our soul once saw/was part of that other world, which is why it can remember it. Plato was influenced by the pythagorean view of a sort of journey or reincarnation of the soul after dying, to put it some way. This is also extensive, it has to do with orphism, is at the core of a lot of philosophical and theological western traditions, and thus I will say only this, even though it feels very close-to-fake simplistic haha. To summarise, there’s the other abstract perfect world of which everything in this world participates from and is but the shadow of (everything beautiful participates on the Idea of Beauty, eternal and inextinguishable, but it’s never as perfect as that Idea, only but its echo). The idea that the world is but the shadow of the other world is present in Ratio's English line when he is ko-ed, "Mere flesh…" (in Chinese, though, if I’ve understood correctly he says “«Mediocre»… hah”, which is very different if still lore-heavy). This of course implies a strong ontological dualism. 
In this sense it is extremely interesting to me that Ratio’s banner is named “Panta rhei”, because Heraclitus is the epitome of the defender that all things were in constant change yet all things are One, the process of “becoming”, the constant struggle, at the core itself of reality (this too is harmony). He was pointedly monist, and is often contrasted to Parmenides, who spoke of eternal unchanging truths and beings. Both are cornerstones in the development of western philosophy and influenced Plato, but the choice calls my attention. In the Japanese wiki the line was linked/took to the buddhist concept of impermanence; while not necessarily related to that, this wiki suggestion made me wonder whether the choice of making “Panta rhei” the name of Ratio’s banner was done to further enhance another aspect of the many parallels between him and Ruan Mei, who also talks about life as something seemingly diverse and changing, hopes to obtain permanence, and talks about a something that transcends the multiple faces of life and that unifies them all (“Life is countless and varied in form. I firmly believe in that. Its beauty is like a myriad of flowers, and I want to pluck the one that never wilts”; “I wish to discover "the true essence of life," something that all individuals possess unknowingly, whether it is the materialism of their existence or an unknown entity beyond corporeal realms”; “The core of all existence is unity”). Even beyond that, in the context of everything else Ratio has going on, the mention of Heraclitus brings very intriguing food for thought to the table; yet I think this may be another instance of things that are, yet were most likely not meant by the writers.
Moving on, I’ll give a quick comment on the more explicit philosophical references we can find in Ratio’s traces, attacks and voicelines, and will dwell a bit only when I think they work well with the subjects and concepts I already commented Ratio plays with, otherwise this response will be eternal.
Summation (trace): in Chinese this is more clearly linked to the inductive reasoning, which in context it is obvious this is what this trace references; I don’t know why they chose to translate it this way. It is a method of reasoning that comes from the observation of particularities to generalisation, hence “summation”. It works well with Ratio causing more damage per debuff, and with the references to empiricism in Ratio’s attacks. The consequences in inductive reasoning are not truly ensured by the premises (the typical example is how you can’t ensure that all ravens are black by as many black ravens as you observe). 
Inference (trace): this baffled me because again it is more clear in Chinese that this is referencing deductive reasoning, but every language translates “inference”, whereas in the “deduction” trace the characters are exactly the same as the ones in the Chinese wiki for “inference”, but every language translates “deduction”. I don’t know what’s happening here, I wish I knew Chinese and found this less confusing, but at least both words are present in his traces. Deductive reasoning is the one that goes from premises to conclusion. It is heavily linked to logic and it doesn’t necessarily require empiric knowledge.
Deduction (trace): this is what is called “inference” apparently in Chinese (if someone knows about this I would love to know what is happening in Chinese in these two traces). Inferences are, well, the process of reaching conclusions. It can be either through deduction or induction (or abduction, some would argue, but that’s another can of worms).
Mind is might (basic attack): in latin this is “scientia potentia est”, and while at this point the line is very detached from its context, initially it was linked to Bacon and Hobbes. I honestly think this is just a very convenient name for an attack of a character following a philosophy/sciences/knowledge thematic.
Intellectual midwifery (skill): Socrates, and platonism. I talked about this before.
Syllogistic paradox (ultimate): Syllogistic paradoxes were one of my favourite things when I was studying. Syllogisms are a form of logic reasoning, which consist of two premises and one conclusion. Though the premises may be true, and though the reasoning may be sensible, at times contradictory or illogical conclusions may be reached. This is a syllogistic paradox. Why this happens is because of a myriad of reasons, like the differences between natural and logical language, or the development of theories (the paradoxes in set theory are among my favourite things ever). I personally like to draw a strong distinction between paradoxes and contradictions. Anyway, I have a lot to say about this haha In general, this is what the name of the ultimate is referencing. It works well with Ratio’s traces. It also goes well with some of the other subjects present in his characterisation, like platonism, Descartes and such; there are a lot of paradoxes that arise from many of the theories that play with such topics. I think reading Alice in Wonderland’s apparent madness through the lenses of logic makes us see that most of those incongruences are actually pretty logical; many of them iirc are syllogistic paradoxes. Carroll was a logician. I mention this because this, as well as many other ideas present in Ratio, work extremely well with Penacony.
