#panspandas

[pandaspansawareness]

Disabled Rage

We talk a lot about female rage which is great (rage that stems from a lifetime of being faced with misogyny), but we should also be talking about disabled rage (rage that stems from a lifetime of ableism, being misunderstood, and unable to get the appropriate care.)... For years I have struggled with a constant internal sense of anger that has destroyed my mental health and has caused issues with adrenaline surges and a fear of seeking healthcare. Here are some examples:

Tourette's specialists refusing to believe those of us with Tourettes when we say suppression harms us, and trying to silence people with the condition as they believe that they know more about TS than the people who actually have it.

POTS specialists acting like forcing yourself to walk more and exercise will cure you when POTS often co-occurs with ME/CFS and similar issues that cause post-exertional malaise meaning that being pressured to walk more and exercise can use what little cellular energy you have left to the point where your body cannot regulate the autonomic nervous system at all and it all just gets worse. Since using a wheelchair and exercising less my POTS has been less horrific to deal with but so many "POTS coaches" and doctors refuse to listen.

The "OCD cycle" making me feel like a failure for being unable to stop my rituals because I literally thought that my thoughts could cause the end of the world and that the aliens in the afterlife would be angry at me. I felt so guilty for not being able to stop this "OCD cycle" that I purposefully didn't get treatment for an ankle infection that had grown almost 10 times its size and had gone all purple because it made me believe I deserved the pain.

The medical system denying the existence of Chronic Lyme despite over 700 peer-reviewed scientific articles and studies showing Lyme and co-infections can persist despite antibiotics and therefore be chronic. If you believe in antibiotic resistance and post-infectious inflammation there is zero reason not to believe in chronic Lyme. Due to this denial, we are forced to spend thousands on private healthcare as even the NHS won't treat us. I would be de@d without long-term antimicrobials.

Autism "specialists" who know hardly anything about Autism and refuse to listen to Autistic people.

Natural and alternative interventions being seen as "quackery" even when they are evidence based when they are essential for those of us who react badly to medications or can't afford medications. I wouldn't be alive without some alternative interventions, and yes they are evidence based with scientific studies backing up their usage.

Hospitals being inaccessible with no room for wheelchairs in the waiting room, extremely high reception desks where they can't see a wheelchair user over them, toilets with the red call string tied up where disabled people ironically can't reach it...

Constant medical gaslighting, having doctors dismiss and belittle serious issues and deny referrals to the point you either have to spend thousands of pounds on private healthcare to save yourself or self-diagnose to save yourself as you have no other option and have people ridicule you and say "sElF DIAgnoSis IsN't VaLID" as if it's a choice - it is traumatic to have no option but to diagnose yourself because the medical system is in shambles and won't help you. Diagnosing myself in the past when doctors wouldn't listen not only reduced some of the trauma caused by doctors, and saved my life. It is a privilege to be able to get a formal diagnosis.

Not being able to exist online as a disabled person without being fake-claimed or harassed by strangers...

This is just the tip of the iceberg. I don't know if myself or others like me will ever find peace.

[bloodonvalentine]

i feel like something i never talk about on this blog are my experiences living with PANDAS. it's probably because it's not like, incredibly relevant to this blog, but i want to start talking about it.

it's such a poorly understood and rarely spoken about disorder and it has completely changed my life. i was like. somewhat normal until age 10 when i caught it. (yes this is a disorder you can catch, it's formed due to contraction of strep a)

this disorder has made my life a living hell.

im not going to go into detail, but if you look up PANDAS, you'll understand why. the only reason we even considered it as a possibility when i was getting diagnosed was because of the development of motor and vocal tics, which i had never experienced before 2017.

it's hell to live with, and i always say i got the short end of the genetic stick, but this is just a whole other level of bad luck.

anyway, thanks for reading my rambling. if you're interested in hearing more about it, lmk and i might make a blog for my personal experiences or something idk

bonus cat

[anonymoushuman2]

meet the love of my life and my best mate that insisted that I post these. The ones with the purple hair were taken at pride which was tons of fun. This bitch is the best thing to happen to me and I am hopeless to do anything other than what he asks. @eggsrus love you fuckhead.

[daviddavi09]

Episode 35: Autism Uprooted: Autism Moms Roundtable Middle East & Asia (Part 2) | BioNexus Health

Join us for Part 2 of the Autism Moms Roundtable on the BioNexus Health Podcast with Dr. Jodie A. Dashore, PhD, an internationally renowned leader in integrative medicine and pediatrics. In this podcast, Dr. Dashore discusses the top dietary concerns for children with autism—particularly those who struggle with high oxalates, candida, clostridia, and histamine. She provides safe fruit and vegetable choices, intelligent food rotation strategies, and anti-inflammatory methods to enhance nutrient utilization. Discover the reasons behind cravings for gluten and dairy products being responses, rather than preference, and how healing can be supported through customized nutrition plans.

