#chronically in need of a nap

[duckyjokes]

Something I need people to understand, especially able-bodied people but I've gotten this from other disabled folk as well, is that yeah I could be doing more, but oftentimes I have to choose between doing what's required of me and what's good for me.

Yeah, I probably could get all of my schoolwork done no problem, but I'm so exhausted after just going to school that doing anything more than lying in bed for a few hours would cost me. Can I physically get up? Yeah, I do when my parents demand it of me, but it's not good for me.

I've tried doing more, I've tried pushing myself to do the things that I need to get done, it just doesn't work. I'll just be even more exhausted, I'll just be in more pain, and it's not fair.

Please stop reminding me of my "potential". Please stop telling me that I'm "not trying my hardest". I know that. Sometimes my hardest is hard on me.

[consider-your-potatoes-mashed]

How the fuck am I supposed to explain chronic fatigue to someone??? Like I need at least one nap a day to even kind of function in addition to going to sleep earlier than most people might. I am constantly exhausted, I wake up exhausted and I end the day absolutely drained and then I’m expected to do it all again the next day. How the fuck do I explain that sometimes even doing nothing is exhausting? How do I explain that I can’t do things sometimes because I’m so far past tired that I’m essentially not functioning? How do I explain to someone who says they get exhausted but can still function when they’re at that point that my exhausted is completely and utterly different?

[chronicpaingirlie]

not having a ton of awareness of my body sucks because i’ll be up and doing things and be like im fine :) 👍 and when i sit or lay down i feel like ive been run over by a bus repeatedly

[rushing-koiboi]

Some doodles of my new roblox avatar and also sebastian lalala

Teenage boy remembers free will idk

[meteorherd]

literally Just got back from conference absolutely wiped and i have a HUGE paper due tomorrow i haven't started and i still have to prepare to defend my thesis next week. lets all kill ourselves 😍

[atypicalcomfort]

Me: I don't think my chronic illness is bad today! :D I mean I just have a little pain—

Me as soon as I get home:

[howtobeapersonwithfibro]

So the thing about both sides of the back of your head hurting is there's no comfortable way to sleep turns out. Sides and back are both kinda out unless I find the perfect midpoint.

[minaespen]

my favourite thing about being an ambulatory wheelchair user is the weird looks i get when i try and tiptoe in my chair to move out of the way of someone.

like yes bestie they work they just hurt

[halogalopaghost]

When I was little my grandma used to say "I'm so tired I could cry" and I thought it was silly. Now I have chronic fatigue and I relate so hard I could cry

[primrosebitch]

you ever find out about an accommodation you had when you were in school that you weren't aware you had, bc i recently found out that i would've been allowed to go take a nap in the middle of the school day?? Like if only i'd have known about it when i could actually use it, i could've bragged so much.

[fairyspoonmummy]

You know post concert depression, but instead its before appointment depression/s idealisation.

[vicetrevni]

I feel myself spiraling again.

Time to disassociate and just lay in my bed for the next few hours.

[froggieco]

Wow the medical field has come so far in the treatment of migraines 😀

(I say as I'm lying in bed for the 9th day with no vision, light and sound physically hurt, and one side of my face is in complete excruciating pain)

Some things about me (context)

I've had a migraine for 2 years and I've tried and failed all the things the doctors have wanted me to and so now I'm just here with a constant migraine for an indefinite amount of time with no pain relief (so I'm a little aggravated at the medical community at, well, for a lack of better words, failing me.) Thank you for coming to my Ted Talk 😌

-Jamie (Joe/Noah)

[chronicgoofygoober]

[numenoria]

Me: *Proactively takes a rest day*

My body: Oh you mean sleepy time for the next 5 days straight?? 👀

[inseparabiles]

Having a moderately disabling but also massively painful fibro flare makes writing............... not great, thinking in this state just doesn't work in any direction like. Just holding coherent thought together long enough to create story content for the pain alone is difficult, but moreover for the fucking fibro fog holy shit the feeling like our brain's stuffed full of cotton and covered in honey and nothing moves in here at all. It's the "walk to the middle of the room only to realise you already forgot what you came there for" hours, but we're in the middle of a story at the same time. I've been writing and rewriting this paragraph for 10 minutes because holy shit I don't understand the English language suddenly and I have no idea if any of it makes sense even now.

However, we did do the one reasonable thing we could in this state, even if that isn't actually continuing the writing: built a timeline to keep track of when everything has happened, and what "everything" has been to begin with, because let me tell you keeping your shit together entirely inside your dysfunctional lil noodle for over 90 000 words? NOT easy.

Turns out, it's been four days.

Four. Four days. LMAO. We've written NINETY FUCKING THOUSAND WORDS. OF JUST FOUR DAYS WORTH OF STUFF HAPPENING

The timeline and summary alone are 2k words.