Cogito, ergo sum (talent): this is a line by Descartes, a rationalist. This too is something that fits Penacony incredibly well. Descartes starts doubting knowledge, ends up questioning pretty much everything, establishes inspired by mathematics and logic a method of acquiring the truth, and in the research of true knowledge he starts doubting everything with a methodical doubt to be able to tell what knowledge stands after being hit by doubt, and why, and try to reconstruct knowledge from there. Ratio’s lines about “seeking answers with a negative hypothesis in mind”, “When one is immersed in academic research, scepticism comes more naturally than belief” or “Pursuit tinged with negativity is still pursuit, and it is capable of leading us to the right conclusion” reminded me of Descartes’ method. One of the steps in the process is doubting one’s own existence, but since I (pardon the “I”, but the first person is very important in Descartes) doubt, then I think, and since I think, then I exist; cogito, ergo sum. This is closely related to platonism in some senses, and while Descartes’ philosophy comes in part from a criticism of scholasticism, it still has ties to it, but Descartes was a massive breakthrough in the history of Philosophy. I also won't dwell on this, but this is fascinating imo haha 
Anyway, Descartes’ doubt about the existence of reality, of the world, is heavily linked to dreams, because in dreams we believe things are real but are not, so equally we could be at every moment in a dream and not be aware of that; only the existence of oneself is clear of this doubt (Zhuangzi’s text about the butterfly plays with this too; I comment this because butterflies have appeared in Penacony and the Zhuangzi’s text seems to play in an interesting way with the concept of “I”, taking it a different route than Descartes, which is a very intriguing idea but I don’t know much of Chinese philosophy at all). The concept of simulated realities, Matrix-like settings and such, all are strongly linked to this conception of Descartes, even though similar things existed previously (such as Plato’s allegory of the cave), and this works very well with Penacony again. Obviously, Descartes’ theory is strongly dualist, and it’s even established a body-mind dualism. The idea of the ghost in the shell also comes in great part from Descartes. Descartes’ view of the body was not too unlike that of a machine. 
This was in a time in which clockwork and automatons were quickly advancing and fascinating people. Physic theories started to look (even more) like clockwork, with the universe as clockwork and god as a watchmaker that put it into place and then let it run its perfect course, needing or not (depending on the theory) adjustments from the watchmaker from time to time. I said before that harmony was linked to both the cosmos and the body, with the body in part being a reflection of the cosmos, and even linked to it by the harmony of the spheres. This new way of approaching the cosmological and human issues and developing Physics still has echoes of that. Newton, who is referenced in one of Ratio’s idle animations, is one of the epitomes of this concept of the universe as clockwork. Again, I don’t know how much they’ll do with these ideas nor even if they were written on purpose, but it all works so well with Penacony it would be a pity if they did nothing with this.
Another thing I want to note about Descartes is that besides mentally detaching himself from everything while doubting in his deconstruction and construction of knowledge, seeking undoubtable truths, he famously did so physically as well for some time when he first started thinking about the matters in his Discourse on the Method one night: “having no diverting company and fortunately also no cares or emotional turmoil to trouble me”, while he “spent the whole day shut up in a small room heated by a stove, in which I could converse with my own thoughts at leisure”. This reminded me a lot of Ratio’s head and how he uses it: “with the headpiece on, isolated from my five senses, i can think without interference”, “he put on a headgear to keep away all external distractions and completely focus on thinking? Who else in the world could manage that?”.
Mold of idolatry (technique): this links mainly again to the theory of Forms of Plato, with that representation of something else that is what is real. The name of the technique and what it does works well also with the idea of idolatry, especially of idolatry of false gods, idols or even falsehood in general, and how Ratio criticises people’s blind infatuation with geniuses. It also reminds me of Nietzsche’s Twilight of the Idols, or, How to Philosophise with a Hammer. Among other things, Nietzsche heavily criticises platonism and platonic philosophy, and mostly all western philosophers (he has kind words for Heraclitus, for instance). 
Wiseman’s folly (ultimate’s effect): the idea that knowledge or beholding the truth brings to something similar to madness or ends up leading to foolishness is a very common one. Many of the Ancient Greece philosophers were said to have been extravagant. Diogenes the Cynic and Heraclitus were two such examples. Democritus was said to have plucked out his own eyes. Empedocles is said to have killed himself in a volcano. There’s Nietzsche, Georg Cantor, Kurt Gödel. It is the idea of the wise ending up being very much like the fool, but also the idea of the wise ending up losing sight of basic truths I believe, in that alienation from the world.
Know thyself (eidolon): this is what was inscribed in the temple of Apollo in Delphi I spoke of before. This is linked to Heraclitus, Socrates, Plato and platonism, of course. I think when it comes to Ratio that’s it, really. But this maxime has had a lot of implications and interpretations in different contexts and at different times. It could be seen as just a salutation, recommending temperance, the idea of knowing oneself and one’s limitations as key to succeed when approaching subjects or problems, the first step of getting to know anything at all, humans and the world being closely linked and even reflection of god so studying one helps studying the other, etc.
Vincit Omnia Veritas (eidolon): the translator says this means “eternal truth” in Chinese, which would play way better with the philosophical ideas and concepts present in Ratio while still playing with his name, “Veritas”. I won’t dwell on this because I’ve already talked about the link between eternal truths and Ratio a lot, and besides I can’t even confirm this is the true meaning because I don’t know Chinese.
Eidolon “The divine is in the details” seems to be a reference to a Chinese idiom that comes from a book. I don’t know if it has greater significance, but if anyone knows I am all ears. The other eidolons obviously work with Ratio, but I don’t see obvious philosophical influences so I’m skipping them.
Esse est percipi (ultimate line): “To be is to be perceived”. This is a line by Berkeley and linked to his philosophy. He criticises both dualism and materialism. The core idea is that the world’s existence is entirely dependent on the mind, that things don’t exist unless they are perceived and thought. His justification for one’s own existence seems to come from this perception, as Descartes’ came from thinking: “I do nevertheless know that I, who am a spirit or thinking substance, exist as certainly as I know my ideas exist”. Parmenides has a similar idea in his poem. I don’t think this was intended to be read too much into when it comes to Ratio, but I think it fits nicely with the other topics he has going on, and the dichotomy they often entail. It also works well with Ratio’s plaster head, with how he says “I don't have to set eyes on stupid people. Of course, they don't want to see me either”, with how he uses it to go unnoticed or unrecognised in both Herta’s Space Station and Penacony, and I think it could be overread or taken to more exaggerated levels in a juicy manner reading this under the notion of nothingness, mediocrity and being disregarded by Nous. 
