anidealme
185 posts
they/them | 20 | sideblog | chronically ill
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I wish they could invent a medical device that temporarily transfers your symptoms and pain to the doctor treating you and it worked like a shock collar. “I think light exercise would-.” and then bam they’re rolling around the floor clutching their stomach in agony and dry heaving.
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person with 6 comorbid mental disorders: I'd be the strongest person on the planet if not for these 5 comorbid mental disorders
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Sometimes when life is tough you just have to go to the bakery and pick out some donuts.
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been sober for 2 months now coz i keep almost getting hired (need drug test) but still don't have a real job. my gummies were my most powerful pain meds and i am. struggling. i have been struggling for the whole time. but it just keeps compounding on itself and now i'm just. i hurt. i'm tired. i want money but i also want the pain to stop for a few hours. god fucking damn it
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idk if this is a phenomenon that has a name yet but like. scheduling doctor's appointments when you work a 9-5 job is really fucking hard when said doctors' offices are also open 9-5 and closed any time i could actually make it without needing to take PTO. im lucky bc my boss doesn't care if i duck out for under an hour for medical stuff but he very easily could force me to submit PTO for all of it. staying healthy in this country is such a hellscape on so many levels
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your post about how you can only eat five things now and you're hungry all the time had me nodding like, ah yes, another point in favor of vampirism as a kind of chronic illness,
DUDE I AM THINKING ABOUT THIS *ALL OF THE TIME*
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"Just a cold" that puts holes in your mitochondria doctor's can't see.
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The pituitary gland and Long Covid.
Imagine a tiny gland in your brain, the pituitary gland, suddenly engulfed in ‘flames’ of inflammation. Could this be driving much of the overlapping disease pathology observed in both ME/CFS and Long COVID?
This hypothesis was recently explored by scientists in a recent review of the scientific literature. They propose that inflammation of the pituitary gland could be the culprit behind ME/CFS and Long COVID in some patients. The pituitary gland is a crucial part of the hypothalamic-pituitary-adrenal axis, a system that helps regulate our stress response.
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Something I think people who don’t live with chronic illness don’t understand is that there is a big difference between resting to get better and resting to avoid getting worse.
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actually as long as we're talking about realistic expectations of ageing, the nature of social media decontextualising people's personal posts has absolutely given some of you guys a false and potentially dangerous view of how your body is expected to change over time. I semi frequently see people sharing or repackaging commentary on experiences with disability as if it's an inevitable part of getting older. and like, yes, as you get older you are likely to develop new conditions, injuries or disabilities, but you need to understand your body's baseline well enough to identify those changes and interrogate them.
e.g. if you are seriously having such bad joint or back pain in your 30s that it hampers your day to day activities, you need to take that seriously. that is not 'just ageing', that's potentially an indicator of an underlying condition, unaddressed injury (which is quite common but will get worse if you don't notice and take care of it) or daily habits (poor posture, poor diet, sedentary lifestyle) causing cumulative damage to your body.
I know plenty of 30+ and 40+ year olds who are not especially athletic but who can still climb up and down stairs with ease, sit on the floor and get up again without discomfort, have floor or shower sex, ride a bike, wrestle a dog or a kid, climb a tree, maybe even do a handstand. there is no shame at all in developing pain or mobility issues which limit the kinds of things you can do comfortably, but it doesn't serve anyone to pretend that those changes are bound up with reaching a certain age. even in your 60s and 70s and beyond you should notice if you start feeling a new kind of pain or physical limitation. don't dismiss this shit just because someone told you "yeah that happens when you pass 30"
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Well, you know what they say; Rome was built in a day, and if you're going any slower than that, you're basically fucked with no hope at all
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source
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If your having a bad day, just remember that Kon is always somehow having a worse one
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