#tyrosine kinase inhibitors

[littleprincessfawn]

cw: leukemia, medical, negativity

I can only do about 15 minutes of activity before my body gives up, be that walking or cleaning the house etc. It's very inconvenient. Leukemia/the strong meds to send it to remission... it's really rough on my energy levels and my body's ability. I'm just tired all the time too, but I find it hard to sleep. And the scalp itchiness is so frustrating. I will try and improve my fitness/body strength which should hopefully help combat some of the leukemia stuff, maybe? I can't DO anything with my kid and I hate it. I just wish I could sleep and rest as much as I wanted/needed to.

[littleprincessfawn]

((CW: medical post about my leukemia, and treatment symptoms.))

Argh my leukemia rash... it subsided but never went fully away but was something I could deal with... But now it is back again, just as bad as it was in the early stages of taking the medicine.

I'm fairly sure this rash is caused by the TKI medication I'm taking, though leukemia itself can also cause a rash.

For me the rash is just on my forearms and my scalp. On my scalp it feels HOT. Have you ever bleached your hair? If you have, you will know that chemically hot burning feeling. That's what it feels like on my scalp.

And the thing I've observed is this, after a few days of that heat and irritation of my hair follicles on my head... My hair will start to fall out again.

I hate leukemia. I hate hate hate hate it. My hair is cute. I don't wanna lose it. But oh well. If taking this medicine made ALL my hair completely fall out, I would still take it.

I will never let leukemia win. I will always fight it with the best tools possible. I'm lucky I'm alive to have this whinge about my (admittedly trivial) itchy skin and hair loss.

Life > Hair.

[littleprincessfawn]

Tw. Hair loss, leukemia.

Was feeling really cute in the bath and took some reasonably tame pics to send friends I've fucked before but no longer fuck (because I MIGHT be brat when I'm sexually frustrated)...

and then fucking leukemia leukemiaed all over my fucking hair!!!

Sorry.

Dasatinib, the drug I'm on that is saving my life so I feel like such a little bitch any time I complain about a side effect, but anyhow one of it's side effects can be hair loss. A big clump just fell out. 😭

I feel like Neve Campbell from The Craft when all her hair starts falling out, I feel like... I dunno how to explain it but my hair has always been a part of me that I love so much, I know it's stupid and vain but it's been something I've been complimented on all my life. Anyway my hair IS super thicccck so I guess some hair loss isn't gonna be a problem.

I don't *think* I'm gonna go bald... I frikkin hope not but hey if it happens it happens I'd lean into it and wear a stainless steel collar like it's some kinda kinky slavegirl look I'm doing on purpose. Because hey this is how we survive, isn't it, pretending we are being kinky but really our body is being flooded with really honestly very cool tyrosine kinase inhibitors which might fuck up our bodies a little bit but also do the whole NOT DYING IN 3 YEARS thing, which I happen to think is rather lovely of it.

Hence me feeling like an asshole for whinging about something as vain as hair loss.

But venting keeps me a tiny bit sane through this absolute ridiculous leukemia nonsense.