One of the listed researched achievements of Ratio is in the field of epistemology. Epistemology is the field that studies knowledge. Although studied in particular at times, it is of course often linked to ontological conceptions; all the philosophical theories I’ve stated carry with them epistemological implications as well as ontological. In one of Ratio’s character stories there’s a mention to epistemic logic which is, speaking broadly, a logical approach to the analysis of knowledge. 
Another one of his listed achievements is in natural theology, which is the study of god through reason and logic instead of things such as transcendental experiences or revelations. This is very common in philosophy in general. It often has to do as well with the world as a harmonious whole, god as watchmaker/the universe as clockwork, and teleology. I will mention Newton and Darwin here because Newton is referenced in Ratio’s idle animation, and Darwin because he broke up with the teleological tradition when it came to the world. Ratio’s work is named Aeons: A Natural Phenomenon, and the title and its description, how its “Aeon non-theism”, makes it seem to me like he wrote of Aeons as if they were just another form of life or something that pertains to nature itself and not detached from it, which although very different from Darwin’s ideas did remind me of how he dismissed teleology in nature. This also clearly links, in my opinion, to Ruan Mei.
Other than that I also want to note Ratio’s final speech to Screwllum about inspiring doubt and scepticism when it comes to established ideas and geniuses. It reminded me of Socrates, how he was said to have “perverted” youth inspiring all that questioning among other things. It reminded me of Nietzsche, how he fervently encouraged individuals to use critical thinking, question dogmas and preconceived ideas they could have, and come up with their own conclusions that does not mean necessarily negating absolutely everything they held true before the questioning (this exchange between Screwllum and Ratio: “Screwllum:  «You wish to uproot the researchers' blind worship of geniuses».  Dr. Ratio: «I am only laying out my questions».”). It also pointedly reminded me of Kant's “Sapere aude!”, “Dare to know!”,  and his text What Is Enlightenment?, in which among other things Kant talks about the lack of courage, not of intellect, of people to think for themselves, how humanity lives in a constant immaturity or adolescence of the mind, and urges them to get out of that state, to dare to know. Kant was greatly influenced by rationalism but said to have awaken from the rationalist slumber thanks to empiricism; the plays on rationalism and empiricism, deduction and induction, and the presence of idealism in the rest of Ratio’s writing as well as this fervent push for people to snap out of their lack of criticism and dare to think for themselves are what made me think of Kant here.
There’s more things to talk about Ratio, like his view on mediocrity and geniuses, and how that view is constructed and described in traces through fragments in his lore, the character stories, snippets of conversations; how he seems to be so similar in character and drive to geniuses, but never accepted as one, and how he is regarded as very different and eccentric by “normal” people, even in the Guild. In short, how he is detached from both the “normal” people and geniuses, like suspended between both states without being either completely, and how it makes so much sense in this context that he tries to breach the rift between both. I couldn’t help but mention this, to avoid forgetting this aspect of his characterisation in the future, but I won’t dwell on this because it isn’t really directly linked to any philosophical influence that I can think of.
I think this is it. Hopefully I didn’t forget anything important. And I’m sorry it is so long, but I really tried to summarise. As I said, I may well be reading too much into some of these things, but I also think that since Ratio plays with many of the core authors and concepts in the history of western philosophy, some things I expect were not intended by the writers still are present somewhat, because mentioning this or that thing alongside this or that other thing ends up having implications if you know a bit of the context. 
I hope this was clear enough. However, I can try to explain myself better or further if I wasn’t. Philosophy may look unapproachable and dry at times at first, but it really isn't, it just needs one to get accustomed to some basic terminology, and it becomes fascinating and beautiful, and lifechanging haha. I would love it if Ratio is making people get a little bit more invested or interested in it, or open to explore it. The Stanford Encyclopedia of Philosophy is a good place to check the main ideas, texts and authors that may spike someone’s interest if anyone wants to read further about anything I've said or compare sources, but tbh I think even Wikipedia can be useful with getting a first feel of some basic ideas to know what to look for.  And although I am not an authority or the most trustworthy source at all, I will help as best as I can if someone reading this has any further question. I recommend reading the texts firsthand though, with historical context in mind and footnotes perhaps if possible, and making one's own mind about everything.
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locke-esque-monster · 8 months
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There are many things I love about SPN's 4x18 "The Monster at the end of this Book".
But the Chuck of it all is fascinating in retrospect. Now to be fair, I haven't finished the show yet, but I know about the God reveal. And I know that there's some debate over if Chuck was ever Chuck, or if he was always God.
I would love for Chuck to be goofy, anxious human Chuck. But I've doubted it before, and re-watching it today just reinforced that.
Here's what this episode looks like if you consider Chuck might already be god:
Because if Chuck's himself, how does he not recognize Sam & Dean from his visions? From the choppy bits we see, I know his publisher is there, so he can see people.
The case at the start of the episode with the comic book store is dropped with no explanation or reference to again. That says to me someone with questionable writing skills used that as a lazy plot device to get our characters here to meet Chuck. Who would do that but Chuck?
He has no recollection of the story he was writing until the characters ask what he's working on. Weird when he was just writing it before they arrived. Maybe understandable with the drinking/headaches. But the way he remembers only when asked, seems more like he's only giving out information when the story calls for it (think a questionable mentor type, like Dumbledore).
