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i wish there was a way to talk about the tiredness/wearing down that comes from disability. i don't mean fatigue in the usual physical sense. i mean like the way that you kinda always have to be on the clock when you're disabled. like every day involves managing and micromanaging aspects of your health. tracking symptoms, taking meds, getting up, getting food, getting washed. like it doesn't become easier. people say that when something becomes a habit it happens automatically and becomes easier to do because you don't have to actively choose to start and carry out that task everyday. there's no proper downtime when you're disabled because even if you have to do something daily, nothing we do ever becomes easy. every task feels like it's being done for the first time again. it always takes mental, physical, amd emotional energy. to do everything. every day. not only disability related tasks, but any single task that even abled people have to do. and it kinda wears you down. makes you tired. in a long term way that never really stops, because if you stop doing the things that are exhausting you'll just die because every single aspect of living is exhausting

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Disability is such a spectrum and I don't even know if you could truly say two people have the exact same ability level. That's why the whole "I can do this why can't you?" line that a lot of disabled ableists push is so frustrating. Babe, they can't do that because they don't have the exact same set of circumstances in their life and body that allows you to do the thing. There's a lot of varying ability and access within a diagnosis and just because you can do a thing with your diagnosis doesn't mean everyone else with that diagnosis can too.

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Ever since i was a little girl i knew i never wanted to be pregnant

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hard to take care of your physical health when you're struggling with your mental health and yet most people with physical issues develop mental issues from the stress and grief

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It’s May, which means it’s Ehlers Danlos Syndrome Awareness Month!

Since it’s massively underdiagnosed, I figured this would be a great occasion to share some of my favorite infographics about this condition. (And for any of you who have been wondering why my personal posts here are basically all about medical mishaps and weird injuries: it’s because of hEDS and comorbidities.)

To any of my fellow zebras out there, we will make it through this!

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ME: exercises, eats healthy, gets lots of sleep, sticks crystals up my butt, does underwater goat yoga, bathes in essential oils, eats a newborn baby, snorts charcoal dust

MY CHRONIC ILLNESS: I'm never leaving

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I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.

Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.

“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.

If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.

If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.

Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.

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I'm so tired of living in a "but some people will take advantage of the system!" system. I'm ready for a "but some people won't get what they need from the system!" system.

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conflict; empty victory; defeat

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brain fog? no i said i have brain frog. sometimes i can’t think because there’s just a little guy hoppin around in there

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Sometimes little pleasures in life are loadbearing. Whenever someone is like "If you'd just give up tea and coffee and sugar and--" im like I'll stop you right there. Because if you finish that sentence i am going to kill everyone in this building and then myself. If i have to face the horrors of the world without my little jar of caramel flavoured instant coffee i am going to go full American Psycho. Believe it or not, my main priority in life is not to have perfect teeth or be an Olympic athlete or look like a supermodel, but to actually enjoy living, because I spent far too long not doing that and it royally sucked. And boy, some people don't like hearing that. Particularly dentists

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the need for rest; contemplation; exhaustion

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I've been going around bragging about how I've really turned my health around recently without hinting at which direction I'm talking about

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Nobody in their right mind is pretending to be sick. We are clearly pretending to be healthy.