vela-aureum

[vela-aureum]

Alrighty we've got the knees, elbows, wrists, thumbs and fingers, any other joints wanna randomly start hurting while we're at it? Anyone? Step right up now don't be shy

/s

[vela-aureum]

[vela-aureum]

Even if your body isn’t what you wish it were, you can still treat it with the respect it deserves. While it’s completely fine to dream of certain goals and changes for yourself, it’s equally important to learn to appreciate your body for what it is right now. Don’t try to fuel yourself on self hatred.

[vela-aureum]

Me: I'm chronically ill which makes me disabled. I managed to adjust my life so I can live as comfortably as possible, which means I don't work, being poor, and not doing much. Sometimes I have to sleep all day, sometimes I go on hikes with my dog, sometimes I exist, sometimes I want to kill myself. That's my life and I'm okay with it.

Ppl: BbUuuTTt --- ThAt soUndS dEpreSSinNngG!

Ppl: buTtT --- I COulDn'TttT lIvE liKe thIsS!

Ppl: BbuUUTtTtT --- iSn'T tHEre ANyThiNg THaT caNn bE DoNe tO chAnGe YOur depREssIng stAte?

Ppl: bUuuUtT --- LivE iS abOUt LIVING, NOT EXISTING!

Ppl: buTT --- hOw cAn yOu LIvee LikE tHat?

Ppl: buTttTTTTT --- DoNt be So neGaTiVe, if IT wAsS mE, I WouLd bE mORe HopEFuLl, That thEre WiLL Be a CuRe, AND My dePreSsIng LIfesTyLe WoUlD eNd.

Ppl: BUttT --- YOure SUCH AN INSPIRATION!!! I wOuLdvE kIlleD MYsElf By NoW!

Ppl: BbUuutTtTTtTTttTTTtttTtFFTFTGdvdbdjaoownKGgafcwvsvezzeezhdhcbjdakwjcvgcudwkmqnbsgdhchnsbevahauJJKKKiHGFFFdDEGhJanBabakaksm

Me: Well, at this point we should think about who is the really negative person in this conversation.

Ppl:

Ppl:

Ppl:

Ppl: Yeah, no, you're negative, saying you're disabled is negative, disability is okay in and of itself, but don't call yourself disabled, because that's so negative, not having goals and not accomplishing anything in life is a wasted life, contributing to society is important, you're so poor for not seeing how you're wasting your life, you should really try to change something, although I admire you, because I would have killed myself by now, just saying.

[vela-aureum]

It's funny having a very high tolerance for pain but a very low tolerance for other forms of discomfort. Like yea tattoos piercings cramps shots cuts bruises whatever thats nothing. But I better not get nauseous or hear a loud sound. Or I'll die

[vela-aureum]

i wish there was a way to talk about the tiredness/wearing down that comes from disability. i don't mean fatigue in the usual physical sense. i mean like the way that you kinda always have to be on the clock when you're disabled. like every day involves managing and micromanaging aspects of your health. tracking symptoms, taking meds, getting up, getting food, getting washed. like it doesn't become easier. people say that when something becomes a habit it happens automatically and becomes easier to do because you don't have to actively choose to start and carry out that task everyday. there's no proper downtime when you're disabled because even if you have to do something daily, nothing we do ever becomes easy. every task feels like it's being done for the first time again. it always takes mental, physical, amd emotional energy. to do everything. every day. not only disability related tasks, but any single task that even abled people have to do. and it kinda wears you down. makes you tired. in a long term way that never really stops, because if you stop doing the things that are exhausting you'll just die because every single aspect of living is exhausting

[vela-aureum]

[vela-aureum]

Disability is such a spectrum and I don't even know if you could truly say two people have the exact same ability level. That's why the whole "I can do this why can't you?" line that a lot of disabled ableists push is so frustrating. Babe, they can't do that because they don't have the exact same set of circumstances in their life and body that allows you to do the thing. There's a lot of varying ability and access within a diagnosis and just because you can do a thing with your diagnosis doesn't mean everyone else with that diagnosis can too.

[vela-aureum]

Ever since i was a little girl i knew i never wanted to be pregnant

[vela-aureum]

hard to take care of your physical health when you're struggling with your mental health and yet most people with physical issues develop mental issues from the stress and grief

[vela-aureum]

It’s May, which means it’s Ehlers Danlos Syndrome Awareness Month!

Since it’s massively underdiagnosed, I figured this would be a great occasion to share some of my favorite infographics about this condition. (And for any of you who have been wondering why my personal posts here are basically all about medical mishaps and weird injuries: it’s because of hEDS and comorbidities.)

To any of my fellow zebras out there, we will make it through this!

[vela-aureum]

[vela-aureum]

ME: exercises, eats healthy, gets lots of sleep, sticks crystals up my butt, does underwater goat yoga, bathes in essential oils, eats a newborn baby, snorts charcoal dust

MY CHRONIC ILLNESS: I'm never leaving

[vela-aureum]

I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.

Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.

“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.

If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.

If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.

Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.

[vela-aureum]

I'm so tired of living in a "but some people will take advantage of the system!" system. I'm ready for a "but some people won't get what they need from the system!" system.

[vela-aureum]

[vela-aureum]

conflict; empty victory; defeat