He says to Dean when he shows up at the end to kidnap him that he didn't write this. But if that's the case, how was the tryst with Lilith and Sam supposed to end? Bad writing for the show? Or is Chuck surprised Dean broke out of his plot and isn't expanding on details because he thinks he can steer Dean back on course? (Sidebar - I think Lilith's deal was legit, at least from her end. It'd end the apocalypse if Sam & Dean were dead, especially with no confirmed descendants. I just don't think God would allow that to play out.)
If Chuck is god, he takes a chance to throw it out to them that he is powerful so they dismiss it (hoping they won't call his bluff). And then when they do, he's confident enough they bought it to take the chance apologize to them for what he put them through. Sam's trying to make it something he's seen, like psychic abilities, and Dean's playing down the trauma/injuries are probably exactly how Chuck knew they'd react.
The wording of Sam's "wish to god I could stop" conversation with god, and Chuck saying he's still doing it is too uncanny. He's literally wishing in front of god for help, and god is putting it back on him that he's not really stopping, nor does he want to.
Then Chuck in that whole conversation with Sam. He's different in this scene than any other this episode. He doesn't play up his fears or anxiety like he does with Dean, he acts like a writer who not only knows the story, he KNOWS where it's going and is trying to steer Sam a certain way without looking like it or saying too much. His responses are very deliberately worded. It reminds me of Ben Linus manipulating people in Lost.
He says to Sam "I know it's a terrible burden - feeling that it all rests upon your shoulders." How would Chuck know that without the responsibility of God?
He has an answer for Dean and a loophole to get out of going with him - the archangel. But Dean calls his bluff. Basically, if Dean shoots him, either Dean will get killed by an archangel as a threat, ruining his story. Or he gets the shot off and Chuck survives, revealing he's not just Chuck. Chuck had to let his story be ruined tonight to allow the rest to play out (lose the battle to win the war).
To jump off that last point, this episode also acts as a thesis statement for how each character looks at destiny and how Chuck reacts to them.
Sam's the "smart one" - but he's liable to think he knows better and fall into exactly the trap Chuck sets for him. Sam is out to break the system in a big way - Chuck can see it, and stop it.
Cas's rebellious streak always wins out. If his friendship with Dean is on the line, he'll find a way to fall out of line with Chuck's plan in ways Chuck could have never imagined.
Dean's stubbornness with authority, including destiny, knows no bounds. He'll fight and get creative. Dean knows better than anyone how to find a loophole with a strict father. These little rebellions are harder for Chuck to see and correct. And with Dean's persistence and creativity, those little rebellions add up to messing up the plan. This is both how this episode goes, and the apocalypse arch as a whole. Chuck thinks he can outsmart Dean, but in a way, Dean's less predictable than Sam even if it doesn't outright seem like it. So Chuck fails to do stop every time. And a couple of times is all Dean needs.
I want to be wrong. I want Chuck to be like Anna maybe, unaware of of his abilities and knowledge and it's leaking through as maybe a vessel of god. Or even that god is writing Chuck this way for the purposes of the story, as his stand-in.
Unfortunately, I'm not so sure. And let's consider a comment I've heard made on the episode before. The episode title arguably isn't just a funny reference, it's a guide to the show - much like Chuck's writing. The "book", or episode, ends with Chuck, much like the last big villain in season 15 is Chuck. So he's the "monster at the end of this book" all along. It's a better fit if Chuck is god.
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wakraya · 3 years
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Hey Wakraya, I got a question that's kind of serious? It's about how we interrupt fictional characters. So like I don't really care one way or the other about June, she doesn't effect my well being simply put, but I wonder why it's easier to make June a character instead of a new character? Well she is new by technicality, she's not "John", but a version who transitioned. You can interrupt pretty much any character in Homestuck or any other fictional work however you want, because that's the freedom of choice and people like having fun. The only time I see that being not the case is say you take a character like Kanaya, who only ever is seen liking girls, and have her go on a cute date with any of the male cast as fanart. Ultimately that piece of art won't radically change who she is, a girl who likes other girls, but the mere sight of it's existence will probably rub some folks the wrong way because it's like erasing Kanaya's clearly homosexual/homoromantic identity. Meanwhile you could take, say Dad Egbert/Crocker and have him in a relationship with Bro and that's just dandy. To go back to June, she hasn't made her debute in canon yet, but as the team has said before, or encouraged, Canon is yours to make of it. By that same logic someone can just make Kanaya bi or Dirk ace, which at best would be met with indifferent shrugs and at worst throw more infighting among the LGBT+ community. So my question is; if your fictional character is cis do they not have the same agency over their identity? Because anyone who identifies as heterosexual/heteromantic has nothing to lose, from a fictional stand point. I mean it's for the better to have more lgbt so just make more trans characters off of previous characters. Who would it hurt? Why not take it further and just make a whole trans universe within Homestuck? I don't think there's a simple answer, but I still want to here your input as someone who's had a lot of passion for this kind of stuff. 🤔
I think you're phrasing all of this in a really complex and confusing manner. First of all, let me answer: Fictional characters are fictional. None of them have agency, because what we see from them in canon is decided by whoever wrote them or drew them to be that way. This is not a problem with Agency, but Interpretation. Fandom can interpret characters in various ways, but we live in a very bullshit society that says that certain things like 'Straight', and 'Cis' are default. When a character is trans, or gay, or bi, or ace, or anything, that is a deviation from the standard we're used to. Sure, things have gotten better, but they have not gotten Amazing. You will still find stereotypes, and people complaining, and erasure- And that's kind of the issue? If you take a character that's straight and make them gay, literally a majority of characters out there in media can fill their place. If it affects you that, I don't know, "Oh no, Spiderman kissed a boy-" ask yourself WHY that bothers you exactly, because I can think of very few reasons other than homophobia and being a canon elitist that can only think of Spiderman with his Classic Waifu for that to be the case.
