#pdds

[thecorvidforest]

to my psychotic/paranoid/OCD/other friends - you might start seeing posts in the next few days about how the rapture supposedly happened or is going to happen very soon. a group of evangelical “rapture watchers” think the rapture happened 9/22/23 for a handful of reasons, such as the dates lining up in a way that’s somehow significant.

i promise the rapture didn’t happen. i don’t personally believe in the rapture and i have nothing against those who do, but it for sure didn’t already happen. if it did everyone would know. there would be tons of footage. anyone who tries to claim it did happen or that they know the date is either lying or misguided.

[dogpantry]

please watch my scrungly old man kiss the inside of a glove

[muttren]

i have a disability. more specifically, i have a rare genetic condition called camurati-engelmann’s disease, or CED. it is also known as progressive diaphyseal dysplasia (PDD). it is an extremely rare disorder and only around 300 cases have been reported worldwide.

i figured i would make a post talking about it, in an effort to not only educate others, but to possibly connect with others who suffer from it as well. i apologize for the longer post but please this moment to learn about my disorder.

CED is a skeletal condition that is characterized by abnormally thick bones (hyperostosis) in the arms, legs and skull. the overgrowth in bone causes bone pain, muscle weakness and extreme fatigue. the pain feels like an electric stabbing pain, an ever-increasing pressure sensation around the bones affected, or a constant aching. pain can also occur in joints and they will often lock-up, becoming immobile and stiff. the pain is especially severe during 'flare-ups', which can be unpredictable, exhausting and last anywhere from a few hours to several weeks. this is a common occurrence for us, often causing extensive sleep deprivation from the chronic, severe and disabling pain. when this happens, we are often bedridden or housebound for days or even weeks.

those affected also have an unsteady walk and limp. thickening of the skull can also lead to neurological problems, like hearing loss, vision issues, vertigo and tinnitus. symptoms vary in severity from person to person. there are treatments, however it cannot be cured. pain management is a large aspect of living with this chronic disease.

there is very little awareness and research for CED. rare diseases are severely neglected and overlooked, as are those who suffer and live with them. research is often not considered profitable due to their cost to develop and the limited patient population. major federal funding agencies give preference to research that is likely to have a direct impact on patients.

living with a rare disease is extremely difficult and isolating. it impacts the lives of millions of us and our loved ones worldwide. those of us suffering from rare medical conditions should be entitled to the same quality of treatment as other patients. i am disabled, but i am worth it.

[yourbuddykermit]

is aphmau tumblr a thing..

[ginnyw-potter]

The Potter Pointe Shop

Ballet AU, strangers to lovers

Jily prequel to Hinny's Pas de Deux (Link to the series)

Explicit

3 Chapters

20K words

James works in the Potter Pointe Shop together with his father. Every pointe shoe is an ode to his late mother and ballet dancer Euphemia. When the talented ballet dancer Lily walks in to pick up her shoes, James quickly realises he is completely and utterly lost for her. His father's encouragement only stresses him out more. Someone messes with her pointe shoes during the day of her dress rehearsal and James takes it upon himself do to an emergency delivery.

Chapter 1

The doorbell to the shop rang and a young woman walked in. She had long dark red hair and her cheeks and nose were red from the biting cold outside. She exhaled in relief when she stepped into the warmth of the shop.

James stood by the till and watched her. He momentarily forgot their usual greeting his father insisted on. “Hi.”

She smiled in greeting, loosening her scarf a little. “Good morning.”

“Good morning,” he said, his brain finally kicking back into motion. “Welcome to the Potter Pointe Shop.”

She walked up to the counter. “Thank you.” Her head tilted to the side when he did not say anything. “I am here to pick up an order.”

[artificer-real]

yknow i think persistent depressive disorder has got to be pretty high up there on the list of most bullshit mental illnesses. like yeah you got unlucky genetics and now you hate your life forever. no piece of mental health advice anyone gives you will ever help xoxoxo

[mymusingsaftermidnight]

I'm not gonna lie. Its really annoying that persistent depressive disorder is like... Persistent

[narcissisticpdcultureis]

NPD + PPD traits culture is never knowing how to respond to compliments because I know I'm great. Why would I need you to tell me? In fact, now I'm suspicious. Why would you compliment me at all. It's obvious how great I am. Why would you tell me if you didn't have an ulterior motive? What's your game? What do you want?

.

