cystic5roses - Tumblr blog

[cystic5roses]

we dont deserve dogs 

[cystic5roses]

[cystic5roses]

humanitarian efforts

ive been working on a project for a bit now and im looking for short videos or pictures to help in a humanitarian project for those in E. Aleppo that im working on with a group of women who started the #StandWithAleppo tag, which has now gone global. if youd like to be involved please send me a quick message and ill get you started!! No matter where you live or who you are your voice matters, let it be heard! get a hold of me!!!

[cystic5roses]

some new reading for yall!!!! how do you measure your success??

[cystic5roses]

this is a link to my page on facebook Living Breathless in the Windy City, its my life with cf adn going through transplant, but also about life in general being a 20 something with a chronic illness. i post all of my blogs (and soon to be vlogs) on there as well, please check it out share it around if you please and i hope it catches your attention!

[cystic5roses]

been ages yall miss me?? keep up to date!

[cystic5roses]

get it done yall leggo!!!

[cystic5roses]

my newest post, half venting out an anxiety filled night and half hoping for no more. please give it a read and pass it along should you feel compelled. 

[cystic5roses]

since starting school again ive been struggling with the harrasment of a certain student and recently some through my facebook as well defending said student. Im writing this post to try to spread what its like to have to deal with thehate day in and day out. and how to deal with it when it happens, id appreciate the read.

[cystic5roses]

Ive been forgetting to post all my blog entries for a while and so much has happened, ill be better in the future!!! also if you have a moment and would like more insight on a day to day with CF please check out my instagram page at

https://www.instagram.com/yolksonyou24/ 

feel free to share around. lately since starting school ive realized just how unaware of CF people are, especially younger generations. Im beginning to work very fiercely with the CFF and other amazing organizations to bring awareness to our lives!!!

[cystic5roses]

After a long day, no drink or drug could ever calm me or put me at ease quite like the warm snuggles from this little man <3 #jackhuahuasofinstagram #jackhuahua #dogsofinstagram #love #goodnight #sweetdreams #cuddles #bestfriends

[cystic5roses]

All while rocking an active lung infection and 31% lung function. #beast #cysticfibrosis #strongashell #workingtheselungs #fitbit #fitlife #imaliveforever

[cystic5roses]

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A post shared by rachel (@yolksonyou24)

My niece and I don't understand #playground equipment..... #fail #maggiedailypark #chicago #slide #imakid #weneedhelp

[cystic5roses]

Now THIS is a park :) #maggiedailypark #chicago #downtown #summer #play #city

[cystic5roses]

The stares are real. Cyborg tummies for the win. #tubetwins #gtube #montrosebeach #summer #sicklife (at Montrose Beach)

[cystic5roses]

Beach day!!! (@ry_the_stunner first lake Michigan experience!!!) #montrosebeach #chicagosummer #cffriends #beachday (at Montrose Beach)

[cystic5roses]

He's perfection!! #bestfriend #jackhuahua #puppiesarelife