But also, let us go back a little bit. You are mistaken. June is not 'A different, transitioned version of John'. June is an exploration of the very same character. She's not being 'changed to be trans'. She's the same exact person. She's being expanded upon and explored through a trans lens. There's a massive difference. This is not a change, not a retcon, not a shift. This is trans writers, identifying with a character's vibe, reading their story and what they're going through, and saying, hey, I vibe with that too. What if she's an egg? What if we write her like this? Of course you can make a new character and make them trans. But why is it bad or different to expand a character like this? There's no reason why June should be cis. There's no reason why most characters are cis, really. A majority of characters that are presumably cis, simply do not deal or talk about gender stuff. Hell, for all of Homestuck, June is between 13 and 16. I was pretty sure I was a cis, mostly straight guy when I was that age. I had not even a concept of WHAT being trans was. What is so unrealistic or immersion breaking or weird about a character figuring out their gender feels?
So my question back at you is- Does it bother you for a character you thought was cis/straight to be written otherwise? If it doesn't bother you, why even delve into a discussion like this? And if it does bother you- How do you feel queer people with way less representation feel when they can never see themselves in media without going through hoops and difficulties, if at all?
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kazumahashimoto · 4 years
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cheer danshi gender and sexuality master list. i went over the genders in my trans kazu analysis but :) well. so i will just make a whole post. some of these will be expanded upon and some won't🤷‍♀️
kazu - gay trans guy. undoubtedly the gayest character in cheer danshi. i don't think he neccesarily knew he was TRANS when his parents were still alive but i think he definitely made it a point to not want to be in dresses and such and his parents were more than happy to allow that. kazu loves his mom so so much and he named himself after her once he was ready to pick a new name :) i imagine him and haru writing a list of names and circling things and crossing them out and what not. i also just adore the idea of kazu being trans and the captain of an all men's cheer club. it would be so liberating and scary at the same time. it gives even more reason fur him wanting haru to join so bad. him being trans and his relationship with saku also makes me very happy :) saku seeing another trans guy on the cheer squad (the CAPTAIN even) and especially being a FLIER..... i mean we saw how happy he was. i can (AND DID LOL) do a wholeeeee analysis on trans kazu though so i'll leave it at that.
saku - gay trans guy. GENUINELY gay not even coded. i don't care. like saku has THE MOST EXPLICIT CRUSH on kazu. he is not coded. the only thing they could have done to make it more obvious is just have him fucking say i'm gay. he's gay. genuinely canon gay character in cheer danshi. explictly. he's also absolutely trans coded. the amount of times someone has asked "are you sure you aren't a girl" is unbearable. in the manga we see him like actually getting harassed over it not just shitty gen being an asshole fur Funsies. HOWEVER it's not all bad!!! saku likes wearing cute things and even though he's a little insecure sometimes he never let's that stop him from doing what he loves!! and of course at the end of the show we get his line about how he was worried about how "little and girlish" he was until he met kazu. i relate to saku a lot especially with not being passing so yeah little trans boy.
sho - gay nb. i imagine his gender IS that he's gay yknow. very much he loves men and also not having a gender. his clothes are hideous. i think it's very very very funny to say he's gay coded just because of his clothes and even if that's not what coding means this is MY show. i decide which characters are canonically gay. and shou is the second gayest.
hisashi - gay trans guy. the final gay of the four gay men. he had his little "i don't talk to girls" moment and he has an enemies to lovers with takeru. kinda gay. takeru is shown walking hisashi's dog in one of the box set covers soooooo i assume things are going well. i'm saying he's trans not only because i want takeru to be the token cis between him hisashi and saku but ALSO because i want saku to have another trans person that he's close to and NOT madly in love with.
haru - bi and cis. i think haru being cis is 1 funny and 2 reallyyyy adds to kazu's mental illness. i don't think kazu would idolize him being CIS but i DO think he'd idolize things like his voice getting deeper and having a flat chest. i felt like that a LOT when i was friends with cis boys but i never wanted to BE cis so i imagine kazu going through that as well. when him and kazu were in judo together he made it clear to his parents that kazu was gonna be on the boys team with him and him and haruko made sure no one gave him any problems. also he's bi because protag of course he's bi.
wataru - bi and cis. sometimes he says gay things and he gets flustered over girls.
ton - bi and cis. very nice :) his gf chihiro is so sweet and nice and they have matching phone cases which is so cute!!!! they are just so cute with each other i love them sm....
gen - cishet. rot
ichiro - cishet. rot
takeru - bi and cis. token cis as a said and his little enemies to lovers with hisashi.
chen - gay and cis. him and saku talk about cute boys together and they go to the mall. little fruity friends call that twink alliance.
kin - bi trans guy. i want him to be trans really really badly especially because of his friendship with saku in the manga but also because idk he's just very tall and intimidating and i want him to be trans. ALSO dou and natsuki look up to him SO much and i imagine they've known each other since FUREVER and i want kin to have that support. also kin has a big crush on coach takegi and it very much gives woman picking up man vibes like i don't think she's interested but he is very respectful and i think big intimidating man just wants to be cared fur.....