[thetrashthatsmilesback]

A lot of us american dx-ed autistics are encouraging american undiagnosed autistics not to pursue diagnosis at the moment. This sadly doesn't address what accommodations one might need, so here are options to discuss with your treatment team (general practitioner, psychiatrist, therapist, social worker, etc).

I want to emphasize that this post is not encouraging doctor shopping. It is encouraging discussing other possible diagnoses who's criteria you fit which will gain you accommodations you might need as an undiagnosed autistic person without pursuing diagnosis

For speech therapy, a certified speech pathologist can assess you for any number of speech impediments as well as selective mutism, and insurance will cover care for these diagnoses. While some treatment approaches differ for those on the spectrum, this will allow you to access a level of care for speech and language difficulties (this is actually what happened for me as a young child before I was diagnosed)

For school or work accommodations, anxiety and ocd diagnoses (which are often comorbid with asd) can get you extra time on assignments, access to a quiet room during work hours, extra time when test taking, access to a quiet test taking room, and more. A diagnosis of sensory processing disorder can get you access to a quiet room during work hours, a quiet room for test taking, and potentially the ability to type your notes in classrooms that otherwise do not allow it. All of these can be diagnosed by a GP or psychiatrist.

You can qualify for disability payments with a diagnosis of any of the above, as well as any number of other autism comorbidities such as depression.

Any of the above diagnoses *may* allow you access to either a note taker or a recording device during classes or work meetings. (I am unsure as I had access to these explicitly as an autism accommodation, though my cousin has access to them as an adhd accommodation)

Autism resources you may face barriers to without a proper diagnosis:

Autism grants

Occupational therapy

AAC payment aids

Proper AAC training

Access to aids which can help with ADLs and IADLs

Edited to fix a typo

[dazzlingsuns]

Pas de Deux

AO3 | fanfic.net

Summary: For as long as she could remember, it had been Lucy Chen’s dream to dance for the prestigious Mid-Wilshire Ballet Company. That is until infamous, guest choreographer Tim Bradford walks through the door, determined to craft his greatest masterpiece yet.

AKA, I fucked around and wrote a 7k Chenford Ballet AU

[soapdispensersalesman]

Sup Tumblr, I trust the book recommendations of y'all

I have autism, PDD-NOS and Asperger's Syndrome (I know about Hans Asperger but idk how else to call it, ASD feels so "general" for me), and was curious what books you'd recommend on things like socialising, but not just conversations, but also specific things like banter and flirting.

Feels a bit embarrassing to say, but I still have not yet entirely grasped the concept of flirting, I get the idea, but want to understand what it exactly is, if there is a goal and why, and just generally want to learn what makes it so fun as I find it very fascinating.

Thing is, when I try to look up books like these, it's either very surface level information being explained in children's language, or it's books about (how to date someone with) autism aimed at neurotypicals.

Lemme know what you'd recommend :)

[ziggaroni-and-cheese]

Weh

[ginnyw-potter]

Pas de Deux

Ballet AU, ‘enemies’ to friends to lovers, secret dating

Hinny with a Jily prequel (The Potter Pointe Shop - which I will start posting after chapter 2)

Explicit

10+ Chapters

50K+ words

Ginny has worked so hard to become a talented ballet dancer among the rich kids who could afford expensive classes from a young age. Finally she gets her big break, only to be paired with Harry Potter. She has never met him, but she assumed he only earned his spot with nepotism. His mother is a retired ballet star (and Ginny’s idol) and his father and grandfather own the iconic Potter pointe shop. It takes her time to let him in, but once she does it’s difficult to keep any distance at all.

Chapter 2: The Burn Book

Ginny exited the showers on Friday, happy to be done with the first weeks of rehearsals and giving her mind a bit of rest for the coming two days.

She walked up to her locker when Harry came up to her. She raised an eyebrow in question, because they hadn’t really talked more than absolutely necessary.

“Can we talk?”

She nodded and then she followed him into an empty room. She turned to him and waited for him to talk.

“What did I do wrong?” he asked her.

She stared up at him, surprised at the direct question. She didn’t immediately know what to say, which was very unlike her.

[venusiinfurss]

guys big news my brain told me that if i think about It one more time than It will stop hurting

[toppamplemousse]

i promise. i’m working on pas de deux. i promise. work is just taking everything out of me and i do not have the brain power to write rn ☹️ chapter 3 will be there at some point