fozzie13

[fozzie13]

I have a filing cabinet of paperwork on Zechariah, IEP's, hospitalizations, and evaluations. Today I was going through it, since I haven't in awhile, and came across his official ADOS (autism diagnostic observation schedule) Developmental Evaluation. He was 2.5, it was done on March 8, 2007. They detailed the entire event, his distress being in the room and the time it took us to get him to calm. The time he spent picking at the spots in the play dough and pulling at loose strings in the carpet and toys. The sounds he made to express what he wanted. Out of a score of 24 he scored a 21. I remember when they told me what this meant, that a score of 12 or higher was indicative of autism. I cried, out of relief and sadness. In the file with this paperwork was also an overwhelming amount of printouts, anything anyone came across that discussed autism. We have navigated so many different waters since then. I am so thankful for the patience and help from everyone. Those who've shared information, studies, or new therapy methods thank you for thinking of us. We are dealing with some things (sleep and developmental) that have always been a concern but have proved to become a larger and larger disturbance in his life. We are hoping soon to have some more answers, maybe a course of action, and continual forward momentum.

[fozzie13]

I checked the mail and all I can do right now is sob the happiest mommy sobs. You are showing him the good in the world, you are showing him he matters. I can't ever thank you enough.

[fozzie13]

Once In a Lifetime Birthday

Our son, Zechariah, lives with autism as well as a host of sensory and behavioral accessories. He is a big kid for his age, at 10 years-old he is 5 feet 1 inch, which can be deceiving to some adults and kids when they meet him, he is developmentally delayed and is a lovable 5 year old at heart. He doesn’t have any friends, we have been home schooling him due to some issues at school that exasperated his behavioral difficulties so his world, sadly, is pretty small and limited. He tries to play with others but a lot of kids have a hard time understanding him and some his personality nuances. He has gone a year without any hospitalizations which is another awesome reason to celebrate and help him feel the love from everyone. I have seen other parents get support helping their kids have an awesome birthday and so I’m hoping for a little of that love for him as well. His birthday is August 18th, I’m asking early in hopes that I can get maybe fifty cards in the mail to surprise him with at his birthday. There is one minor addition though; Zechariah had said last year it would be neat if he had a birthday party and the kids each brought a Lego piece he could use to make something he could take a picture of to send in to Lego magazine. Unfortunately, none of the kids we invited (outside of his sisters and a few cousins) came to his party. It has always been that way so I’m hoping you would be willing to help make this year special for him. If you happen to have a single Lego piece laying around you’re willing to part with and could toss it in the card that would be so cool. I know this is out of the ordinary but we are under some strict financial budgeting and won’t be able to do much for him this year. Getting some cards to help him feel special on his birthday would help all of our hearts feel happy. He has two sisters that feel sad every year that his birthday is different than theirs and are asking some of the kids in their classes to send a birthday card too. Cards can be sent to: Zechariah 2248 Pintail Ct Kalispell, MT 59901 If you are unable or uninterested, no worries, but if you could maybe share this in hopes someone else may like to that would be incredibly awesome. Thank you all!!

[fozzie13]

The other day a friend of mine on Facebook shared this video made by an upset mom: Honestly I cried while listening. I could completely empathize and felt her outrage. As a fellow mom of a special ...

[fozzie13]

When it is confirmed your child will be living life differently then you planned there are a lot of emotions, for me it was a deluge of probably every emotion in the book. I was relieved for a litt...

[fozzie13]

I want to start by explaining how important it is that a woman make an educated decision on how she wants to experience birth. There is only one right way to have a baby, your way. While I believe ...

[fozzie13]

So I took the weekend off from blogging. It was weird, and funny, because I still wrote blog posts in my head. I would see or hear something and my brain automatically started devising how to make ...

[fozzie13]

Back in 2011 after I recovered from my gallbladder removal I wanted to get healthy. I wanted to be the strong woman I felt was hiding somewhere deep inside me, I wanted to be athletic and make peop...

[fozzie13]

Honestly the one thing that probably makes me the most upset about being out and about is parking lots. If it weren't for having to navigate these slabs of concrete bathed in ignorance and entitlem...

[fozzie13]

Soft block issues and a DIY, not bad for a Monday post.

[fozzie13]

Imagine if at the end of Terminator he said "BRB." :-/

[fozzie13]

Technology makes me feel old. Not because I don't understand it necessarily, but because I still remember a time it wasn't such a huge part of life. I was messaging my Aunt yesterday and she said, ...

[fozzie13]

"Life is too short to be concerned with what others think. Whatever you are in to, whatever you love, let your flag fly high with gusto and life."