dou - bi trans guy. he looks up to kin SO much and kin being trans as well just makes him so much happy and they support each other a lot :)
natsuki - bi and cis. i want the little cis boy to look up to the big trans man. also natsuki and dou are dating. also the three of them are a little bi trio
takumi - gay and cis. something about him man. gay.
takuya - bi and cis. something about him man. bi. i think him and kin probably make out at LEAST once a week. "oh we've just been job hunting together" EVERYDAY? so often you're missing practice? smells fruity to me.
haruko - bi and cis. and gnc. she had the line "sometimes i wish i had just been born a boy so things would be easier" because she was frustrated that haru didn't need to work as hard as she did to be good at judo so that's partially why i hc them both as cis. i do think she's gnc though just cos that's the vibe. they never met in the anime but i think her and sakura could be cute together <3 also her and haru bi siblings.
sakura - lesbian and cis. her and sho are very much gay best friends. she was a jock femme, he was a jock twink. they are good friends :)
chihiro - bi trans girl!!!!! she is so cute and sweet and kinda clumsy and i just love her so much. her and ton are so cute. they're just so cute.
takegi - bi and cis. idk who her previous partner was but she has a son and she is a very good mom and coach 😌 milf
and yeah that's everyone i think 👍
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eds-zebra-warrior · 3 years
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Ehlers Danlos Society Awareness Month (Day 31 Community)
Not all health conditions have what they call a community or a group of others with the same condition coming together as a group to be with, support and help one another. Let's be honest, most conditions don't need a community. There's a lot of conditions that are very cut and dry and easy to understand. There's a group on Facebook for everything but I can tell you right now there's not going to be a ton of people in a Hemorrhoid support group. The EDS group is a very close knit group with much value and importance to those who are part of it and I'll be explaining some of those reasons.
Of course one of the most obvious with having a rare disease is to be able to meet someone like you. To know others exist and to share similar experiences with. You know you can always find someone there that truly understands what you're going through having a condition so disabling you tend to lose most, if not all of your friends, some even lose family. Rather it be due to lack of understanding, lack of belief, fear, or any other list of reasons it seems to happen to all of us. So this is a way to make friends just like us. Friends that won't resent us for the physical abilities we have lost or the lifestyle changes placed on us by this syndrome.
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Another reason is well because it's rare. It's surprisingly difficult to find any good information about EDS on the internet when you first get diagnosed unless you know where to look. In addition to this being a condition that lacks studies and research it's also extremely complex. In fact before being diagnosed, even with going to nursing school, I had no idea something this complex existed. If you are ever trying to find reliable information about a specific aspect of EDS it may be really hard to find, especially if the topic you're looking for is very specific. You can go into groups. A lot of individuals have certain documents bookmarked or saved in a word document or spreadsheet and can lead you in the right direction. If we can't find a study done in something we can also use support groups to do our own informal studies. Just simply create a pole and let everyone chime in. Before you know it, if posted in a larger group you'll go check out your pole and may have two or three hundred answers to your question.
Next, with EDS pretty much any body structure is a free game which means lots and lots of comorbidities. A good number of comorbidities are common amongst us which means we always have someone to relate to and ask questions to. In addition to this you can expand your groups to include groups for people with those comorbidities further extending your knowledge and possibility of friends. Most doctors don't know anything about these conditions so that leaves it to us to learn everything there is to know about it. When you finally think you have read everything there is on the web, others read thousands of sites or journals you haven't come across and ones you have read they didn't know existed so it's all about learning together and having people who understand.
Being a condition that is so very painful and severely affects sleep as well as causing many of us great depression and guilt for what we've lost and the deterioration our body has been through as well as the feeling of loss. We feel guilty for everything we put out families through, for needing help, for canceling plans and letting people down. Not only as if what we once were has already passed away but also the loss of friends, many times every single one we had before this illness and sometimes family members. We grieve the loss and are angry to learn that people we thought were our best friends and would never leave disappointed in us like a used paper plate. This is also the time it dawns on us how many of these people used us when we were healthy to provide them with things we need. Most of us have OCD or are on the high functioning side of the Autism Spectrum so tend to take responsibility and do things right, including not letting down our friends and family very seriously. Most of us thrive on routine and rules and chronic illness often gets to a point that a lot of this is no longer possible forcing us to make decisions last minute, change them or cancel them last minute, not be able to complete things by a time we have set for ourselves etc and that's really hard. It's helpful to know others who are or have been going through the same thing and to know you're not alone, not the one letting yourself and others down and to be told it's okay and it's not our fault.
The majority of us also have Medical Trauma Induced Complex Post Traumatic Stress Disorder. We spent years of our lives rather you're lucky and got diagnosis in two years or ate 70 and have spent the last 55 years actively seeking a diagnosis we all have to fight for one, to see doctor after doctor and oftentimes the worst part of it all, be miss diagnosed with psychiatric disorders such as anxiety and Conversion Disorders. These are extremely dangerous and life threatening diagnosis for us because it essentially closes the door on even looking for a cause of what is going wrong with us. Conversion Disorder is a Diagnosis given after all other conditions have been ruled out the problem is, doctors use it as a crutch to not have to deal with us. We are also superstars, especially in the beginning at having beautiful results when it comes to basic blood tests such as a CBC. The problem is, again, doctors are known to cut corners because they like the majority of mankind are lazy creatures who tend to want to just get the job done. It doesn't matter if it's thoroughly done and done with utmost care to put as much effort into it as they can, it's just done and to them done is good enough so they do the common tests and call it done, close the book and slap a label of conversion disorder on us that follows us around for life for every other doctor to use as an excuse to say they are done too. It takes years to find a doctor who is in it for the better of the patient; one who is up for a challenge; one who is willing to do more testing and testing that is more advanced and most importantly, a doctor who believes us and is willing to go the extra mile. It's when these less common tests like a Tilt Table Study, Gastric Emptying Study, Urodynamics Testing, Upright MRIs instead of doing them in the prone position, Sweat Testing, a Sitzmark Colon Transit Time Study, a 24 hour urine test to measure histamine levels, skin biopsies and ultimately EDS Testing via either the Brighton score system along with a through study of the body and some questions used to determine a positive or negative diagnosis or Genetic Testing to determine a type of EDS that has a genetic mutation that has been discovered. Not all forms of EDS have had their genetic mutation discovered yet which is why the other study is so important. There are more tests that can be utalkzss than the ones mentioned but as you can see, none of these are tests that are done on a routine basis and a lot of doctors don't want to deal with them slapping the psychological, "all in our head" diagnosis on us prematurely.