[bncclinic]

Understanding PANDAS Syndrome: Symptoms, Causes, and Treatment

Discover essential information about PANDAS Syndrome, a pediatric autoimmune neuropsychiatric disorder linked to streptococcal infections. Learn about its symptoms, causes, and effective treatment options. For detailed insights, visit our dedicated page on PANDAS Syndrome.

Contact us: (03)9848 9100

Visit: https://www.adhd.com.au/pandaspans/panspandas-syndrome 

[its-ticsticstics]

Tic Disorders also include FND, PANDAS/PANS/BGE, tardive dyskinesia, and other brain disorders.

Anxiety/ADHD/PTSD/Austism etc tics are not real so please do not vote for those cases.

[pandaspansawareness]

If you developed OCD, a Restrictive Eating Disorder, or Tics at the same time as an infection or straight after, or suddenly along with other symptoms such as psychosis, or urinary incontinence / needing to pee more than usual, or Separation Anxiety, or Behavioural and Developmental Regression, or Dilated Pupils, please consider PANS/PANDAS/BGE.

[daviddavi09]

Episode 36: Autism Uprooted: Autism Moms Roundtable Middle East & Asia (Part 3) | BioNexus Health

Welcome to the final episode of the Autism Moms Roundtable on the BioNexus Health Podcast with host Dr. Jodie A. Dashore—PhD in Integrative Medicine, board-certified in Integrative Pediatrics, and internationally renowned clinician and author. In this enlightening episode, Dr. Dashore tackles some of the most difficult problems autism families encounter: chronic constipation, diarrhea, food sensitivities, histamine intolerance, PANS/PANDAS, frequent urination, picky eating, and hydration resistance. Real mothers tell their stories, and Dr. Dashore offers natural and functional solutions utilizing the BioNexus herbal protocol, with special emphasis on gut health, binders, enzymes, dietary approaches, and mast cell control. Discover the effects of inflammation, how to reintroduce eggs safely, and tips for enhancing hydration in non-verbal or extremely sensitive children. This season is full of empathy, clinical insight, and whole-person approaches to care that inspire hope and healing in autism families around the globe.

[daviddavi09]

Episode 39: Autism Uprooted: African Autism Mom & Dad Q&A Roundtable (Part 1) | BioNexus Health

Welcome to Autism Uprooted from BioNexus Health, presented by Dr. Jodie A. Dashore, PhD, renowned internationally in integrative pediatrics and biomedical treatment for autism. In this inspiring Part 1 of our Autism Moms Roundtable, Somali and Kenyan families unite with Dr. Dashore in an open Q&A discussion to discuss their experiences and gain insight into their children's healing processes. Discussion topics include struggles with hydration, diet management of yeast, hyperactivity flair-ups, EMF and mold sensitivity in schools, PANS/PANDAS triggers, herbal treatment die-off reactions, and immune suppression indicators such as lack of fever. Learn expert perspective and practical solutions for coping with challenging autism symptoms through the BioNexus tailored herbal protocol. This helpful and informative session is a must-see for parents and caregivers seeking genuine hope and effective healing.

[daviddavi09]

Episode 41:Autism Uprooted: African Autism Mom & Dad Q&A Roundtable (Part 2) | BioNexus Health

Hello and welcome to Part Two of the Autism Moms Roundtable on the BioNexus Health Podcast, your host Dr. Jodie A. Dashore—an internationally recognized expert in integrative medicine, board-certified integrative pediatrician, and leading-edge clinician in chronic illness and neurodevelopmental disorders. This informative and emotional episode gathers a community of dedicated mothers around the globe—Somalia, UK, Sweden, and more—sharing their compelling stories of working with autism, PANS/PANDAS, Lyme disease, mold toxicity, and more. Dr. Dashore provides supportive insights into discussions like feeding therapy, speech delay, mouth breathing, immune function, and customized herbal protocols. The conversation highlights the need to look for root causes, adopt non-invasive natural therapies, and never lose hope. Filled with actual success stories, actionable tips, and a warm community of encouragement, this episode is a must-see for families on the road to healing. To discover more or schedule a virtual consultation, go to www.bionexushealth.com.

[daviddavi09]

Episode 56: Autism Uprooted: Autism Mom Roundtable Eastern Europe & Balkans | BioNexus Podcast

In this riveting episode of the BioNexus Health Podcast, Dr. Jodie A. Dashore—PhD in Integrative Medicine, board-certified Integrative Pediatrics, and globally acclaimed clinician and author—dives deep into the issues of mold and biotoxin illness, Lyme disease, and autism spectrum disorder (ASD). Based on both state-of-the-art scientific studies and her own experience curing her son, Dr. Dashore discusses the limitations of urine mycotoxin testing, the need to grasp chronic inflammation and cytokine reactions in mold illness, and the necessity of whole-family recovery. She offers encouraging and uplifting information for ASD-impacted families, highlighting that recovery can occur at any age as long as medical underlying causes are discovered and addressed. The episode also explores breastfeeding considerations, cutting-edge herbal protocols, and future intentions for worldwide practitioner training. Full of empowering information and loving encouragement, this episode is a must-see for parents, practitioners, and anyone working toward recovery from chronic illness.