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This results in us without a diagnosis for what we have going on with our body. When this happens we aren't receiving treatment for the symptoms we are experiencing allowing them to escalate. To make things worse we are often given the wrong treatments, handed antipsychotic medications that cause even more adverse symptoms and don't work. When they don't work the doses are increased higher and higher resulting in more to go wrong with our bodies. This also closes the door to treatment causing doctors and hospitals to dismiss life threatening issues, sending us home when we are actually so sick we should be in the ICU. I myself was declared clinically dead at least 10 times before my diagnosis, four because my heart stopped and I went into cardiac arrest and the rest because my blood pressure would drop below 60/20 which in the medical field is a pressure that is considered legally dead. With all but one of these I was sent home within an hour to a few hours of it happening simply told that was weird and sent home on paperwork for Conversion Disorder, Hypochondriasis, or some other psychosomatic disorder and is I was lucky this would sent me discharging me with a diagnosis of low blood pressure and that was that. One of my codes my mom was in the room, thank God for her. When I code no one came. My mom went running down the hall begging for help pleading for a nurse to help because no one was running to my room. The nurse told her I'm probably faking it and just pulled my leads off and told my mom just to ignore me because people like me feed on attention. My mom ran back to the room and thank God had some medical training as a girl scout leader because she had to take first aid and CPR. My mom brought me back. The nurse walked in right after and checked my wires. They are still in place. My state as well as several others protect their medical personnel against malpractice suits so there was nothing we could do. I've been sent home with gastric ischemia which is a life threatening condition where the blood pressure increases to dangerous levels in the intestines. It can cause the pressures to get so high it bursts and dissects blood vessels in the intestines causing a person to bleed to death. I was sent home with a diagnosis of General Psychosis and Anorexia as well as treated for anemia and vitamin deficiency. They blamed it on anorexia, not the fact I physically couldn't eat and was having bowel movements that were nothing but pure blood that everyone. Refused to look at. I had an allergic reaction so bad it almost killed me and was sent home diagnosed with conversion disorder and sent to my doctor who wanted me in ICU but upon refusal from the hospital to see me again even with my vitals so poor my doctor had to take care of me basically sending me home with what I called a take home hospital and working with my mom over the phone to take care of me available all hours of the night. I had a nurse try to give me 50 times the dose of this same medication that caused this. Been sent home with intestinal blockages, hernias, extreme dehydration, a UTI after they said the results came back negative only to get them in the mail a week later to see they were positive and by that time my UTI was so severe I had a kidney infection and was in kidney failure. I've sat there days and nights in a hospital bed where nurses refuse to answer my call light saying I have a conversion. Disorder, don't need to be there and I'm wasting their time and resources taking up a bed for someone who is really sick and that they won't be coming anymore the rest of the night not knowing I was one of the sickest ones on the ward and just misdiagnosed. I've had nurses rip IVs out of my arm, ya know how they push you to your car when you're released? There are a lot of times they pull my IV, tell me I'm not sick anyway and can do it myself having to take multiple trips to get my personal belongings out of my room. When I lost the ability to walk I had multiple doctors tell me I could and would pick me up, put my feet on the ground and the. Let go of
dropping me on the floor. This happened a lot at OSU with their doctors. Again and again dropping me and seeing I didn't have that natural response to catch myself and went straight into the hard tile floor with my fragile and damaged connective tissue would they say hmm. You really can't walk then send another doctor in who would do the exact same thing. I got picked up and dropped four times by four different neurologists just in the first week of being paralyzed and it's happened time and time again after that at other neurology appointments. I could go on and on. This is the stuff a lot of us go through. It's extremely common with EDS, most of us have complex PTSD.
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Most of us have an extreme fear of going to the hospital because that's when we are at our worst and at the same time, a time we get treated worse than anywhere else about our chronic illness. We go in knowing it's a game of Russian Roulette with a really high chance we will be sent home sicker than I came in. Worst of all, there's no way to treat our PTSD because it had to be treated by a doctor, the people we have the least trust in. Not only that but the cruel mistreatment never ends. Every hospital visit. I have had good nurses before but I have never gone to the hospital once where I can say everyone was good. I hear a lot of healthy individuals say endless good things about the hospital staff they had or they have some reason they have to go. When you have a rare invisible illness like EDS we aren't given that same care. The appalling lack of medical care never ends therefore it's impossible to even treat our PTSD. It's not like someone in the military who is in a war and when the war is over, it's done, they never have it go back and can get treatment and start to heal. It's like having to live the rest of their lives in that war as a POW who has been captured and imprisoned by the enemy and every time they get out they are found and imprisoned by another enemy and another enemy and then going to see a psychologist who happens for this only to find out the psychologist is one of those enemies from the other side who captures and holds others line you as POWs yet wants to try to help you get over everything that has happened to you even though you're still occasionally been tending by someone else and beat up before getting away again. Seeing a psychologist for us just doesn't work. We have no trust in the medical field and the gross mistreatment and lack of care is never ending. The EDS community can relate to this when one else can. While the healthy people we know, the people we grew up with, who became nurses and doctors themselves get mad telling us those doctors and nurses are heroes, they can do no wrong. That stuff doesn't happen, they are made up of the most caring and compassionate individuals. Those in our community and other rare or invisible disease communities know that degree of mistreatment all too well. We know the truth about the medical field.
We know they are no different than any other company. Identical to the people making minimum wage in a more trivial position such as a greater at a retail store. There are the good ones who take their job very seriously and want to do their job to the best of their ability truly valuing hard work and are highly motivated individuals but most people at a job are just working because they have to. They have bills but if they were multimillionaires there's no way they would be there now. They want to get the job done and go home. It doesn't matter how they get it done, it's just got to be done. These are quantity over quality people. They take working smarter not harder totally wrong, defining it in their mind as taking any short cut necessary to get it done. Ya know how at most jobs they would have, for example, 50 people but there are three of them that seem to pull all the weight. The three everyone thinks takes things too seriously because they hardly leave their desk or station. They don't take the time to walk around socializing and joking around with their peers. When things get behind they are the ones who stress and work really hard to get things caught up where others say I'm not getting paid any more, I'm not going to bend over backwards and stress about if they aren't paying me more. The three people first to volunteer for overtime and the least to grumble of the boss asks them to stay over another 15 minutes to finish something while on the other days a boss May say that if you get your work done you can go hike and everyone rushed to gst the job done to get out the door while those three are left sitting there at their desks to get the job done right whole also correcting others work that was hastily submitted so they could go home or start the weekend early. Just because someone is in the medical field doesn't make them any different from those who hold other jobs. If most of them won five million dollars they would be out of there. Forget the two weeks notice, heck they don't have to work anymore. Someone else can take their patients. If they're told its slow and they can go home when all the patients are out then one more comes walking in the door as they are packing up their stuff there are a lot if doctors will look to the people who are still working and say hey, I'm about to head out of here, do you mind taking this last Patient? It's human nature.
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As generations have gone on more and more people are lazy and the medical field is no exception. When you're chronically ill and have spent a lot of time in the hospital it gets really easy to spot those three people. The ones who if they were multimillionaires may cut back their hours but would never dream of leaving their job because their job means more than money to them. They take great pride in making people better, getting them diagnosed, saving lives and they can't see life another way. Those are the good ones. The good ones line any other job. They are far and few, they pull all of the weight, are walked on by other staff members, their managers usually fail to see their accomplishments as they don't spend a lot of time just hanging out with workers at a patient's expense. They are the ones who will advocate and fight for their patients to all ends but like any other job, maybe five percent or one percent or any other single digit percentage of the employees are these people so EDS patients my get one person on their care team that is amazing, maybe two but will never get a whole care team and it seems like the good ones get more far and few the higher the position. I've had more caring and compassionate house cleaning staff. STNA's, more good STNA's than LPN's, more LPN's seen to be there for the patient then RN's and more RN's. Doctors.
I don't think I've ever had a bad Volunteer at a hospital. The volunteers just love to be there for the patients, to put a smile on their faces and to know they made a difference in our lives. Rather it be to bring us a coloring book and crayons, their Emotional Support Dog around to visit us (which is my favorite) bring us a warm blanket or fill up our water containers. I've had one bring me a card and a flower in a small tube of water. The volunteers are there because they want to be there, not because they have to be there. It seems like the higher the person is on the pay scale the more people are in it for the money. Money talks even if it's at the patient's expense and usually if you have a complicated or invisible illness like EDS you are the expenditure. A community is important to know we aren't alone, to share their experiences, some in the group have become medical advocates and will fight for others in their area who can't get the help they need. These advocates, especially the ones with lots of training are invaluable to the EDS community. They may not be able to fix our problems but it's nice to know there is someone out there who tried. When you're at your worst advocating for yourself is extremely difficult and sometimes impossible and oftentimes our families don't do a lot of research on their own so aren't able to advocate for us so having someone who can is more beneficial than words.
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As you can see there are so many different reasons community is important and vital to all of us. Some use it simply as a way to relate or a way to make friends like them after losing the friends they had before their health declined to the extent their healthier friends no longer could relate to them and left. Many are involved in the community to gather information and gain knowledge about their conditions. Support groups are also there to talk, especially with so many who have PTSD. We can't trust a psychologist, psychiatrist or therapist as they are medical professionals and talking to a live person is more fulfilling than writing a journal that no one reads. Sometimes it's as if these individuals, having gone through this themselves, know just want to say and how to help us. Some are there as a medical advocate in their area. Someone who can be there for them in medical situations or even just to give them advice as to what to say to make doctors listen, direct them who to contact if they aren't receiving appropriate care and what to do or ask for from our medical personnel. Some even use these groups to find names of doctors that work with EDS patients or places to go where they may be able to get help or even ideas of what treatments work for others with similar comorbidities. There's even a few groups out there run by people who were medical workers before EDS ravaged their body to an extent that they had to leave the field. It consists of disabled nurses, doctors, radiologists and various specialists. This group works to tell us if we need a second opinion. We can post test results or imaging onto the page and since legally they can't have a diagnosis since they aren't currently working they give what's called a "non expert opinion, telling us what they see or would suspect and if we need to see someone else. I find all of these viral and that's why I see the EDS community as not an invaluable and essential part of my life and wellbeing as an individual with Ehlers Danlos Syndrome.
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