[daviddavi09]

Episode 57: Autism Uprooted: Electromagnetic Fields (EMFs) | BioNexus Health Podcast

Welcome to another thoughtful installment of the BioNexus Health Podcast series Autism: A Journey of Prudence with Dr. Jodie A. Dashore, PhD, internationally acclaimed clinician, author, and autism parent. In this episode, Dr. Dashore explores a pivotal but often disregarded factor influencing recovery in children on the autism spectrum: electromagnetic frequencies (EMFs). As part of her latest series on the top five reasons children aren't getting better, she presents her own experience with her son's recovery and the dramatic effect EMFs had on his symptoms—i.e., motor and vocal tics. Dr. Dashore explains the relationship between EMF exposure and flare-ups of microbial conditions such as mold, Lyme, and parasites, and the need for EMF shielding in the healing process. Real-life experiences, such as a remarkable case with an electric car, illustrate the concealed dangers of new technology. Listen to discover how EMFs quietly undermine progress and what you can do to keep your child safe and recover quickly. Be sure to subscribe to this free, educational channel in order to help share awareness with autism families all over the globe.

[daviddavi09]

Episode 65: Die-Off Reaction (Jarisch Herxheimer) Q&A Roundtable (Part 1) | BioNexus Health Podcast

In this informative episode of the BioNexus Health Podcast, Dr. Jodie A. Dashore leads a live Q&A session on die-off reactions—also referred to as Herxheimer reactions—typically reported during antimicrobial or detox interventions. Initially proposed for the autism community, the conversation broadens to encompass an array of chronic ailments such as Lyme disease, mold sickness, PANS/PANDAS, and Mast Cell Activation Syndrome (MCAS). Dr. Dashore offers clear insights on what causes die-off, how to distinguish it from emerging symptoms, and how to deal with it in a successful manner. She also clears up common myths, highlighting the need for accurate diagnosis and not assuming all symptoms are die-off. The episode includes actual questions from parents and patients who are living through complex health experiences, and because of that, it is a must-watch for anyone involved in chronic illness healing. Note: The information is for educational purposes only and should not be substituted with professional medical advice.

[daviddavi09]

Episode 66: Die-Off Reaction (Jarisch Herxheimer) Q&A Roundtable (Part 2 ) | BioNexus Health Podcast

In this informative and engaging episode of the Bio Nexus Health Podcast, master herbalist and expert in all areas of integrative medicine, Dr. Jodie A. Dashore, delves deep into the complexities of die-off reactions, autoimmune responses as PANS/PANDAS, and how parents can navigate healing protocols for their children. Joined by several parents, Dr. Dashore takes her time to address various questions with a sympathetic but detailed explanation regarding die-off reactions, acknowledgment of symptoms such as OCD and anxiety, control of re-exposure to environmental toxins, and the best detox support strategies. Based on Dr. Dashore's widespread experience in the clinic and recent postdoctoral training in immunology at Harvard Medical School, she emphasizes the significance of individualized protocols, environmental control, and routine lab testing. Must-listen for parents, caregivers, and practitioners supporting children with chronic and environmental illnesses like Lyme disease, mold toxicity, and autism spectrum disorder.

[daviddavi09]

Episode 104: Autism Uprooted | The Power of Camel Milk in Autism Recovery | Real Parent Testimony

Tune in to the BioNexus Health Podcast as we explore a heartwarming autism recovery story with Benazir from Pakistan, who discusses her son Hamza's incredible improvement on the BioNexus Camel Milk Protocol. Learn how this well-timed intervention improved his speech, interaction, body awareness, and overall health. Learn how camel milk, when introduced at the appropriate stage in conjunction with a holistic protocol, can nourish gut health, immunity, and neurological function. Don't miss this revealing conversation with Dr. Jodie A. Dashore on natural healing and autism recovery.

[daviddavi09]

Episode 105: Autism Uprooted | Unlocking Speech in Autism | BioNexus Health Protocol Explained

Come along with us on the BioNexus Health Podcast as Dr. Jodie A. Dashore explores the BioNexus Speech Protocol for the recovery of autism. On this episode, we cover the step-by-step process of enhancing speech, neurological function, and overall health through natural protocols. Discover the incredible benefits of essential oils, herbal blends, and blood circulation support in enhancing speech and consciousness. Learn actual success stories, such as that of Hamza, and develop important insights into comprehensive strategies for autism and special needs care. Keep watching for professional advice on natural healing and customized recovery.